Dla part 10

[Patientlywaitingx2]

Called up today and the wait gets pushed back further and further has anyone been awarded recently

Good luck to everyone who’s been awarded and due to be. That wait is the worst wait I’ve ever had to wait and to think I have to do it all over again for my son 😩 so thankful for this thread!

Hi everyone freaking out just going through my evidence for renewal and only got Jan&Mar 2022 date, now we're in 2023 will they disregard it? Worried they may not accept it, has anyone had long dates on the evidence and it was accepted for the renewal ? Also have 2021 will they accept (2021 evidence was submitted to them originally) obviouslly evidence still applies pplease help thanks.x

What do you mean, the evidence you have is from those dates? I should think it would be ok, by son hasn’t seen the paediatrician for 2 years now so I didn’t have evidence from them, only school.

So I have evidence dated 2021 and 2022, it's still relivent but obviously not recent. The only recent is school and occupational therapist report
The diagnosis letter is also dated 2021 which I sent to them first time round , will they accept the same letter twice as its still the same disability just a renewal and nothing has changed

Yes I’d definitely send it, especially with an up to date school report, they see your child for a lot of the day.

@Autismum4 yes definitely send it I sent stuff off from 2020 2021 as it’s all still very relevant to his day to day life. Yes send the same letter again and I’d you can ask school to maybe write a letter. And your Ot will letter should be fine 😊

The school isn't a letter as much more like a plan to help him and what methods they will use he isn't reliably toilet trained and needs adult support and they mentioned that along with support with emotions , it's a report which should still be acceptable do you think?x

Definitely Autismum4.

I can't see why the information you have wouldn't be acceptable, surely you only get a diagnosis once. I would submitted the letter you have and just make a comment that they already hold that evidence as nothing new has come to light in the form of a diagnosis.

I would assume it would be accepted as you wouldn’t rediagnose

does anyone know the rates for uc for mrc lrm?
I thought it was just a carers element but been told you get an additional amount for the child so works out to about £300 extra all together is that right? Seems a lot on top of dla!

Taken from gov.uk.

You’ll get:

• £146.31 if your child is disabled
• £456.89 if your child is severely disabled

Hope this helps.

Thank you that’s what they said like 180ish carers then that too thank you x

I was awarded mrc for my son and explained on my form that he needs extra care during the night when I spoke to the adviser he said he didn't get hrc as his medicated during the night which is not the case his not on night tablets, I explained the doctor has spoke about them but at the moment has left him without as his having night terrors and sleep walks . Just wondering if anyone had any advice should I call them and explain or best leaving it as it is .

I did wonder if they read my night time evidence as my daughter does have night time medication and wakes constantly!

when did you uc usual payment go through and did it include the change?

What rates do you have to get to qualify for severely disabled etc

@Lodol My uc is the 16th and didn't include change. He doesn't have night time Meds and I spend a lot of time with him during night. There decision was based on the fact he has meds at night but I clearly stated he doesn't. @ERG123 I think it's hrc but I'm not 100% on that.

Ah ok I don’t know my rates yet, tried to call Friday but was on hold for over an hour. I’m not expecting UC to be in a rush about anything either tbh

I would ring up and ask them would they re look at it or would that count as a reconsideration?

yeah my next payment is due 17 April hoping it gets changed in time but not holding hope! Seems to be 1-2 months before it’s done although the lady from uc said it should be a week for the changes and then they have to apply for back pay which is longer x

I think il ring in morning and see what they say just worried that they may take of him what his already been awarded and end up with nothing. Uc are always slow it took a month for back pay when I was put on lrwca

You’d need to ask them for a statement of reasons as to why he’s not entitled to HRC @Marikel and do a mandatory reconsideration highlighting in your evidence why you think he’s entitled to it.
As you say it can run the risk of his award being lowered as they’ll look at the whole claim again.

@WouldJudasLeaveIt thankyou il ask and see what it says , the gentleman dis read it all out to me but can only remember the part where he said the reason they couldn't award him hrc was because his medicated during the night .

Welll I’m over the 12 week mark as of last Friday I’ll be ringing at 9am to see if there was any decisions made over the weekend 🤞

@Zippymilo thats amazing congratulations ❤️ my scan dates 27th I’m hoping they worked threw the weekend it’s been a long dragged out wait

Been with DM since last Tuesday, still no progress