Hi all
am a bit behind but will try and catch up.
Hosp appt went well.
his CT scan was clear (checking for something nasty called tuberous sclerosis) so that's a relief
He can increase the new drug (vigabatrin) as it's sort of working and we can go back in 2weeks to review it.
we could try steroids after that - though i hope not
they are discussing his case on tues (15th) so we might hear a timescale/date for surgery after that.
Meanwhile, he is just so awake it's fab & freaky at the same time
about 11 hours a day instead of 6 - major shock to our systems!!!
Even went out this afternoon to some woods & he wanted out of the buggy and walked loads (holding one hand though as was quite uneven ground).
Is feeling pretty positive right now, need him to start (re-)doing stuff now!
He has def signed drink a few times & is generally much more alert and 'with us' than before.
Lily - re the football thing. hope H is ok with it all. why can't you camp this weekend? last minute somewhere? (maybe a bit too last minute now i guess!)
G - how is it just having G at home lots then? almost freedom, lol!
Simps - how has it all gone? fab weather here so hope you had it too. And good luck sorting house issues with H....
How is M's walking today?
oh and i'd like a tube of pringles for breakfast
LaT - free reusables, v good! We used them lots with T, less with H, and not at all at the mo
right, enough from me, bbq this evening at PIL, then home tomorrow.
H up in the night crying & nodding last night, hope for better tonight!