TTC or pregnancy on prednisolone or similar part 9

[sarahs999]

Oh dear - we reached 1000 posts on thread 8 without noticing! I hope you can all find this. THis is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Kittens this is fabulous news! So amazing to see it all developing well isn't it, just taking it scan by scan. Are you going to get a doppler? I know it can freak some people out but for me it helped get through that long period between the 12 and 20 week scans.

Abney symptoms def come and go! Good luck for tues, we will be thinking of you.

All ok here. DS is 11 weeks on Tuesday would you believe. There are daily anxieties - such as is be eating enough, pooing enough, sleeping enough, sleeping too much etc etc but otherwise am getting more and more used to it.

Love to all xx

Hello ladies,
I wonder if u can join your group please?
I'm currently PUPO having today had 2 day 3 embies transferred, so here starts the waiting!
It's our 2nd ivf. Our first was due to 'unexplained infertility' (I hate that phrase). We had a grade a blast transferred but days before I found out my TSH level had gone from 0.16 to 8.9 and so u felt it was doomed from the start. Unbelievable I got a BFP but then had a m/c at 5weeks.
Not one to be fobbed off I read the Dr Beer book, having myself got underactive thyroid and endometriosis, and managed to get referred to Dr S as we live close to Epsom. I just knew there had to be an explanation and low and behold I have high NK cells. So I'm on 25 mg prednisolone, fragmin and I've also had my first intralipid just last week.
I'm given hope by your stories, though some ladies have certainly been through the mill and the road goes on, but it's good to hear the positive stories and know that I am not alone with this treatment.
So, hoping I can join and you might keep me sane for the next 11 days and beyond!
Emma xx

Hi Coopde Nice to meet you! Here's to those embies bedding in nicely and a great BFP in 11 days time! X

Thanks Greenolives. Just had acupuncture and now home to settle on the sofa. It seems the Ryder cup will be on the telly all night according to my DH so nothing strenuous (yawn!).

Hi Coopde welcome to the thread! Well done for knowing the lingo already with PUPO :) I don't post as often as previously as I have a little Pred Baby tugging at me much of the day but I started the thread way back (maybe a year ago?) and there are now, well, loads of us! And yes good that you took it into your own hands and found Dr Beer/Mr S.

WOuld love to chat more but gotta go! Am lurking though xx

Thanks freelance girl. Congratulations and thanks for setting up such a great thread.
DH is currently drinking a glass of Rioja, the git!
I will pop by when I can between relaxing and being a lady who lunches for the next few days while still off work.
Have a lovely weekend everyone.
Emma x

Morning everyone.

Just wanted to say welcome to Coopde - you're in the right place this is a really courageous group of ladies on here with a wealth of knowlege to help provide support.

Kittens glad all went well with the scan - you must be very relieved.

Snoopy I don't think I ever got a chance to say lovely to hear from you and excellent news that the chemo is over and I hope the final stages of your treatment are easier on you. You are tremendously brave and a real inspiration to us all! Do stay in touch

Sue you are in my thoughts.

PQ any news on your lo.

On my side we still have no name for our little girl at 2 weeks which is very embarassing but we each prefer one above the other so will have to knuckle down and thrash it out! She's a very sleepy little thing and we ended up getting readmitted due to weight loss as I had another codeine induced panic attack the night I got home from hospital a I'd had with our dd1 - so off the drugs completely but have made a fantastic recovery from the op - thanks to you all for your positive vibes!

Sue, hugs and love to you all and scarlet x x

just wanted to say that we had a baby girl on the 22nd, all went well and are now attempting to settle in as a family of 4!
Wishing everyone all the best, I will definately be lurking and catch up with everyone's news xx

Hello!!
Great news kittens - is this where the relaxing starts?!

Hope alls ok Tues abney - totally with you on the symptom checking! But they really do come and go.

Welcome Emma - fingers crossed for a lovely BFP!!!!

Thinking of sue and scarlet xxx

All ok......I think!! Not had a scan for nearly 2 WHOLE weeks!! Got my nuchal on Wednesday, feeling very nervous! How long do the blood results take to come back? Do they tell you on the day about scan results?
Now on 25mg on Pred, weaning going ok - I think my stomach is strinking?! Worried as I dont feel constipated anymore!! Still waking up at stupid o'clock!

Hi to everyone!

xxx

Congrats hopeful !!! xx

Dear all - its been months now since I've posted but wanted to say hi and see how everyone is getting on. I was so pleased to go through the list and read the positive news but devastated to read about your special daughter Sue - my heart goes out to you, I'm so so sorry that this has happened.
Sending my very best to all those with their babies, those carrying them and those trying xxx

Mercator Glad to hear all is going well
Hopeful Lovely news, congratulations!
Buster Good luck for Weds! I know exactly where you're coming from on the gap between scans - its my 20 week one on Fri and it will have been a massive 12 weeks since my nuchal one! Thank god for the doppler which has kept me sane(ish) in between
Waves at Comedy, thanks for your good wishes.

Lovely to hear from you merc and comedy! Welcome Emma. BFN for me today after my frozen embryo transfer. Bit of a kick it the teeth ( not that I have many metaphorical teeth left these days) so am used to feeling like this now. On to another super ovation cycle for October. Hopefully the recent successes on there might start to rub off on some of us? Good luck for scans this week are there any?

Duggs I am sorry, you are long overdue for some good luck.

Hopeful, congratulations - are you going to namechange now?!

Everyone one this thread will always remember wee Scarlet, thinking of you Sue x

Hi ladies, been lurking for a few days but I find it hard seeing myself on the TTC list again for the 3rd time in a year. We are still in limbo until we have Scarlets funeral which will be when she comes back from the post mortem at the end of this week/beginning of next. I feel so low at the moment and desperate to be able to start trying again even though it won't bring her back. I am worrying that we will never get our little one and that I am fated to keep having bad luck. Everyone around me seems to have such good luck and I don't know how many more times I can keep going. It was such a relief when I saw mr s at my 16 week scan and he congratulated us. I thought that I wouldnt be going back and the nausea etc had calmed down so I was feeling relaxed about the pregnancy and looking forward to the future for once. I now feel like I am back at square one and petrified I will either not be able to get pregnant or will lose it once I do.
Sorry for moaning so much when everyone has their own demons to deal with, I just worry that this is the end of the road for us.

sue You of all people never need apologise for moaning, you have more right than most! You should never have had to go through this, we all of us in our own way understand your fears for the future. Take heart, you've been through so much, surely if anyone is due some good luck it has to be you? Be gentle with yourself, you've been through hell - and are still going through it. Take whatever time you need to grieve and let your body re-sort itself out. You're not out of the running, and you have guts and strength to spare - and we're here to cheer you on and lend copious amounts of PMA when your stock runs low.

Thanks ari I ordered some ovulation sticks today as will start to track my cycles once they start again. It makes me feel like I am doing something positive. I left a message for Louise at nlc to call me back as I want their advice on when we can TTC again and whether I should keep taking some of the drugs. I also want to know if this has happened with any of their other patients.

My gp is referring me to the recurrent miscarriage clinic at John radcliffe in Oxford as they do a lot of reassurance scans in early pregnancy and have specialists onsite if we do have any other problems. I just feel that now I am 40 I am clutching at straws and that the chance of me having eggs without chromosomonal problems is diminishing. Sorry for being so negative!

sue I have to say that you have proven you have good eggs still and scarlet was one of many ( you have millions even at 40) there is NO reason another good egg won't come along. The Super ov messed your cycles up a bit I think as u conceived on month off?! Not sure what the pred did but u seemed to have a good combination with pred and hydroxy as it got u thru first trimester. Think is a case of do everything u did again. You've got pregnant quicker than most of us still pissing about on here and SO thread so have some comfort in that fact. You'll do it again honey. X

Thinking of you Sue. You seem so strong, but allow yourself the odd wobble! I completely understand your need to do something proactive and ttc immediately, but it may do your body a favour just to have a couple of months off? It took my body about 3 months to get over my last mc and erpc, and I was only in the early stages.

Listen to everyone's kind words and advice, but absolutely do what is right for you, whatever will help you carry on being strong.

Loads of love xxxx

Just posted on the SO thread. Hi all, Just got back from Epsom and thankfully there is a strong heartbeat. I didn't look at the screen this time as I was too terrified. I had worked myself up into a state of pure negativity so it is still taking a while to sink in. It measured 7.4 which is in the correct range. Sadly he said that it looks like there was a twin but it is now just a 'product'. He said that the body would just absorb it. Anyway I am so relieved. I am still shaking. Just had my 2nd set of intralipids. Ari I hope you are OK. Thanks for your wishes. Just need to hope and pray I can now reach the 9 week stage.

Sue good to hear from you. I hope that you are OK. 40 is quite young these days so I don't think you have any worries there. Anyway good luck over the coming months and of course Scarlet will never be forgotten.

abney Said it on the SO thread but I'm so very pleased for you, a great relief, and crossing fingers all continues to go ok. When's your next scan? And thanks for asking .. I'm trying really hard to stay away from the tests as they'll only drive me mental, but as you know I'm not too hopeful, and I will probably test again on Saturday which is one week past when AF was due. If the FRER is still faint by then - well, I know the answer. I have seen all this before, this is almost identical to what happened in Dec last year, but of course as I said I'm not above praying for a miracle :)

sue It's good to feel you can be doing something positive, and as duggs so rightly says, you have proved you have good eggs and Scarlet won't be the last, I'm sure of that. Sadly sometimes an otherwise beautifully-developing baby can have something wrong with it, and no amount of effort on your part can do anything to influence that. That does not mean it will happen again - and well done to your GP for referring you to John Radcliffe for a future pregnancy, as frequent reassurance scans can make all the difference to your peace of mind. 40 is definitely not old to be having a baby (just look at abney and kittens for their successes, if not others!) and your chance will come again. I'm mad for still trying at 44, but even I still hope that there's at least one good egg still in there - it's just having the persistence to keep going until you get to it.

Not been to look on SO thread but, err, Ari BFP??? :)

But I know what you mean about faint lines... Hcg test??

Hey choccy, good to hear from you! It's a bit of a saga (isn't it always?) and I don't like to bore people, but it seems a repeat of what you and I both went through last Nov/Dec. What I call a medium-faint FRER BFP at 12dpo last Thu, exact same strength 3 days later at 15dpo, and again at 16dpo. No lighter, no darker; clearly visible but not strong. Louise suggested to have b-hCGs done when I was supposed to be having ILs yesterday but after speaking with Mr S yesterday morning, Louise said that he'd said no, don't bother with the b-hCG tests but just go for ILs and still have a 6/7 week scan. shrug I did what I was told, I had the ILs (along with having a huge sense of deja-vu), but I am of course almost certain I just threw away £350 :( . Faint FRERs repeated over 4 days cannot be a good thing.

Not meaning to be pessimistic, just taking my own personal experience into account and trying to look at it realistically. Dec's MC started 2 weeks after I go the first faint BFP, so I guess I have to wait probably another 2 weeks yet to find out for definite.

I have started weaning off steroids (from 9 weeks) with great relief as per Mr S's instructions but having done a little reading about weaning off, I noticed that most people start the weaning process at 12 weeks not 9. I should finish weaning at 12 weeks. I am just wondering why this is. Did anyone else start at 9 weeks? Not that it would stop me at this point anyway as my face is so large it can be seen from the moon, never mind moon face

Sue if anyone deserves a run of good luck now its you. I completely understand all of your fears but you are not too old and I really feel you will get your much wanted baby one day - and I hope with all my heart that it will happen as soon as you are ready to try again.
Abney Great news!
Ari I have everything crossed for you!
Cate The weaning from 9 weeks is for those on 40mg Pred, I was only on 25mg so didn't have to wean until 12 weeks - hope the moon face disappears nice and quick!