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DS needs 4–5 months of treatment in the US, complicated family situation

208 replies

kaatee · Today 07:30

Urgent advice needed because I honestly don't know what to do I'm really struggling with this and don’t know if I’m overthinking everything, so would really appreciate some honest opinions.

My son is 15 and was diagnosed with a disease about 3 weeks ago. I was obviously really scared at first but after speaking to his doctors and getting all the tests/reports done, they have reassured us that it isn’t dangerous to his life and he is safe, BUT he needs treatment fairly urgently otherwise it could become serious.

They have recommended a specialist hospital in Los Angeles. My ex husband and I have been in contact with them, they have seen all his reports and spoken to his doctors here and they are saying treatment will probably take around 4-5 months. They are expecting him to be absolutely fine after treatment, so thankfully the doctors aren't making us think the worst.

Money isn't really the issue, we can afford it. It’s the whole logistics of it which is making my head spin.

My ex husband and I have 50/50 custody of our three children. They are very close to both of us and honestly they aren't children who can just go and live with one parent for 5 months. They are used to having both of us around and are very attached to both of us.

So we are thinking that me and my ex husband would take all three children to LA. We would rent a house there and my son would have his treatment, while the other two would go to school there for the few months.

That part is pretty much what we are planning.

The problem is my husband and my stepchildren.

I am remarried. My husband has two children from his previous marriage, they are 15 and 13. Their mum sadly died, so they live with us full time. I’ve been in their lives for a long time and basically I’m their mum now. I do all the normal mum things with them and they are very attached to me.

My husband has a job here which he can't just leave for 4-5 months, so he can't come to LA with us.

And this is where I honestly don't know what the right thing is.

If I go to LA, it means leaving my husband and my two stepchildren here for nearly 5 months.

I feel horrible about that because these children have already lost their mum and I am the person they rely on every day. The thought of suddenly being away from them for that long makes me feel incredibly guilty.

But then my son needs me. And I can't really take only him because I share 50/50 custody with my ex husband and our other two children need us as well. They are just as attached to both of us.

My husband actually says I should go.

He says he will manage here with his children and that it makes more sense for them to stay in their home, continue school and have their normal routine rather than everyone being uprooted. He doesn't seem worried about me going with my ex husband because obviously this is about our son's medical treatment.

But I just feel torn.

On one side I have my son who needs treatment and two other children who need both their parents with them.

On the other side I have my husband and two stepchildren who are also my family and who depend on me.

And then there is the fact that I would be living in LA for 4-5 months with my ex husband and our three children while my husband stays here. I know why we're doing it and neither of us has an issue with it, but it is still a very unusual situation.

I keep thinking maybe I should find some way to take my stepchildren too, but then their dad has to stay here for work and they can't just be separated from him either. And moving five teenagers around the world for months sounds completely chaotic.

I honestly don't know what I'm asking here apart from maybe what would other people do?

Would you just accept that this is one of those situations where I need to go with my son and my ex husband and leave my husband and stepchildren at home?

Or would you be trying much harder to find a way to keep everyone together?

OP posts:
Proteinlentil · Today 10:54

kaatee · Today 07:39

I think other two DC are coming with us, that's almost finalized

You think your other two are coming with you?

user9764875954 · Today 10:55

Ill child and one parent goes to America, ( you can tag team every few weeks if necessary) other parent and the other two kids stay here. If you’ve had time to get divorced and remarried they are old enough to understand that no ones been abandoned and that they’ll be reunited soon. Madness to uproot everyone for a matter of months. You have video calling etc, it’s not like you can’t keep in touch. You’re setting them all up to be very fragile unresiliant adults if you're treating them like this. Shit happens, learning to cope with it is a life skill.

Contain4 · Today 10:57

What about yours and your ex husband’s work?

This sounds insane.

Surely ex stays in the uk and looks after the other 2 DCs.

You go out to USA to 2.5 months, then you swap over.

It’s madness to uproot the other DC and mess up their school routine etc just because you and ex DH don’t want to compromise on the 50/50.

They could even come for a holiday in between for a couple of weeks.

Blueshape · Today 10:57

Fwiw, a friend and I share the same (inconvieient but not particualrly serious) medical condition.

She has taken a money's no object approach and had multiple treatments from numerous charlatans private medical practioners.

I have stuck with the NHS. When I've asked about some of the treatments she's had I've been told things like you're too young, the long term effects are...or the risks are xyz and not worth it in your case.

10 years in, I'm doing much better than she is. I honestly think, when money's involved they'll "sell" you anything, when nothing might be the best option.

Proteinlentil · Today 10:58

But I just feel torn.

unfathomable

Contain4 · Today 11:02

Blueshape · Today 10:42

Do you need a to take a step back?

It seems extreme that within 3 weeks of a diagnosis for a non life threatening condition , the answer is to uproot all these children for treatment in a foreign country.

There is the welfare of more than one child to consider here.

I'm sure you've done your research but someone is making a lot of money from you and your son's illness.

If you really do need to take him, and money is no object, wouldn't it be better to continue the 50/50 arrangement and have the adults travel back and forth?

I agree with this.

It seems like a very impulsive reaction, to what I’m sure is very scary news.

If your ex husband doesn’t have other DC and has flexibility with work etc, then plan for him to take him and stay for the first couple of weeks - it will just give you a bit of extra time to work out the logistics.

You haven’t thought it through properly.

As PPs have said, it makes sense no to take the other DC and you and your ex should do half of the time each.

SamPoodle123 · Today 11:04

Go on your own and let your husband and step children stay behind. The children would be better off. I would be really upset if I suddenly had to leave my school, friends etc for a few months. They are old enough to understand the situation. Also, they could probably all come visit you half way through. And you could fly home once as well so its not that long w out seeing each other.

Thinkofnewthings · Today 11:05

Stowickthevast · Today 10:49

You say all the DC are teens. Unless they're young teens, this will affect their GCSE and A level years. The same goes for the 15 year old stepchild who presumably is in y11.

I definitely wouldn't be uprooting any DC in Y10-13 for 5 months.

They might not be doing either. Maybe they’re doing the US curriculum or the international baccalaureate.

CatRescueNeeded · Today 11:07

How old are your other children and what impact will it have on them missing a few months at school? Will UK schools hold the place open for them or will you need to reapply when you get back (and they potentially end up in a different school)

I agree with the majority of other posters - leave all the other kids at home and only you or your ex goes (potentially switching in a month). It’s not fair to uproot everyone and they will cope with video calls for a month

BirthdayTrash · Today 11:09

Assuming none of these children are toddlers it’s absolutely batshit to be uprooting them all to take them to the US. Think of it as an opportunity to teach some resilience. Well attached kids don’t need to be with you every day, and there are so many ways to stay in touch with them now. It is understandable that you are scared about these sudden changes, but taking the entire extended family thousands of miles for half a year is a disproportionate solution.

(DD saw DH for 1.5 days a week until she was almost 2 due to him working away and they have the most incredible bond.)

Pinkflamingo10 · Today 11:10

You and your ill child go for the treatment.
and leave everybody else in their home with their familiar school and wider support network.
your ex and your husband can fly out for holidays with your children and step children to see you both.
one of my children was in and out of hospital for a year. You just have to get them through it, they need you more than any of your other children at this time.

Busymorn · Today 11:11

Am I alone in calling BS on this?

randomchap · Today 11:12

Busymorn · Today 11:11

Am I alone in calling BS on this?

Nope, but troll hunting is banned so most people just keep quiet

Notonthestairs · Today 11:13

Am I a lazy reader or is there a lot of relevant information missing?
Ages of children? Type of schooling (GCSEs/A levels/IB) there are in now and what is proposed for the US?
Are you proposing to take your step children and your husband? Would you all live together? How would he work? Why would you think taking them away from their home country, school and extended family is a good idea?
All very strange.

AnonyMumAuDHD · Today 11:13

jeaux90 · Today 07:37

I am very sorry for your situation. I think though you should leave your other DC here and you and ex tag team do 4 weeks or 3 then fly back. But definitely don’t disrupt the SC too.

This is what I would do, too - your shared DC with Ex can visit in half terms/holidays; as can your new DH and SC. You’d just need to explore compassionate leave with both your employers, if this is a factor, and work out a schedule together as 3 adults.

PS - I actually think you would struggle to get whole family visas for this purpose, but would likely have no issue for you and your exDH to arrange them for yourselves and DS in these circumstances.

Frostynoman · Today 11:15

I’m really sorry for your situation. It not a good idea to uproot your step children based on age alone (is one starting their GCSE exam year?) and the impact to their schooling. If they were much younger then it could have been an adventure to them. Can you have them out for half term / Christmas / Easter and commute back to be with them?

Stowickthevast · Today 11:16

@AnonyMumAuDHD OP said they are all dual citizens so visas shouldn't be an issue.

Busymorn · Today 11:18

randomchap · Today 11:12

Nope, but troll hunting is banned so most people just keep quiet

Ah thanks for the heads up

Babyboomtastic · Today 11:23

randomchap · Today 11:12

Nope, but troll hunting is banned so most people just keep quiet

I think troll curious is allowed, just not hunting, so I'll officially stay that side of the line given the rules...

Kidsandhouse · Today 11:25

Sounds like your mind is made up, so not sure why you are asking. If you were really looking for sensible advice, you'd be listening to the majority here saying the kids stay home and some level of tag team with your xh.

CremeDeMure · Today 11:26

NHS has gone from diagnosis to approving funding for treatment in the US? And finding the right specialist centre. Or this is being funded by a private provider?

Suspending disbelief for a moment .

No one in their right mind is pulling kids out of UK education in their teens for 5 months in US. The solution is tag teaming. If money is no object, you take it in turns to be in US with the other in UK. Stability for the other two and focus from each parent on the sick one. 50:50 should not even be being discussed if you get along well enough to house share for a period. It needs to look different for a bit.

Blueshape · Today 11:28

CremeDeMure · Today 11:26

NHS has gone from diagnosis to approving funding for treatment in the US? And finding the right specialist centre. Or this is being funded by a private provider?

Suspending disbelief for a moment .

No one in their right mind is pulling kids out of UK education in their teens for 5 months in US. The solution is tag teaming. If money is no object, you take it in turns to be in US with the other in UK. Stability for the other two and focus from each parent on the sick one. 50:50 should not even be being discussed if you get along well enough to house share for a period. It needs to look different for a bit.

Assuming any of this is true, I don't think the NHS has had anything to do with any diagnosis or treatment recommendations.

AnonyMumAuDHD · Today 11:28

Stowickthevast · Today 11:16

@AnonyMumAuDHD OP said they are all dual citizens so visas shouldn't be an issue.

Ah, missed that - in which case that’s not an issue, but i still wouldn’t uproot the other DC at what may be a trying time for everyone. I’d allow the rest of the family as much normality as possible and set up lots of visits over the 4-5m treatment period.

PS - I’d also explore online schooling such as with Kings InterHigh (other providers available but I’ve dealt with this one) to support unwell DS in continuing education, establish some level of normality/routine, and connecting on line with other young people during this period.

Notonthestairs · Today 11:30

She's said all her kids are dual citizens - although I don't know whether that includes her step children.

Her husband can't leave his job for such an extended period of time.

She seems to be asking if she should take the step children with her anyway - which I find very odd.

biffwellington · Today 11:33

fruitbrewhaha · Today 08:32

Sounds awfully dramatic. The narrative that no one can manage without you or each other. All shipping off to LA. This would be incredibly disruptive of their schooling. The curriculum is different. They will be miss big chunks of learning and socially with their friends too. It’s like a film script.

I agree with this. The children and step children will need certainty and routine, and the disruption in routine at not having OP there is very unlikely to be so insurmountable that it outweighs the disruption to schooling, living in a different country, leaving friends, etc, for only six months. I also would be interested to know why the OP has to go to USA for this (is it US citizenship?) I was under the impression NHS doctors do not routinely recommend treatment abroad and there were pretty strict guidelines around this. If money isnt a restriction, why is Germany not an option?