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Original poster

Pink Pink Pink!!! yahey, peter is PINK!

325 replies

LadyVictoriaOfCake · 22/08/2007 11:16

spoke to my superman this morning, he was about to be pounced upon by physios so wasnt best pleased.

He has had a new IV in, so hoping the central line will be out later. He seems so much better, and is joking about. Cant belive its been a week since our lives changed within moments. He is hoping to be home in about 4-5 weeks, if all carries on well. I cant wait to see him, and give him a hug with no wires and tubes getting in the way. To have him back in our bed, the bed we bought and he slept in for about 3 weeks only.

i am thinking of writing a letter soon to the donor family.

OP posts:
Iklboo · 04/09/2007 13:46

What's the news today? HOw are you all?

Christie · 04/09/2007 18:28

This reply has been deleted

Message withdrawn at poster's request.

triplets · 05/09/2007 09:58

Just to say hello and hoping all is well, xxx

Iklboo · 06/09/2007 13:51

Another HI and hoping all is well?

Original poster
LadyVictoriaOfCake · 06/09/2007 22:09

been searching for this thread, couldnt find it lol, JARM help ed me again

Peter is doing really well, his surgeon will assess his old LVAD wound tomorrow, to see about removing the pump before he comes home, which should hopefully be NEXT WEEK!

He is on an anti-viral drug called valgoncyclovir (sp) because he has i think CMV. He cant fully remember whjat the nurse said it was, but having looking up the drug on the internet, wikipedia says its used to treat this. will double check over the weekend what its for, but am pretty certain its that, as he said it sounds familar.

He is walking further, can now walk upstairs, and is looking so much better.

His anti-rejection drugs have also appeared to have cleared up his eczema, have never seen his skin so smooth.

OP posts:
McEdam · 06/09/2007 22:12

Well, that's a nice side effect.

He must be doing really, really well. Wow re coming home.

Olihan · 06/09/2007 22:18

That's fantastic news, can't believe he'll be home next week , bet you can't either. Life is pretty bloody good for the Williams' at the moment!

MaureenMLove · 06/09/2007 22:27

I was just thinking of looking up this thread and there it is! Wonderful, wonderful news.

Tottie32 · 06/09/2007 22:31

what lovely lovely news for you all

sparkler · 06/09/2007 22:32

It's so wonderful to be reading this LVOC. Great news!

callmeovercautious · 06/09/2007 22:35

Well I think I will live with my eczema thanks, his treatment for it seems a bit radical to me Glad all seems to be going well again. Hope last Friday was just a blip.
x

Beauregard · 06/09/2007 22:37

Great news

NappiesGalore · 06/09/2007 22:37

ah, great news misdee. thanks for the update.

lots of love from me and the nappybums.

RTKangaMummy · 06/09/2007 22:44

DEFFO BRILL NEWS

Love the photos on profile of DDs and Peter

Original poster
LadyVictoriaOfCake · 07/09/2007 10:39

h has a partially collasped lung. nothing to worry about, is 'normal', but does account for his lower stats than usual.

OP posts:
Original poster
LadyVictoriaOfCake · 07/09/2007 10:43

oh and just called dla, his benefits have been extended to sept 2009. thank goodness.

OP posts:
Budababe · 07/09/2007 10:43

He seems to be doing so well LVOC - collapsed lung aside! Can't believe he may be home in a week!

hazygirl · 07/09/2007 10:52

ladyvictoria it is great hearing he is doing so well and that he will be home soon ,its lovely for you and the girls,that things are getting better,love to you all xx

tjacksonpfc · 07/09/2007 10:55

glad to hear things are going so well i lost this thread and have been busy with dd1 starting school this week hope things continue to go so well and peter is home with you all soon xx

Iklboo · 07/09/2007 13:47

So glad to hear he's doing so well

TheDuchessOfNorksBride · 07/09/2007 14:04

Thanks for the photo's. Walking upstairs is good news. He is doing so incredibly well. Hope the minor issues stay that way and clear up soon.

coleyboy · 07/09/2007 14:12

Glad to hear Peter is doing so well.

DS has had numerous collapsed lungs, and they have always improved within weeks. So hopefully Peters lungs and sats will improve soon xx

NappiesGalore · 07/09/2007 15:58

ouch. hope the lung reinfltes and doesnt cause any probs. glad to hear dla worries are out of the way too.

Original poster
LadyVictoriaOfCake · 07/09/2007 16:11

he has been waiting for a biopsy all day. he says its a bit draughty in his gown lol.

OP posts:
Hulababy · 07/09/2007 16:12

Home next week? Wow! So soon! Glad he is doing so well.