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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Was told a few weeks ago I have Crohn's but on holiday my husband just did this AIBU

185 replies

Corfudreaming · Yesterday 15:03

He brought back a huge haul of pastries- not only do our daughters 17 and 13 need to watch their weight (and he is about 4 stone overweight too) I cannot eat gluten.
It's not just a few treats - it two bags of donuts, pies, bread and custard donut things.
there are a couple of oat biscuits but I think they've got wheat in them. I have just really found out I have Crohn's disease and it is making me feel quite low that I can't enjoy the foods I used to. I have been trying to avoid wheat and some dairy products for awhile now because I noticed they were causing issues with my stomach. I've been really careful about my diet over the last few years and I was hoping to enjoy the old donut on holiday but obviously I can't. Am I being unreasonable to be angry at this?

OP posts:
Flippoflak · Today 16:37

Crohns and Coeliac disease are both autoimmune and crohns is more common in people with coeliac disease than the general population

I fortunately only have the coeliac bit, my sister has both crohns and coeliac

Corfudreaming · Today 16:40

aliceyyyy2654 · Today 16:29

To my knowledge (of having IBS, diverticular disease and multiple colonoscopies) it’s not possible for the colonoscopy to see the small intestine at all as it’s in a different place. But I am happy to be corrected by a medical professional.

that’s why I was asking

The gastroenterologist showed me the scan I gave pictures of it; 'terminal ileum- ulcers and Ileitis

OP posts:
ToWhitToWhoo · Today 16:41

But yes, dietary resrictions for people with Crohns are very variable, and sometine need to be found out through trial and error. Some people I know do have problems with gluten; some with dairy products; I have problems with either, but cannot eat an extremely high-fibre diet (salad is fine; nuts and oats aren't) or anything very spicy. So it's not one-size-fits-all..

aliceyyyy2654 · Today 16:44

Corfudreaming · Today 16:40

The gastroenterologist showed me the scan I gave pictures of it; 'terminal ileum- ulcers and Ileitis

Interesting, did you also have an endoscopy too then?

Corfudreaming · Today 16:48

aliceyyyy2654 · Today 16:44

Interesting, did you also have an endoscopy too then?

A colonoscopy - a very very uncomfortable one.

OP posts:
DoYouWantHalfThisSandwich · Today 16:50

The terminal ileum is where the small & large bowel meet, & for most Crohn’s patients this is where their inflammation begins - a flare point if you like. A gastroscopy looks at the stomach & top of the small intestine, colonoscopy up as far as the terminal ileum, & nowadays a lot of people are having a PIL cam - a caplet shaped device that you swallow & it captures imagery of it all. And you can go home! Much better IMO & I’ve had all of them, multiple times.
@Corfudreaming sorry that you’ve had to make the dietary changes - it is literal shit!

ETA - all of the above, bar the PIL cam, was explained to me by my Gastro consultant when first diagnosed.

Tryingmybest12 · Today 16:52

You can have Crohn's and irritable bowel syndrome or Coeliacs at the same time.

Crohn's and Coeliacs can be diagnosed by tests, but IBS can't be and that's why certain diets/ process of seeing what works happens and why you exclude everything else that can be diagnosed first.

bridgetreilly · Today 16:58

I think you need to remember that it is new for him, too. He’s still learning about your new food needs and how that affects the rest of the family. It’s the holidays and he wanted to treat everyone. I wouldn’t get angry, but I would talk to him later about how he could be more supportive in future.

ToWhitToWhoo · Today 17:01

ToWhitToWhoo · Today 16:41

But yes, dietary resrictions for people with Crohns are very variable, and sometine need to be found out through trial and error. Some people I know do have problems with gluten; some with dairy products; I have problems with either, but cannot eat an extremely high-fibre diet (salad is fine; nuts and oats aren't) or anything very spicy. So it's not one-size-fits-all..

'I have problems with either but' should be 'I have problems with neither but'

BeSharpHelper · Today 17:04

If you want to be tested for coeliac disease you need to start eating gluten, they cannot test for it if you have eliminated / reduced gluten in your diet. Also if I was on holiday with my family I would not be telling them what they can and cannot eat , although maybe they’re used to it . . It does sound a bit like misery wants company .

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