Was told a few weeks ago I have Crohn's but on holiday my husband just did this AIBU

[Corfudreaming]

He brought back a huge haul of pastries- not only do our daughters 17 and 13 need to watch their weight (and he is about 4 stone overweight too) I cannot eat gluten.
It's not just a few treats - it two bags of donuts, pies, bread and custard donut things.
there are a couple of oat biscuits but I think they've got wheat in them. I have just really found out I have Crohn's disease and it is making me feel quite low that I can't enjoy the foods I used to. I have been trying to avoid wheat and some dairy products for awhile now because I noticed they were causing issues with my stomach. I've been really careful about my diet over the last few years and I was hoping to enjoy the old donut on holiday but obviously I can't. Am I being unreasonable to be angry at this?

But, she's already said there's something else going on here so it's not all to do with him coming back with unhealthy snacks.

She only said that when she didn’t get the responses she wanted.

Sorry? Are you quoting yourself? I am confused?

Nasty!!!

You said you had a colonoscopy- that’s the large bowel, they wouldn’t have seen the small intestine. That is only partially visible on an endoscopy (through the mouth). They can see the first part of the small intestine and can spot Coeliac that way. You. 100% have to be eating wheat prior to the bloods though, for about 6 weeks.

Well was it a colonoscopy or not? As that poster said, only large intestine is visible with that procedure.

Wise words from @AcrossthePond55 op.. and I agree with the pp who said move it to a health board.

Its very hard when you are suddenly faced with a diagnosis of a chronic illness whether you have to change the way you eat or not.

You've only just had the test and you are probably still unsure what it means for the future, what its really going to amount to on a day to day basis, and its bloody horrible dealing with that. Even the most practical and down to earth person who thinks they can deal with anything can find themselves swamped with big emotions..

And I think this is what is going on here. You said you'd been very stressed, and its always stressful getting everthing organised for a holiday. Plus you've had worrying appointments. Maybe not enough information from the testers. You might be able to contact PALs for more information if that's the case. There will be plenty of people who will be able to tell you that they can manage it and slot it into their lives, without having to be different to everyone else, and you will get there too.

It's also harder to embark on major changes when you are not in your own home/kitchen and reliant on working out what's what in restaurants. It can feel quite isolating, especially if people around you don't get it. The pp who mentioned trying out chat gpt for ideas of what you can safely eat, particularly in the location you are in , would be a great idea. I found that really helpful when I was in a country I'd never been to before recently, where it was much harder to find the right things. Focus on what you currently know you can eat and have as much as you want so at least you don't feel hungary. Can you go on any special trips to distract yourself, or a spa or something that makes you feel more relaxed.

Its one thing to be making voluntary dietary changes..(fad diets as my DH calls em) It's quite another when eating the wrong thing, even by accident can make you feel really ill.

Can you have a talk with DH about how you are feeling? And your DDs and just explain that you are trying to find your way... I'd forget about whether they are eating "healthily" on holiday or not. Plenty of time to look at that when you get back.

Wishing you all the best x

I have Crohn’s and whilst it’s not caused by diet. Diet can definitely impact / trigger it more especially when already in flare.

When I’m already poorly, I would avoid excessive dairy as that’s one of my triggers. When I’m well I can not eat most things.

FODMAP diet is definitely recommended for Crohn’s.

He's on holiday. I'm sorry you've had a difficult diagnosis. He's allowed to buy treats if he wants to.

I don’t eat gluten (get bloated) my kids and Dh enjoy pastries on holiday - although would only buy one each. Did you ask about the quantity?

My husband has Crohn's. He wouldn't dream of asking me to restrict my diet because of his illness. You're being a bit ridiculous. But also like others have said, Crohn's is not linked to diet.

Why would she do that, she’s not the food police, do you monitor what your husband consumes or have him dictate to you?

A colonoscopy is used to diagnose crohns and you can see the end of rhe intestine.

normally though a diagnosis is not given till biopsy results are in, you’re just told what they saw, and whay they might suspect, in this case mild inflammation and ulceration, which can be caused by many things ie infection , different meds, ibd, etc, after biopsy youd see your doctor for diagnosis,

so it is odd they have diagnosed so quickly and the op hasn’t seen her doc or got a treatment plan, but doesn’t need meds, and is following this diet.

If you start to do the 'I can't eat that so you can't either' thing it will get very tired, very quickly. I have diabetes but wouldn't dream of doing this. Please don't be the food police.

That was one hell of a colonoscopy! To take gone through the caecum is something groundbreaking although my licence has been lapsed for a good few years, so maybe endoscopy and human anatomy has evolved. I don't believe you were diagnosed by a colonoscopy alone, sorry. Surely you have has biopsies and CRP blood tests and the stool test, cant remember what its called. Are you on Mesalazine? Because that should help with the inflammation. None of this makes sense, I suggest you urgently seek a second opinion.

This is not true unfortunately. You cant cure crohns through diet but you can damn well make it worse.

God so many inaccuracies on this thread. Depending on the degree of inflammation, it is perfectly possible to get into the terminal illeum during a colonoscopy and , as this is where crohns is most often found, diagnosis can certainly be made that way. But crohns can show itself anywhere from the mouth to the rectum- I was first diagnosed through ulceration in the duodenum (discovered where I was being biopsied for coeliac disease)

Yes but my understanding is they do a biopsy and it’s not diagnosed till this is done and they see the results? You’re not normally diagnosed at the time of the colonoscopy as the op seems to have been,

Sorry, op revealed she has some assassin type back story and we are focusing on the doughnuts!!!?

My son was diagnosed at the time of his colonoscopy due to the huge amount of inflammation and ulcers that he had throughout his bowel and digestive tract. He was started on medication on the same day.
I think if it is plainly obvious what is happening, then they will tell you there and then. If it isn't so obvious then they have to wait for bioposies

The op said hers was mild and no meds needed, and she’s not seen the doc since,

YABU.

I’m confused, how can you know this if you’re in the elimination phase and haven’t started reintroducing yet?

Have you seen a FODMAP-trained gastro dietitian?