TTC or pregnancy on prednisolone or similar part 9

[sarahs999]

Oh dear - we reached 1000 posts on thread 8 without noticing! I hope you can all find this. THis is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Good for you kittens those figures sound promising. Big milestone you've reached. Enjoy the peace of mind honey x

Sad but warm thoughts for you and Scarlet and your DH, Sue. I'm so sorry.

Sue you are so very brave. You have been very much in my thoughts and will continue to be so. What a beautiful name you gave you daughter, may she rest in peace. X

kittens you must be so relieved after today. Really glad it was good news for you and I am sure that will all be confirmed on Friday.

LJ I hope you don't mind me asking but did you get your results of your erpc? Our sample got overwhelmed with bacteria so didn't tell us anything. So gutting as this is the second erpc in a row when this has happened so we are still totally in the dark about why we miscarried. Mr S said he only had had one other failed result in the last year - not helping!! Have had further tests and have a tnf alpha mismatch which Mr S would treat with humira, but I am terrified of taking it - Choccy you had a bad reaction to it recently didn't you? I am a very allergic person. So we are back on super ov for a couple of months and going to review our options in Jan, feel the dream is slowly slipping through our grasp but trying to keep fighting.

Snoopy so good to hear from you and to read your heroic post. Glad that hairy Snoopy has been helping you cope through your ordeal and I really hope that the worst is all behind you.

Waves to everyone else.

sue a beautiful name. She will always be in your heart. Xxx

kittens I'm so pleased to hear that the nuchal went well and Cvs is looking promising. Must be a huge relief after your previous experiences.

sue what a beautiful name for your little girl. I am really pleased you chose to see her, however painful, as she will always be your child and your relationship with her will be forever in spite of her loss. She will live on in your heart and mind. I am so deeply sorry that you have had to suffer so and like mollieboo remember how awful it is to leave your child behind. My thoughts are with you.
How is DD1? I seem to remember that 'Sands' do some good books to help siblings understand baby loss. Just a thought x

kittens what great news. I look forward to confirmation on Friday.

bellyd I have recently had 'products' (horrible word) sent for testing via NHS. I am so hoping to get some results but it seems that it often goes wrong. Mr S offered to do an ERPC but as I live in Devon it was impractical and I actually mc'd before that was an option. He told me he'd performed 32 ERPC's this year and 31 had chromosomal problems. Would it be wrong of me to confess that I'm not sure I believed him. I can't explain why.

I don't believe him I'm afraid.. He wasn't too pleased with me when I asked why he thought my 2 chromosonally perfect embryos had miscarried after I had had intralipids, 40mg pred, clexane, asprin etc etc .. he said is just one of those things. (I did think.. well 2 of those things actually). Ho hummm....

sue my heart goes out to you, I'm just sorry I don't have the words to express exactly how I feel. Scarlet is a beautiful name. Look after yourself and take the time you need. Thinking of you.

Kittens fingers crossed its all confirmed as ok on Friday. I'm sorry I don't understand all the odds, never having got that far, but it certainly sounds good to me. Fab news after the time you've had. Hope you're managing ok with all the family politics...

BellyD please please don't not have humira because of the reaction I had!! Allergies are essentially your immune system overreacting to something. I have no idea if you'd be more likely to be allergic to humira with your history than otherwise. Google it and you'll find rashes are common. Whether as all over as I had it I don't know. Talk it through with Mr S, but assuming you go ahead, just keep an eye on your body and how you feel. Happy to describe things more on PM if you like.

Waves to all :)

Sue :( you have been through such an awful time. Scarlett is a beautiful name. I wish I could just wrap you up in a warm protective bubble. It's so awful that you are going through this xxx

Kittens... :)

Hi all, so sorry to hear about that awful experience Sue. I hope the future becomes so much brighter for you soon.

Kittens I know how fabulous it must be for you to finally get pregnant, get to 12 weeks and have a clear 12 week scan! It's amazing good news and I hope you're celebrating, even though other things are so hard for you at the moment. This will be the one!

Hi everyone else, all ok here just busy xx

Hi kittens, wonderful news about your scan today, am so pleased for you.

Life sounds very complicated at a time when you need an easy life and it must be so hard missing your mum, but I bet you feel so relieved and happy after your good news x

clabbage thank you for your kind words the other day. I hope you get your baby you want so much too, very soon. Keep strong, so tough I know x

I have just posted this on the Super Ovulation (upgrade Dr S to first class cabin) thread..

Was thinking about the central London meet up we are planning for Sat 27 October? 1pm for a spot of lunch. Perhaps Southbank as pretty central for everyone who can/wants to attend. It is sometimes a good opportunity to those of us facing these challenges to get together... whether it be struggling to even get pregnant now, or the more complex issues and diagnosis we've discovered from further testing, the new drugs and treatment that some of us are trying out etc.

Crikey it was almost a year ago I joined here and we had few meet up's last Autumn/Winter.. unfortunately there are a few ladies who were also there with me, troopers that we are.

Those who have shown an interest will chose a location and then we all rock on up. It's like an internet date..the rest of us sit looking for lost looking women of "child bearing" age sipping caffine free, non alcoholic drinks like that is actually going to help. A few bottles of red have been known to flow as the conversation gets started..

p.s been up since 4.30am 8 days past my 3 day frozen embryo transfer and not a hint of a line on a damn stick yet. I feel about as pregnant as the Pope right now, just feeling shite as have cold caught from DH's touch and go man-flu episode.

On a more positive note have got an IVF round lined up for early next year on NHS.. (don't ask how) but took a lot of questioning. Looking at my history the response was.. no wonder you are not pregnant anymore..look what you have been putting your body through the last year...???*

Bellyd got my results last Saturday, and it was chromosonal. Mr S was practically jumping up and down, said that was a great result as his treatment plan was clearly working, and advised us to try again. He said if it'd not been chromosonal he would have been scratching his head, wondering how to tweak my treatment plan.

We have a real dilemna now as we had said last time was the last try, but I'm not sure we could forgive ourselves in 2/3 years when it really is too late if we weren't strong enough to go through it one more time. I'm really not sure how we'll finance it either, but there's always a way if there's a will.

I think we're going to try a couple of months "naturally" before we go back to SO - financial reasons if nothing else. This will definitely be the last try though - I don't think my body can cope with any more!

Kittens - fantastic news!

Duggs I'm up for the 27th, and live in Kent so the Southbank works for me.

Sue my thoughts are with you and your family. Scarlett is a beautiful name and I know you will never forget your lovely daughter but I hope with time you manage to get through this heartbreak. I hope you are being provided with the support you need. Sending my love.

Sue, I've been thinking about you lots over the last few days. Scarlet is a pretty name. Wishing you and your dh strength to get through this. xx

Kittens You must be feeling so relieved. Great news!

sue Thinking about you xx

abney Just wondered how things are going with you?

Just posted this on the SO thread. NOW I'm feeling relieved! Couldn't somehow relax 100% until today.

After a rather tense afternoon of waiting I got my CVS results at the very end of the day. They know how to keep you on the edge of your seat! HUGE relief to get confirmation that there are no signs of the most common chromosome abnormalities or cystic fybrosis. They will send me results of further tests in a couple of weeks but these are for things that are very rare to they say the chances of any other problems are unlikely. I shall try and relax a bit until my anomaly scan. Now I have to let the information filter through that I am actually pregnant and may well end up having a baby.

Hi all. Havingkittens congratulations on the scan results. Now hopefully you can relax and enjoy your pregnancy. Really good news.

Ari I am OK but I am really concerned that I don't feel the least bit pg. I know the pred is supposed to mask the symptoms but I am still worried. I have my first scan on Tuesday. Managed to put it off until 8 weeks and it will be a miricle if everything is OK. I know I am supposed to think positive but it is hard.

That's fantastic Kittens!
Sending lots of PMA your way Abney Xx