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Original poster

I'm scared

450 replies

Underthesea65 · 03/02/2024 17:51

I know there's no magical answer but I just need to get my thoughts out. Sorry. I'm terminally ill. I'm 38 with an amazing DH, one adult daughter and one nearly adult daughter (19 and 17). I've just spent three weeks in hospital getting blood transfusions and iron infusions and currently I head to the emergency day procedure every three days for more. I have scope tests amd another procedure next Sunday. I'm in agonising pain, even with the highest dose morphine. I can do nothing for myself. I can't stop crying. I know there's people in far worse positions than me but I'm just struggling so badly at the moment. I know this thread is completely pointless to everyone reading it, but I just needed to vent, sorry

OP posts:
Thread gallery
12
Helplessandheartbroke · 07/02/2024 16:42

Sorry to read this op. Hope you're feeling better after the transfusion x

Original poster
Underthesea65 · 07/02/2024 16:45

Helplessandheartbroke · 07/02/2024 16:42

Sorry to read this op. Hope you're feeling better after the transfusion x

Thank you. ❤️

OP posts:
Bristolian79 · 07/02/2024 16:48

Rant away, you absolutely deserve it. I'm so sorry for what you are going through.

DiamondGazette · 07/02/2024 17:07

This sounds like a tough time for you, sending you positive vibes. I hope you feel a bit brighter after the blood transfusion. Do you have a treatment plan in place? Unmanageable pain is the worst.

Tilllly · 07/02/2024 17:55

Bugger. Pain is bad enough but the blood loss will wipe you out too

Tell them there's an army of MNers expecting nothing but the best for you (in menacing tone!)

Original poster
Underthesea65 · 07/02/2024 18:17

I'm here now, but so so tired so I'm going to try and sleep while the transfusion is going through. They check blood pressure every half an hour but I think I'll probably be able to dose. Sorry I'm just too tired to type anymore at the moment l hopefully speak to you all later ❤️❤️

OP posts:
ToffeeForEveryone · 07/02/2024 18:23

Wishing you relief and strength OP x

Tilllly · 07/02/2024 18:40

Get some rest
You're in my prayers and we're all rooting for you

Barkybarkynutnut · 07/02/2024 18:42

You are so brave to share your fears here. Keep on venting if it helps. Holding your hand xx

TheChosenTwo · 07/02/2024 18:49

Hope you manage to get a bit of decent sleep 💐

Original poster
Underthesea65 · 07/02/2024 20:06

Thank you all. I dosed a bit but blood pressure isn't good and I'm having chest pains so currently waiting on a chest scan to see if they can continue with transfusion

OP posts:
wellington77 · 07/02/2024 20:25

Oh bless you. You are stronger than many people by the fact that you have the courage to talk about it all even in so much pain. I hope the transfusions help you feel a bit better soon, have they sorted out your pain meds yet? I know this is nothing at all like what you are going through but I remember when I was in labour and all your mind thinks of is “ get me all the sodding drugs now” to stop the pain, one thing that got me through was lots of humour from my husband. Would you like us to message any funny stories or I don’t know little jokes to make you giggle? Sending you my love xxxx

Tilllly · 07/02/2024 20:51

Underthesea65 · 07/02/2024 20:06

Thank you all. I dosed a bit but blood pressure isn't good and I'm having chest pains so currently waiting on a chest scan to see if they can continue with transfusion

Well you might as well go tho whole hog, chick!

Is anyone with you?

Original poster
Underthesea65 · 07/02/2024 21:03

Tilllly · 07/02/2024 20:51

Well you might as well go tho whole hog, chick!

Is anyone with you?

Show quote history

Haha, I don't do anything by halves
Yes DH is with me. He's my full time carer so he goes everywhere with me. He's keeping me laughing, so always a plus. Scan was okay thankfully so transfusion is continuing. They are going to give me an iron infusion after and then I can go home and back in tomorrow for same again.

OP posts:
Original poster
Underthesea65 · 07/02/2024 21:05

wellington77 · 07/02/2024 20:25

Oh bless you. You are stronger than many people by the fact that you have the courage to talk about it all even in so much pain. I hope the transfusions help you feel a bit better soon, have they sorted out your pain meds yet? I know this is nothing at all like what you are going through but I remember when I was in labour and all your mind thinks of is “ get me all the sodding drugs now” to stop the pain, one thing that got me through was lots of humour from my husband. Would you like us to message any funny stories or I don’t know little jokes to make you giggle? Sending you my love xxxx

I'll never turn down funny stories. love to laugh, because if you can't laugh, you have nothing. Pain meds still not sorted as unfortunately I'm on the highest dose of literally everything they can give me, do I don't know what they are going to do.

OP posts:
AngryBird6122 · 07/02/2024 21:11

Underthesea65 · 07/02/2024 21:03

Haha, I don't do anything by halves
Yes DH is with me. He's my full time carer so he goes everywhere with me. He's keeping me laughing, so always a plus. Scan was okay thankfully so transfusion is continuing. They are going to give me an iron infusion after and then I can go home and back in tomorrow for same again.

Show quote history

OP, I am so sorry for your tough situation. But I am so glad you have your DH with you and he's keeping you laughing, that's lovely xxx

TheChosenTwo · 07/02/2024 21:15

Glad you’re not on your own.
I’ve got a joke that I heard once and it’s the only one I can ever remember but it does make me laugh:
why did the squirrel swim on his back?
TO KEEP HIS NUTS DRY!

Original poster
Underthesea65 · 07/02/2024 21:17

TheChosenTwo · 07/02/2024 21:15

Glad you’re not on your own.
I’ve got a joke that I heard once and it’s the only one I can ever remember but it does make me laugh:
why did the squirrel swim on his back?
TO KEEP HIS NUTS DRY!

Haha, love it. He's me sitting picturing that now. I'm not wise 🤣😂🤣

OP posts:
Original poster
Underthesea65 · 07/02/2024 21:18

AngryBird6122 · 07/02/2024 21:11

OP, I am so sorry for your tough situation. But I am so glad you have your DH with you and he's keeping you laughing, that's lovely xxx

Show quote history

Thank you. Awh yeh, thankfully we laugh every day, no matter what is happening. It really does help. I probably cry everyday too,but have to keep the balance right,eh? 🤣😂

OP posts:
Blueglazzier · 07/02/2024 23:22

💕

Tilllly · 07/02/2024 23:24

Sometimes it's about different combinations of drugs. Keep pushing

Tilllly · 07/02/2024 23:25

And read the thread "AIBU to warn you not to spray orange scent on your pubes". That'll make you laugh for sure

DBSFstupid · 07/02/2024 23:39

Sending you many thoughts,hugs and a little kiss from my Doggie xx

Tilllly · 08/02/2024 00:06

DBSFstupid · 07/02/2024 23:39

Sending you many thoughts,hugs and a little kiss from my Doggie xx

You're seriously out of order with this

How dare you mention the doggie and not post a photo? Dog tax to be paid immediately pls!

DBSFstupid · 08/02/2024 00:10

Tilllly · 08/02/2024 00:06

You're seriously out of order with this

How dare you mention the doggie and not post a photo? Dog tax to be paid immediately pls!

Show quote history

This is so funny!! I first thought 'Oh no, have I been a bit too much?!'
Here she is......!

I'm scared
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