The Goose and Carrot Thread

[hibernatinghedgehog]

Everyone is welcome. The thread is deleted after 90 days.

Definitely - I'll take a photo when the planes are up in the church.

@drspouse they are going to look beautiful.

@Lougle after years of other people underestimating the support DD1 needs, it must be a relief, tinged with sadness, that the care manager recognises DD1’s needs too, e.g. knowing she needs a ground floor flat with a wet room from the virtual meeting.

Definitely, @NightHeron. There will be so many knock-on effects.

@hibernatinghedgehog yes, and that the psychologist met us there and is coming again next week.

I find all the talk of benefit changes very upsetting. If my girls could function, they would. They could well end up in a situation where there is nothing for them and they still won't be any more able to function.

According to the Guardian, these changes might be applied to adults over 25:

https://www.theguardian.com/society/2026/nov/13/no-10-considering-expanding-under-25s-benefits-overhaul-to-older-age-groups?CMP=Share_iOSApp_Other

😱

That’s it, @Lougle. DC won’t magically be more able just because they don’t receive benefits. They will still be just as disabled as now. What it will do, though, is plunge more into poverty. Your DD1’s psychologist is definitely one of the ‘good guys’.

@NightHeron since DWP hasn’t even managed to transition all working-age adults from DLA to PIP yet, I will take talk of swapping all working-age adults to yet another new system with a pinch of salt until something official is announced.

I just don’t think we can do anything but surf whatever wave is sent and keep as many afloat as we can help. There’s nothing you can do differently that is going to change outcomes for any of our children’s benefits. So we are best doing our best now.

We can only do our best, you're right @SunriseSunsetz. I hope I'm doing best by DD1. She'll have more space than she does at home. I presume they will encourage her into the community, too. It's just all so unknown at the moment.

I think it sounds like quite an adventure @Lougle . I’m interested in the nuts and bolts of the care but ignore me if it isn’t something you want to share.

Is dd taking her mobility car with her? If she is can she ask to be driven somewhere or is it only for routine trips? I assume she has a phone and can call you and her grandparents and sisters? I find with mine it’s good to make the communication when they are away very easy. (I have over texters so this can be tiring but it is good groundwork). We have a family group that messages with funny pics of the animals, jokes, who wants to have cake at the weekend, etc etc. It keeps them all talking to each other and is very useful. One to one I text most mornings and some bedtimes with soppy mum stuff, they text back when happy/sad or with “how do you” or “mum this gross thing happened” type texts throughout the week. I think they need to be supported to engage with it so send useful stuff at the beginning (eg bus timetables and how to’s) so they get used to that mode of contact.

Ds prescription is at the pharmacy in a record two days. I have been slightly too gung ho and decided that since laminating has been so successful we should move into 3D figures and ordered a lot of fimo for him to try. I’m not sure he will be able to do it but he has really really enjoyed the process of printing-drying-cutting out-laminating-cutting out, and I can see it’s something he has been missing. I showed him ONCE what to do and the only support he’s had in a week of several hours each day, is me changing the printer cartridge (££!!!), one printer not responding and he left the laminator on once rather than turning it off while we ate. This is very big progress so any ideas about what next however whacky would be much appreciated.

@SunriseSunsetz does your local library run any sessions on crafts ours have a 3D printer so would do send sessions & regular sess on specific crafts. The tickets via eventbright sell out in hours. Part of their community engagement. DH used to have a 3D printer he played around with making random plastic bits n bobs but I’m not sure how technical you have to be to use one. There’s also critica? Cutters I’ve seen Iin Hobby craft to print make things.

I really hope the space in the award is sorted out for DD1 @Lougle it sounds like a great stepping stone into supported independent living.

Sorry to hear other life stuff is tricky @RedMoniker hopefully it will ease or you have support soon.

How are you doing @hibernatinghedgehog i hopefully the bite has healed & fatigued isn’t too over whelming.

@SunriseSunsetz yes, she'll take her car with her. I'm not sure what they do in the day time.

We already do a lot of WhatsApp messaging but mostly she uses it to tell me she feels ill and to ask about food.

@SunriseSunsetz things that are popular with DD: a corner rounder for her laminations. Label maker. Stick on triangular corners to display laminations in big scrap books. Hole punch for leather. Guillotine. Wool for Pom Pom tree decorations. Straws for star tree decorations. Cutting up last years Christmas cards to make tags for this years presents.

@Woolyhatson the bite is healing, thanks. It is still being dressed but it is OK. I’m still exhausted.