TTC/Pregnancy on Prednisolone or similar part 8

(1000 Posts)
Arianrhod Mon 11-Jun-12 10:06:48

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 7 http://www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Arianrhod Mon 11-Jun-12 10:07:25

Thought I'd start us all off with our fresh shiny new thread, since I found the old one already full!

Arianrhod Mon 11-Jun-12 10:21:20

sigh .. just realised I didn't make all the previous thread links as actual clickable links. Oh well, cut-and-paste always works for me smile

Hopefully I've PMd everyone the new link, apologies if I missed anyone off unintentionally and more apologies if I PMd anyone twice!

suemays Mon 11-Jun-12 10:22:51

Ari I have just started one too so we will use this one! Great minds think alike!!! I will try and close the one I started!

Pico you are entitled to feel depressed with your history as it's a long time to be trying with no success. I agree that this thread has been my life saver as its the only place where everyone can empathise. I found that once I had been on the steroids for a couple of cycles I didn't feel as depressed. The first month was always the worst.

I do find it annoying that Mr S will only do certain tests but then I guess he does have a high success rate with his treatment plan so why change it? It's hard to know if any of the others are trying to fleece us for as many tests as possible as we are so desperate or if they are acting in our best interests. I think as we get older, the eggs are not as good quality so statistically we will lose more pregnancies regardless of NKCs/infections etc. It's hard to know which eggs would work even after throwing all the drugs at them.

I did another CB digital POAS today and it's still saying 5+ weeks so I am now counting down the days until Thurs eve. Paranoid that there will be nothing there or no heartbeat as I don't feel pregnant. I know the steroids can mask the symptoms but I am still worried!

Holldoll I tend to get faint BFPs at 10dpo but not earlier with first response so it is still early days for you yet. Good luck!

Waves to everyone else.

Arianrhod Mon 11-Jun-12 10:29:07

Ok, adding in my stats, does make me feel a bit gloomy doing this but it's v interesting to read what everyone has gone through. Goodness what a resilient lot we are!

Preg 1. Resulted in DD born in Jan 2007. No probs in pregnancy at all. (previous partner)
Preg 2. MC Dec 2010 at 9.5 weeks, baby died around 6 weeks
Preg 3. MC Feb 2011 at 5.5 weeks
Preg 4. MC July 2011 at 9.5 wks, baby died at 8.6 weeks
Preg 5. MC Dec 2011 at 5.5 weeks. High dose pred/intralipids/aspirin.
Preg 6. MC May 2012 at 4.5 weeks. Did not take pred that cycle, was on hydroxy. First cycle on superov.

Arianrhod Mon 11-Jun-12 10:33:26

sue Whoops ... smile Sorry, I just saw there wasn't one and started one, obviously we were thinking the same thing!

pico I'll echo exactly what sue said - you are absolutely entitled to feeling low, after everything you've gone through and over such a long period of time. Well done you for not giving up!

sue Agree with everything you say about tests and eggs. I'm still determined to get OH tested, along with the hidden infections thing, as without it I feel we've only got half a picture.
Very best of luck for you for Thursday, am so crossing every possible limb for you!

And holldoll lots of luck for you too, hope this is the month!

/waves to everyone

Havingkittens Mon 11-Jun-12 10:42:06

Hello. Just popping on to mark my place as I put the other link on the "I'm Watching" so want to over-ride that by having the "real" one on "Threads I'm on" smile.

Sue, it sounds promising that your CB Digi is still showing 5+ wks. Fingers crossed for your scan on Thursday.

I'm on CD5 today. Got my tracking scan next Monday, where I will also get Mr S's lowdown on my depressing test results. Hoping for a combination of post hysterscopy fertility, revised SO treatment success, Lucky Number 7 pregnancy and my friend's dad's "woooo" numerology forecast that I will get pregnant in June (that last one, I'm taking with a HUGE pinch of salt wink).

pico, I really feel for you. I am struggling enough as it is with the steroids but you must really dread the idea of going back on them, given how you've been feeling the last few months. When do you have your appointment to see your GP about Thyroid tests? If it turns out to be a thyroid problem at least you know you can treat that and then the steroids may not be so daunting.

Feeling rather blue at the moment. Really missing my mum. PMT followed by hormonal drugs probably not helping.

choccy, how are you doing? I've had 3 appointments so far with my bereavement counselor. I'm finding it quite helpful. Just somewhere to unravel the thoughts in my head and let off steam.

freelancegirl Mon 11-Jun-12 10:42:36

Are we using this one? Just a quickie to mark my place as I realise I have missed a lot from the other one. I will bring the list over, am thinking of a way to add the new stats into it in short form.

BellyD Mon 11-Jun-12 10:43:59

Hi, just marking my place. Thanks for starting the new thread/s Ari and Sue.

Pico so sorry you are feeling low. The grim weather doesn't help either. We're all here for you.

Havingkittens Mon 11-Jun-12 11:01:50

I may be being a stick in the mud, but I can't help wondering whether there is actually any point in comparing our pregnancy histories. What will it achieve? I mean, we tried to compare stuff on dugg's list previously and I can't see how it's helped us. The one person who had the highest NK Cells, free, is just about to have a baby, then there are others who have much lower levels who are still struggling to get pregnant.

Looking at that old Google Docs chart we did ages ago, and seeing the outcome a year or so later, I think even a doctor or scientist would struggle to find a pattern so I'm not sure what chance we think we have!

PQ77 Mon 11-Jun-12 11:02:27

Thanks for new thread, just marking my place & back soon

freelancegirl Mon 11-Jun-12 11:06:29

Have tried to briefly squash our mc/pregnancy histories into the list too. Please feel free to add/ammend!

Help! Is Gransol a name changer or someone I have missed! Sorry - been out in the countryside all weekend with no internet access.

Mon 11th June

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (ELCS) 14/5/12 7 lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (ELCS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (ELCS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (one on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 33+6 Next appt/scan, 22nd June EDD 24/07/12 by LMP, 22/07 by Nuchal
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 33+6 EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 30+5
coleyoz - V High NKC. DC#2, BFP cycle2, 30+

2nd Trimester

FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 25+5
Mercator - V High NKC, TTC#2. 25+4
Hopefulfor2nd - High NKC - TTC#2. - 24+5
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 24+5
PQ77 - V High NKC TTC #2 (BFP cycle one but mc) 20+1 Next scan @ 20 weeks

1st Trimester

HelterSkelter (IVF and immune therapy) 9+3

To be added to shortly...

TTC – ASSISTANCE - SO/IUI/IVF

Suemays - TTC#2 DD, followed by 5mcs all 6-8 weeks. V High NKC, TTC #2. Superov. (Pred & Hydroxychloroquine) 6+6 Scan 14th June

EchoJuliet Preg 1 - awaiting diagnosis, MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 –pred, intrallipids, metformin, clexane, cylogest
Havingkittens - Upgraded from High to V High NKC TTC #1 -10 pred – 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 11 pregnancies (mcs + chromosomal) DD 7th preg, V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)

TTC
London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, gen 6-8 weeks. NKC not tested, TTC #4 cycle 2 (after m/c 12) Fertility consultant
prescribed pred.
GreenOlives - High NKC, TTC#2, have decided to only take Pred from BFP
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS\

Gransol - Seven mcs - all losses between 6 & 7 weeks

freelancegirl Mon 11-Jun-12 11:17:00

I think there is some value in adding our pregnancy histories. Particularly for new people who are looking for answers. We are initially here because we (with a couple of exceptions) have had recurrent miscarriages rather than struggled to conceive, although the latter seems to have emerged with a strong connection to high NKC since we've been here. Maybe that was something we didn't realise before we all started comparing experiences?

Also it seems like there are in fact some patterns emerging - that as well as quite a few chemicals very few pregnancies have made it passed 9 weeks. To a newbie who hadn't yet been diagnosed with high NKC that might help ring some alarm bells.

I personally found out about NKC on the miscarriage forum here - the recurrent buns thread - which no longer seems active. So I am guessing that is one way it might be helpful to others if not to us who have already been diagnosed.

And when you do see people, such as myself, who so far on the 5th pregnancy has managed to carry a pregnancy to 34 weeks despite having one of the highest levels of NKC maybe that can help provide some positive views too (although I realise I am not home and dry yet!). And then there are people like Willitbe who has said so many miscarriages now after 3 healthy pregnancies. And Euro who has HNKC and has never had a BFP. Not everyone would have known that, and I feel the more experiences we have on here the better in terms of trying to understand what is going on and also, again, helping other people find their way to treatment.

suemays Mon 11-Jun-12 11:23:22

Kittens I find the history of everyone is helping me get through the early weeks of pregnancy as the majority of us seem to lose our pregnancies in weeks 4-6 so I have more hope with every day I get through. It is also helping me that quite a few of the 2nd and 3rd trimester ladies and those with the newborns have had 6 or 7 miscarriages followed by success.

It is quite depressing seeing how many we have all lost but at least we are all in good company! There are also not many who have lost pregnancies after being on the hydroxy for longer than 6 weeks as well as the steroids. I dont think we can count the chemicals as they were probably more likely down to bad eggs or implantation problems so once the pregnancy is established after a few weeks the hydroxy seems to have a good success rate. Maybe I am just clutching at straws????

Sorry to hear you are feeling down too today and missing your mum - I agree that the weather doesn't help when you are feeling low already. I am glad the counselling is helping.

Arianrhod Mon 11-Jun-12 11:27:00

Just amending my entry in the list, I certainly haven't had 11 pregnancies or DD on the 7th try?? shock grin

Mon 11th June

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (ELCS) 14/5/12 7 lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (ELCS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (ELCS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (one on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 33+6 Next appt/scan, 22nd June EDD 24/07/12 by LMP, 22/07 by Nuchal
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 33+6 EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 30+5
coleyoz - V High NKC. DC#2, BFP cycle2, 30+

2nd Trimester

FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 25+5
Mercator - V High NKC, TTC#2. 25+4
Hopefulfor2nd - High NKC - TTC#2. - 24+5
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 24+5
PQ77 - V High NKC TTC #2 (BFP cycle one but mc) 20+1 Next scan @ 20 weeks

1st Trimester

HelterSkelter (IVF and immune therapy) 9+3

To be added to shortly...

TTC – ASSISTANCE - SO/IUI/IVF

Suemays - TTC#2 DD, followed by 5mcs all 6-8 weeks. V High NKC, TTC #2. Superov. (Pred & Hydroxychloroquine) 6+6 Scan 14th June

EchoJuliet Preg 1 - awaiting diagnosis, MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 –pred, intrallipids, metformin, clexane, cylogest
Havingkittens - Upgraded from High to V High NKC TTC #1 -10 pred – 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)

TTC
London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, gen 6-8 weeks. NKC not tested, TTC #4 cycle 2 (after m/c 12) Fertility consultant
prescribed pred.
GreenOlives - High NKC, TTC#2, have decided to only take Pred from BFP
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS\

Gransol - Seven mcs - all losses between 6 & 7 weeks

freelancegirl Mon 11-Jun-12 11:29:00

Sorry - I think I got Abney mixed up with you Ari when I looked down the list!

Arianrhod Mon 11-Jun-12 11:29:58

lol I wondered if that was it, gave me a bit of a scare! smile

batteryhen Mon 11-Jun-12 11:31:56

Hello! Just book marking. I am really impressed with the levels of determination shown by all the ladies on this thread towards achieveing their goal. I had 3 miscarriages before this pg, and all showed heart beats, and all were only picked up on scans.

All ok here - weather is dreadful, but nothing to report otherwise!

freelancegirl Mon 11-Jun-12 11:42:04

Kittens I too am sorry you are feeling low today and missing your mum. It's heartbreaking that you have lost her and I really can't imagine how you get through. I guess you just do. Same for Choccy too. Pico was feeling low too, I remember from the last thread, sorry to everyone having these downs. And yes, the weather is shit.

Funnily enough, regarding the miscarriage thing, it can hit me again unexpectedly this weekend. In my NCT class on Saturday I have consistently been my usual chatty self, trying to make sure it was enjoyable as well as helpful. Hey, let's face it I was there to make Baby Friends seeing that I don't really have any old friends where I am now. But at the end of the class the leader asked us all to, in a circle, say how we are now feeling about the forthcoming pregnancy. I was last in the circle, had they started with me I think I would have been fine, but listening to every single one of them say how excited they were and how they had been looking forward to meeting their little one etc etc just pushed me over the edge. Everyone was just so excited and positive!

As it got closer and closer to my turn I just knew I was going to choke on my words. DH, standing next to me, said it had been a long journey getting here and by the time he had got that out I just managed to splutter that I just wanted everything to be ok and then start crying in front of everyone. I think everyone found it quite a shock as I'd been the lively, smiley one before that! Everyone went very quiet and there were a few more tears held back.

There is a final session, a girls only one, on Friday so am thinking maybe I better offer a short explanation, without wanting to freak anyone out of course. Wondering how I can let them know I've been pregnant now for, with two very short breaks for bleeding, crying and heavy drinking, for 18 months and yes, the only thing I want now is for Everything to be OK.

GreenOlives Mon 11-Jun-12 11:47:56

Hello ladies, just marking my place. Im on my phone at mo so could someone add my history please?
Pregnancy 1 - DS born June 2008
Pregnancy 2 - Miscarriage at 7 weeks Nov 2009 (heartbeat seen but smaller than dates)
Pregnancy 3 - Miscarriage at 7 weeks December 2010
Pregnancy 4 - Ectopic October 2011, left tube removed
Pregnancy 5 - Chemical pregnancy Dec 2011
Saw Dr S after this and diagnosed with slightly high NKC.

Havingkittens Mon 11-Jun-12 12:00:51

Oh, bless you free. I can well imagine it must be very strange to be surrounded by the "blissfully naive". It's something we all envy so much to be in that position where the normal trials of pregnancy are the only things to get stressed about whilst pregnant. I'm sure they will all understand. You may even find that a couple of them have been being stoical and have bad experiences of their own.

Well, as everyone else is adding their MC/pregnancy histories I guess I will add mine too. Even though, as I said, I'm not sure how it can shed any light on our fact finding missions.

Preg 1 - Started bleeding 10.5wks, MMC, stopped developing at 8wks
Preg 2 - Downs Syndrome discovered at 12 wk scan after CVS - termination
Preg 3 - As above
Preg 4 - MMC discovered at 8wk scan, stopped developing around 5/6wks
Preg 5 - As above
Preg 6 - Scan at 6wks, not fetal pole, repeat scan 8wks still nothing (Asprin & "TLC")

All conceived within 1-3 cycles. Now, 18 months since my last mc, there is tumbleweed and sand blowing through my womb.

PQ77 Mon 11-Jun-12 12:39:06

kittens sorry to hear you're missing your mum. So glad that the bereavement counseller is helping. Obviously there is no expiry date on grief, and everyone is different, but it's been 11 months since dad passed away and I am only just beginning to feel a bit better. For many months I thought I was never going to lift my head above the black cloud.

free i think it's great that you shared that with your group - upsetting but now it's out there. I think it's really healthy to talk about it now - it can sneak up on you and it can also strike when you're little one is here and old memories come rushing back (sorry, i am the PND police and it is something I really care about and worry about for other people).

sue I'll be thinking of you on Thursday. Anyone else have a significant date this week? euro remind me when you start on your next phase?

echojuliet i think you were wondering about how attacking the nk cells in the first 12weeks can help later on. As I think free said, Dr Beer's book ("is your body baby friendly")does offer an explanation and hopefully Mr S will explain it to you clearly - write a list of questions and don't leave his office until you are perfectly clear! I unashamedly take a list and tick questions off as we go along (this goes for any Dr/midwife appt...I am a bit of a pain in the butt).

In case anyone is interested in donor eggs, a friend has just had an IVF transfer abroad (W. Europe). Was very quick, straightforward and not as expensive as one might think - and of course all properly above board and regulated by the appropriate authorities. I can get hold of the details if anyone would like to learn more. Hope me mentioning this doesn't offend or upset anyone, it's just that I was v interested in how easy it was (as "easy" as IVF can be of course).

To the extent that this is helpful - i think someone asked who'd had a mc on Nk treatment - i am another one.

From 2008 to date:
para1 - 6 weeks
para2 - 6 weeks
para3 - DS born. Aspirin (+ had tonsils removed at suggestion of consultant who thought i had chronic inflammation response throughout my body. Had the tonsillectomy massive dose of anti b's 2 weeks before I conceived and massage treatment to reduce inflammation in first trimester)
para4 - mmc (heart stopped around 8 weeks) ERPC
para5 - blighted ovum. ERPC
para6 -6 weeks
para7 - 6 weeks (on NK treatment - normal level)
para 8 - currently 20 weeks. High NK treatment this time. Also made some lifestyle and dietary changes and added selenium for first trimester.

Big hello to everyone else. Have just got off the phone to a friend and we agreed that this weather is making us both MISERABLE.

freelancegirl Mon 11-Jun-12 12:58:15

I really should be doing some work as done sod all this morning! but here are kittens, olives and PQs details added to list.

Mon 11th June

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (ELCS) 14/5/12 7 lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (ELCS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (ELCS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (one on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 33+6 Next appt/scan, 22nd June EDD 24/07/12 by LMP, 22/07 by Nuchal
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 33+6 EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 30+5
coleyoz - V High NKC. DC#2, BFP cycle2, 30+

2nd Trimester

FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 25+5
Mercator - V High NKC, TTC#2. 25+4
Hopefulfor2nd - High NKC - TTC#2. - 24+5
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 24+5
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 20+1 Next scan @ 20 weeks

1st Trimester

HelterSkelter (IVF and immune therapy) 9+3

To be added to shortly...

TTC – ASSISTANCE - SO/IUI/IVF

Suemays - TTC#2 DD, followed by 5mcs all 6-8 weeks. V High NKC, TTC #2. Superov. (Pred & Hydroxychloroquine) 6+6 Scan 14th June

EchoJuliet Preg 1 - awaiting diagnosis, MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 –pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -10 pred – 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)

TTC
London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, gen 6-8 weeks. NKC not tested, TTC #4 cycle 2 (after m/c 12) Fertility consultant
prescribed pred.
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, decided to only take Pred from BFP
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS\

Gransol - Seven mcs - all losses between 6 & 7 weeks

PQ77 Mon 11-Jun-12 13:23:11

Oh my goodness, completely forgot - many congratulations brownie and family, I'm so thrilled for you.

Thanks for your superb editing skills free

igggi Mon 11-Jun-12 14:10:53

Thanks Sue and Ari for the pms with the thread links - I'd still be checking the old one otherwise as am idiot
Free your story really touched me, I don't think tbh any of us will move back into the carefree pregnancy mode, there's a part of me that, whenever someone on the street etc says what a lovely baby, feels the urge to say something about how hard a journey it was to have him. I usually resist! Though I do say something to midwives, I think it's really strange my history is not obvious to them (or maybe they just haven't read them).

freelancegirl Mon 11-Jun-12 14:53:32

Anyone else reading the vegetarian and pregnant thread? I know Iggi is too as she has posted as well. It's really annoying me. There are so many people saying 'I am a vegetarian and I've had no problems etc etc' which is great but there are two separate issues there! She has a healthy diet and am pretty sure it has nothing to do with the mcs. The fact is she has had 2 mcs in a row and that rings alarm bells for me, not the bloody diet. Ah well, hopefully her third/current pregnancy will be fine and she won't need to look into this stuff ever again.

eurochick Mon 11-Jun-12 16:08:13

free I can imagine how difficult that must have been. I think you should tell them what you have been through at the next session. After all, you are hoping these will be your "baby friends" so it will come out at some point.

PQ I'm due to start downregging next week. Still not happy about it, but will probably force myself to get on with it!

EchoJuliet Mon 11-Jun-12 16:17:55

Hey lovelies. Just out of hospital after ERPC. So glad it's over as was having nightmares about it going wrong. I think you are all amazing mummies who show such strength and courage - the stats are proof of that. Hope I can find some. Feel all out right now.

Interested in the views being expressed at the end of part 7 re choosing between Dr S and Dr G - I struggled to decide and wondered what your experience/opinions are?

Free - can empathise with how you feel. Before I lost Amelia Rose people would ask/say very normal things to me like how exciting/when are you due etc etc and I used to have to battle back the tears and say things like 'if all goes well' or 'if the baby makes it' - people didn't like it and told me not to worry.........so much for that eh :-(
This all changes us so much and we lose all innocence/naivety but gain gratitude and empathy with others in bucketloads - I think it's what will make each and every angel parent such amazing earth parents. Big hug

Xxxxx

gransol Mon 11-Jun-12 17:35:43

thanks for the link
freelancegirl im new to this, i find it very helpful looking at all the historys of you girls especailly with the positive outcomes some of you have had. I just waithing to get the courage up to try again.
sue really hope it goes well on thursday will be thinking of you

one question not sure if anyone will know the answer Dr s said all my losses are chemical pregancies but i thought that was when they didnt implant, my scan show collpased sack so surely something implanted, i bleed between six and seven weeks.

Pebbles73 Mon 11-Jun-12 18:06:16

Sorry you are feeling down Kittens and *Picolina, wish I could say something to make you feel better so will send virtual hugs instead.

Free I can totally understand why you burst into tears, it's all such an emotional roller coaster. I second Euro and think you should tell them. Sending you a big hug also.x

Good luck for next week Euro and I promise it won't be as bad as you think. grin

I am not doing super ov this month but trying naturally, kind of! I am not temping and not bothered with ov sticks as never work! Just wondering if I could just take pred anyway around time I normally ovulate?? Has anyone else done this?? Also Free when you have a min could you send me that pred?

Waves to everyone I have missed, has been busy on here today!

Havingkittens Mon 11-Jun-12 18:49:43

pebbles, considering I tend to take the pred a couple of days after my surge on the OPK sticks it's not exactly an exact science either. I'd say you should be ok. I've always been inclined to take it just after I think I've ovulation though as there has been a lot of talk on here about it delaying ovulation.

echo, I don't think I said hello when you first joined as I was posting from my phone. I am glad your ERPC went smoothly but very sorry for your loss.

gransol, I'm afraid I don't know the official answer to your questions but like you, I would think that if there is a gestational sac it would indicate there was implantation.

CareBear1 Mon 11-Jun-12 19:02:43

Very heartbreaking to read of all those losses.

For anyone else reading this, and for comparison purposes, I'm another no-BFPer and just VNKC diagnosed so far, which Mr S said could be the cause of repeat implantation failure as well as repeat MC's.

picolina123 Mon 11-Jun-12 19:18:55

had doc appt today, going back thur for blood test, going to test for thriod or any other autoimmune probs, she seems to be a good doctor so lets hope we will get to bottom, she didnt think it was a good idea to go back on steriods until we get to bottom of it .

kittens im sorry you feeling crap as well, i lost my dad nearly 20 years ago and when i think about it it still makes me cry, same with my brother, it took 6 mths before i stopped cyring every night, you will get to a point where you can cope , in your own time.

sue i hope everything is ok and you keep getting good news .

free you made me cry when i read about your meeting , i know how you feel , im ok if i dont have to talk about anything into much detail esp to people i dont know, if i do i become a blubbering mess its naturala nd if you told them your story i think more than 1 person is going to be teary

picolina123 Mon 11-Jun-12 19:21:51

i noticed i mentioned the would cry a lot, it IS the bloody weather!!!!! freaking rain..go away!!

forgot to mention got an email from dr trevor wing assistant, they have mid july free, im going to go and see what happens ... i will do this without crying !!

PQ77 Mon 11-Jun-12 20:28:51

gransol I agree with kittens - I think a visible sac = implantation. My understanding of a chemical is that sperm has met egg to create an embryo but that it didn't implant. On a couple of my early mc I had v v early scans to rule out ectopics, eg 5+5, and you could see the sac + fetal pole. I don't think of them as chemicals.

echo glad the op went well. Do keep us posted on how you're going if you feel up to it.

free i think my earlier post didn't make sense. I think it would be good if you did give more details when you next meet and I think it was healthy that everyone could see that not everyone was ecstatically happy when you did your little group sharing thing. Echoes of my pilates class - please join me this saturday and burst everyone's happy bubble (I don't mean that, really).

Yes, I did see the vege and mc thread. Agree that the diet for this poor woman is most likely not the issue at all but...one of my conception books does warn about having masses of soy based products as the dr does think it can interfere with hormones in some cases. But prob better than a number of other things people ingest! I haven't posted on that thread as I'm just not qualified and I think diet is such a minefield (feel happy discussing it here though smile)

Coconutfeet Mon 11-Jun-12 21:52:16

Hello. Thank you for new thread. Just marking my place before I head off to bed. I've been following the thread on my phone but I can't type on it properly as it's a bit old, so I haven't been able to reply to anything.

Brownie - Huge congratulations to you and Mr Brownie! I hope you're making a swift recovery and enjoying lots of lovely cuddles.

Echo - Welcome and sorry to hear about your loss. Good to hear the ERPC is over and done with. I think that waiting around in limbo is just horrible isn't it. I hope you've got lots of RL support over the coming weeks.

Free - I don't think it does anyone any harm to realise what an uphill struggle some people have to get to the NCT stage, but I would say you should only share with those people if you feel happy doing so. You don't owe them any kind of explanation unless you feel you want to. It's odd (or not really, I suppose) how you think you've got things under control and it just comes back and gets you when you're not expecting it. FWIW - When I got into the delivery suite when I was having ds2, I collapsed into tears and got myself into a right old state. The poor midwife thought it was just because I was frightened of being in labour and kept trying to reassure me about pain relief etc, whereas I think I was just letting out a lot of the stuff that I'd been trying to keep a lid on throughout the pregnancy.

Sorry you are feeling low Kittens and Pico. This miserable bloody weather doesn't help lift anyone's mood either.

Hello to everyone else.

mollieboo Mon 11-Jun-12 22:49:48

Hello everyone, I'd like to join this thread please, I've been reading it for a while. I'm not on steroid treatment but do have an appointment for testing soon.

My history is as follows over the past two years:

mc at 6 weeks
mc at 10 weeks
mc at 5 weeks
Gave birth to my beautiful baby boy at 29 weeks, he died at 5 months old, he was born prematurely due to blood clots discovered in the placenta which prevented him from growing inside me - took progesterone from 6-14 weeks and aspirin throughout the pregnancy
mc at 6 weeks - on aspirin and Clexane
mc at 5 weeks - on aspirin and Clexane

I'm feeling at rock bottom, but this thread gives me hope for the future.

I get pregnancy very easily but my body will just not do the rest of its job.

I'm booked in with Dr Shehata next week and will get the results back soon. I hope I have high NK Cells, otherwise I will be very worried as I'm not sure what else to do from here as I've had all NHS testing and nothing has been diagnosed. Blood clotting was diagnosed when I gave birth but the treatment has not worked.

I'm also starting acupuncture to help restore some balance and harmony to my life, goodness knows I need it.

Well done to everyone on here, we are going through or have been through such a lot of heartbreak. Its lovely to support each other through the tough times and its just wonderful to see people coming out of the heartbreak with their beautiful babies xx

freelancegirl Mon 11-Jun-12 22:55:26

Hi all,

Sorry Gransol I must have missed your arrival on the thread when we changed to the new one. I thought you might be a name changer so didn't give you a proper welcome. Hello! And welcome to the thread. I will add you to the list. I would agree with the others - a visible sac means implantation. I have never had a collapsed sac but last mc was a sac that didn't grow. Mr S told me that although there was no foetus seen there would have actually been one there, just a very small one. Not sure if that is the same with a collapsed sac. I think Pebbles also had the same - no foetus seen but post-erpc tests came back showing there was definitely one there.

And yes CareBear when I have interviewed Mr S I got the impression that having no BFP was definitely something that can be related to HNKC - that they have attacked so early that there was no chance of implantation.

Glad the op went well Echo and that it is over and done with. It's a crucial step in trying to move on and get to the next stage as you know. That must have been so awful with Amelia Rose. I really feel for you and hope you get some answers soon.

Pico great that you have an appointment with the Trevor Wing people! Yes it's funny how these things can hit you at any time. Same for you Coconut, we manage to be strong a lot of the time and then when it hits you it can take a while to pull it together. Let me know what your blood tests results show when you get them! Remember you want the actual numbers.

PQ I would love to come on Saturday but am oop north for a Christening. Actually two of my NCT group go to the same classes but I think one on Tues even and on on Thurs lunchtime. I would really like to start going again soon, must sort that out. Together we would make a formidable team when it comes to freaking out the happy pregnant folk smile

Euro good luck with the down regging. From what Pebbles says it is not as hideous as you might think.

Will def post the drugs Pebbles smile Hope you had a great weekend in Paris. Yes, start taking them around the time you think ovulation would be. It's not an exact science so give or take a few days it doesn't hurt at all. Will text you tomorrow anyway xx

freelancegirl Mon 11-Jun-12 23:01:30

Crossed posts with you Mollie. Welcome to the thread, but oh my goodness what an awful thing you have been through. I cannot imagine what is must have been like to lose your little boy at 5 months old. You poor, poor thing.

Is there a theory that the clotting issue was related to the problems you have been having with miscarriages too? I do hope you get some answers from your appointment next week. Overall I think you will find Mr S very soothing. He really knows his stuff and I hope that he and of course the tests can help give you hope for the next pregnancy.

So sorry you are at rock bottom, it's a terribly sad place to be. I really hope you get some answers very soon and that something like high nk cells is discovered so you can begin some sort of treatment.

Please stay around and chat with us. I really do hope we can be of some help here. We are, if nothing, very well researched and everyone is so supportive. One of our members has also lost a child (as opposed to a pregnancy, although she has had recurrent mcs too) but she has just had a new baby so might not be about for a while.

mollieboo Mon 11-Jun-12 23:16:11

Hi Free, thank you for your reply.

Losing my little angel has been so tough, but on the other hand I feel so blessed to have given birth to him, he really is my hero and was so brave and strong. He's my inspiration and keeps me strong.

I've bought the Alan Beer book after reading some forums, and he said that clotting issues can be related to other immunology disorders such as NK Cells, so I'm feeling hopeful that Dr S will be able to look into all of this and sort me out! I live in Wales but again found out about Dr S from looking at forums and seeing the succes stories.

I'm so pleased that you're having a good pregnancy after everything you've been through, it was probably very tough having another miscarriage after starting treatment but its wonderful that you're where you are now. I can totally imagine how emotional you are feeling, the luxury of only being excited throughout pregnancy is taken away from us when we go through so much beforehand, but all is well for you which is amazing.

Its great to know that the person you are talking about who lost a baby and had miscarriages has now had another baby, I'm so pleased for her. Its awful to know that other people have gone through as much as me but also its nice to know I'm not alone and that there is light at the end of the tunnel.

mercator Tue 12-Jun-12 09:31:03

Hi Ladies - thought I'd add my history of 4 mc's to the list.

Tuesday 12th June

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (ELCS) 14/5/12 7 lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (ELCS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (ELCS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (one on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 34 wks Next appt/scan, 22nd June EDD 24/07/12 by LMP, 22/07 by Nuchal
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 34 wks EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 30+6
coleyoz - V High NKC. DC#2, BFP cycle2, 30+1

2nd Trimester

FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 25+6
Mercator - V High NKC, TTC#2. 25+4
Hopefulfor2nd - High NKC - TTC#2. - 24+6
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 24+6
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 20+2 Next scan @ 20 weeks

1st Trimester

HelterSkelter (IVF and immune therapy) 9+4

To be added to shortly...

TTC – ASSISTANCE - SO/IUI/IVF

Suemays - TTC#2 DD, followed by 5mcs all 6-8 weeks. V High NKC, TTC #2. Superov. (Pred & Hydroxychloroquine) 6+6 Scan 14th June

EchoJuliet Preg 1 - awaiting diagnosis, MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 –pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -10 pred – 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)

TTC
London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, gen 6-8 weeks. NKC not tested, TTC #4 cycle 2 (after m/c 12) Fertility consultant
prescribed pred.
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, decided to only take Pred from BFP
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS\

Gransol - Seven mcs - all losses between 6 & 7 weeks

mercator Tue 12-Jun-12 09:34:12

Hi All - updated this time. Too busy trying to update list.

Tuesday 12th June

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (ELCS) 14/5/12 7 lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (ELCS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (ELCS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (one on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 34 wks Next appt/scan, 22nd June EDD 24/07/12 by LMP, 22/07 by Nuchal
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 34 wks EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 30+6
coleyoz - V High NKC. DC#2, BFP cycle2, 30+1

2nd Trimester

FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 25+6
Mercator - V High NKC, DC#2 25+4 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks)
Hopefulfor2nd - High NKC - TTC#2. - 24+6
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 24+6
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 20+2 Next scan @ 20 weeks

1st Trimester

HelterSkelter (IVF and immune therapy) 9+4

To be added to shortly...

TTC – ASSISTANCE - SO/IUI/IVF

Suemays - TTC#2 DD, followed by 5mcs all 6-8 weeks. V High NKC, TTC #2. Superov. (Pred & Hydroxychloroquine) 6+6 Scan 14th June

EchoJuliet Preg 1 - awaiting diagnosis, MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 –pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -10 pred – 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)

TTC
London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, gen 6-8 weeks. NKC not tested, TTC #4 cycle 2 (after m/c 12) Fertility consultant
prescribed pred.
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, decided to only take Pred from BFP
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS\

Gransol - Seven mcs - all losses between 6 & 7 weeks

mercator Tue 12-Jun-12 09:44:07

Mollie Welcome - so sorry to hear what you've been through. I do hope Mr S has some answers for you. As Free says he is a lovely man and I am sure will do his utmost to help you.

I feel very fortunate to have been able to research this myself and find him as I find that the NHS Consultants and even my own GP yesterday have so little interest in NK cells which I still find absolutely astounding! Yet they must see this every day.

sue Good Luck with the scan on Thursday.

On a personal note I have my obstetrician appt so hope I will have a date for my c-section before I go off on hols this weekend.

Arianrhod Tue 12-Jun-12 10:43:34

Morning ladies, just a very quick Hi from me as I'm buried in work at the moment.

pico Just wanted to share this with you re: the chinese mushrooms/herbs that Dr Trevor Wing uses. I've been communicating with the very helpful Penny at the Serum clininc in Athens, as I'm going to get tested for hidden C/mycoplasma/ureaplasma (and a few other infections that I forget) with my next AF, and she asked for and kindly looked over my whole history. One of the things she said in response was this:

"Also, we have had patients with high NK killing power who were unsuccessful with steroids but conceived naturally after taking a herbal mushroom programme prescribed by Dr Trevor Wing in the UK (1.5g per day of cordyceps, coriolus and reishi). This may be something you could consider.".

So that gives me even more confidence that these are the right things to take. They were dispatched to me yesterday, so hopefully I should be able to start taking them in the next day or so. I really hope they do the trick, I feel very vulnerable without the prednisolone pre-conception! Always assuming I ever do get another 'proper' BFP, of course.

mollie A big Hello to you, and I'm so very sorry to hear of your losses, especially that of your little boy. I hope Mr S has the answer you need, he is indeed a very nice man.

gransol I'm not sure if I said Hi to you but if I didn't, then Welcome!

/waves to everyone, and come on ladies, we really need some more good news on this thread! smile

eurochick Tue 12-Jun-12 13:37:47

I am finding all this about alternative treatments and the infection testing very interesting. If our IVF doesn't work, I think we will go down one or both of these routes.

Arianrhod Tue 12-Jun-12 14:03:27

Ladies, I'm sure people have said, but can anyone advise if Mr S has prescribed Clexane for them and if so, for what?

It's just one of Penny's (from the Serum clinic) points of advice to me was that I should be taking Clexane because of my MTHFR issue, but I asked Mr S about this a few months ago (because in the US they routinely prescribe Clexane for pregnant ladies with MTHFR issues) and he said it isn't necessary, and that he doesn't prescribe it for this. Reading back through old posts on Fertility Friends however, he did used to prescribe Clexane, so I'm confused why he now says it isn't necessary, especially since almost everyone else seems to think it is.

I know it's a bit of a moot point right now since I'm not pregnant, but Penny advised it should be taken prior to conception (her exact words were "You may need to start on clexane (at least 40mg) before you conceive to prevent early miscarriage.").

Arianrhod Tue 12-Jun-12 14:04:55

And apparently Dr Gorgy definitely prescribes Clexane prior to conception for MTHFR. Why won't Mr S then?

igggi Tue 12-Jun-12 14:19:49

I remember being surprised not to get clexane from Mr S, I must have heard that clexane along with steroids was standard treatment for HNKC because I remember asking my obstetrician for this after mc3 (which she refused). It was odd seeing her again on day baby was born, I thought she might say something about my treatment but she didn't at all - it's as if they still think it's one big coincidence when you finally have a baby after 4 rmcs. (Which I suppose it could be, but I doubt it).
The mushroom medicine sounds really interesting, I do hope it pans out.

batteryhen Tue 12-Jun-12 17:23:01

ari When I saw Mr S he said there was no need for me to be taking clexane despite having factor v leiden. However as I had already been prescribed it by my nhs consultant he said for me to stay on it. I then got tested for TEG at St Marys and was told I definitley needed to be on along with double aspirin.

Cheerfulcharlie Tue 12-Jun-12 18:12:03

ari i have the MTHFR but only hetero (I think you are homo?). Dr S also was not bothered by it, also my doc over here, who originally did the test, said it was nothign to be bothered with even if it was homo, but could be worth doing the low dose aspirin because of it (which I am up to 36 wks). I did wonder what the point of doing the test for was if it wasn't a big deal even if it was positive.

echo glad you ERPC has gone as well as it can

free your story about your antenatal class brought tears to my eyes. I had a similar moment at my classes. The teacher made some comment about us all being first timers and therefore that we had never experienced contractions before and I suddenly got a really strong memory of going through my spontaneous mcs where i had had the thought 'well this must be a bit what labour would feel like' as I experienced the waves of contractions throughout the night before it was passed out. I had to blink back the tears in the class and grit my teeth to not start blubbing everywhere. Now I am a bit concerned that labour is going to bring it all back, maybe it will a bit - like coconut experienced but I'm not going to stress about it. It's only emotions though, isn't it?

I'm really interested in hearing the infection and mushroom routes some of you are looking at.

Heartbreaking to see the lists of mcs. I didn't realise how many some of you had had and made me feel quite tearful. I feel almost a bit of a fraud being on this thread, having only had two, but they were bad enough.

suemays Tue 12-Jun-12 19:05:08

Ari I asked Louise a couple of weeks ago when I got my BFP if I should be on Clexane as I have also read it is standard practice with VHNKC. She told me as I don't have antiphosphollid syndrome I dont need it - I guess that is what Mr S prescribes it for. St Marys didnt prescribe it for me either even though I had a raised TEG result but again I did not have anti-phosphollid syndrome. They did tell me to take double baby aspirin though from BFP and Mr S is happy for me to do that.

Pebbles73 Tue 12-Jun-12 21:24:28

It's very confusing the clexane thing because Mr S prescribes it if you are having ivf but not super ov/trying naturally! I emailed Louise to ask why I needed to take it as I have no clotting issues (I did test positive for mthfr though) and she said it was to help with implantation. Doesn't really make sense to me.....
Feeling rather fed up this evening and just want to get pregnant!!! You know when you just feel really frustrated and up tight about the whole thing? Also not sure if to start testing for other things or not as so much conflicting info and costs a lot of money that could be spent on Ivf hmm
Also I have only tried one cycle of super ov with steroids and one round of ivf with steroids so maybe I should give them a chance?? I know my dh thinks I should give them a chance and stop trying to diagnose other things!

Duggs with the hidden c testing can you do it directly through Serum it do you have to go through Dr G? Something I am considering doing.

Sorry for this moaning post but needed to get some frustration out and talk to people who understand.

I hope you are doing ok after your erpc Echo and looking after yourself.

mollie I was terribly sad to read what you have been through, you are very brave and I hope Mr S can give you some answers.

duggs1976 Wed 13-Jun-12 07:10:03

Hi pebbles not sure I would suggest you go via a dr as u need interpretation? He did a vafinal swab £75 to detect unreplasma. Then the menstral blood u need a pot and a fed ex bag is £335 or something. In my case having elevated nk cells was an effect of having a hidden infection (although no symptoms and not picked up on standard uk nhs tests or even pre ivf tests). Looking back I think dr s should at least include infection screening unless there is a more obvious reason for high nk cells like the thyroid or other immune related issues. It would then help address the cause rather than attempting to suppress the effect. pebbles to be honest if you can afford it get tested for everything that could possibly be your issue. If then u r left with just nk cells then at least u know your only optin is to keep trying throwing steroids at it. There r clear cases where nk cells seem to be only issue - when dealt with - even v high case like free then she is successful. Also the speed of getting pg like pq. Then there r the others (inc me) where there r obviously other factors and just throwing more steroids or more SO's at it is a bit of a stab in the dark. Every situation is unique but it does worry me that I almost walked away as I didn't want to throw another £2.5k after then £8k is just " wasted". However, if I was walking away I had to know I'd done all I could. I seriously don't think there r any tests out there I haven't done now. Kind of a reassuring feeling as what else can I do if I don't conceive and carry to term after these infections have gone?

duggs1976 Wed 13-Jun-12 07:12:48

Oh and if I sound like rockefeller I'm not just have a 0% credit card or 2 :-( which I will probably be paying off all through my child's life - if I ever get one !

picolina123 Wed 13-Jun-12 08:25:10

arian thanks for info, where did you buy it from, i went back on fertility friends to read about this mushroom thing and i couldnt find it, there is so much info on there about lots of different topics.are you going to athens for tests? that would be fun
Got call from dr wings assistant, going on the 19th jul, 250ish for initial consultation and then everything extra, expensive esp since you are basically unemployed !she did tell me to bring all tests etc if i want so im going to do that, not sure if ins will cover me for anything , i have joined pruheatlh on hubbys ins but you know what ins companies are like.

i find dr sheata (via nhs) fustrating as well, i dont knoe how many times ive asked about the blasted intralipids, lisa told me last time, hes stopping using it as it expensive and doesnt do much, but from the sounds of it he is still telling girls to do it.

i do feel really weird and v stressed trying for bfp without steriods, can do test this sat so lets see.

cheerful this is you last trimester! does it feel like a dream?

picolina123 Wed 13-Jun-12 08:26:46

excuse all the typos!!! i read it back i think OMG

picolina123 Wed 13-Jun-12 08:28:53

pebbles dont worry if there is anyone you can grumble to its us , we get it!! its crap, unfair and boo hiss to all the women who sail through their pregnancy!! smile

Pebbles73 Wed 13-Jun-12 09:26:03

Thanks for all the info Duggs and yes if it still doesn't work ( am sure it will) you know you have tried everything. Only thing is half he things they test for if you have it they just seem to give steroids/ intralipids/ ivig anyway!

Ari I think you are doing the Athens test did you go through Dr G?

Here, here picolina and thanks! My dh is very good with all this and don't know what I would do without him but occasionally I think he thinks I am a bitt crazy with all this and self diagnosing. smile

Pebbles73 Wed 13-Jun-12 09:29:00

Oh I meant to add Duggs I think for me the high nk's are maybe just my over reactive immune system as I have hayfever/asthma/eczema and quite allergic to cats and dogs, get heat rash generally allergic.

Arianrhod Wed 13-Jun-12 10:23:27

pebbles No I'm not going through Dr G, I'm going straight to Serum, Penny sent me the doc on how to collect and send the sample. (pico no I'm not actually going to Athens - well, not yet anyway, who knows in the future! smile ) They then interpret the results for you and more importantly, will send you a prescription if you need one (always the difficulty if you are testing directly abroad rather than going through a UK doctor). And duggs £335 for a FedEx envelope?? I was told FedEx International post to Greece was £48 (and courier to your door to collect it within 20 minutes for one lady!). However, many ladies apparently use Royal Mail, cost about £8, which is what I think I will be doing.

You can choose to just be tested for hidden C, or you can choose to have the full range of testing covering Mycoplasma Genitalium, Mycoplasma Hominis, Ureaplasma, Garnerella Vaginalis, Atopobium Vaginae and Chlamydia.

You need one of those urine collection tubes (the ones you use whenever you have a urine test done - I understand you can get them for around 50p from most pharmacies, or they have a big tub full of them sitting on the cistern of the toilets in NLC I think!) and some saline solution (like contact lens solution). Seems fairly easy to do, I'll let you know next week after AF arrives! smile
If you're interested in reading more about getting it done via Serum, and about testing for hidden C in general, there's a really good merged thread here http://www.fertilityfriends.co.uk/forum/index.php?topic=237119.0 .

pico I bought the mushroom/herb capsules from purehealthonline - they're sitting on my desk at the moment, looking at me saying "take me, take me!" - and the FF link you were looking for again with all the info on them is http://www.fertilityfriends.co.uk/forum/index.php?topic=242395.msg3904730#msg3904730 - scroll down the page to the Mycology section. HTH! I'm only not getting tested with Dr Wing because I already know I have v high NKCs, so I was advised there's little point in getting tested for the same thing again, since the treatment plan is the same.

Thanks everyone for your comments on Clexane. Mr S told me they only use it with IVF patients as it helps with implantation, I didn't know it was considered standard treatment for NKCs but it certainly does seem to be the standard treatment for any kind of blood clotting issues, which of course MTHFR is (it falls into the category of "Inherited Thrombophilia" apparently). I'm thinking if I don't have Clexane, then perhaps what you were suggested for your raised TEG result sue might work - from the elusive BFP I should take double BA. Not sure, still researching on that, and will certainly take it up with Mr S again if I get to that point. And yes cheerful I'm homozygous, which means I have a more serious issue with clotting apparently. Mind you, having said that I had DD with no problems (and no medication), so then what? Mother Nature having a laugh at my expense, I think.

battery I'm rather horrified Mr S said you wouldn't need Clexane with Factor V Leiden ... that's even more serious a blood clotting issue than MTHFR. How could he be so different in his opinion on that to every other recurrent miscarriage specialist? I understand differences of opinion and all that, but this seems a fairly major thing to disagree with everybody else on.

pebbles I would agree with duggs on getting tested for everything you can afford, to be honest - personally I hate to think that I might be throwing everything I have at the problems I know about, while there may be other problems that I don't know about that will stop any chance of a successful pregnancy ever happening. For example with OH. I intend to get tested for as much as I can, I only wish I had been stronger at insisting on more complete testing right at the start, but of course I didn't know diddly squat about recurrent miscarriage testing back then. Wish I didn't now, too!

And pebbles you whinge all you like, you're entitled to and this is certainly the right place to do it as everyone here understands and sympathises.

echo Hope you're recovering well after your ERPC and taking some 'you' time out.

choccy How are you doing??

/waves to everyone

Arianrhod Wed 13-Jun-12 10:30:16

pico I should just say, if you read that Mycology info, she's got her dosage wrong if you take the combined Astragalus/Gentiana capsules. She says:

<quote>
2 herbs, Qin Jiao/Qin Jhao (gentiana macrophylla)1.5g (available from purehealthonline) and Huang Qi 1.5g (astralagus). Purehealth have just introduced a combined capsule of 0.5g each (so 3 capsules a day)
</quote>

But the capsules are actually 250g of each herb per capsules, and as you're supposed to take 1.5mg of each of the two herbs per day, that means 6 capsules per day (2 three times a day).

Just so you know, if you want to work out costs!

helterskelter99 Wed 13-Jun-12 12:27:31

By BA do you mean baby asprin? in which case I would be v careful about doubly up as there is a school of thought that thinks that it doesn't help implantation.

I have really struggled to geth clexane as the West Middx don't believe it helps in early pregnancy & won't prescribe it until I see a consultant & I can't see a consultant untl 16 weeks. Luckily my GP just repeat prescriptioned it and I am going back to see my IVF guy on Fri to get a plan for post 12 weeks.

Anyhow am now 10+2 scan today showed baby OK sizewise & a heartbeat of 181 so all looks normal. Can start to worry about chromosome issues at the 12 week scan now which was what went wrong last time we got this far (in 2008!!)

xx

Arianrhod Wed 13-Jun-12 12:36:10

Excellent scan news helter! And yes, I mean baby aspirin. I was thinking only of doubling it up from BFP, and then only if I can't get either Mr S or my GP to prescribe clexane. I have to take baby aspirin every day anyway because of the MTHFR, and yes I've read that some people believe it can hinder implantation - yet others believe it can improve it. Yet another case of opinions varying wildly!

Just out of interest, has anyone managed to persuade Mr S to prescribe them something that he thought you didn't need? Just wondering if I might stand a chance, although he is quite dismissive of MTHFR causing issues. Not sure if I might stand a better chance with my GP, although I understand the PCT for our area is quite restrictive sad

freelancegirl Wed 13-Jun-12 13:24:08

Great scan news Helter! Such a great step. Who was your scan with? I know Mr S sees getting passed 9 weeks as a real milestone. I hope the two week wait before the big 12 weeks scan passes as quickly as possible for you.

I must say I am really reading all the additional research findings with interest Ari and Duggs - about hidden C and random mushroom treatment etc. I can see how it would definitely be tempting to explore all these options. I had been tentatively looking into the Athens tests before this pregnancy. Pebbles I know this creates a dilemma for you about what to try but I also agree that you have only had one cycle of IVF and one cycle of SO on steroids so maybe give yourself a limit of say 3 months try on SO before you go down that route? Up to you. I understand the frustration in waiting though! Versus the anticipated costs too. Hey, if the courier service costs more than the price of a return flight I would be tempted by a long weekend in Athens smile

As for asking Mr S for alternative treatments - I did once ask him if it would benefit me from having tests for ureaplasma and the other one and he seemed to think it wasn't necessary. I also asked about intralipids pre-conception and he said he thought that was a waste of money too. I guess the thing to remember is that whilst every expert is going to have their own take on it, he is very specialised in his field and overall has a remarkable success rate with women who have tried a whole lot of other things beforehand, so I guess he knows what he is talking about! There has been a run of bad luck and a few struggles here recently but there is probably a case for volunteer bias, in that the people who are more likely to need us are the people who continue to have problems - rather than the many cases I have heard about in immunology that say 'had miscarriages, took steroids' had a baby'. We have to remember that does happen too. BUT we are also here because of our own research and inquisitive, take-action attitudes in the main and it's that which will hopefully help us explore all options.

Right, am off to do some list updating. Merc thanks for doing it the other day!

freelancegirl Wed 13-Jun-12 13:32:59

Thanks for adding your details merc and for everyone else who has posted their pregnancy history in the last few days. I can't get my head around adding them all on here so was wondering if you wouldn't mind doing a quick addition like on mine and the others who have added history? Would be great to have it all in one place.

Weds 13th June

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (ELCS) 14/5/12 7 lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (ELCS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (ELCS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 34.1 wks Next appt/scan, 22nd June EDD 24/07/12 by LMP, 22/07 by Nuchal
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 34.1 wks EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 31+0
coleyoz - V High NKC. DC#2, BFP cycle2, 30+2

2nd Trimester

FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 26+0
Mercator - V High NKC, DC#2 25+5 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks)
Hopefulfor2nd - High NKC - TTC#2. - 25+0
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 25+0
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 20+3 Next scan @ 20 weeks

1st Trimester

HelterSkelter (IVF and immune therapy) 10+2

To be added to shortly...

TTC – ASSISTANCE - SO/IUI/IVF

Suemays - TTC#2 DD, followed by 5mcs all 6-8 weeks. V High NKC, TTC #2. Superov. (Pred & Hydroxychloroquine) 6+6 Scan 14th June

EchoJuliet Preg 1 - awaiting diagnosis, MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 –pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -10 pred – 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)

TTC
London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, gen 6-8 weeks. NKC not tested, TTC #4 cycle 2 (after m/c 12) Fertility consultant
prescribed pred.
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, decided to only take Pred from BFP
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC
Gransol - Seven mcs - all losses between 6 & 7 weeks

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS\

Arianrhod Wed 13-Jun-12 13:52:26

free Agree totally that Mr S is an expert in his field ... but surely his field is Killer Cells and their effects, not blood clotting factors (as per his dismissal that nothing stronger than baby aspirin is needed for homo MTHFR where many other experts in their own field state stronger blood thinners are needed), genetic mismatches or what 'hidden' infections could do, amongst other things. I have no doubt he has understanding of all the other possible issues that might cause recurrent miscarriages, but his specialism is in Killer Cells and the tackling of the same, at which I have no doubt he is top notch. Rather like a surgeon who specialises in heart disorders being asked about arthritis - he will be aware at a general level of the possible causes and treatments for arthritis, but he will refer you to a rheumatologist to deal with your arthritis issues, as that's not his field.

That said I have a great respect for both Mr S's knowledge and his interest in his patients; I just wish he would widen his scope to acknowledge other areas may have as much of an impact on pregnancy as his own specialist field and test for more things.

london371 Wed 13-Jun-12 18:03:45

Hello everyone. Have been lurking. Nothing to report. Same old same old ttc! Thanks to ari and sue for the links to the new thread. Wow things move on fast here!

I have to say, I agree with ari, Mr S is an expert at NK cells, but when it comes to looking at wider issues, he seems to dismiss other ideas quite readily. As far as I am concerned, the NK treatment didn't work and I want to investigate other possibilities. Wish there was a one-stop shop, it is so confusing every specialist having their own special theories!

There is no doubt NK cells treatment under Mr S works brilliantly for some lucky ladies, but for others maybe looking at other tests and treatments is the best way forward to cover all the bases. It is so helpful to hear other people's research, thanks so much for sharing it guys.

picolina123 Wed 13-Jun-12 18:12:14

pebbles i think my husband thinks im nuts most of the time, a couple of nights ago i told him im starting to feel stressed and we had decided to go see dr wing which is expensive and im only temping part time so i might as well not be working ( money wise) so i was stating to stress about costs etc, i told him if i mention anything to him about money etc instead of him also getting stressed he has to be like ..what ever it takes , dont worry. yeaterday i asked him about something totally different and he says to me ..whatever it takes !!! with a cheeky smile .. lol very cute .

arian i went back on dr wings website and called one of his associates that he has trained in wimbledon and recommends and am seeing her on sat morning , im trying to get my test results from st helier before.

She only costs £60.00 to see so if i feel shes rubbish i will still keep my apt next mth otherwise i will cancel, if shes on his web site i have nothing to loose.

Coconutfeet Wed 13-Jun-12 19:49:18

Ari - I was prescribed Clexane by Mr S, because the tests showed I'd got prothrombin II gene mutation (a sticky blood issue). I was on it from about 6 weeks (when I got the test results. Previously had been on aspirin from bfp) until 24 weeks. I then went back on the aspirin to 35 weeks and back on clexane for a week after delivery.
The initial prescription was private (and expensive - each dose costs around £5 and I had to take one a day), then I got my GP to prescribe it for me with no problem.

Helter - Good news!

We exchanged contracts on our house today. Completing at the end of the month. V excited. I can't wait to have a bit more space!

Pebbles73 Wed 13-Jun-12 22:44:53

Thanks for the info Duggs and Ari thinking I will get those tests done as not massively expensive. Didn't get a chance to look at the link you posted Ari but will try tomorrow.

Free it is defo a bit of a dilema but will prob do the super ov for a bit and do the above testing and then go from there.

* Picolina* made me laugh about your dh, sounds a but like mine as in test what you need to test for and don't worry about money. One of us needs to be practical though! Also glad not the only one who's dh thinks they are crazy. grin

Had a crap day at work (moaning again), had to contend with a girl at work and her two month old baby and then one of the guys coming into my office at the same time announcing his wife is pregnant. The two of them then stood there discussing scans and stuff so I muttered something about needing to do something and left them to it in my office before I burst into tears. Sigh....

mercator Thu 14-Jun-12 06:39:27

helter congratulations - nice to hear some good news. Hope all will be well with the 12 week scan.

coconut good luck with the house move.

sue thinking of you today for your scan. Hope all goes well!

Pebbles73 Thu 14-Jun-12 07:16:48

Yes well done on the scan news Helter and good luck for the next one.

Sue will be thinking of you today and have everything crossed for you.

BellyD Thu 14-Jun-12 07:39:51

Just popping in quickly to say best of luck for today Sue, I will be thinking of you.

Arianrhod Thu 14-Jun-12 08:53:43

sue Lurking for your good news .. smile Best of luck!

freelancegirl Thu 14-Jun-12 09:21:51

Adding my thoughts to all the positive thoughts flying round for Sue!

Pebbles the drugs are winging their way to you, so do look out for them. Can't believe that someone else in your workplace is having a baby/up the duff! What IS it with these people...?! It's every month it seems.

Coconut great news about having a date for exchange!! Actually we have some news, finally, about our place too. Our mortgage has been agreed so hopefully we too will soon have a date for exchange and completion. We are in complete limbo at the moment - sitting here surrounded by boxes and just waiting for news about things moving forward.

suemays Thu 14-Jun-12 09:55:44

Thanks everyone, I have got my appointment at 6.30pm so trying to keep busy today to take my mind off of it!

Havingkittens Thu 14-Jun-12 09:56:22

Just popping in to wish the best of luck today sue.

freelancegirl Thu 14-Jun-12 09:59:47

Ewww - the scans in the evening make the day drag on! I hope you are not clock watching all day and are nice and busy to keep your mind off it. Most of my early scans were at 8.30am at Epsom. Painful to leave home at 6 but good to get them over with!

batteryhen Thu 14-Jun-12 10:23:04

Just popping in to say good luck to sue. Evening scans are a bind- having to wait all day!!
ari I checked back on my notes and asked DP. It was my nhs consultant who said I needn't be on clexane, but if I wanted to I could give it a try, and then not until the first scan so I wasn't injecting for no reason. When I told Mr S this he visibly winced and said I should be on aspirin and clexane from BFP. Sorry for the mix up! It was such a long time ago now. I didn't want Mr S to appear in a bad light when actually it was the opposite!
free how on earth are you coping moving house when so far pg?! Are you stressed or very calm about it?
pebbles it's always the sodding way that everyone is pg or talking about scans when you are TTC. It's so hard sad xx

Nothing happening here, am now 31 weeks and getting slightly nervous about the birth. Think I will continue to stick my head in the sand until absolutely necessary! Xx

Arianrhod Thu 14-Jun-12 10:28:13

battery Thanks - but what were you given clexane for? It wasn't MTHFR was it? Sticking head in the sand, I always like that approach grin Don't be too worried about the birth, rest assured it will happen one way or the other smile

freelancegirl Thu 14-Jun-12 10:53:45

La la la la, fingers in the ears, about birth is a good idea Battery smile Love the 'rest assured it will happen one way or the other' too Ari grin It's very true!

I've been reading up on techniques that can make birth easier - hypnobirthing, Ina May Gaskin etc - but since it is breech have also just ordered three books on CS and recovery just in case. Will find out next Friday at the scan, if it is still breech and still measuring on the large side they will probably book me in. I don't mind really, it takes the decision making out of my hands. PQ mentioned I might have talked the baby into being breech - and I think she might be right! Even at the 12 week scan it was sitting up and looking like it was driving a car. Still might turn of course.

How I am coping with moving house when 8 months pregnant is quite easily actually Battery. My DH does everything. I've always lived with (and maybe perpetuated) the belief that I am domestically inept and he is an organisational God, so I let him get on with it. Every day he packs another couple of boxes. All I am responsible for is my not insignificant roomful of clothes. And I have half-packed them - need to get on with some more packing of these though to make him happy. Of course I had moved about 10 times or more BEFORE meeting DH so I am not as inept as he might think, but my strategy would be to do it in the days running up to actually moving and his strategy, rightly I suppose, is to get it done gradually beforehand. If I started joining in I would no doubt not be up to his standards! That said, yesterday I needed the juicer - packed. And today we have run out of shampoo despite having three bottles of the stuff bought, again by DH in advance, and guess what - packed.

igggi Thu 14-Jun-12 11:18:26

Checking to see when Sue's scan is - that's a late one! Thinking of you.
Free I so admire your level of research! (3 books on sections smile ). I think seeing a video of one in advance helped me most, for instance knowing that you walk into the theatre which I wouldn't have expected.
Going to do the 'going into work with baby' thing next week (they phoned asking me, in my defence) I can never shake off the feeling that I might be upsetting someone - though statistically maybe the only one with fertility problems in the office might have been me.

Havingkittens Thu 14-Jun-12 11:31:30

Oh F***! I've just realised that I've not been taking Pregnacare for weeks! It's so odd. I've been taking my various tablets and thinking "I'm sure there's supposed to be something else" but I just couldn't put my finger on it. I thought it was because I'd stopped taking the asprin on Mr S's suggestion but for some reason the Pregnacare went completely out of my head! I hope it doesn't negate all the bloody expensive SO treatment I've been taking. I've also just turned down a rather well paid job because I'd have to be away whilst I was ovulating which seemed pointless after everything (well, also turned it down because it was 2 12 hour days on a ferry and I get badly seasick!)

freelancegirl Thu 14-Jun-12 12:00:41

I am sure it doesn't matter in the scheme of things Kittens. The Pregnacare is just to add vits and folic acid. Lots of people don't even take it. Start taking it now and you will be fine. Shame about having to turn the job down but it's understandable.

Good luck with the taking the baby into work next week Iggi! I am sure it will be nice for you to see everyone and for everyone to see the baby. There's nothing you can do in terms of potentially upsetting other people. People have babies every day. Try not to worry about it.

I haven't yet managed to pluck up the courage to watch any videos but I have read a lot so know about the walking into theatre and the fact there might be ten or more people there! I will wait until the scan next Friday and then start asking you ladies who have been there before for more info/advice too!

Havingkittens Thu 14-Jun-12 12:19:31

iggg, amazing isn't it that it is only people who have been in our situation that would even think of being concerned that someone might be upset at you brining the baby in.

free thanks for your words of reassurance. I'm laughing at the irony that they come from you, the most reluctant out of all of us to stop taking any of the 'safety blanket' vits etc! Sorry, that's twice i've laughed at you today wink grin

freelancegirl Thu 14-Jun-12 12:55:04

I feel I have to share this - Kittens and I have a mutual friend in common (someone I knew from a baby until the age of 6), which we found out by making friends on facebook ages ago. She met up with her this week and apparently the biggest memory said friend has of me when I was little (she is about 3-4 years older) was of me always wandering round with my skirt over my head and my mum being really embarrassed and having to tell me to put my knickers away! Great... grin

But yes, I know exactly what you mean about the mentalling about things and I am not one to give advice! It's easier to be rational when referring to someone else rather than yourself. Yesterday I was worried about too much movement, today - having read some sad stories of people having later losses - I've been worried about too little movement.

Sigh. Am off to the shop to get some orange juice and lie on my left side again. I just want to get this baby out of here as soon as safely possible and as quick as possible.

batteryhen Thu 14-Jun-12 13:45:48

Hmmmm. Have also forgotten about the pregnacare for about 2 weeks. Have just been to boots and forgotten it again!
ari I have factor v and also positive TEG hence the reason for the clexane and aspirin. The one I am most worried about stopping is the aspirin at 34 weeks. Have seen the haematologist who says to stop aspirin then, and clexane 6 weeks post natally.
free I had to get the Doppler out last night as I was certain I had reduced movements. All was ok, especially after a bit of chocolate which baby seems to love . At my mw appt last week the baby was still transverse, but I have felt movements and a few kicks under my ribs so I wonder if we have head down yet? Eeeeek. Don't want to think about it ......

freelancegirl Thu 14-Jun-12 15:47:18

I had to get the doppler out too this morning battery. What are we like! Actually Ms S says you can come off pregnacare after 12 weeks anyway. I've carried on taking it regardless as it says you can on the pack. but in terms of the treatments it's fine. I too was worried about coming off aspirin, despite no known clotting issues. but they wouldn't tell you to stop it if they didn't think it was safe. plus, as Digi mentioned to me at te time, if you were still taking it at Birth Time it might mean you bleed more.

You braved any birth related books yet?

picolina123 Thu 14-Jun-12 16:34:43

you can get pregnacare directly for vitabiotics on line , the alwsy have 3 for 2 and its quick free delivery and i think a bit cheaper as well!

good luck sue!! we are all clock watching with you!

free should you really be reading stuff about late losses? why do that to yourself. its so unfair we cant just relax and enjoy

the girl who sits next to me is pregnant, what really bothers me is a friend ( not close) on face book, ive nearly blocked her, shes is constantly on and on about her preg , how many weeks she is, what her baby looks like ,her great helpful husband, her great mom and dad helping her with getting ready for baby, her great aunt and uncle who helped paint the nursery, yada yada yada - give it a rest, going to log off mums net and block her grin

batteryhen Thu 14-Jun-12 17:04:38

free Ha! Books? not a chance. I haven't talked about birth plans or anything yet. My friend lent me a pregnancy book - it mentioned tearing and episiotomy etc. I put it down - to be read for another day I think..... However, it does mention perianal massage. Is that someting I should be doing?? Sounds bloody awful?
pico I have a friend of a friend who is a few weeks behind me, and her fb updates are nothing else but whining about how dreadful she feels, how awful the tiredness is, etc etc. Nothing positive at all. So I de-friended her. Simples smile

batteryhen Thu 14-Jun-12 17:23:55

Obviously meant perineal massage....have just looked it up on how to do . Frankly shock and now need a lie down.

mercator Thu 14-Jun-12 19:17:53

sue hope all went well.

Quick question for Igggi and those having given birth. Was told by consultant that I need to have a steroid jab pre and post birth due to the steroids I'd been on to conceive. Also having to have a diabetes blood test at 28 wks. Has anyone else had to have this?

Anyway now have a date 14 September but now concerned baby may make an appearance before the section as its exactly 39 weeks so in a bit of panic over that as they are trying to encourage au naturally if that happened unless I was adamant and never been in labour or been to any anti natal classes as first was an elcs.

free wow moving house too! I know there are a couple of you either late pg or with new burns moving so I think it's very brave! Having said that we lost the house we were going for so could have been in the same position.

Now delights of seeing my role being carved up, just to make me feel insecure before going off on mat leave and we need the money so will have to get my butt back to work next year.

Igggi was your c-section ok 2nd time round, she scared the living day lights out of me with all the risks.

picolina123 Thu 14-Jun-12 19:42:36

battery i blocked her as well, wont have to read about her happy happy pregnancy..hiss.( this may be the reason dh thinks im nuts ..love it !)

igggi Thu 14-Jun-12 20:15:33

Mercator no, no steroid jabs here - doesn't mean you shouldn't have it, but obviously not standard. I didn't have a diabetes test either (well I think there was a first trimester one?). 2nd cs has for me been easier than the first in terms of recovery. Nothing like the pains I had last time - maybe I know what to avoid better! And I've been coping at home on my own much earlier this time, dh had a month off last time. I made it clear I wouldn't be having any more dcs, obstetrician seemed quite happy to go with ecs.

suemays Thu 14-Jun-12 20:19:34

On our way home from Epsom and baby measuring exactly on date at 7 weeks and 1 day! Strong heartbeat so mr s was very pleased. I burst into tears as was convinced I would see an empty sac. So relieved although a long way to go.

battery I did the perineal massage with dd and I swear by it. No tears or stitches as I recognised the stretching sensation. It was weird getting dh to lube up and do it but I got used to it in the end!

BellyD Thu 14-Jun-12 20:36:35

Great news Sue, so pleased for you. That's the second hurdle over (after getting pg in the 1st place!). You must be really relieved after the long wait for the scan date to arrive.

freelancegirl Thu 14-Jun-12 20:53:45

Sue!!! That’s brilliant news! Thank goodness for that. BellyD is right – it feels like the second hurdle – getting pregnant then having that first positive scan. Sue - cue drum roll - I am adding you to the pregnant list!

Merc, from what I’ve heard about pre-CS chats they like to scare the living shit out of you. If you makes you feel better though there was no living-shit-scaring nuances from Mr S. He seemed fully behind whatever decision is made. Not sure if he’s going to give me a living-shit-scare talk next time but he said any decision might be taken out of my hands anyway if the baby stays breech. Obviousy this would be a first CS not a second but I think seconds are ok too by the sounds of it. How come no-one sits you down and tells you all the things that can go wrong with all births?!

I would feel the same about maternity leave. Half of me wishes I had an actual job to go back to as at least then I would know what I was doing. I worry that because my work is ad hoc and sometimes at home I will have difficulty with childcare. Of course right now I love my work and want to get back to it as soon as possible, but I guess you never know I might find myself coming over all extra maternal and jacking it all in to be at home smile

No steroid injections mentioned yet here either – haven’t heard of that one. Be interesting to hear more.

I have heard of perineal massage Battery but haven’t quite got round to doing it yet! Sounds like it worked for Sue – great you had no tears! Hearing stories like that makes me feel like a bit of a wuss for thinking about bypassing VB and going for a CS. I guess I have read too much about potential issues - especially relating to people with a history of thyroid problems. But as Mr S says, the baby might take the decision out of my hands anyway. Good to hear positive CS stories like Iggi's too.

Am doing nightly Bio Oil on the tummy though but not sure if that will help. Some days I can't quite believe I have this huge basket ball bump sitting in front of me. Baby started moving a bit more this afternoon so that was a relief. I was a whisker away from going to A&E.

freelancegirl Thu 14-Jun-12 20:57:47

Thurs 14th June

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (ELCS) 14/5/12 7 lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (ELCS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (ELCS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 34.2 wks Next appt/scan, 22nd June EDD 24/07/12 by LMP, 22/07 by Nuchal
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 34.2 wks EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 31+1
coleyoz - V High NKC. DC#2, BFP cycle2, 30+3

2nd Trimester

FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 26+1
Mercator - V High NKC, DC#2 25+6 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks)
Hopefulfor2nd - High NKC - TTC#2. - 25+1
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 25+1
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 20+4 Next scan @ 20 weeks

1st Trimester

HelterSkelter (IVF and immune therapy) 10+2
Suemays - TTC#2 DD, followed by 5mcs all 6-8 weeks. V High NKC, TTC #2. Superov. (Pred & Hydroxychloroquine) 7+1

TTC – ASSISTANCE - SO/IUI/IVF

EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 –pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -10 pred – 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)

TTC
London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, gen 6-8 weeks. NKC not tested, TTC #4 cycle 2 (after m/c 12) Fertility consultant
prescribed pred.
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, decided to only take Pred from BFP
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC
Gransol - Seven mcs - all losses between 6 & 7 weeks

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

duggs1976 Thu 14-Jun-12 21:04:12

Oh thank god for that sue ! I am not sure I could use coped with another chemical or sac only for u let alone you coping! Horrah for the hydroxy! Xx

mercator Thu 14-Jun-12 21:19:10

igggi and free thanks for coming back to me re the elcs related talk feel a lot easier just hope lo decides not to make an appearance before wk 39!
I also had dh home for a mth first time and probably not this time. More concerned if he's away and baby makes an appearance before wk 39 as have no family close by. Never mind we 'll cross that one closer to the time.

Sue so pleased all went well, that's excellent news!

freeI'm with you with my Buddha oil! smile

battery I've given up on the vits now although with all this b...dy rain I might have to start the vit d again.

I'm off on hols this Sunday for 10 days so unlikely to be able to follow whilst away. I do hope we get some more lovely stories on here by the time I get back! So good luck to those testing in the next 2 weeks!

Pebbles73 Thu 14-Jun-12 21:25:27

Thanks for sending the drugs Free, will text you anyway about week after next.

sue what fantastic news, have been lurking to see how you got on. You must have been sooo relieved, am so pleased for you. grin

Havingkittens Thu 14-Jun-12 22:14:09

grin brilliant news sue!

picolina123 Fri 15-Jun-12 06:58:44

sue fantastic new, you must be so pleased!
i did my first test today and it was neg, used 1st response, 6 days before period. Mixed feeling , i was convinced (sort off) i was preg - dont ask me why, then i was scared as im on nothing for nkc and wanted to wait to see doc before i fell preg again and maybe on the chinese herbs etc.
what i need is a holiday!! lets work on hubby and see what he has to say

PQ77 Fri 15-Jun-12 09:17:49

Thrilled for you Sue

digitalgirl Fri 15-Jun-12 09:21:52

Fantastic news sue grin
So very pleased for you!!!

Arianrhod Fri 15-Jun-12 09:54:27

Brilliant news sue, so so pleased for you!!!

batteryhen Fri 15-Jun-12 11:05:13

Sue that is lovely news. I hope this starts a string of good luck for everyone xx

GreenOlives Fri 15-Jun-12 13:10:19

Fabulous news sue, that's brilliant!

I have a little bit of tentative good news too, BFP this morning at 12dpo! smile I am obviously really pleased but my overwhelming emotion is sheer terror! I started the Pred and aspirin this morning and will do the Cyclogest tonight. I just really hope this is the one - it seems the combination of lap & dye followed by a relaxing booze filled holiday were the magic combination needed to achieve stage 1 anyway!

Big waves to all!

batteryhen Fri 15-Jun-12 13:18:47

See!!! The good luck streak has started!! Brilliant news olives

Pebbles73 Fri 15-Jun-12 13:21:50

olives whispered congrats first hurdle overcome. smile

Sue can I ask what you did differently this cycle? I know you were off the pred and you were taking a high strength fish oil which was something like naturase?? Did you double up on vitamin d?
It seems the hydroxy works quite well for people, apart from failing on his treatment does Mr S give this to people with just high hnk's as well as vhnk's?

Arianrhod Fri 15-Jun-12 13:28:53

Oh fabullous olives, this is what we like, more good news! smile

Havingkittens Fri 15-Jun-12 14:39:02

Ooh, congratulations olives.

pebbles, he's never suggested it to me and mine are quite high.

digitalgirl Fri 15-Jun-12 15:20:43

Congrats olives!!! Box one ticked smile

BellyD Fri 15-Jun-12 16:43:38

Great, Olives. Praying this is the one for you.

picolina123 Fri 15-Jun-12 17:39:53

olives thats fantastic news..

suemays Fri 15-Jun-12 17:44:12

olives glad you can join me on the first trimester list! I am also terrified and on frantic knicker watch so you are in good company. Are you having intrallipids?

pebbles I had a two cycle break so had no build up of steroids and then a hysteroscopy a week before ov. I then doubled up on hydroxy for 3 days over the weekend before I could speak to Louise and have the intrallipids but she then told me to keep to the single dose. I also take selenium, the high grade fish oils you mentioned, double vitd, double aspirin due to my TEG result, double cyclogest, plus the usual pregnacare, 40mg steroids and omezaprole. I am also drinking green tea as its supposed to surpress killer cells. Plus i have been going for weekly acupuncture and will keep going to 12 weeks if I get that far!

Since getting my bfp I have been resting as much as poss with no exercise whereas I was going 3 times a week to the gym and no housework! This was my acupuncturists advice not mr s.

suemays Fri 15-Jun-12 17:47:44

Forgot to say, I also got very drunk during this cycle and had a booze filled holiday the previous cycle with loads of sunshine!

Cheerfulcharlie Fri 15-Jun-12 17:56:59

Congrats on the scan sue - great news.

And Olives - well done on BFP.

Lovely to hear some good news.

sue - green tea interferes with folic acid uptake I think, you might want to check?

gransol Fri 15-Jun-12 18:16:08

Congrats to sue and olives let's hope the good news keeps Up and both are sticky beans
Keeping everything crossed for u both x

suemays Fri 15-Jun-12 21:45:42

cheerful thanks for the info on green tea. I didn't know about it effecting folic acid absorption so will make sure I limit it. I only drink 1 cup a day anyway and it's a decaf one so I don't think it will have much effect - everything in moderation!

GreenOlives Sat 16-Jun-12 06:46:24

Thanks for the congrats ladies smile
Sue No I'm not having intralipids, my NK cells are only slightly elevated so its just 25mg of Pred, baby aspirin and the Cyclogest for me. I just hope that taking them from BFP is enough! I am pretty sure I wouldn't have got pregnant whilst taking the Pred though as it had changed my cycles immediately and made my periods so light. I won't be seeing Dr S either, my NHS consultant is happy to support the treatment plan so I don't need to travel to London (or spend my cash!) I have a scan booked next Friday to check that this one is in the right place, my ectopic last time had already ruptured my tube at 5+5 so he wants to scan super early. By my calculations I will only be 4+6 then, I guess it is just a sac in the womb he will be looking for? Has anyone here had such an early scan? I'm going to hold off joining you on the first trimester list until I've had a scan which shows a baby with a heartbeat, not sure how I'm going to get through the next few days/weeks without going mad!

mercator Sat 16-Jun-12 09:12:37

olives fantastic news. FC this little been will be the one! Hope all goes well and try not to worry to much. Easy said than done, but sounds like you're consultant is being very vigilant and will keep a close eye on you which I think helps enormously. I know the 2 week scans were a life saver for me.

freelancegirl Sat 16-Jun-12 13:02:11

Am on train up north for a few days so only on the phone but just wanted to add to the huge congratulations to Olives for the first step!! Brilliant news. Yes I think the scan will definitely be too early for anything but a sac (although haven't had one that early myself so no personal experience) but it will definitely be able to reassure you it is in the right place. Keep us updated! And yes those first steps are so terrifying!

picolina123 Sat 16-Jun-12 20:32:29

seems like plenty of good news , which is great!! and sets a good atmasophere.
saw the chinese herbalist and had my first acupuncture, spent ages with her giving her my history etc nearly there 2 hrs ! im seeing her again next sat and getting the mushroom herbs etc, arian do you mind telling me how much you paid for yours per mth (mushrooms and herbs) so i can compare, todays fee was only 60.00 altogether and 50.00 next week, then not sure now often , really liked her , neg was she didnt want me to try for 3 mths as is takes that long for herbs etc to start working , but maybe a long break from being preg may help the nkc settle down and get my fitness level back to normal, dont want to waste time but may have to.

Abney Sun 17-Jun-12 18:05:41

Dear all, a big hello from the Sth of France. Just sitting in my safari tent pondering whether to have another ice cold beer. Extremely hot over here. Overitte (whatever it is called) out of my system yesterday and the last 2 SO times my AF has started the very next day so I am exepecting it today. Been to the loo several times praying no blood. I am sure we all stick the tissue right up just for good measure. TMI I know. I will wait until tomorrow to test as I don't expect to see anything on the test stick today. If it is a BFP then I will be on the Gonal F super duper drug next time. Dr S says 1 egg not enough!

Big congratulations to Sue and green olives. I know you must both be terrified but reaching the first hurdle is great news. Keeping everything crossed for you.

Abney Sun 17-Jun-12 18:06:44

I mean if it is a BFN then I will be on the Gonal F next time oops!

eurochick Sun 17-Jun-12 19:21:34

free have you looked at the spinning babies website to see what you can try to do to turn breech babies? I'm sure you have it covered but thought it was worth mentioning.

When's your moving date?

sue that's good news.

Olives tentative congrats for getting to stage 1.

I start downregging today. The injections don't bother me. The whole concept of IVF still does. I will be approaching it in the same way free is approaching the birth - fingers in ears and lalalala.

Delta10 Sun 17-Jun-12 21:40:50

Hello all, am new to this but have been reading your posts with interest.
I suffered 5 m/c's over a 3 year period during which time all investigations proved negative & Professor Regan declared us 'unlucky'. I went to see mr shehata in 2009 and was diagnosed with borderline NK cells & advised to take 25mg from OV. As I was concerned about time slipping away, we decided to go down the IVF route and I had started 'sniffing' Synarel when I fell pregnant naturally that month which resulted in a perfect DS now age 2 (I took 25mg pred, clexane, baby aspirin, vits - dr s decided to throw the kitchen sink at us & it worked!). I then followed the steroid from ov protocol & fell pregnant in march last year, saw heartbeat but miscarried at 8 weeks - was then diagnosed with VHNKC. I have been taking pred from ov since August last year and also tried SO on 5mg of letrezole with great response but no BFP. Stopped SO 2 months ago & having not got pregnant & worried about the length of time I had been taking pred, this month I took nothing apart from baby aspirin & vits & have just got a BFP. I know you understand how terrifying this whole process is but I wanted to share my experiences as have found yours so informative & others just don't understand that getting pregnant certainly doesn't guarantee bringing home a baby. I started preds yesterday (40mg) & am booked in for intralipids tomorrow - I have everything crossed but SUCH a long, long way to go.
Good luck to you all at your various stages on this difficult journey to motherhood!!

freelancegirl Sun 17-Jun-12 22:32:07

Agggh! Delta, an empathy-filled stifled scream for your BFP! Yes many of us know exactly how you're feeling right now, trying not to be excited, terrified of everything going wrong, dreading those early scans...You have to just go with it and be positive and get on with intralipids etc. I really hope it works out for you. Great to hear that you managed to have DS, hopefully that means you can do it all again. Please hang around and join in, it's great to have new people to help us on our collective way.

You've already thrown a new one into the mix for me - Synarel. What's that for? Chances are the others know already and I have just missed it.

Talking of BFPs - hope Olives is feeling ok today. I know just how long that road ahead seems between BFP and first scan and then of course subsequent scans.

Abney do you really have the audacity to say a cheery hello to us from your warm-weathered, cold beer filled safari tent in the South of France?! grin How lovely. Not so great to be on knicker watch whilst you are there though, but needs must I guess. Oh and yes, can completely relate to the tissue.

Hello euro yes I have been looking at Spinning Babies. Fascinating with all the weird positions they can get into. I thought this one had turned a few days ago but now I am not so sure. Still plenty of kicks in the nether regions. Scan is on Friday so will find out for sure I guess. Try not to be worried about the IVF - Pebbles said that the physical process is actually not too bad at all. I think she has been very brave with self-injecting etc though. I really hope it works out for you.

I met a fellow HNKC person today! At a 'do' with DH's side of the family a girl I had got on with really well at a previous do 19 months ago (coincidentally when I think I conceived the first pregnancy of 2011) was there and I ended up chatting about the baby thing. I had heard through the grapevine (people must talk about us lot like this, mustn't they?!) that she had been having fertility treatment, so when she asked about the baby etc I told her about my 'journey' so if she wanted to talk about her situation she could. She did - and it turns out she has high NKC too! She's had 4 rounds of IVF she has had to pay for herself and is just about to have a one off NHS one. Bless her, I felt so sorry for her. I hope this is the time it works out but I also pointed her in the direction of Mr S and the new treatment I am on. She has had the Chicago tests via her IVF clinic but I said, in the light of experimental treatment such as the Hydroxy she might as well get as many opinions as possible. I felt very obvious with my (now rather huge) bump on show for her to see but I hope that my experience will offer her some hope too.

GreenOlives Mon 18-Jun-12 08:23:58

Hi Delta and welcome to the thread and well done on stage 1 achieved! We can mental together as I got my BFP on Friday so Im terrified!
Thanks for asking Free, I feel ok, kept busy all weekend organising and hosting DS's 4th bday party - fourteen 3 & 4 year olds were a pretty good distraction! I have tested again this morning with 4 different tests and they all confirm I am still pregnant!
Im sure your experience will indeed give that poor lady some hope - fingers crossed that the NHS one will be lucky for her.
Euro - fingers in your ears is fine! Whatever gets you through it! I really hope it works this time.

Abney Mon 18-Jun-12 09:15:05

Hello to all.

Welcome delta and congrats on your BFP. Thats's Sue, Olives and Delta. Keeping my fingers crossed for you all.

BFN on the old Sainsburys stick this morning. 12 DPO. As my AF is every 22 days now and like clockwork the last 2 times have been 11 DPO I am not sure what it means apart from the fact the dastardly AF will make an appearence soon. hmm. If it does I will drown my sorrows in a huge glass of wine and a huge freshly baked donut grin.

Arianrhod Mon 18-Jun-12 09:32:30

Morning ladies, and a huge welcome to delta, cautious congrats on your BFP and certainly understand the mad panic!

abney so sorry about the BFN - that's you and me both, BFN at 12dpo yesterday with spotting immediately after then AF this morning, a day early for my usual cycle but I understand Letrozole can make your cycle just a little earlier so I'm not worried. Done my blood gathering exercise (how gross is that?!) and packing it up to send off to Athens for testing today. I'm actually really interested to see what that comes back with, strangely enough, although not looking forward to 25 days of anti-b's if anything comes up positive!

pico Interesting to hear about your appointment. From purehealthonline I got the Coriolus / Reishi / Cordyceps combination capsules, 300 caps which is 33 days supply (3 x 3 capsules daily), for £40.80, and the Astragalus/Gentiana combination capsules, 300 caps which is 50 days supply (3 x 2 capsules daily), for £36. You can also buy the Coriolus, Reishi and Cordyceps separately, and they are in pots of either 60 capsules for £10.20 (that would be 20 days supply at 3 capsules per mushroom per day, so 9 capsules per day) each, or pots of 300 capules for £40.80 (that would be 100 days supply) - bear in mind you'd need three pots then, one of each mushroom, so you'd be looking at £122.40 for 100 days supply of the three mushrooms. HTH, and sorry for boring everyone else!

/waves to everyone

Delta10 Mon 18-Jun-12 13:04:19

Thanks all. Am having intralipids at the moment which is very straightforward & hope it helps.
free, Synarel is the down regging sniffing protocol at the start of ivf but I fell pregnant naturally so didn't need ivf.
abney & ari sorry for bfn, know that gutted feeling very well. Red wine & donut sounds good though...!
olives how's it going? You're in the same position as me so fingers crossed that preds from BFP does the trick.
sue best of luck & congrats on your positive scan, such a relief. Your knicker watch comment struck a chord with me!!!!
Good luck everyone

picolina123 Mon 18-Jun-12 17:11:23

free got my blood test results, they say everything normal, not sure which numbers you want the only thing that sounds like thyroid is
serem free t4 level-euthyroid- 12.7 pmol/L, got appt for thur to discuss and plan b.

arian head was spinning after i read that!! lol its all so confusing, will def shop around once she gives me prices

suemays Mon 18-Jun-12 18:05:24

Hello delta and congrats on your bfp. Let's hope that you, olives and I will all get to the magical 12 weeks without any probs. I am only looking from week to week at the moment as not daring to look beyond that! I have got my 8 week scan on wed plus intrallipids and convinced the heartbeat will have stopped but then I was convinced there would be an empty sac last week and I was wrong then. My symptoms don't seem as strong over the last few days so I am paranoid it's all over. Time will tell. I keep thinking I have only got 10 days until I get to the safe time of 9 weeks so keep praying that the little bean can keep fighting until then.

Sorry to the ladies who have got bfns, it's so depressing waiting for each month to arrive with no good news when all you want to do is have a crack at trying the treatment.

mollieboo Mon 18-Jun-12 18:43:26

Hi everyone, thanks for welcoming me to your thread the other day.

Huge congratulations to all of you newly pregnant ladies. I know the worry you are going through and am wishing you all healthy pregnancies, that goes out to all of the pregnant ladies on here, not just 1st trimester.

Sorry to everyone who didn't get pregnant this month. I know what a downer it is to get a bfn.

I'm off to see Dr S tomorrow for my first appointment, I'm quite excited but my husband thinks I should calm down in case he doesn't find anything wrong with me, in which case I'll be gutted. If anyone has any advice before I go please let me know? I'm looking forward to getting the results at the end of June so that I can hopefully start trying again and add myself to your list.

I'm also starting acupuncture this week, hoping that does something. Can anyone tell me if its painful at all?!

Thanks all and bye for now.

Delta10 Mon 18-Jun-12 20:36:25

Oh god sue I know exactly how you feel. With DS I couldn't quite believe it as each hurdle passed & mr s is extremely confident at 9 weeks (as opposed to 12 which he told me is just the NHS standard first scan time). I found it a great relief & very reassuring that he was so confident. I also really fretted about my lack of symptoms convinced it was a bad sign but he was quick to point out that preds mask a lot of symptoms. I was on 25mg then so 40mg must really cover them up - I had barely anything throughout the whole pregnancy which in hindsight was great but not when you are an already paranoid wreck!
mollie I found my first appointment with mr s very positive because he was the first mc specialist to tell me that 5 mc's isn't down to bad luck & he truly believed I would 'hold my baby in my arms'. He is very nice but as a few others have mentioned, he can sometimes seem a bit rushed due to his very busy schedule. The first appt will be to go over yr history & arrange blood tests so the follow up will be more informative.
Regarding acupuncture, I have had it many times in the past but haven't been for a few months. I have found it relaxing with the odd needle giving a little sting but only very very rarely & it does seem to help a lot of people with fertility issues so best of luck.

Delta10 Mon 18-Jun-12 20:54:03

Whoops sue just realised you had already mentioned the 9 week mark....! Good luck on Thursday, have everything crossed for you.
olives the party sounds like a great distraction! I am just trying to keep calm & positive & hope that everything is where it should be.
free forgot to comment regarding your friends predicament; It feels a very lonely & dark place when you see bumps (seemingly everywhere) but we also know that it it really can happen even when you are practically out of steam & belief.
Hello & good luck to everyone else

picolina123 Mon 18-Jun-12 22:00:32

mollie welcome ! had my first acupuncture on sat and i was a bit nervous , i agree with delta i didnt feel anything to talk about for the majority of the needles , maybe 3 i felt a slight pinch(very slight) she asked me to breath in when she put it in and out after, it was very quick, she mostly put them on my tummy, legs, ankle and back. the back ones were only in for a few seconds the front 15 min while she played really calming music and had me covered up, all in all a really positive experience , ive been halving a lot of problem with muscle pain since i came off the steriods and i dont know if its in my mind or not but it seemed to help, i took no pain killers sat, sun and doubt i will today, i go back sat , looking forward to it : )

suemays Tue 19-Jun-12 11:10:27

Thought I would update our list by adding 5 days on.

My sickness has come back today - so much for not having symptoms! I will end up looking like Mr Blobby if not careful as I can't stop eating to lessen the nausea. It would be awful if I wasn't taking the steroids seeing as they are masking it.

Mollie I find acupuncture can hurt a bit around the ankles but it's only for a few seconds as the needles go in. It really relaxes me for the next few days so by the time my next appointment is due I am normally really frantic! It is supposed to help with TTC and also up to 12 weeks of pregnancy as helps with blood flow to the uterus.

Delta I dont think I will believe it will work until I have a baby in my arms. Every hurdle passed is great but then you start worrying that there is more to go wrong and you get more attached.

Tuesday 19th June

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (ELCS) 14/5/12 7 lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (ELCS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (ELCS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 35 wks Next appt/scan, 22nd June EDD 24/07/12 by LMP, 22/07 by Nuchal
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 35 wks EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 31+6
coleyoz - V High NKC. DC#2, BFP cycle2, 31

2nd Trimester

FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 26+6
Mercator - V High NKC, DC#2 26+4 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks)
Hopefulfor2nd - High NKC - TTC#2. - 25+6
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 25+6
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 21+2 Next scan @ 20 weeks

1st Trimester

HelterSkelter (IVF and immune therapy) 11
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 7+6

TTC – ASSISTANCE - SO/IUI/IVF

EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 –pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -10 pred – 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)

TTC
London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, gen 6-8 weeks. NKC not tested, TTC #4 cycle 2 (after m/c 12) Fertility consultant
prescribed pred.
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, decided to only take Pred from BFP
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC
Gransol - Seven mcs - all losses between 6 & 7 weeks

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

mollieboo Tue 19-Jun-12 12:04:51

delta thank you for the heads up. I have some questions ready for Dr S so hopefully I'll get all the info I need during the appointment. Thanks to delta, pico and sue for the acupuncture info. I am a bit nervous but it sounds very effective.

Keep strong everyone.

Pebbles73 Tue 19-Jun-12 13:43:13

Sue thanks so much for posting all the info is always good to know what worked for other people. I have decided to double up on vit D although will see what Mr S says when I start back on super ov next month. Also ordered some selenium and some naturase omega 3.
Sounds like maybe I should be boozing more rather than trying to cut down! wink

Sorry about the bfn's Abney, Picolina and Ari it's so crap! I emailed Penny at Serum about the tests so will either do that at my next cycle or may see how you get on first Ari

Welcome to the newbies.

I have a bit of a dilema I was discussing with Free yesterday, I started the pred on cd18 but had 'indications' it happened around cd21/22. This means when I am due to stop the pred after taking for 14 days will prob be to early for my af!! Do I just stop taking the pred after 14 days regardless as an sure the chance of getting a bfp will be minimal?! I just think if I test then it would be bfn anyway as a bit early...,
Happy to see I seem to be ov anyway straight after the chemical.

Free don't forget to let me know about the Wednesday. Waves to anyone I have missed.

suemays Tue 19-Jun-12 16:36:16

pebbles glad the info helped. I don't mind doubling up when it's vitamins. I wouldn't take any more than 14 days of the preds as it could mess up your cycle next month if you get a bfn. I only used to take 10 days as advised by mr s and he said its not a problem if you have a gap of a few days if you do get a bfp.

Pebbles73 Tue 19-Jun-12 19:28:11

Great thanks so much for that Sue will just stop at 14 days. Hope all ok with you and will be looking out for news of your next scan. smile

eurochick Tue 19-Jun-12 21:53:33

Evening ladies. I am feeling rather unsettled after coming home to my first ever abnormal smear result (particularly as the accompanying leaflet says not to get pregnant confused ...). Anyway, having spent most of the evening consulting dr google, I have come across a few sites that indicate that people on steroids and other immunosuppressants should have annual smears rather than the usual 3 yearly ones. It does seem a bit of a coincidence that my first ever abnormal result came a week and a half after I finished 6 months of immunosuppressants... Hopefully now I am taking a break things will return to normal. But the timing really couldn't be worse - I am in the middle of my first IVF cycle now. I have a GP appointment on Monday to discuss and get some advice.

I don't want to alarm anyone with this, but I just wanted to say to you all to keep your smear tests up to date (in any case but particularly in light of the steroids) and perhaps to try to get more frequent tests than usual.

Pebbles73 Tue 19-Jun-12 22:28:17

Oh shit Euro!!!! Am so sorry the timing couldn't be worse and after you just got your head round ivf. Are you going to carry on down regging until you see the doctor Monday? Do you have a follow up appointment with the hospital? I had abnormal cells many years ago and when I had the follow up appointment they just zapped them there and then. I imagine you are feeling pretty pissed off and worried right now. I hope it doesn't delay things to much for you.

freelancegirl Tue 19-Jun-12 23:15:31

Oh Euro that is indeed a real worry, a right pain and very annoying timing!

Like Pebbles I had what they call 'severe dyskariosis' (sp?) a few years ago and when I went for the follow up appointment they zapped the cells there and then. Since then I have had yearly smears like you say. Amazing you found a link between that and immunosuppressants. I was a bit freaked out by the term 'severe' in relating to the cells but apparently what they have found at this stage is very very early and is a precursor to dodgy cells rather than actual dodgy cells IFKWIM?

Let us know how the GP appointment goes. I hope they don't say interrupt the the cycle and they can check progress without doing so. There is a possibility that they check again and nothing needs doing - I have had that a couple of times too. Lets hope for that outcome. But yes, good advice to everyone to have regular smears considering the connection between the steroids.

Funnily enough although I know a lot of people - like Sue says it was for her - have been told by Mr S to take 10 days of Pred, my protocol says to take 14 days. So I think you're fine with 14 days Pebbles and if you have to miss a couple of days before testing it will be in your system. There are people here who have only started Pred after a BFP. And is it Charlie who didn't have Pred this cycle at all? Just intralipids. I realise you aren't going to be on intralipids but I still don't think a couple of days without pred would do any harm, if you were then to get a BFP.

Good luck with the appointment Mollie! Have you had tests already is this your very first appointment? If the latter you will just have a tests and put the tests into action. But it is a good step to get into the system and can all happen quite quickly after that!

I am away at the moment seeing my family up north - hence the comparatively quiet radio silence. Also got quite a bit of work to do when I do get the laptop out. Scan at Epsom general followed by an appt with Mr S this Friday, so anticipating that a bit. I am still veering from ok to worried about the whole thing. Baby had been moving a lot - so I of course worry if it is too much. It kind of thumps and shudders quite a bit which is quite unnerving - is that normal? No idea what position it is in now! I guess all will come a lot clearer on Friday.

Oh one of my NCT group had a baby on Monday! 4 weeks early. All is well I hear.

Am wondering how PQ is? Did you have a scan in the last week? Hope all is well. How too are Olives and Delta with the new BFPS? Do let us know when your first scan dates are so we can do some hand holding if it helps.

Hello to everyone else. Hope Digi, Stogan, Comedy and Coconut are all doing ok with the babies. Are you posting on the Pred grads thread? I've fallen off it so will have to bookmark soon and will hopefully join you on the other side with Charlie in the near future.

Wondering how Snoopy is getting on with the treatment too. Snoops if you're lurking do let us know how you are!

PQ77 Wed 20-Jun-12 06:28:02

hi, welcome mollie and delta. I've been AWOL for a bit as I have RSI which was nicely taken care of by the pred but has now reared up again now that I am off it and i can't take anti-inflamatories. So no typing over the weekend.

talk about the last thing you needeuro ...i've had annual smears for about 15 years now after an odd one at uni. i got zapped by a gynae with silver nitrate and it was sorted in about 5 mins. I hope you can get treated quickly and back on course.

free hope you are enjoying your tour up north! And I hope all goes well on Friday. I had my20 week scan last friday but after three hours of trying, baby would not budge an inch ad they couldn't see any of the important things they check for, like the heart and kidneys (and, incidentally, the gender!). was a bit upset as i had been hoping for some reassurance that I was a "normal pregnant person". Anterior placenta which explains lack of kicks (or rather my ability to feel much).

Consultant appt and then repeat scan before work today (which is why I am up so early - DS fell out of bed at 4am and I haven't been able to get back to sleep!).

Assumng the scan this morning doesn;t turn up anything untoward, i'll be in italy with work for the rest of this week (37 degrees...black woollen maternity dress and black opaque tights...picture it) so might not get another chance to post.

Hope everyone keeps well! will be thinking of you today sue

brownstag Wed 20-Jun-12 10:25:54

Hallo everyone again and congrats to all who are pregnant or have had babies since I was last on here.
To update my status, I stopped treatment for a few cycles but started SO this cycle. Only one follicle on the letrozole. I'm no longer on pred, just hydroxy now, because of side effects. Am 6dpo. My previous status says very high natural killer cells, but actually they were only ever high. In fact I've only ever had one test, 3 years ago when I was pregnant with my son, so who knows what they're like now.

suemays Wed 20-Jun-12 14:12:46

Scan went well, measuring 8 wks 3 days and heartbeat of 198. Having intrallipids now so trying to type with one hand !

Arianrhod Wed 20-Jun-12 14:23:24

Fantastic news sue! And welcome back brownstag smile

freelancegirl Wed 20-Jun-12 15:10:04

That's great news Sue! Such a relief!! Not long to go until you're over 9 weeks. I know it seems like a huge gorge to cross until then, and then 12 weeks and so on but you will get there.

Enjoy your weird few hours sat tied up to a drip. I always found it very surreal! But a relief to be sitting there having them, after a successful scan.

And welcome back Brownstag good to hear from you. Sorry the side effects of the Pred were so awful but hopefully the hydroxy will do the trick. I will edit your details on the list.

That's really frustrating about the scan *PQ but hope it all went well today!! Do let us know. OOh are you going to find out the sex then...? Let us know! I think it might make it all the more real for you.

Funnily enough - has anyone else had RSI? I had it after the second mc of last year when i came off the Pred. It was awful - couldn't type properly for weeks. But for some reason it just went away after a few weeks.

Delta10 Wed 20-Jun-12 15:23:09

sue - that's wonderful news & was doing the one hand typing on Monday!! Do you live locally to the clinic?
Pq - good luck with your repeat scan, sounds like you have a chilled out bean in there. Hope yr DS is ok after his fall.
Hi to everyone else & hope you are enjoying the sunshine before the rain & wind returns....

picolina123 Wed 20-Jun-12 16:00:40

sue thats just fantastic new , you can relax for a while and enjoy it.

euro im really sorry for more worry being sent your way, hope its a quick fix like the others say.

i found this on the internet if anyones interested

http://www.naturalgynae.com/downloads/nav6_fact25.pdf

duggs1976 Wed 20-Jun-12 18:47:04

oh splendid sue.. another positive for hydroxy x

GreenOlives Wed 20-Jun-12 21:28:26

Evening ladies.

Sorry to hear about your smear results Euro but I'm sure they can sort things without it interrupting your IVF. Thanks for the info re steroids and needing more regular smears - that's important for all of us to know.

Great scan news Sue! That's fabulous news smile

PQ Hope bean was more compliant on today's scan! grin

Thanks for asking Free, I have a scan booked on Friday when I am only 4+6 to make sure this one's not ectopic. All hand holding gratefully received! I am currently just trying to stick my head in the sand and pretend nothing is happening!

batteryhen Thu 21-Jun-12 15:15:55

sue that is lovely news - I am really pleased for you smile
olives Thinking of you tomorrow for your scan. On my first pregnancy, I had so much pain, they scanned me early to make sure it wasn't ectopic. I think I was around the same weeks as you - and they were able to see a yolk sac in the right place so fingers crossed you should get some reassurance xx
euro - Sorry you are having this worry about your smears. I am a smear taker so if I can answer any questions for you - ask away smile

Nothing going on here. I am a bit worried today - not as much movement from babe as usual. I got the doppler out earlier, and hb seemed to be a bit slower then sped up as I was listening. I wonder if babies can tell they are being listened to? At all my MW appointments they are able to listen for a few seconds than babe wiggles away. The MW has said that babe is obviously sensitive?

Hello to everyone smile Hope your weather is better where you are xx

digitalgirl Thu 21-Jun-12 18:33:11

Yay sue fantastic news!!!

euro am sorry to hear you've more to worry about sad.

PQ hope rescan went well.

free and cheerful not long to go now! Can't wait for you to have your babies!!!

All good here. F occasionally going 9pm-5am which is amazing. And have had three days worth of writing work which I've spread out over nap times. F currently going through a phase of wanting to nap in the moby wrap but I like it - I get to cuddle him all day and sleep most of the night.

Right, about to have dinner then it's bath and bedtime so may try catch up a bit more while feeding F.

Bertha337 Thu 21-Jun-12 20:54:24

Hi everyone,
I am new- I ran into arianrhod on a different board who pointed me in this direction.
I am trying for my first and am hoping 4th time lucky! Between getting my blood work done at st.heliers and now I have managed to get myself knocked up! So, I literally just started the pred. this morning. I started the progesterone 2 nights ago, and have been taking vitamin D, aspirin, omega 3 and multi-vitamin for over 4 weeks. Some since last September in fact!

Dr. S diagnosed me with NK cells; but everything else came back okay. I was hoping to rule out the NK cells, but sods law!

Anyway, I am very early on, about 4+4; so fingers crossed.

I will try to catch up on where everyone is.

Oh, and can anyone tell me if they noticed a very slight pink coloration with their progesterone discharge? I am talking very very slight. I know I shouldn't look, but after my previous experience(s) it's a hard habit to break!

Arianrhod Thu 21-Jun-12 21:32:39

Hey there bertha and a big welcome!, good to see you over here but sorry for your losses. You decided to start on the Pred then, was your OH ok with it in the end?

On the progesterone, are you using the "visitor's entrance" then? I understand the pessaries can cause irritation if used there (although some people have no problems) and many of us choose to use the "tradesman's entrance" instead. Not the most glamorous thing to do, but nowhere near as bad as I for one had feared! Anyway I'm sure others will be along before long with their own progesterone experiences and excellent advice. And we all understand compulsive checking of any and all discharges!

digitalgirl Thu 21-Jun-12 21:43:10

Welcome and congratulations on your bfp bertha!
I used the back entrance for progesterone so didn't notice the discharge - but I know a few on here used the front so might be able to help!

olives good luck tomorrow. I had a scan when pg with ds1 at about 4 weeks. They saw the sac and that was it. Good to know it was in the right place - but of course too early to provide any further reassurance (as I was to discover when I started spotting the next week...thankfully that 4week old bean is now fast asleep upstairs).

battery am sure baby is just having a little sleep but maybe drink something cold or eat some chocolate and see if that speeds things up? Otherwise don't be shy to call the labour wars if you're worried.

I know some of you feel like you've had such a long journey so far - but I promise you the journey is worth it. F is just perfect, I'm amazed at how quickly the time is going and how I'm enjoying every second of it. I don't know if that's because he is our long-awaited miracle baby or if it's just easier to appreciate it all second time round. In any case I feel incredibly lucky and can't wait for more of you to get yours too.

eurochick Thu 21-Jun-12 21:58:03

Thanks for your thoughts, ladies. I have an appointment tomorrow with a consultant recommended by Mr S so hopefully I will get some answers then.

battery I hope bubs has woken up and wriggled a bit now! I do have a question that I couldn't find a clear answer to online. Does "mild dyskarosis" definitely mean there are precancerous cells present? Or could that result be caused by inflammation of the cervix (I had IUI about 3 weeks before the test so had a catheter shoved through it and quite a vigorous swi session 36 hrs before the test and I am wondering if either of these could have skewed the result by causing "trauma" to the cervix).

Welcome Bertha. I hope this is fourth time lucky for you.

<Waves to everyone else>

Pebbles73 Thu 21-Jun-12 22:09:09

Fantastic news sue, so pleased for you. All you pregnant/given birth ladies give me some hope that it could happen. Wish it would hurry up though......

Welcome to Bertha and well done.

Olives wishing you the best of luck tomorrow. Fc that all is ok.

Euro hope you get some answers tomorrow and can carry on with your ivf, good luck.

Had my second lot of pred insomnia ths week (only mildly but enough) last night and been to Zumba so shattered! Bit worried tat Zumba might be a bit energetic while ttc, will have to sound out Mr S I think!

Waves to everyone else.

batteryhen Thu 21-Jun-12 22:27:50

Evening smile

Since I last posted I have been booted to death so i feel a bit better. I feel all the movements really low down in my pelvis so I wonder if baby hasn't turned yet? I have a scan on Wednesday next week so I will find out then smile

euro I have Pm'd you xx

suemays Fri 22-Jun-12 00:25:18

euro I had precancerous cells and had to have them zapped around 5 years ago. It is really common so don't get too worried about it. From what I remember I had to wait one cycle before having sex again but I wasn't TTC at the time. It's very scary as you suspect the worst but it's normally more of a precaution. Typical that this happens as soon as you get your head around ivf. The procedure doesn't hurt by the way but is a bit sore like period cramps afterwards. I still wonder if my precancerous cells caused my killer cells to go into overdrive.
Welcome to bertha and congrats on your bfp. I take progesterone up the front entrance as was told by mr s that it is slightly better than the back entrance. I know it can cause spotting due to irritation so maybe try the other entrance?

pebbles glad you are feeling positive with the bfps on here. I hope your time will come soon just don't give up!

Thanks to everyone for your nice posts on my scan. I still don't quite believe I have made it to seeing the heartbeat and will be devastated if it fails now.

suemays Fri 22-Jun-12 00:34:47

olives good luck for tomorrow.

kittens glad the baby is moving now

pebbles I calmed down exercise on the 2ww and did low impact zumba. I asked mr s and he said it was up to me but not do anything too vigorous.

digi glad that F is getting big blocks of sleep. It makes such a difference when they start to sleep through. It's the success stories such as yours that inspiresv the rest of us to keep going!

eurochick Fri 22-Jun-12 07:45:53

sue thanks. Were it not for the timing, I think I would be a bit worried but not overly worried. The timing is just awful though.

pebbles I've carried on running whilst ttc. A few cycles I have stopped during the 2ww, but it didn't help so I run if I want to. I feel awful and sluggish if I stop exercising.

eurochick Fri 22-Jun-12 07:50:32

Oops, pressed post too soon.

I meant to say, sue, I have also wondered if my NK cells were high for a reason, i.e. they were fighting off these pre-cancerous cells, and I stopped them doing their job with the steroids.

suemays Fri 22-Jun-12 08:20:03

euro I think there are quite a few of us on here who have had abnormal cells so I wonder if there is a reason behind the high killer cells. I did question this earlier in the year.

Havingkittens Fri 22-Jun-12 09:14:44

sue, your baby brain has evidently kicked in wink

"kittens glad the baby is moving now" lol. That would be a surprise, but I think if anything, it's just wind.

Glad to hear your scan went well by the way.

euro, that really does stink timing-wise. I am another one who had abnormal cells followed by laser treatment in my very early 20s and have been fine ever since. Hopefully you will get a clearer picture of how to progress when you see the consultant. It doesn't help at all not knowing, your brain is probably doing overtime wondering whether you're going to be able to go ahead with the ivf or not. I don't know much about ivf but is it possible to do all the initial stages and then get your embryos frozen and put back once you've got the all clear?

It does make me a bit nervous, I have to say, all this suppressing of the immune system. I mean, it's all in a good cause baby-wise but the NK Cells are to be encouraged in the grand scheme of things aren't they? I think it's ok for those who get pregnant quickly but I'm not sure being on immune suppressants for a year or two, or more, is ideal. euro and snoopy's situations have made me think about this more, I must admit.

free, and any others who are on hydroxy, did you completely replace pred with hydroxy? What about after BFP? Mr S said that if I wasn't pregnant with this cycle he would start me on it next cycle as I've been on the pred now for 15 months, albeit with a couple of 1 or 2 month breaks, but it makes me feel dreadful and I don't like the idea of being on it for so long.

Good luck with your scan today olives. Hope all is where it should be!

I'm just starting my 2ww today. Keep your fingers crossed for me that the combination of post hysteroscopy fertility, 2 eggs this month, diligent SWI and my friend's dad's "wooooo" numerology prediction that I will get pregnant in June and the lucky 7th pregnancy speculation all work in my favour! (The second two come with a mountain of salt!)

brownstag Fri 22-Jun-12 11:25:43

Kittens, I have completely replaced the steroids with hydroxy. I'm not sure what the plan is if I get a BFP, but I assume the intralipids on top. Mr S said he has no stats to give me about hydroxy alone. To be honest, I might be tempted to take the steroids again if I got a BFP, knowing it's for a finite period, and that my DS was a pred baby.
Looks like you have everything aligned for a BFP this cycle, so fingers crossed for you! It's funny how superstition can creep in when it comes to babies; I'm not in the slightest bit superstitious at all normally, but when I was TTC my DS, I once went for a summer's walk with my dad through the cemetery behind our house. We came across my dad's uncle's grave, who had died when I was a teenager. I asked my dad if his uncle and auntie had ever had children and he said no, and I spent a long time just standing there thinking about them, whether they'd been sad about that, wondering whether I was ever going to be a mother, and so on. Two weeks later I got my BFP, and we worked out that my DS had been conceived on that day. Somehow it seemed to me that my great uncle's spirit had taken pity on me and 'granted' me my baby from beyond the grave. Bonkers, obviously!
On a different note, I had no idea I wasn't meant to be doing vigorous exercise during the 2ww. Is that because of the SO treatment, steroids, or just plain old conceiving? I've been swimming 4 times a week, walking fora an hour or an hour and a half every day. And isn't sex vigorous exercise?

eurochick Fri 22-Jun-12 11:29:40

brownstag some websites I have looked at advise against exercise, but as far as I can tell, this isn't backed up by any research. I feel happier and fitter when I exercise and I just don't believe that can be bad for ttc.

suemays Fri 22-Jun-12 12:38:17

Sorry kittens the post was meant for battery. Maybe its another thing to add to your good luck this month?

Exercise is fine in the 2ww apart from high impact aerobics and anything that involves jumping up and down. Swimming and walking are both fine. I did find research a while back that moderate exercise increases killer cells. I have completely stopped all exercise since getting my bfp and will start again if I get to 14 weeks. I agree that exercise makes you feel better so you have to do what you think is best for you.

suemays Fri 22-Jun-12 12:43:23

brownstag I don't know about you but vigorous sex doesnt last long with us!!! My acupuncturist said in Chinese medicine they believe the body needs to be rested when TTC and that you should limit exercise to 2-3 hours a week in total. This time is the first pregnancy I have taken that advice on the 2ww and I have got the furthest so who knows. They used to prescribe bed rest for recurrent miscarriages so maybe resting does play a part in it? Trouble is none of us know what to do for the best!

GreenOlives Fri 22-Jun-12 13:56:00

Thanks for the good wishes ladies. I have a small black blob in my womb which is apparently the sac! I am relieved but still terrified about the next few weeks. I have got some free fluid in my pelvis but doc ishopeful that this is just residual fluid from ovulation. I am having another scan next Fri to see how things are developing.I think until then I just need to bury my head in the sand again and pretend nothing is happening!
Welcome Bertha, nice to meet you. I am at the same stage as you so we can mental together smile
euro Glad you have a specialist lined up for their opinion.
Right, off for a nap as Im on nights this weekend. Hope everyone has a nice weekend despite the rubbish weather.

suemays Fri 22-Jun-12 14:17:09

Well done olives first hurdle out of the way that it's all in the right place. I tend to find I am positive after a good scan and then a bunch of nerves and convinced its all over a few days later! The next week will drag for you!

Bertha337 Fri 22-Jun-12 14:48:40

Green oh great! That makes me happy! I don't have my first scan until 6 weeks, so I am still pretending that I am not pregnant to keeps stress levels down! In the meantime, i am being pretty lazy, trying not to focus on all the little things and keeping my fingers crossed that all goes well on July 3! My first pregnancy was an ectopic, so i am also anxious to hear that the blob is in the right location.

Anyone- what does 2ww mean? 2 week window? Is this after ovulation? Sorry, I don't know all the lingo.

Anyone know anything about yoga? You know, there is a lot of conflicting information out there! Some say yoga is awesome, some say it's dangerous. I do regularly practise, but every time I have fallen pregnant I stop- usually because I am spotting or bleeding and scared, but let's just say I don't get any of those symptoms this time...is the relaxation of the yoga more beneficial than the possibility that it may raise NK cell count? (or so I read). Views?

arian my OH freaked out when I told him some of the other statistics that I already face and, given that this is one of the smallest, said that I would need to make the decision and he would support it. I could have kicked him this morning though when I told him about the slight pink discharge from yesterday and extremely light brown first thing this morning.. He actually said 'maybe you didn't start taking the steroids soon enough!' brain like a monkey. Am still hopeful that all coloured discharge is from the progesterone (it was greasy?) barf, sorry TMI. I tried a new parking spot for it last night. Mentally, I can do without coloured discharge, thankyou very much!

Haven't had any side effects from the pred yet. Atleast none that stand out, so thats a good thing.

Thanks everyone for such a warm welcome x

freelancegirl Fri 22-Jun-12 15:21:32

Afternoon all, and huge welcome to bertha! Glad you are getting stuck in here - the more the merrier - and fab to hear about your BFP. Yes it is such a worrying time but also the first step in the right direction. I always used standard entrance for the Progesterone, not sure why as I hated the smell and discharge (nice...) with a vengeance. But for some reason never tried any alternative parking smile I did have pink tinged stuff around 7 weeks in but I think that was from having sex. Cue a period of celibacy until around 16 weeks. All my random research pointed to the fact that the cervix is just so delicate that anything can cause a bit of irritation and subsequent spotting. So hopefully nothing to worry about.

Ok - scrolling back up - Olives that is great news that the sac is in the right place! Surely that is a tick next to Step 2. Step 3 will come with the heartbeat in a couple of weeks when it's big enough to be seen. But fab news that it's there an in the right place.

As for yoga for pregnancy I have no idea if it would affect NK levels or not although it is of course said to be good for 'normal' pregnancies. I did read a report saying exercise boosted NK cell levels (hence it is normally good for people as it helps boost immunity) but who knows if that means we should steer clear of it?! Same for you Pebbles with TTC and Zumba. As a former fitness bunny (gym up to 6 times a week!) I carried on with working out for the first two miscarriages last year. For this pregnancy I was taking it a lot easier. Am not sure if those two things are connected but I this time I was inclined to take it easy with exercise and just walk, do light weights and don't over do things. Plenty of time for serious fitness again afterwards. Like Sue says though, there is nothing that can predict what to do for the best! Everything in moderation maybe.

My protocol with the hydroxy, Kittens was to just add it to the treatment I was having already - so start taking the Hydroxy as soon as prescribed (turned out to be 2 weeks prior to ovulation), 25mg Pred from ovulation, 40mg Pred from BFP plus intralipids - which I ended up having at 4, 8, 12 and an extra one at around 15 weeks. Still on hydroxy, but now going off it at 36 weeks as per Mr S' advice today.

Battery glad the baby started moving more - believe me every week I am googling 'decrease in movement at XX weeks' as well as 'increase in movement at xx weeks. They just seem to have quieter periods follow by more active ones! But yes, out comes the ice cold water, the Dopplar...

Euro when I had 'severe dyskariosis' they told me not to worry as these were just slight changes in cells BEFORE anything remotely cancerous. Am sure Battery can tell you more though. You might find they don't need zapping at all.

Very impressed that Battery does smears! Could we pop round to you instead of having to go to the GP grin

Digi sooo lovely to hear from you and also to hear so much positive news about F. Great too that you have been able to do that bit of freelance work. I will be (all going well) hopefully chatting to you a lot more about these things when I 'graduate'. I also wanted to ask you about DH too - whether he did small things as well as whole projects. Turns out our new house needs a bit more tweaking than we thought.

Who else? I've said hello to all newbies I think - but if I've missed anyone let me know. PQ hope the re-scan went well. Waves to all others too.

As for me, am back from scan and then consultation with Mr S at Epsom General and all is ok so far. Baby is measuring rather large still - abdominal circumference off the scale - but he says it just means it is a big baby rather than anything wrong. Already estimated to be just over 7lbs at 35.3 weeks! No wonder I have started to waddle and feel rather more tired than I have been.
I guess the biggest news is I am booked in for a ELCS at 39 weeks - 17th July. Gulp. Ah well, it has to come out one way or another!

freelancegirl Fri 22-Jun-12 15:37:51

OK, I think I have everyones updates on here. Have created a new category for the newly pregnant but awaiting 6/7 week scans. So you're not yet having to freak out about being in the first trimester! I have also moved Frozen (haven't heard from her in a while - hope all is well?) and merc up to the third trimester. Have added Delta, Bertha and also Mollie who is still awaiting diagnosis and have moved Brownstag up to the TTC SO list. All BFPs have had their weeks/days brought up to date - hopefully accurately.

Anyone else need anything changing go ahead!

Friday 22nd June

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (ELCS) 14/5/12 7 lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (ELCS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (ELCS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 35+3 wks ELCS 17/07/12
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 35+3 wks EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 32+2
coleyoz - V High NKC. DC#2, BFP cycle2, 31+3
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 27+2
Mercator - V High NKC, DC#2 27+0 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks)

2nd Trimester

Hopefulfor2nd - High NKC - TTC#2. - 26+2
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 26+2
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 21+5

1st Trimester

HelterSkelter (IVF and immune therapy) 11+3
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 8+5

BFPs awaiting 6 week scans

GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. Est 4.6
Bertha337 - High NKC, 3 mcs, est 4.5.
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc

TTC – ASSISTANCE - SO/IUI/IVF

EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 –pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -10 pred – 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, SO

TTC

London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, gen 6-8 weeks. NKC not tested, TTC #4 cycle 2 (after m/c 12) Fertility consultant
prescribed pred.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC
Gransol - Seven mcs - all losses between 6 & 7 weeks

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

Mollieboo - awaiting diagnosis

mollieboo Fri 22-Jun-12 16:37:08

Hi everyone
Thanks free for adding me to the list.
I saw Dr S earlier in the week, he was very nice and it was such a relief to be told that he thinks he can help me, that's even before he sees the test results. Also the midwife there said that no matter what the results are, I will be given a plan. That sounds encouraging considering no-one else seems to know what to do with me, I guess you've all been through that stage on here. Roll on next Sat to find out results, although I'm really nervous!
digital huge congrats re your baby, its lovely to hear from you success story ladies.
I agree its really hard to know what to do re exercise when you're pregnant and higher risk like us. I feel guilty if I go for a gentle walk when I'm pregnant but if you are used to exercising its really difficult to do nothing. bertha I have been going to yoga for years, and just for info when I was pregnant my yoga teacher asked me not to attend in my first trimester just in case, and also because of insurance issues. As she is a trained pregnancy yoga teacher, I went back to the class in my middle trimester but couldn't do a lot of the usual stretches, she gave me alternative ones. I have seen pregnancy yoga classes though which you can attend at any time, which is what I'll do next time I get pregnant. Prob best to have a word with your yoga teacher.
Hi to everyone else.

mollieboo Fri 22-Jun-12 16:48:59

Sorry also congrats to sue and olives on your scans, and welcome to bertha and congrats on your bfp!

digitalgirl Fri 22-Jun-12 17:12:09

Great news on black blob olives

Squeeee! Only 3 and a half weeks till your cs free - really not long to go at all! Try not to worry re: abdominal circumference measuring off the scale. F did but wasn't freakishly big at 39 weeks. Bigger babies apparently are better sleepers wink. F did 9-6 last night - a new record!

I did pregnancy yoga from 20-ish weeks - its mainly breathing and some gentle stretches, nothing to raise your bp. Would recommend it.

mollieboo Fri 22-Jun-12 17:16:20

free congrats on your due date, how exciting! I had a c section last year, I did have a general anaesthetic but was up and about a few hours later going to see the baby in the neonatal unit, so its nothing to worry about recovery wise, just keep on top of the painkillers!
Sorry everyone for all the posts, I keep forgetting to put everything into the one post.
Have a good evening all.

eurochick Fri 22-Jun-12 20:53:53

free have you moved?! V exciting to have a "meet my baby" date!

To all the yoga bunnies, I'd never heard before that it could raise the NK cell count. I was doing it regularly (gave up gym membership a couple of months ago to focus on running over the summer).

I had my gynae appointment. The good news is that there were no visible lesions, but my downregging drugs have made my cervix take on a menopausal appearance hmm, so the zone where problems usually start wasn't visible. Anyway, he has taken another smear (fascinating to see that being done - they twiddle the thing [technical term] round five times apparently) and that will be tested for the two strains of HPV most likely to cause problems to develop. I have to wait about 10 days for those results. When he took my history he seemed interested in the fact that I had just been on Prednisolone for 6 months, but didn't really say much (probably because he couldn't get a word in edgeways as I prattled on nervously....). So fingers crossed for the HPV results.

brownstag Sat 23-Jun-12 07:56:36

freelance girl - I'd definitely recommend not worrying about the scan measurements. My DS had head and abdominal circumferences that were nearly on the 100th centile and leg measurement that was on the 25th. I tied myself up in knots about it, and then I also discovered on the internet to my horror that there was a ratio between these measurements that would indicate Downs, or at least a soft marker for it, and however many times I number crunched (different academic papers had slightly diffierent ratios) it always came back that he might have Downs. I hadn't had the nuchal scan, you see, so it was extra worrying. But when he was born of course he didn't have Downs. Was he a fat, short-limbed alien-like creature with an enormous cranium? No, perfectly normal. Gorgeous, in fact. Personally I would disconnect the internet during pregnancy or at least ban yourself from any pregnancy-related searches.
P.S. On the list, I have only high, not very high, natural killer cells.

igggi Sat 23-Jun-12 15:17:00

Hello, I don't know if you've seen it already but there is info about new guidelines on managing mc for NICE that we have been invited to give comments about - it's on the mumsnet campaigns page. I'll put the link in if you're interested. Must say I think some of it is a step back, not forward sad
www.mumsnet.com/Talk/mumsnet_campaigns/1500976-Consultation-on-NICE-draft-guideline-to-improve-care-of-women-at-risk-of-miscarriage-or-ectopic-pregnancy

GreenOlives Sat 23-Jun-12 18:31:56

I'm driving myself mad mentalling today sad I'm convinced it's all going to go wrong! I just wish I felt more pregnant. I was worrying myself sick about having crampy period type pains last week and now I'm worrying about not having them - arrrghh!! I know it's really too early for symptoms anyway, I don't think my MS kicked in until nearly 7 weeks with DS but I definitely had the crampy pains for longer with him. Do you think the Pred could be masking some symptoms? What are your experiences of symptoms/lack of them on Pred ladies? I'm hoping that the tiredness of being on nights is just exacerbating my fears and that the mentalling will return to a more manageable level next week!

Bertha337 Sat 23-Jun-12 21:37:29

green I am sure I read somewhere that pred masks morning sickness. But I don't know about anything else. I am totally with you though on the symptom checker. I keep groping my beasts to see if they are still tender and sensitive. We can be neurotics together on the symptom front!
X

Bertha337 Sat 23-Jun-12 21:47:10

And thanks everyone for thoughts on yoga! For the time being I think I will just deep breath while laying on my back and give it a miss until I feel a bit more'established.' x

igggi Sat 23-Jun-12 21:54:32

Greenolives I was sick as a dog with ds1 (no pred) and hardly anything with ds2, not even sore boobs. Interestingly, once I was weaned off the steroids I started feeling sick then, and this continued to about 30 weeks! So please try not to worry re sickness.

digitalgirl Sun 24-Jun-12 04:18:12

olives Another one here with barely any sickness in the first trimester. In fact the steroids boosted my productivity so I was running around at work, hectic at weekends and basically keeping myself busy so I could remain in denial until about 8 weeks when I had my first scan.

brownstag Sun 24-Jun-12 09:41:35

greenolives, the pred definitely masks the symptoms of pregnancy; I got it from the horse's mouth, Mr S. Mine completely vanished when I started the pred at 5 weeks, and then the morning sickness returned for a week or two once I was off them and then disappeared. And all was fine.

LAF77 Sun 24-Jun-12 09:47:18

free another story to not worry about abdominal measurements. I was told DS was off the charts, probably had GD. He was 9lb 7oz when born, but he is now around the 50th centile for weight whilst in the 98th centile for length. Your body is doing a good job getting him ready to leave the womb. He will lose weight in the first week, so he needs to be pudgy! Thinking of you and will be so happy to hear of your new arrival!

digi am jealous of F sleeping through. Still hasn't happened for me yet!

suemays Sun 24-Jun-12 11:47:34

olives I didn't start feeling the nausea until around 7 weeks and it has not been as bad as with dd1. I was also told that preds mask sickness infant Louise told me that it is used for women with severe morning sickness. She told me I would likely have been admitted to hospital if I wasnt on the steroids as most peo

picolina123 Sun 24-Jun-12 12:02:36

just a quick up date on my alternative treatment for nk cells - arian my chinese doc told me to take
half spoon huang qi- with half glass boiling water, drink when cooled
half spoon qin jiao - as above
1 capsule of cordyceps - 3 times a dayy
all taken after food.
also she said this web site had the best cordycepts
www.jcm.co.uk- they are also cheaper
ive started acupuncture and my muscles have shown improvement after 2 sessions , she seems to think the pain in muscles and joints are caused my fluid retention caused by steriods, all still hanging around .better go woke up with a pounding headach , time for a lazy sun!

freelancegirl Sun 24-Jun-12 12:17:25

Hey LAF! Great to see you dropping by! How is everything going?! Wow, what a long way we have all come in the last year. I am guessing that your GD test was also negative? So was mine and I don't seem to have any other real negative signs - although I HAVE been wanting fruit sugars throughout this whole pregnancy. It's not chocolate and sweets I realise but it is still sugar. 9lbs 7? Wow! But yes, good advice as I know they do lose it a bit afterwards. Hope you're enjoying motherhood!!

Olives, as Brownstag says the Pred definitely helps to mask pregnancy symptoms. I was a bit queasy (which, as you say, kicked in around 6-7 weeks) but I think that was down to my aversion to the progesterone. Certainly no actual sickness and quite a few days when I posted on here - as some of you will remember - saying 'Help - I feel well!!'. And I do remember Digi being full of energy.

Having a little chuckle at Bertha prodding your boobs. I kept doing that too. I never had any serious soreness or discomfort but the odd light bruised feeling was reassuring. I agree about the exercise. I felt I really wanted to continue with it as much as possible but in the end I couldn't really be arsed, I just wanted to concentrate on the pregnancy and I will worry about getting back in shape afterwards. My muscles have stayed relatively strong I think and I am certainly not the blob I always anticipated I would be when I got to later stage pregnancy. I did do a few weeks of pregnancy pilates but to be honest after being someone who loved lifting weights before i found it didn't really hold my interest. Keep meaning to go back but hasn't happened!

Iggi thanks for that link - am going to have a good look through. Hope you're doing well with the baby!

Thanks for reassuring words about CS' Mollie. Why were you under GS, was it an emergency? Any other good stories about it gratefully accepted!

Well, I've been trying to be calm ever since my news about the CS date. Telling myself that a lot of people do this sort of thing all the time - including people on this thread and Mr S himself for whom this is pretty routine. Did you know he actually does the op himself?! Quite impressive. He said a lot of people are quite surprised when they find that out as they are used to see him sitting in a suit behind a desk smile

Haven't moved yet Euro but we are probably looking to exchange and complete by the end of the week! We will have the flat for a few weeks cross over though, as I haven't yet got agents round to talk about rental, and we have to arrange for our stuff to come out of storage from the other flat too. Fancy coming round for a cuppa when we move though? And everyone else of course. Good news re no visible lesions and remaining hopeful for the second smear results. Wonder what his thoughts would have been about the Pred?

Talking of medication - Mr S told me to go off the Hyroxychloroquine at 36 weeks, which happens to be on Tuesday. Agggh! That is my last immunotherapy medicinal crutch. I am sure it won't make a blind bit of difference at this stage but after that I am only on vits and thyroxine (which I am always on anyway). I guess it is good to stop taking any immuno suppressant meds a few weeks before an operation. Makes sense!

suemays Sun 24-Jun-12 12:23:43

Most people don't feel any symptoms on the steroids.

freelancegirl Sun 24-Jun-12 12:31:31

Sorry - crossed posts with Sue and Pico. Sue how are you feeling? Time dragging or are you coping ok? Time dragged so much for me at that stage. Some days it feels like I have been pregnant forever and then suddenly there's an organised date of 3 weeks two days left!

Pico glad they have a theory about the muscle aches. Did you get your exact numbers back from the docs for thyroid tests yet? I really want to look at your TSH numbers and T4 numbers.

batteryhen Sun 24-Jun-12 13:11:25

olives Another one who had no symptoms at all. In fact I felt great. No tiredness either - it is definitely the pred smile
free is your baby still breech? I only ask as all my movement is right down in my pelvis and on the right side? I have to stop aspirin in 2 weeks. Gulp. I am not looking forward to that!!!

All ok here, trying to get the nursery sorted etc, but head is still very much in the sand regarding birth smile I am seeing my consultant on Wednesday, he wasnts to bring me in at 39 weeks so I wonder if he will give me a date soon too ? Gulp again.

Have we got anyone on the 2ww? I like toknow these things so I can do a bit of mentalling too smile

suemays Sun 24-Jun-12 13:57:48

Free I am feeling like time is dragging by although I cant believe I am nearly at 9 weeks already. If I went by my scan date I would be around 9 weeks today but I dont want to tempt fate. I still am sceptical about it all to be honest and keep having frantic knicker checking moments. I was feeling really exhausted up until a few days ago so keep worrying that it's a bad sign. The nausea has subsided too. I don't have another scan until I will be 10.5 weeks so I don't know how I will last that long!!! I might have to pretend I am having pain and go to the EPU for a scan next week just to check all is OK.

It's funny that you are burying your head in the sand battery - the things we do for self preservation after all the miscarriages. I am sure we are all like that until the baby is born.

suemays Sun 24-Jun-12 14:00:03

I forgot to ask - did anyone go to the Foetal medical centre in london for their 12 week scan? I tried to book in with a midwife this week at my doctors for my 12 week scan but she only works on a Tues and is on holiday for 2 weeks! By the time she gets back I will be over 10 weeks and I have a feeling I wont get booked in in time for my 12 week NHS scan.

GreenOlives Sun 24-Jun-12 14:31:20

Thanks ladies, Im going to try and stop whittling so much about symptoms/lack of them! PUPO is going to be my mantra for this week. Bertha I had a little giggle about the boob prodding - Im sure the only reason mine are sore is because I poke them several hundred times a day wink Sorry Sue cant help on the scan front unless your GP can book the scan instead maybe?
Free What an exciting time - a date to meet your baby and a new house - busy, busy but v.exciting! On the scan front I am very dubious about the accuracy of the measurements - I know so many people who have been told they are having big/little babies and have had the opposite! I didnt have a growth scan with DS but my midwife assured me that she always got close with a guesstimate afterexamining her ladies. She guessed 7.7lbs - DS was actually 10lbs! grin
Cant remember what else I wanted to say and im on phone so cant scroll back so I'll just wave to all, hope this is good week for all the Pred ladies! X

freelancegirl Sun 24-Jun-12 15:20:39

Sue I went to FMC for the 12 week scan and it was brilliant. So thorough. I have only had one 12 week scan before and that was when I had bad news so I don't have anything to compare it to exactly but I have had a lot of standard NHS scans and I think the FMC is, in comparison, worth every penny and a wonderful experience. You are in there for about half an hour and they check everything possible - they develop new tests all the time. Also you get a DVD and pics to take away. I know it's nerve-wracking but I thoroughly recommend it.

Battery when you say a date do you mean for a CS too?

I have a confession to make actually, the baby is no longer breech. I had a feeling it had turned last week. Of course it could still turn back. I had a good long chat with Mr S about what I wanted to do and I decided that, give it is my first baby, measuring rather huge, history of problems, thyroid (apparently more likely to have back to back babies and longer labours) and so many other reasons I have been mulling over to still go ahead with a CS. I feel guilty, mainly because I worry some people might judge me, but Mr S says he is very used to women who have been through what we have been through to just want to get it done as quickly as possible with a minimum of variables and unknown outcomes. When it was still breech I was feeling a lot of kicks low down in the pelvis as you say. Since it has turned - I think last week as there was a lot of weird movement - movement has really changed and I can feel it pressing on a nerve down below sometimes. Need the loo at lot more and movement is concentrated in the middle of my tummy where I think there is a collection of bunched up arms and legs.

On a completely separate subject, does anyone have any recommendations for somewhere to buy nice wardrobe which I don't have to remortgage for?

batteryhen Sun 24-Jun-12 17:19:59

sue I went to the FMC after having my bloods showed me at high risk for downs etc.They were excellent. Very detailed - they let me listen to babies HB smile It was very reasurring. xx
free my consultant said he would bring me in to induce me at 39 weeks. However, if he suggests a CS for the safety of babe etc, then that is what I will go for. I think babe might be breech just now as I get a lot of kicks in my pelvis and on the right hand side too. There is still time for turning though I think! Can't really help with wardrobe - I hate shopping so tend to stick to simple and not very stylish!

mollieboo Sun 24-Jun-12 17:27:29

Hi free, totally understand your decision to go for a CS, I don't blame you at all, don't feel guilty, I will be doing the same thing when I hopefully get to your situation. Yes mine was an emergency but its a long story, we had known for a couple of weeks that the baby (Oscar) wasn't thriving and that he might need to be born early. On the day of the op I had a Clexane jab in the morning and there wasn't enough time for it to wear off, so they couldn't do an epidural hence the need for a general. I was surprised how quickly I was up and about afterwards and you sound like you keep yourself really fit so you'll be absolutely fine.

Hi to everyone else.

freelancegirl Sun 24-Jun-12 17:27:58

Yes, mine seemed to turn last week so around 35 weeks. I was kinda hoping it wouldn't - so the decision would be taken out of my hands.

Oh, I meant an actual wardrobe (to put things in) not new clothes grin Clothes are something I have way too many of as it is. Just wondering when they will fit me again...

eurochick Sun 24-Jun-12 17:36:50

free I'd love to pop over when you are in the place!

I'm glad everyone seems to be doing well. The downregging dugs seem to have hit me properly now and turned me into a right miserable cow. I am hating hating hating this and considering stopping. It is only really curiosity keeping me going - can Mr euro's sperm and my eggs get it together under lab conditions? If so, then it really is getting them to stick that is the problem. Meh.

Pebbles73 Sun 24-Jun-12 19:31:20

Hi all hope everyone is having a good weekend. We went to a 40th party yesterday and have a terrible hangover!! Getting hammered in the 2ww is is probably not thd best idea!!!

Free I can't believe you will have your baby in three weeks time. Seems to have gone do quickly, lolling forward to seeing the bump on Wednesday. grin
I wouldn't worry about what people think of you having a cs, you just have to do what feels right and is best for you.

Euro the down regging is the worst bit mentally. As soon as you start the stimming drugs you will feel much better. You will start feeling bloated but more like yourself. You just have to stick it a little longer....

Havingkittens Sun 24-Jun-12 22:52:12

pebbles, I went to a 40th last night too and drank a lot more than I ought to have done in my 2ww! My OH suddenly had something come up so I ended up going on my own and didn't really know anyone there apart from the birthday girl and her husband so not drinking was a tricky option as I was feeling a bit shy and a bit flat before I went. I did feel a bit guilty about the drinking though. You weren't in Brighton were you? Wouldn't it be hilarious if we'd both been on the same night out, both simultaniously feeling guilty about our inappropriate drunkenness!

picolina123 Mon 25-Jun-12 06:50:35

free 3 weeks... shit!!!! when its put like that, dont worry about cs , im def doing it no matter what position baby is in ( IF I EVER GET THE CHANCE) i know some women really want natural , im not one of them : )

i did put results on here, think we missed each other, there wasnt that much detail to be honest, i just put down what every they had. im disappointed to have to wait 3 mths to start trying tick tock and all that but on the other hand planning a holiday - may be greece, i love it there been to santorini , any suggestions girls on where to go and any hotels you love ? im so fussy its not funny. i would mid just going back to the south of france but hubby doesnt like going back to same place again and again

started herbs yest, drank the first one and was like ..hey this isnt too bad , drank the second one and was ..yuck!!, now i drink the bitter one first followded quuickly by the second one . 3 times a day

picolina123 Mon 25-Jun-12 06:53:43

here it is again free
got my blood test results, they say everything normal, not sure which numbers you want the only thing that sounds like thyroid is
serem free t4 level-euthyroid- 12.7 pmol/L, got appt for thur to discuss and plan b.

helterskelter99 Mon 25-Jun-12 08:37:25

Morning I know I am a bad poster dipping in & out but I feel I should keep you in the loop.
So we had our 12 week scan yesterday at 11+6 and the nuchal measure was 1.3 and most importantly there was a still alive baby there lol! Obviously we have to wait until the blood test results give us our final risk factor but we feel a lot more relaxed than we did.
Now the scary part time to start tapering the pred.... although I am going to wait a couple of days before I do that lol!

Lots of luck to everyone xxx

freelancegirl Mon 25-Jun-12 11:19:48

Pico 12.7 is ok for T4 but have they given you a TSH result? Don't let them just tell you it is normal. Say you want the actual numbers. TSH is an important indicator too.

HERE is a good article explaining why there are differing normal ranges for TSH.

And HERE is a good article on what should be normal ranges.

Hey Helter great to see you, and here with good news too! So wonderful to know that everything was ok at the 12 week scan, it is a real milestone. Yes it is nerve-wracking coming off the Prednisolone but in my extensive in-no-way-medically-qualified research I haven't found anyone who has had problems with the baby after coming off it. It really seems that the steroids do their trick in the first trimester.

Battery I understand how you are nervous about coming off the aspirin! I was nervous about coming off it too - and everything else for that matter. But like I said above I can't find any evidence of going off things causing problems. I do feel the same about my last drug to- from tomorrow there will be no hydroxychloroquine! Aggh!!

Euro, after down-regging when do they make sperm meet egg and do their magic?

Kittens and Pebbles from what I hear getting royally pissed and enjoying yourself in the 2ww is often the way to do it!

freelancegirl Mon 25-Jun-12 11:24:26

Please feel free to add/edit details

Monday 25th June

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 35+6 wks CS 17/07/12
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 35+6 wks EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 32+5
coleyoz - V High NKC. DC#2, BFP cycle2, 31+6
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 28+0
Mercator - V High NKC, DC#2 27+3 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks)

2nd Trimester

Hopefulfor2nd - High NKC - TTC#2. - 26+2
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 26+2
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 21+5

1st Trimester

HelterSkelter (IVF and immune therapy) 12+0
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 9+1

BFPs awaiting 6 week scans

GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. Est 5.2
Bertha337 - High NKC, 3 mcs, est 5.2.
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc

TTC – ASSISTANCE - SO/IUI/IVF

EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 –pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -10 pred – 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, SO

TTC

London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, gen 6-8 weeks. NKC not tested, TTC #4 cycle 2 (after m/c 12) Fertility consultant
prescribed pred.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC
Gransol - Seven mcs - all losses between 6 & 7 weeks

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

Awaiting diagnosis

Mollieboo

BellyD Mon 25-Jun-12 11:32:54

Hi All

Sorry I have been quiet for a couple of weeks - private mentalling during 2ww, but have been lurking.

Welcome mollieboo, glad to hear your appointment with Mr S went well. I have always found it reassuring to be told there is something else to try although totally understand that you are apprenhensive about the results.

Free only just over 3 weeks to go - eek! No one will judge you for having a CS after what you have been through, and if they do, who cares, as long as your little one arrives safely into this world that is the most important thing.

Pebbles and Kittens hope the hangovers are better today. Made me laugh - you never know, it may be just the thing you need, and it worked for Sue!

Sue, Bertha and Greenolives glad things are seemingly progressing well despite lack of symptoms. grin to the boob clutching - I have been doing the same over the last week - almost to the point that I am now not actually aware I am doing it and am undoubtedly feeling myself in public!

Had a bit of a mental week as took a test last Sunday to see if Ovitrelle was still in my system, 7 dpo, it definitely was. Tested again on Wednesday (boob touching started in earnest!) and still had a bfp, convinced myself it was the ovitrelle, tried to resist testing Thursday, failed, bfp, still not sure, tested again Fri, Sat and Sun all still BFP and lines getting darker. Quite bad
spotting on Saturday pm, so huge panic, but AF didn't arrive yesterday so am starting to believe, although terrified of saying it out loud. Hoping the spotting was either implantation or vanishing twin (as had 3 follies), but I have always had spotting with all my MC so am frantically knicker checking. I am not taking pred, so just Hydroxy for me - feel a bit like a guinea pig and also a bit guilty/petrified that am not taking the pred/can't have intralipids. Just got to hope, I suppose. I am off to Harley Street now to have my anticardiolipin retested. I asked Louise if it was worth retesting my NKcells (not necessarily because it will benefit me) but for their purposes, I thought it might be useful for research reasons, as I am only on Hydroxy and cyclogest. Didn't dare ask if they have had any success with people just taking Hydroxy, we will just have to play it out and hope this time is our time. Too nervous to move on the list yet, as am only 4+1 but may add myself when my scan is booked. It was my first month on SO so am surprised to get a result so quickly.

euro thinking of you, sorry you are finding things tough, hope you start to feel a bit brighter soon as Pebbles suggests.

Snoopy not sure if you are still lurking, but really hope you are keeping strong, thinking of you too.

Am sure I have missed out loads of you, apologies and waves.

freelancegirl Mon 25-Jun-12 11:43:06

Oh wow, BellyD!!!

And the only thing you can do, as you well know, really is wait it out. It sounds like that is a definite BFP at the moment though. What a long couple of weeks you have ahead of you and I realise you have already had a couple of long weeks in the 2ww! Don't worry though, it is just time and time will pass as it always does. Fingers crossed for no more spotting or worry and a nice scan saying there is a baby with a hb in a couple of weeks time!

It would also be fab for the others on SO to know that is has worked first cycle for you. I think there have been rumours of people on just the hydroxy. I know charlie didn't take Pred with this pregnancy but just had intralipids (I know that is a different thing, but still Pred-free).

Arianrhod Mon 25-Jun-12 13:11:50

Woohoo bellyd, crossing fingers for you that this is it for you.

Just wondering how choccy is, not heard from you for a while? And snoopy, thinking of you too.

GreenOlives Mon 25-Jun-12 13:23:03

Congratulations Belly Thats fabulous news! Stage 1 achieved. You can join us other new BFPs in the agonising, nail biting first few weeks! Id love a time machine to fast forward a few weeks right now!

Pebbles73 Mon 25-Jun-12 18:18:43

Oh Kittens that would have been really funny but was out locally. I bet you didn't actually get do drunk you fell over ?! How embarassing at my age!!
I do know so many people who have got pregnant after a heavy one.

Belly oh wow fantastic news, first time as well! I am starting back on the super ov next cycle so encouraging to see it working. I wish you all the best and fc for a good scan. You must have had a pretty traumatic week!

Great news about the scan Helter looks like this thread is going through a lovely positive stage after all the chemicals.

freelancegirl Mon 25-Jun-12 19:06:53

Did you fall over Pebbles?! Missed that! Hilarious grin you can tell me all about it on Weds.

I need to back away from MN, am finding it very hard to concentrate on any work at the moment. My brain is working soooooo slowly. Am so pleased when anyone posts and distracts me smile

Pebbles73 Mon 25-Jun-12 20:34:09

I am ashamed to say I did and have some small bruises on my feet!! It was a party in a friends summer house and the police turned up as one of the neighbours complained about the noise! Was v funny as it was raining Kate in the evening there were about 25 of us left squeezed into this summer house! Anyway I must stop distracting you, go and do some work!! grin

freelancegirl Tue 26-Jun-12 09:51:59

So it's my last day on Hydroxychloroquine today and there goes my last immunotherapy drug. Feels a bit scary going off it! Have to have faith that it has done its job by now at 36 weeks today. In terms of an experimental drug it seems to have done something though! Although who knows which medication actually makes the difference - it could be a combination, could be one specific one, could be luck... could be all three! But as the first, on the thread at least, as I think we are aware of someone who was further along in the pregnancy than me, on this one I thought it would be interesting to mark the day I stop taking it.

Will still be on vits and thyroxine but it makes sense to stop taking anything that is dampening my immune system when I am three weeks (today!) away from an open wound.

Baby has been quieter than usual this morning so I got the Doppler out again. Heartbeat sounds perfectly normal and it IS moving, just less than it was last week. I will get it checked out if I get really worried.

Arianrhod Tue 26-Jun-12 10:20:49

free congrats on graduating from the hydroxy! And remember, it's getting a bit cramped in there for baby free, so it will naturally move a bit less as it gets towards its birth date.

igggi Tue 26-Jun-12 10:26:24

Drug free is tough! But there must come a point when taking them could do more harm than good. Reduction in movement is scary. I think most of mine came from the baby changing position so much. When you lie down Free after drink etc, how many movements can you count in half an hour? (No mumsnetting or anything while you count?)
Good to see movement on the bfp/positive scan front smile

freelancegirl Tue 26-Jun-12 10:45:49

thanks iggi. Just downed some ice cold water and am going to lie down for an hour and count.

willitbe Tue 26-Jun-12 12:45:40

Tuesday 26th June

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 36+0 wks CS 17/07/12
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 36+0 wks EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 32+6
coleyoz - V High NKC. DC#2, BFP cycle2, 32+0
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 28+1
Mercator - V High NKC, DC#2 27+4 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks)

2nd Trimester

Hopefulfor2nd - High NKC - TTC#2. - 26+3
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 26+3
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 21+6

1st Trimester

HelterSkelter (IVF and immune therapy) 12+1
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 9+2

BFPs awaiting 6 week scans

GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. Est 5.3
Bertha337 - High NKC, 3 mcs, est 5.3.
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine

TTC – ASSISTANCE - SO/IUI/IVF

EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 –pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -10 pred – 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, SO

TTC

London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC
Gransol - Seven mcs - all losses between 6 & 7 weeks

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

Awaiting diagnosis

Mollieboo

Hi all, I have been lurking, congrats to the latest births of two lovely boys. free it is great to see you at the top of the list now.

Horrible AF arrived here today, and has, as a consquence, meant that if I get preggo this month the due date will be my youngest boys 5th birthday. I have not become pregnant for almost 5 months now and I am beginning to wonder if it is not time for me to stop., but that is easier said than done. I am still not sure I can face going back on the pill. In the meantime I will continue lurking here with you all.

batteryhen Tue 26-Jun-12 12:49:51

free I felt like this the other day. A bit of chocolate, lie on your left and count. I hope you are ok now and have had some reassuring boots xx
belly That is fab news, really pleased smile

I really think that the thread is starting a lucky phase , so good luck to everyone smile

I am ok, I don't know if babe is on the move, I seem to have someting wedged under my ribs on the right side, wether it is a foot/bum or head is anyones guess. I have a scan tomorrow so all will be revealed!

waves to all xx

batteryhen Tue 26-Jun-12 12:52:32

mollie crossed posts. I wondered about giving up. I think if this pregnancy had not worked out we would not have tried again, but it is easier said than done. Keep lurking and post any news when you have some smile

Arianrhod Tue 26-Jun-12 14:21:55

willitbe I'm with you on that, I've also thought (increasingly lately) whether I should just give it all up and accept that perhaps my body is just too old now, but stubbornness kicks in and I think I'll just keep going a little longer, to see what happens. Lurk away, or join in as you feel like it, you're always welcome smile

free what happened with the counting?

freelancegirl Tue 26-Jun-12 15:14:42

Yes I remember you getting the same thing the other day Battery. For some reason this time the icy, sugary drink and then lying on my side didn't have the same effect as usual. I did get a bit of movement but not nearly as much as normal. Anyway, to answer you and Ari too I actually went to hospital - can't quite believe this is the first time in this pregnancy I have resorted to going! I've been close many a time but at 36 weeks I feel I have done well to hold off this long.

Monitored the heartbeat for a good half hour or more and everything seems fine. The baby was obviously sleeping but we indulged in a spot of Baby Bothering with iced water etc and it responded nicely, and has moved a bit more since coming home too. Movements have definitely changed though - but I am hoping that is down to big baby, less space and also having changed position. That might be what has happened with you too Battery in terms of it changing position and now prodding your ribs? Good that you will find out for sure tomorrow with the scan.

Hello again willitbe sorry you are having a tough time of it with the AF. As for when to stop I have no idea. Am I right in thinking you have three children already? It's hard for me to put my own stance on it as I have never wanted a lot of children and as I am not a mother already I don't think I can fully relate. I feel now if I were in that position I feel I might not bother putting my body under the stress of it all again really. But like I said, I can't yet relate properly to the need you are feeling. If you feel you can carry on and it is something that you really want to do, why not? But if it is something that will really take over your life and make day to day living worse then maybe it is worth having a good think about it. What does DH say?

digitalgirl Tue 26-Jun-12 16:38:17

Congrats bellyd! I definitely think the summer seems to help with our luck on this thread. Perhaps the vitamin d and other good things we get from more sunshine really makes a difference.

Great news helterskelter - must be a huge relief to be at the end of the first trimester.

igggi Wed 27-Jun-12 00:22:17

'Baby bothering' is a great expression! Glad it worked out. I found (have I said this before?) playing music close by sometimes helped - something with a beat, like Seven Nation Army! Poor baby. Got my 6 week review tomorrow, wondering if I'll 'flunk' the Edinburgh test or not!

Coconutfeet Wed 27-Jun-12 16:18:40

Just popping in to say hello before the packers come tomorrow and I've got no computer as we're moving on Friday. I feel like I've spent weeks clearing cupboards and drawers and ebaying etc. Can't wait for it all to be over and to just spend a little bit of time relaxing and enjoying ds.

I haven't been able to read very far back but it's great to see some good news on here at last. The bottom of that list was looking depressingly empty for a while.

Free - I can't believe it's only three weeks now. I feel very excited for you! Also, I think there's something quite nice about knowing Mr S will be there when your baby is born. It kind of completes the journey somehow.

Hello to everyone else!

batteryhen Wed 27-Jun-12 17:34:32

Also just popping in to say I had a scan today in it would seem baby is in the extended breech position. The consultant is not too worried as he said it could all change over the next few weeks.

coconut good luck with the move xx

freelancegirl Wed 27-Jun-12 22:40:13

HI Battery, yes it could and probably will change. I felt sure mine was going to stay breech but it didn't. Glad all was well with the scan.

Hello Coconut yes I guess it IS quite good that I am seeing this journey through from start to finish with Mr S! That's if nothing happens before he is back from holiday on the 15th of course... Are you finding it hectic moving? It's all kicked off here too - far too much to do. I have lists and lists of utility companies to contact, insurance, movers from two different locations, countless home based things to buy/arrange delivery of and that's not even counting all the stuff we are now having to do in preparation for the baby. It's suddenly got very stressful.

Iggi you made me laugh earlier - I was telling DH (in the other room) about you suggesting Seven Nation Army for some Baby Bothering and he thought you'd said the Salvation Army. We had a good giggle about waking up to huge banging cymbals smile

On top of the overwhelming amount of household crap we have to get through before completing the sale on Friday (we are also short of furniture, getting baby things, having docs appts, DH is going through an audit at work...) I am feeling bloody awful with a dreadful cough and cold. My chest hurts and I have that horrible taste of infection in when coughing. Started to cough up some good so hopefully that is a good sign. Have to say this all started before I went off the Hydroxy (first day without it today) so can't connect the two. Even had to cancel meet up in town with Pebbles earlier, just couldn't handle the thought of the trains and heading into Soho at rush hour.

Also have been falling behind with work - my brain really isn't working properly at the moment! I have a good few pieces of work to do before officially starting maternity leave (well, starting to claim Maternity Allowance) on the 1st. So all very hectic and not the best time to be ill.

20 days to go anyway. Tick tock!

lemonsherbet Wed 27-Jun-12 22:51:56

Can I ask if anyone can calm me down. I have posted this on SO thread has well. I went to GP to get FSH, LH and oestradiol done-was told they were OK. Then looked on google and am freaking myself out that I have no eggs left and they are poor quality

freelancegirl Thu 28-Jun-12 01:05:07

Sorry you're freaking out about it Lemon. I have no idea about the tests as never had them done but surely if your GP said they were ok they would be? I hope so. I am sure one of the others who has more experience with this will come along and help you asap. Post the levels so they can check it out.

picolina123 Thu 28-Jun-12 06:36:02

lemon what are your results ? why dont you believe the doc?

lemonsherbet Thu 28-Jun-12 07:26:09

I have put my results on SO thread.

FSH and LH are good 7.1 and 6.5 and oestradiol was 126. When spoke to receptionist she said GP had seen results and said normal. Then I used dr google. I know stupid and you can all slap me.

Then found lots of pages about ovarian reserves. Basically they were all saying at day 3 of cycle oestradiol should be low ideally under 50 but anything over 100 is regarded has significantly abnormal. One of the pages were saying lots of doctors are falsely reassured by normal FSH and LH without thinking about the oestradiol

From my understanding FSH stimulates the eggs and encourages the making of oestrogen and oestrogen levels feedback to inhibit the production of the FSH. So they were all saying that by having a high oestadiol it create a false low FSH, because you have all that extra oestrogen being feedback therefore lowering the FSH number. This is typically seen in patient with very poor ovarian reserves who will not respond well to stimulation. (you can tell I have spent a lot of time on google overnight). Some were even saying this is seen in peri menopausal people who are trying to make their next egg before the end of the previous cycle.

lemonsherbet Thu 28-Jun-12 07:30:10

I do not know what my AMH level is because that was done by Mr S, who is on holiday at the moment and have not been able to arrange an appointment with him.

Arianrhod Thu 28-Jun-12 08:26:42

Morning ladies - lemon I'd wait to see what Mr S says before freaking out too much, I know what you're saying about high oestradiol levels possibly creating a false low FSH but you know, that might not be your case at all. Are you taking any oestrogen-enhancing supplements, as that could be a contributing factor? Plus everything I've read seems to say although these day 3 tests can be an indicator of all kinds of things, they aren't necessarily so, which is why consultants often take them with a bit of a pinch of salt, preferring the AMH test for a more accurate picture of what's going on instead. And bear in mind - you can be peri-menopausal for years (I read the other day it can go on for 10 years or more!) but that doesn't mean you're not fertile. Given that this particular thing is a concern for me, I've done quite a bit of reading around peri-menopause and decided to largely ignore it for now. Seriously, try not to worry (yes, I know, I'm not good that that either!) until you've seen Mr S.

Incidentally, I'm supposed to be seeing Mr S at 4:50pm at NLC today, but I see people are saying he's on holiday?? Since Cheryl confirmed he would be going through additional tests and giving me the forms to get them done today, I'm a little confused! Actually that's another sore point entirely, I believed OH and I were getting tested at the scan appt today, as per my last conversation with Mr S, so OH arranged to work from home today so he could come along and we arranged childcare for DD - only to find out that no, tests can only be done at TDL in London. I'm not a happy bunny, that means more delays in getting OH tested. Aaarrggghhhh.

Good luck for coconut and free in your frenetic house-moving times ... free I moved house when I was 8.5 months preg with DD - I wouldn't recommend it, but it can be done smile

lemonsherbet Thu 28-Jun-12 08:35:51

Thanks Ari I may have gotten the wrong end of the stick, I think I was told Mr S was away so that was why no sooner appt than the one offered. It may be that his clinics are fully booked until he goes away, which is why you are being seen today.

In case I have freaked anyone else out care said Mr S said that an oestradiol up to 200 was OK.

Hope everyone else is OK. Good luck with the scan Ari

helterskelter99 Thu 28-Jun-12 08:36:06

It's like I magically hear the words AMH and decide to come on and have a read. Lemon DO NOT PANIC and most important DO NOT GOOGLE or go on fertility friends to look up low AMH.
Mine is pants all it means is that you need to crack on and maybe not faff around too much with the less invasive treatments, depending on your other issues. So we went straight to ivf rather than doing iui / clomid etc.
It is not a diagnosis, it does not mean you will go menopausal tomorrow, or any of the other things you are thinking
xxx

Hi to everyone else xx

Arianrhod Thu 28-Jun-12 08:42:23

Well said helter smile

Havingkittens Thu 28-Jun-12 08:56:03

Ari, why don't you call TML and see if you can book a slot for your OH to take his sample in (or "generate" wink it there) this afternoon. The blood tests there operate on a drop in basis but the SA tests you need to book a slot. You might be OK though if you call first thing. It might work out that he can go there whilst you're having your scan.

Hi to everyone. Sorry, this is a flying visit. Just wanted to post for Ari.

Oh and to say to lemon, I got very depressed and negative when I got my blood results too but Mr S explained them to me and they weren't nearly as bad as I'd dreaded so try to lay of the self analysis, it won't do you any good.

I love how we all give out words of wisdom which none of us ever managed to follow ourselves grin

london371 Thu 28-Jun-12 08:59:38

Lemon your results sound really good to me. Mine were worse than yours and I was told by my new immune doc earlier this week that they were excellent (for comparison - FSH 10, LH 6, oestradiol <100). So I think you should be pleased not worried! Hope that helps. xxx

I had the Chicago tests done yesterday, so looking forward to seeing those results and mentalling over the Dr Beer book.

Arianrhod Thu 28-Jun-12 09:30:45

Thanks kittens, I actually ended up ringing Cheryl (and she answered, which is a first for me, usually I have to leave a message) and she explained that with TDL you have to book appts for SA tests, just as you say. Unfortunately OH hasn't got time to get up to TDL and back this afternoon (work is just a bugger at the moment), so we'll try to book an appt next week for both him to 'do his thang' for the SA tests and both of us to get blood taken for the blood tests. And to be honest, I suspect OH wouldn't go if I wasn't there to drag him .. ! smile Thanks for the explanation tho, wish I'd spoken to you before endless confusing emails with Cheryl!

london Did you get those done with Mr G? I'd be interested to hear what the turnaround time is for your results, I'm not sure my sample has even got to Athens yet for those tests!

Arianrhod Thu 28-Jun-12 09:33:50

Dr G, not Mr G. I'm getting my consultants' titles muddled up!!

london371 Thu 28-Jun-12 09:35:55

Ari, the turnaround is supposed to be 10 days, but that is just for the bloods. I haven't actually had the infections tests yet, but that will be my next step when I have the money. I am really interested in that. Will probably do what you did and go through Serum to save ££.

eurochick Thu 28-Jun-12 11:09:07

london how long did you have to wait to get an appointment with Dr G?

freelancegirl Thu 28-Jun-12 12:07:46

Can't help with the results etc but I think I can help with Mr S being away/also being there for appointments. He told me he's going away for work first and then on holiday, so am assuming there might be a period where he returns in the middle.

Good luck with the Chicago tests London! I spent hours pouring over Dr Beer's book too. It's great to read about all the positive stories in there too.

mercator Thu 28-Jun-12 14:15:48

Hi Everyone

Congratulations to all those with BFP's fabulous news. I really must go on holiday more often if this is the news when I get back! grin

Sue so glad to see the pg is progressing well. Are you still seeing James or has he signed you off?

Free cannot believe you've only 3 weeks to go - how exciting. Try not to dwell on the elcs. It'll be fine and and if you have Mr S even better! I have sadly not got my preferred obstetrician due to hols and we could have gone pvt with Mr S but hospitals were too far away and there was still likely to be a shortfall so we opted for local. Are you all set now?

Still catching up with all the news so apologies if I'm missing anyone.

snoopy hope all is going according to plan with the treatment.

Waves to all!

freelancegirl Thu 28-Jun-12 18:05:23

Hi Merc - welcome back! Hope you had a good time. Thanks for the positive words about the CS. It is indeed nerve-wracking. Does that mean you are having one too?

Just thought I would bring this forward. Hopeful and Dunnit, I think I am right in thinking you are now both just about third trimester! Good news both of you. I have moved you up the list. Really hoping those who are due scans in the next week or so - Olives, Bertha, Delta and BellyD are soon on that 1st trimester list. Here's to good scans. I think I am right in saying that Cornflakes who was here a while back might be on the BC board and might sadly be having another miscarriage.

Anyway, here's today's list. Do make changes/add/edit if you need to.

Thursday 28th June

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 36+2 wks CS 17/07/12
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 36+2 wks EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 33+1
coleyoz - V High NKC. DC#2, BFP cycle2, 32+2
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 28+3
Mercator - V High NKC, DC#2 27+6 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks)
Hopefulfor2nd - High NKC - TTC#2. - 26+5
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 26+5

2nd Trimester

PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 22+1

1st Trimester

HelterSkelter (IVF and immune therapy) 12+3
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 9+4

BFPs awaiting 6 week scans

GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. Est 5.5
Bertha337 - High NKC, 3 mcs, est 5.5.
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine

TTC – ASSISTANCE - SO/IUI/IVF

EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 –pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -10 pred – 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, SO

TTC

London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC
Gransol - Seven mcs - all losses between 6 & 7 weeks

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

Awaiting diagnosis

Mollieboo

BellyD Fri 29-Jun-12 09:49:01

lemon I hope you are feeling resassured by everyone's comments and are feeling more positive.

Good hols merc?

Scan not until 18th July when I will be 7+3 ish, things have usually all gone wrong by then but i am trying to maintain a pma and enjoy having a bfp because I appreciate how lucky I am to get this far and even if it all goes wrong I may never have this chance again.

Had an odd experience of how we live in a totally parallel universe to normal people yesterday when I went to see my homeopath (not sure I totally believe in it but just trying everything!) She gave me a remedy to have before and after my scan, firstly she was amazed I was having one at 7 weeks and then, if I got that far, weekly after that until 12 weeks. When i mentioned it would be an internal one, she nearly fell over and asked me what that was like. I said that I was quite used to them by now and they are not as bad as a smear test! Then (and I nearly fell off my chair) she said so have you started thinking ahead, what it will be like and what I've got to look forward to. I hope I was polite about it and I replied that I let myself calculate the due date just once and then put that out of my head and go back to dreading each time I go to the loo and lurching from one day to the next. Sadly it made me realise that what is the norm for us is totally alien to most people.

On another note, and then I will shut up! A friend told me to wrap a warm scarf around my tummy during the 2ww. Obv quite impractical at work, but fine to do at home, so I did, and I don't know if it helped and it is as mad as obsessing about magpies, but just wanted to share in case anyone else wanted to give it a go.

Waves to all x

freelancegirl Fri 29-Jun-12 11:51:45

Gosh the 18th of July seems a long time to wait BellyD. But on the other hand as I am booked in for a CS on the 17th July it also seems to be a short period for me! Amazing how time can take on such different forms when you're waiting for something.

I would have been open-mouthed in shock at the homeopath too. Also, how has she not come across anyone before who has had early monitoring and regular scans? Yes some people do seem to live in a parallel universe.

The warm scarf thing is interesting - something for the TTC ladies to try?

Having stopped them on Tuesday at 36 weeks I have a spare 40 odd hydroxychloroquine. Does anyone want them? Happy to post.

suemays Fri 29-Jun-12 12:11:14

mercator I am seeing James up to 12 weeks so only a few left to go now.

I have started tapering off the steroids now which is a but scary and it has made my morning sickness much worse! I am dreading coming off the steroids altogether but hopefully by then the sickness will be passed its worse.

belly the wait for the first scan is awful and you will be mentalling all the time. Like you say you are lucky to get passed the first hurdle of a bfp.

suemays Fri 29-Jun-12 12:18:50

free seeing as I get free hydroxy with my gp on the nhs I will pass on the freebies for someone else.

belly can't believe your homeopath, just goes to show she can't see many people with recurrent miscarriages!

How are you coping greenolives bertha and delta in the lead up to your first scans too?

Arianrhod Fri 29-Jun-12 13:00:48

Hi all .. belly your friend's comment about the scarf actually ties in with what my acupuncturist told me, she said that area should be kept warm during the 2ww and she often uses heat on that area when she's treating me in that time. So your homeopath obviously doesn't deal with many ladies who have had miscarriages ... remember a time when we were all that blissfully ignorant? Seems such a very long time ago!

sue So exciting that you're tapering off the pred, that's a big milestone in itself!

During my appt with Mr S yesterday we discussed whether I should have a hysteroscopy and he's of the opinion that it wouldn't hurt (although he thinks it's probably not necessary), so going to try to get that scheduled in after my hols - will be cycle after the next one, as I'm not around during the right time of the month. Eagerly waiting to see if the hysteroscopy has done it's magic for kittens .. smile

GreenOlives Fri 29-Jun-12 14:09:23

Hi ladies!
I'm still in limbo land unfortunately! Scan showed the gestational sac and maybe the start of a yolk sac at the top of it but certainly no HB seen yet. It may be too early still so it's a waiting game until next Friday for another scan! Had blood taken for HCG this morning, just got my results which are 9142. Dr Google tells me this is within the normal range but the crucial thing is how the numbers progress so I have a form for another test on Monday - fingers crossed it's loads higher by then! I just feel so stressed, I have never wished time away so much!

freelancegirl Fri 29-Jun-12 14:14:43

I might be behind on the list dates Olives - how many weeks/day do you estimate you are at the moment? A sac in the right place is a good sign in terms of ruling out an ectopic at least! And yes those HCG levels are good. Hope they continue to grow and that next week you see a lot more. Aggh - that waiting for the next scan is not a nice place to be in, I think a lot of us can relate.

Glad your appt went ok Ari. I have heard rumours that a hysteroscopy makes it more likely you will conceive. Did that happen to Sue? Hope it has worked for Kittens too.

GreenOlives Fri 29-Jun-12 14:53:13

Hi Free I think the list is spot on, I'm 5+6 today according to my dates. You're right, a sac in the right place and a decent HCG are positive things so I am going to try and stay positive - today I AM pregnant!

freelancegirl Fri 29-Jun-12 15:03:42

5+6 is good - as it is still really, really early to see anything more than a sac. So that can be taken as a positive! Doesn't help with the wait though...

So by next Friday you should be 6+6 and hopefully that will mean something positive can be seen. And definitely PUPO (Pregnant Until Proven Otherwise, for any new-ish-bies!).

Bertha337 Fri 29-Jun-12 16:04:28

Hi Girls, 
I have to say that I'm quite nervously awaiting my scan on tuesday.  I should be 6wks dead-on by then - My main worry at the moment is another ectopic pregnancy (green did I see that you have also had an ectopic?)

I have been horribly uncomfortable this past week in that the only side effect of anything I'm doing or taking at the moment is constipation.  Nothing seems to be alleviating it.  I have a slight discomfort on my left (which is the same side as my only remaining tube) but it is not even close to the discomfort I felt with my earlier ectopic, and it isn't always consistent in location, so I'm just hoping it is to do with my digestive system...  On the plus side, I have no other pain or spotting or anything.  So, that is a major milestone for me! I decided with my last pregnancy that I wouldn't go anywhere or do anything (unless I was in pain, there was severe cramping or bleeding) until I was a minimum of 6 weeks because the whole process of taking blood, waiting, being told things like 'pregnancy of unknown location' did nothing to help me and my stress levels.  

sue I am interested to hear the side effects of tapering off the pred.  I read that it really does block a lot of the symptoms and last night I was joking with my OH that my boobs (I'm not really that obsessed with them) would just grow over night to make up for being suppressed by the drugs for 12 weeks.  Morning sickness on the other hand probably isn't a symptom I would want to increase, so I hope things calm down soon!

bellyd when I was pregnant last time my good friend found out she was 11 weeks pregnant and had no clue.  I couldn't understand how she could get so far without feeling a n y t h i n g and then on the back of that thought I realized how lush it would be that far and only have a week to wait to hit such a milestone.  Given that I've had more scans in the last year than most people get across 5 pregnancies I was flabbergasted to find out how the other side lives.  

Will update on Tuesday.  Everything I own is crossed! I just hope it is 'normal' news and then I just need to focus on the 8 week scan and the heartbeat.  I dread receiving any carelessly worded non committed comments. But the lady doing my scan diagnosed my ectopic, so I'm hopeful she won't beat around the bush (as it were) 

GreenOlives Fri 29-Jun-12 16:54:18

Thats right bertha I had an ectopic last Oct, had no idea I was pregnant as Id had a normal period but based on counting back to prev period I was 5+5 when my tube ruptured. Thats why my gynae consultant is being so cautious this time round. I do know what you mean though, these early scans/blood tests are more worrying than reassuring! Ill keep everything crossed for you for Tues, Ive also been having bowel issues so hopefully thats a good sign for both of us!
Belly Well done on the PMA, my mood varies from wildly optimistic to depressingly pessimistic! I hope so much that these ones are sticky for all of us, roll on 17th for your scan.
Sue Do you taper the Pred earlier when youre on Hydroxy too? Or is it because youre on 40mg? Im on 25mg and Im sure I dont start tapering until 12 weeks according to Mr S's sheet.

snoopygirl Fri 29-Jun-12 20:33:21

Hi Ladies,

Just thought I would do a quick post to let you know how I'm getting on as a couple of you asked.
I have had round 2 of chemo and round 3 next thursday 5th July (where has June gone!). Round 2 I was wiped out and bed bound for 3 days and sicky but lots of tabs to control things (bloody steroids when will I ever escape them!!). Have no other symptoms at the moment, just feel run down around day 10 and it's pretty scary. The slightest sore throat and I have visions of rushing to A&E. you have to be v mindful of your temp as it can be dangerous as you bloods/immune system is so low.
It's amazing (and a cliche) how lucky I feel to a) feel normal in the two weeks where you feel better and b) just be able to appreciate the simple things in life. Although I will forever feel different to everyone else now.
I still have my hair although it thinned massively a week ago but it's very thick so I'm getting away with it so far and people who don't know me wouldn't notice. DH got me an Ipad so am spending for too much time on it shopping! Snoopy is doing well and growing fast. He's all big paws and gangly legs bless him. he has been able to go outside now and I am following him around like some worrysome Mummy with a toddler, hoping he doesn't clear off and not know how to get back -it's pathetic!

Sorry not to namecheck all but just wanted to say:

Sue I can't believe it - it's happening for you at last -I am so happy for you. I wonder if it was the Hydroxy? x
Free Not long now, I'll be keeping an eye out for your progress. Good Luck x

Love to you all and thank you for thinking of me ladies, miss you all xxx

Delta10 Fri 29-Jun-12 20:43:41

Hi all - sounds like lots is going on.
green you are exactly the same stage as me but I am not due a scan until next Friday & if that's ok I am due for one at 8+3 on tues 17th. Good luck for next week.
belly & bertha fingers crossed for your first scans too!
sue great that you have successfully reached tapering off stage - wish I was there!!
free best of luck with the countdown & hope you get everything sorted in time. My DS was breech but refused to turn so I had an elc at 38 weeks - tbh all I cared about at that stage was bringing my baby safely into the world & I wouldn't hesitate to have another elc if I am lucky enough to get that far again. I found the whole procedure & recovery great - not what I had worried about at all.
I have 'rush read' the posts so sorry if I've missed anyone & waves to all.

Delta10 Fri 29-Jun-12 20:48:20

snoopy we crossed posts. I think of you often & thank you for the update - you sound amazing & are a reminder of how life can change in a flash & throw so much at you. Fingers crossed for a speedy recovery x

snoopygirl Fri 29-Jun-12 21:14:43

forgot to say lump has shrunk more since round 2 I can feel it. So chemo drugs doing their job thank god!!
Thanks Delta and good luck for your scan x

GreenOlives Fri 29-Jun-12 22:07:27

Really good to hear how youre doing snoopy I admire your attitude so much and I hope that the chemo continues to do its stuff. Furry Snoopy sounds gorgeous!

eurochick Sat 30-Jun-12 07:16:05

snoopy it's good to hear that it is all going to plan so far. The other snoopy sounds gorgeous. x

BellyD Sat 30-Jun-12 09:09:52

Great to hear from you Snoopy and so glad the drugs are working. You are so brave. Internet shopping and furry snoopy sound extremely therapeutic smile x

picolina123 Sat 30-Jun-12 09:43:39

snoopy good to hear from you and hope u start to feel all better soon, you are SO strong !
bertha i was wondering how you would not notice ou are preg for 11 weeks! her cycle must be all over the place !!! it would be fantastic though, i wish if i ever fall preg again i can go to sleep and wake up when its all over !! lol like my mum says if wishes were horses beggars would ride!

digitalgirl Sat 30-Jun-12 10:37:46

Great to hear from you snoopy. Really fantastic news that the lump is shrinking grin. Have you made a list of all the things you want to do with ds once you're all better?

olives good luck with repeat hcg on Monday.

And good luck to all the scannees...it's bloody nerve wracking being in limbo.

free have you prepped yourself for an early spontaneous labour? I had ds1 at 36+5 wink

freelancegirl Sat 30-Jun-12 13:06:14

Snoopy it is so good to hear from you, and like the rest of them have said I do think about you often! So it is great to have regular updates - please come back and let us know. Sounds like you are doing comparatively great with the treatment, it's going to be hard going at some times but you are getting through it and the cancer is shrinking, which is amazing news. Loving the update too about Snoopy the Kitten! Sounds so damn cute. Nice and comforting to have these sorts of things as distractions too until they start chewing through your electric wires smile

Thanks for the nice words about the CS *Delta!! Quite a few people on this thread seem to have had them and come out of the other side ok, which is good to hear.

Bertha so glad there are good signs so far, and I don't blame you for being nervous about the scan. I always tend to tell people on the way in that I have had 4 previous losses and it seemed to make them keen early on in proceedings to point out the heartbeat. This discomfort on your left, I would bet, is actually down to the corpeus luteum cyst. Look it up! It's the bit that is left behind after ovulation, and when you are in the early stages of pregnancy it is providing the progesterone (and possibly other stuff - haven't looked it up in a while) needed for the pregnancy. It tends to disappear after a while, when the yolk sac takes over, but I remember getting quite a bit of discomfort from it - not too dissimilar to strong ovulation pains.

Good luck with tapering off the Pred Sue, it is indeed quite scary coming off any of the meds. I felt the same about stopping Hydroxy this week but there was no tapering. I have read that both stay in your system for a bit anyway so there is no dramatic loss in terms of body levels of the stuff IFKWIM.

Digi I have indeed been thinking about the possibility of going into labour early, especially as I have started to feel really uncomfortable. I feel like this baby is huge now and last night I could barely walk after a while (we WERE doing quite a bit of wandering - went on the new cable car from south of the river to north and then tried out Stratford Westfield - awful on a Friday afternoon btw but cable car was fab - you should take the DS'). I am keeping an eye on the mild aches I get in the hips and back (where I have felt contractions in previous pregnancies).

Mr S isn't back from holiday until the 15th so it would be good to hold on until then! I look at my huge protruding stomach and wonder can it get any bigger?! I am now 77kg having started this pregnancy at 65 and previously (ie before the two mcs immediately before that) was always around 60. I have finished packing the baby bag for hospital and now have to sort mine out. Got most of the bits I need but just need to pack in a suitable bag. Also I guess you were asking about what if it happened so quicky and I actually had to labour and try to give birth rather than get a CS on time. No idea, but I don't fancy the idea given that it's my first, it's huge, the MW says it is back to back and people with thyroid problems are known to have long and rather tough labours. But I will cross that bridge when I come to it! Right now the baby feels like it is trying to climb out through the middle hmm

I have a home for the Hydroxy I offered - someone who has had 7 losses but has been lurking from the beginning on here! She has been prescribed it by her GP but has to make long trips to get it so mine will come in handy. It is nice to know that the thread is helping other people who don't necessarily come and say hello.

Hello other lurkers! Do come and say hello if you fancy.

freelancegirl Sat 30-Jun-12 13:12:19

Saturday 30th June

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 36+4 wks CS 17/07/12
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 36+4 wks EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 33+3
coleyoz - V High NKC. DC#2, BFP cycle2, 32+4
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 28+5
Mercator - V High NKC, DC#2 28+1 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks)
Hopefulfor2nd - High NKC - TTC#2. - 27+0
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 27+0

2nd Trimester

PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 22+3

1st Trimester

HelterSkelter (IVF and immune therapy) 12+5
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 9+6

BFPs awaiting 6 week scans

GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. Est 6.0 Scan Friday 6th July
Bertha337 - High NKC, 3 mcs, scan Tues 3rd July when will be est 6.0
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 6.0 Scan Friday 6th July
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine. Scan 18th July when will be est 7+3

TTC – ASSISTANCE - SO/IUI/IVF

EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 –pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -10 pred – 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, SO

TTC

London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC
Gransol - Seven mcs - all losses between 6 & 7 weeks

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid, 2 mcs on treatment?
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

Awaiting diagnosis

Mollieboo

Havingkittens Sat 30-Jun-12 18:55:17

So great to hear from you Snoopy, and good to hear the chemo is working and manageable, and also that your new family member and namesake is keeping you smiling.

Well, I have no idea yet about hysteroscopy magic. I am 9dpo and don't feel in the slightest bit pregnant apart from tiredness which could be down to anything really. I am supposed to test at 10dpo but may wait until Monday morning. Not holding my breath though. I've given up on symptom spotting as there's always something that could point to pregnancy but I've been proven wrong month after month for the last year and a half almost so we'll just have to see what's in store, or not.

Havingkittens Sun 01-Jul-12 20:27:37

AF due tomorrow, and it feels that way too. Lots of cramping and lower back pain today. Did an internet cheapie HPT this morning and no trace of a line. Bollocks! 2 eggs, post hysteroscopy, superstitious "woooo" etc and still nothing sad

brownstag Mon 02-Jul-12 07:22:25

having kittens, 'bollocks' was my exact phrase this month too. But is your luteal phase always 10 ten days? Mr S gave a friend of mine progesterone to lengthen hers. (Also mine has been longer since taking Coenzyme q10.)
If it's not always 10 days there's still plenty of time for implantation. The cramping might be implantation. It's not over until the fat lady sings!

Havingkittens Mon 02-Jul-12 09:09:03

Well, it's pretty much always 10 days. Even when I had a super long cycle the other month it was because I ov'd on CD24 and then my AF came 10 days later like clockwork. I've been using cyclogest every cycle since I started SO and it's made no difference. I've also experienced implantation cramping a good few times before and it was quite a distinctive burrowing feeling, whereas what I had yesterday just felt like your standard AF type cramps. Did another internet cheapie test this morning and it was negative. Not sure whether to take my pred today or not now as Louise advised testing on CD10 to see if I can stop taking it as it makes me feel so shitty.

In the last 48 hours two people on my Facebook have announced pregnancies or posted up a bump photo. Both quite late on, both having had long hard struggles to get there so I am, obviously, delighted for them. But it's feeling less and less likely that I will be in their shoes.

brownstag Mon 02-Jul-12 09:57:38

Havingkittens, Louise told me before that even if you stop taking the pred 10dpo, and you later get a BFP, it won't matter as the pred stays in the system for a couple of days, so I'd stop it if it makes you feel bad. I would try the coenzyme q10 too; it's been known to help with male fertility for years and in mice it delays the menopause. I think it somehow gives the egg more energy, which is what it does within cells generally. I used to have very short luteal phases (the shortest was 8 days), but all have been 11-14 lately. Also I seem to do better on the medicated cycles; they've all been 13 or 14.
I know what you mean about feeling you'll never be in their shoes. Just wish someone could tell us if all this effort and anxiety and expense is going to be worth it.
Ari and Carebear, just sent off my sample to Athens. Just ordinary post, no one asked what it was.

Havingkittens Mon 02-Jul-12 10:09:31

Thanks brownstag. What is the required dose of Coenzyme Q10? I know there is some in the Pregnacare but as I've been taking that for over a year and it's made no difference I suppose it wouldn't hurt to get some extra.

brownstag Mon 02-Jul-12 10:19:05

I've been taking 120mg for a few months now. It's one of those things where there's no set dose and you can get tablets ranging from 30mg to 200mg, and the higher the dose, the more expensive it is. I get mine from Healthspan because most of their stuff is vegetarian. There was a 2009 study showing improved egg quality (Fertility and Sterility, Volume 93, Issue 1 , Pages 272-275, 1 January 2010) using 600mg but I can't afford that!

brownstag Mon 02-Jul-12 10:21:28

p.s. You shouldn't take it at night as it causes insomnia in some people in the higher doses; presumably that particularly applies if you're one of those people who feel hyper on pred.

suemays Mon 02-Jul-12 11:06:15

Snoopy lovely to hear from you and glad that the lump is getting smaller. Sounds like fluffy Snoopy is keeping you busy!
I do think the hydroxy has got me this far in the pregnancy so fingers crossed it will keep doing its magic!

Kittens are you 10dpo today? If so some of the ladies on here have not got a BFP until 12DPO so you might not be out of the running yet this month. I was also told by Louise that it didn't matter if you stopped taking the preds at 10dpo and then got a later BFP as I only ever took them for 10 days rather than 14 so I wouldnt worry too much. Dont forget I had absolutely no symptoms with this BFP and was so convinced that I was not pregnant that I went out and got really drunk! I really dont think symptom spotting works.

Free dont worry about the extra weight you have gained as it will soon come off - especially if you can breastfeed. I am appalled at how much weight I have put on in the last few weeks but eating is the only thing that stops the awful nausea. I wont go on the scales at home as I know I will be shocked! It doesnt help that I stopped all exercise with this pregnancy so have gone from circuits and aerobics 4 times a week to laying on the sofa! If you did go into labour before your scheduled date they would class it as an emergency c-section so all would be OK!

Delta are you with Mr S? If so I have a scan at Newlife this friday so might see you there?

Bertha I had quite a few niggling pains on my left hand side at around the stage you are at but I think its where the embryo is embedding further in ar stretching ligaments so try not to worry!

Greenolives yes I am on 40mg of preds so they tell you to taper off 5mg every 4 days from 9 weeks. I guess its so that by the time we all get to 12 weeks we will be steroid free. They have a cumulative effect so the higher dose will still be in my system anyway. I dont think the hydroxy makes a difference to the tapering down as I will still be on that for a while yet.

Havingkittens Mon 02-Jul-12 11:27:26

I'm actually 11dpo today, although not an exact science. Did trigger shot on Tues 19th, told to SWI Tue/Wed/Thu and start Pred Thur 21st. Lots of cramping yesterday. A bit today but not as bad as yesterday yet. No AF so far.

I couldn't help but laugh. When I went for my follicle tracking scan I asked Louise to write down the days that I was supposed to do all of the above so I wouldn't make a mistake and she duly wrote it on a compliment slip for me, so it read;

Trigger Shot - Tues
Intercourse - Wed/Thurs "With Compliments" grin

suemays Mon 02-Jul-12 11:36:12

Kittens at least you still have a sense of humour! None of us have a private sex life these days! Reassuring that the cramping is not as bad today - maybe its implantation pains?

eurochick Mon 02-Jul-12 11:47:01

I love the compliments slip idea! Perhaps they could expand it, so they make the Pred ladies feel a little better? Something like "No, you definitely don't have a moonface and clearly haven't put on half a stone around your middle. Oh, and your skin most definitely hasn't taken on a grey tinge from lack of sleep. Have a good bonk."

PQ77 Mon 02-Jul-12 11:52:32

kittens I'm watching you with interest...fingers crossed that you've got imp pains like sue says. (and sue I'm another one who dropped all exercise, lay prone and ate her way through the first trimester to try and feel better! Appetite back to normal now).

Lovely to hear from you snoopy smile

free I can't keep up - have you moved in to your new house yet? Do come over for a cup of tea later if you're around (am at a school nursery settling in afternoon with DS for the first part of the afternoon. Am really hoping he doesnt bop a kid over the head with a toy or something horrific and get his place withdrawn...I don't know any of the other parents so I am also having a pathetic I have nothing to wear moment).

My 20 week re-scan was fine so all ticking along uneventfully at the moment.

How is everyone else? Sorry I've been offline for a bit and struggling to catch up! Hello to everyone I've missed.

sarahs999 Mon 02-Jul-12 13:38:05

Hello! Can I join? I'm hoping this is the current thread...

I've just found out I'm pg again. 5 miscarriages after one live birth (which had its own complications with prematurity - 26+6, and severe pre eclampsia). I'm under the care of Dr Shehata, taking prednisolone for high natural killer cells, plus clexane twice daily for two blood clotting disorders (Factor V Leiden and Prothrombin), aspirin and cyclogest. A lovely cocktail... currently slightly freaking out as I'm only 4 weeks and have fading sore boobs... but I've heard that pred masks symptoms like this. Impossible not to stress though.

I'll wait to see if anyone replies before I go into a whole long solliloquy!

sarahs999 Mon 02-Jul-12 13:41:44

Oh - just looked at the dates and realised of course it's current!

I too stopped the pred at 10dpo, went out and got drunk at a college reunion, then tested just for the hell of it at 12dpo (yesterday). FOrgot about the test, left it by the bed and went back later - managed to announce the pregnancy to bewildered DH by shouting 'oh shit! it's positive'. His response... 'er, that's good, isn't it?' ha ha.

Havingkittens Mon 02-Jul-12 14:25:45

Wow PQ, I can't believe you're 20 weeks already. Amazing!

Welcome sarah and congratulations. Scary times, as we all know, but you can be sure of good support/hand holding/co-mentalling here!

Good luck with the move free

freelancegirl Mon 02-Jul-12 14:34:45

Hello Sarah, lovely to hear from you. Yes this is the current thread, we seem to move quite fast as there is a gathering number of us here!

From what I have heard a bit of wanton drunkenness on the 2ww never seem to do anyone any harm grin so don't worry about that at all. And well done for the BFP! It is the first step. Yes the cocktail of drugs is a bit hard core, but with any luck you will stay pregnant and then only be on the serious hard stuff for thre emonths or less. Pred definitely does mask symptoms, but also symptoms naturally come and go anyway. So stuff symptoms as an indicator of how things are going.

As you can see by our lists we have all sorts of stages of TTC, pregnancy and indeed 'graduates' with babies here on the Pred Thread so please do stick around and join us. Permission to add you to the 'waiting for first scan list'? It's only after that that we generally feel brave enough to go up to the 'first trimester' one.

Hello everyone else. No PQ I haven't bloody moved yet. The mortgage lender found a clause dating back to 19 bloody 67 saying the council can buy the street at anytime to raze to the ground and do whatever with. This is effectively rendered irrelevant due to the conservation order being put on the area in the early 70s. And if even the council DID want to buy it back and could, they would have to do so at market value. And secondly we are only wanting a 45% ish bloody mortgage! SO it should really be ok - but the lender wants documentation from the council and lord knows how long that will take. Humph. We are living amongst boxes and I am 15 days off giving birth. I am not around today for tea but if you are around on Friday might well be. Do you have a bump yet or are you going in the same way as when you had DS - ie very little bump? Only that soon I might be able to relinquish some maternity clothes if you needed them. Then again I think I might need a few for a while after birth too by all accounts.

Loving the compliments slip too Euro and kittens. I could have done with a few of those when suffering from the dreaded moonface myself. Kittens it's true, many of us haven't had BFPs until way after 12dpo so you're not out of the running yet.

Sue I also stopped all exercise this pregnancy. Even my personal trainer told me that was probably for the best. The way he said it was - well you carried on training throughout the two mcs you just had, why not do something different. He also pointed out that I can get back into fitness afterwards and it is not necessarily the most important thing. So all I have basically done is walk - and now that's turning into a waddle. I don't feel I have actually gained a lot of fat - now I am nearing the end - but I definitely felt I did do at your stages. I just have a bloody huge bump and baby in there.

Battery how are you getting on with movement etc? I've been ok about it all the last week or so - ever since I had my first big wobble and ended up at hospital for the trace. The baby has been doing quite a bit of rolling around in the middle. Still must be back to back as I can feel lots of unidentifiable limbs in the middle. Gosh it feels big though - feels like a big balloon ready to burst. No stretch marks as yet but I have a feeling they will creep up on me at the last minute, just to really piss me off.

Am wondering how my Due Date Buddy Charlie is getting on, although I have now I have rushed ahead of you with the 39 weeks CS. Are you getting any twinges? Are you feeling just as huge...? I think I am getting a bit of mild period like pain at night but nothing too much to worry about at the moment. The baby still feels too far up in my chest - affecting my breathing still - to have dropped at all too.

Hello to everyone else!

GreenOlives Mon 02-Jul-12 14:41:15

Hello everyone and a big welcome to Sarah, congrats on your BFP, I am a new BFP too and know exactly how terrifying that is!

Just nipping in quickly to say my HCG is 19,706 today! That means it has more than doubled since Friday - yay! smile That's the best news I could hope for so I'm chuffed! Fingers crossed for a little Olivebean heartbeat on Friday's scan!

freelancegirl Mon 02-Jul-12 14:56:19

Olives that is great news!! Looking forward to the scan on Friday, really think this is going to be a good one for you.

sarahs999 Mon 02-Jul-12 15:09:18

Thanks for the welcome and yes, please do add me to the waiting for scan list. I've emailed Louise today at Dr S's but not heard anything yet.

I'm so glad I found this; I've been on Babycentre for a while but it's very quiet and not much goes on in the NKC list.

I was thinking today about the earlier mcs and I know we all have a journey to get here, but I feel very bitter about the years (been trying nearly 5 years now) I spent being put off investigating NKCs because it was 'unproven'. St Mary's has a lot to answer for. And my consultant at Lewisham. If I get told one more time that five MCs on the trot with decreasting gestation time are 'just bad luck' I think I will sock someone!

I saw heartbeats on all but the last two MCs, but every time they measured behind dates. I know now that that is part of the pregnancy being attacked by the NKCs, but even at the time I would say to anyone who listened, 'There's a common cause, there myust be, it's the same every time, it's like something is holding the pregnancy back....' NHS doesn't want to know!

I thought Alan Beer's book was very interesting, I was literally jumping up every few pages and going 'YES!' as things rang true. Couldn't beleive all this research has been around for 20 years.

I've got a GP appointment tonight to try to persuade him to give me Clexane. Dr S wants me to take a double dose (as opposed to not having any - very interesting reading earlier up the thread, don't really understand it) as I have two blood clotting disorders. A bit belt and braces, but at 41 years old I need all the help I can get. SO anyway, got to try and persuade the GP to give me double dose on NHS. Can't face paying for it privately as it's something mad like £5 a shot, I think.

If he says no, I can try my old consultant at Lewisham, Ruth Cochrane. She's pretty good and has always prescribed it before, though she might not let me have the double dose as she's very risk averse. WHen i was first diagnosed with Factor V it was the type (can't rememeber whether heterozyguos or homozygous) that Clexane isn't indicated for - do any doctors take any notice of that any more? It was a battle to get her to give it to me then. But St Mary's seemed more than happy to put me on it.

OK< drivelling on now! Got a bit of speedy pred head I think. Looking forward to getting to know you all and thanks for the warm welcome.

freelancegirl Mon 02-Jul-12 15:53:30

OOh enjoy the Pred Buzz whilst you have it Sarah! Are you on 40mg? I can't comment on Clexane as it wasn't part of my protocol but hopefully you can get it from your GP. My GP has been astoundingly good in terms of converting all my prescriptions to NHS ones.

So glad you have come across this treatment but it must have been awful trying for 5 years with 5 mcs to show for it. I am so glad I've been on these threads as I wouldn't have come across the whole NKC thing nearly as quickly if I hadn't.

I really hope this is the answer you are looking for. A lot of us have felt the same with the Dr Beer book and most of us (all of us?) are in the 35+ group, quite a few 40+ too.

If you were/have been at Lewisham does that mean you are another SE Ldn dweller? There are a couple of others of us on here!

sarahs999 Mon 02-Jul-12 15:59:23

I am a southeast londoner, freelancegirl, yes - Crofton Park. Where are other people in SE?

I'm on 25mg as I have high, not very high NKCs. Great to hear your GP was supportive; I think it can be hit and miss. I was hoping I was going to get a very young Asian woman doctor I saw last time who was so horrified by my history that she wrote me a referral to Shehata with practically no words! I've got an older male doctor though who I know can be a bit of a stickler, so am ready to turn on the charm faucet....

freelancegirl Mon 02-Jul-12 16:02:54

Our first list in July. HelterSkelter due to go up to the 2nd trimester any minute (is it officialy around 13 and a half weeks?) and hopefully by the end of the week we will be adding the 'waiting for scans' folk to the first trimester.

Tomorrow Charlie and I will be reaching 37 weeks, which apparently officially classed as 'term'. Agggh! It doesn't quite seem real. I guess it might seem real enough when in a few weeks we are sitting up all night crying over bleeding nipples smile

Am adding Sarah to the new BFPs list too. Anyone have any edits/additions etc please go ahead and change. If you do this on a different day to today, just add the number of days since last update onto the BFPs. It's easy once you give it a go!

Monday 2nd July

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 36+6 wks CS 17/07/12
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 36+6 wks EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 33+5
coleyoz - V High NKC. DC#2, BFP cycle2, 32+4
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 29+2
Mercator - V High NKC, DC#2 28+1 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks)
Hopefulfor2nd - High NKC - TTC#2. - 27+2
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 27+2

2nd Trimester

PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 22+5

1st Trimester

HelterSkelter (IVF and immune therapy) 13+0
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 10+1

BFPs awaiting 6 week scans

GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. Est 6.2 Scan Friday 6th July
Bertha337 - High NKC, 3 mcs, scan Tues 3rd July when will be est 6.2
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 6.2 Scan Friday 6th July
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine. Scan 18th July when will be est 7+3
sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin and cyclogest. Est 4.0.

TTC – ASSISTANCE - SO/IUI/IVF

EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 –pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -10 pred – 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, SO

TTC

London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC
Gransol - Seven mcs - all losses between 6 & 7 weeks

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid, 2 mcs on treatment?
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

Awaiting diagnosis

Mollieboo

BellyD Mon 02-Jul-12 16:12:45

Hi Sarah welcome to the thread, it is so useful for mentalling, advice and support as we all make this conception/pregnancy journey which is so straightforward for 'normal' people. I transferred to Mr S from St Mary's after my 4th mc in Oct and am 5 weeks pg. Hope you get lucky and your GP is happy to give you the clexane.

greenolives great news about your hcg levels, you must be feeling hopeful in advance of your scan on Friday. Where are you having your levels done if you don't mind me asking? My pma is holding out quite well and I did another digi test at the weekend which had moved from 1-2 to 2-3 weeks but my scan isn't for another two weeks. It may just add to the mentalling if I start getting levels tested but I find it odd that Mr S doesn't do it when I know places like the ARGC do it religiously.

Sue and free I'm with you on the lack of exercise, I usually play heaps of tennis and have pulled out of all my matches since finding out. One less 'what if' I reckon. Am being an armchair tennis fan instead!

free sorry to hear about the delay on your move, how frustrating, although I suppose having something else to occupy your mind helps with the mentalling a little bit?

Pq great news about your 20 week scan.

Kittens I too hope they are implantation pains and have my fingers crossed for you.

helterskelter99 Mon 02-Jul-12 16:13:17

Hello All

Great news Olives
Bah Freelance re house move
And hurrah for good pregnancy news

Sarah I was told by the consultant today at West Middx Hospital that St Mary's guidelines are now clexane to 32 weeks for recurrent miscarriages so he was happy to prescribe it for me on the NHS. When you say double dose how much I am on 40ml (?) 40 something anyway. I went in all ready for a fight because the doc at the antenatel clinica during my booking in appt said no we won't prescribe it as we don't agree with it. So def worth an ask. Failing that the GP can prescribe it as long as they have a consultants letter so if your GP is sympathetic should be OK.

As for me 13 weeks today eek.... my nuchal results came back as a risk factor of 1 in 100,000 which I would be superchufed about anyway but given my days away from 40 age and previous bad chromosme preg it was a huge weight off my shoulders that we didn't need a cvs / amnio. Getting the consultant to agree the clexane today is another relief. Tapering off the progestertone and pred which feels very weird like my security blanket is being ripped away!

xxx to all that need it