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My son has died

207 replies

dandelionfluffy · 29/10/2026 20:14

On Sunday my gorgeous DS died aged 14. I was in his bedroom as he hadn't been that well in the night but I checked his pulse and breathing and lay down on the other bed. Two hours later I woke up and he was blue and stiff.

He had epilepsy but they need to do an investigation if a child dies suddenly so we had to be at the hospital all day answering questions from the police. They have now issued the death certificate.

I can't really think what else to say but I wanted to put something on here - this isn't my long term username but I lost my mum in July also and set up a new username. This is just about a million times more awful. It feels like it isn't the same planet as losing an elderly parent. Not even the same universe.

We are currently in negotiations about how he will be buried but we are churchgoers and we will have his service at our regular church. We do feel relieved that the funeral service will be comforting and we don't have to make too many decisions.

My DD is 12 and she is clearly trying to be ultra busy. She's been to stay with a friend for a couple of nights and is going trick or treating with a friend. She was supposed to be spending half term doing things with her brother. She says she doesn't want to be an only child.

We have friends around us, one friend came to stay for a couple of nights and we have people locally who support us. Some friends have chipped in to send us some Cook meals. Everyone is being so lovely. I almost feel like I haven't got enough to do but then I break down in tears over a text message.

OP posts:
Legomum789 · 29/10/2026 21:17

I am so sorry to hear what you’re going through. Sending lots of love.
I think the idea of making something with his Lego is a brilliant idea. You said the pieces he has aren’t great for making flowers. Why not make something else: animals for example. There are apps online where you can take a photo of a pile of bricks and it will tell you things you can make with them. Or, if you’d like some Lego flowers there are so many Lego botanicals kits. Maybe you could build one with your daughter.
Most of all, be kind to yourself. Take a day at a time and do what feels right for you xx

lightlower · 29/10/2026 21:19

I am so sorry for your loss OP. Please know that you and your family will be in our prayers tonight x

Petesbowtie9 · 29/10/2026 21:20

I am so very very sorry

CravingSolitude · 29/10/2026 21:23

I'm so sorry for your loss OP. I have lost a child and remember those early days well. There really is nothing to compare to what you are going through right now. Take one day at a time and do whatever you need to do to get through these times. Much love to you on the journey ahead. 💐

FrogsLoveRain · 29/10/2026 21:23

I am so, so sorry

MudandMoet · 29/10/2026 21:25

So sorry OP. Sending love and strength xx

poppinpink · 29/10/2026 21:29

I am so so sorry. I can’t imagine what you are going through. Sincerest condolences from one mother to another 🤍

Puffalicious · 29/10/2026 21:31

Oh OP, I am so sorry. It is a mother's worst nightmare. I also have a 14 yo DS with epilepsy. My heart is breaking for you, truly.

Hold your loved ones very tightly.💚💜💛🧡🩷❤️🩵💙

ChilliPotato · 29/10/2026 21:32

I am so sorry.

Porkpieandmustard · 29/10/2026 21:38

So sorry to hear about your son. Thinking of you and your family.

LatteLady · 29/10/2026 21:38

@dandelionfluffyFirstly I am so very sorry to read about the death of your son, just totally unimaginable. And definitely harder still, because people really have no concept of how dangerous epilepsy can be. I recognise the routine you had to go through as I was previously a Child Death Review Officer and a sudden death is doubly worse for the family. Has anyone explained what else will happen amongst the professionals and what the timeframe might be? Happy to DM you and explain what else happens in the background and the amount of time it takes and why.

As your son was into Lego, have you considered, with your daughter reaching out to his friendship group and hosting a Lego and Pizza night. They will all be desperate to do something practical and whilst it might be a challenge having them at your house around a table talking about him and working on Lego, it might be really therapeutic for all concerned. Not sure if you were getting him a special kit for Christmas but I reckon if his friends could make that for you, it would be really special.

And, sod Mumsnet etiquette, I am sending you a hug to use as necessary.

ihadamarvelloustimeruiningeverything · 29/10/2026 21:38

Oh I am so very sorry , sending you so much love xx

Peridot1 · 29/10/2026 21:39

I am so very sorry. There really are no words to give the comfort we would want because there is no comfort. It’s unimaginable. Sending you all strength.

@MysweetAudrina - condolences to you too. I cannot even imagine the pain.

parietal · 29/10/2026 21:39

So sorry to hear this. It is such a shock.

lego trucks are just as nice as flowers and could work mixed in with real flowers.

accidentalmillionaire · 29/10/2026 21:39

Lego and animals? He sounds like the best kind of boy. So very sorry. X

SpringSalvia · 29/10/2026 21:40

So sorry OP 😔

rollerblind · 29/10/2026 21:42

So so sorry for your loss. Xx

TheWormThatTurned · 29/10/2026 21:43

I’m so sorry. I lost my daughter 8 years ago so I know a little of what you are going through.
Take each day at a time. Take any and all support offered. Look after each other.
I’m not going to say it will be easy but you will get through this.

SallyAnnDrivesACar · 29/10/2026 21:44

I'm so very very sorry.

Orangebadger · 29/10/2026 21:46

I am so very sorry, I really can’t find the right words. But I can totally understand how it feels like a different universe to loosing your mum. Lots of love xxx

NooNakedJacuzziness · 29/10/2026 21:49

I’m so sorry - it must feel like your heart has been ripped out. I hope your faith helps you through this

0psiedasiy · 29/10/2026 21:50

So sorry x

FlamingoFloss · 29/10/2026 21:50

I am so very very sorry for the loss of your dear boy xx

CoconutSwirl · 29/10/2026 21:50

Words feel too trivial to fully convey to you the depth of my understanding of your sorrow. I am with you in spirit. Sending all my love to you. I hope you are surrounded by love right now.

Thedogdaysarentover · 29/10/2026 21:50

I'm so unbelievably sorry for your loss, you must be devastated. Life is so unfair.

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