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Conception

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TTC or pregnancy on prednisolone or similar part 9

998 replies

sarahs999 · 31/08/2012 06:24

Oh dear - we reached 1000 posts on thread 8 without noticing! I hope you can all find this. THis is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
Havingkittens · 24/09/2012 12:18

Sue, I'm so sorry you are having such a difficult time of it, on top of everything. Really the last thing you need. Sending you lots of love. xx

Havingkittens · 24/09/2012 14:06

Have just tried to make a positive gesture by booking my 12 week intralipids for next week but I'm so f*ing scared about my Nuchal scan on Wednesday.

mollieboo · 24/09/2012 14:41

sue hope things progress quickly for you. Love to you all.

kittens such a nervewracking time for you. Hope everything goes well on wednesday.

clabbage your words to sue really moved me, about how your second child woke you from your grief. We lost our son in january and we are so desperate for another baby to light up our world again. I've had 2 mcs since then too.

Im now on mr s's superovulation plan, hoping it works quickly. Has it worked quickly for any of you ladies? I always fell pregnant easily until I took pred, so am really hoping this works quickly. I already worry about another mc though even before I get pregnant, im sure you're all the same...

Hope everyone is doing ok x

Havingkittens · 24/09/2012 14:46

mollie, I fell pregnant on my 5th cycle of Superovulation. I used to get pregnant very easily, whether that changed because of my age or being on Pred I will never know.

mercator · 24/09/2012 15:56

Sue I have no words .. but my heart goes out to you at this devistating time. All my love xx

sarahs999 · 24/09/2012 16:53

kittens, hugs for your nuchal. I know how you feel. I reccomend lots of googling so you know what you're looking at - with my scan I could see immediately that the nuchal depth was small, so I didn't have those agonising minutes while the sonographer fiddled round getting the best pic.

OP posts:
LJ71 · 24/09/2012 17:44

Sue thinking of you constantly.

Mollie I fell on my first SO attempt, although it ended in mc.

Havingkittens · 24/09/2012 18:11

Sarah, I don't think I'll even be able to look at the screen until they say all looks OK.

hopefulfor2nd · 25/09/2012 04:54

I've been lurking for a long time on and off and have just caught up with Sue.
Sue, words fail in these situations. I truly don't know what to say, my thoughts are with you.
Xxxxxx

freelancegirl · 25/09/2012 09:04

Sue am hoping by now something has started to happen/and is (physically at least) soon over.

kittens I know you have had terrible scans in the past - you must be terrified. When is it? Hoping everyone else is ok.

Sarah I intend to email you every day and then forget - but just checking if you would still be on for Sunday? My first case study! Then I will be picking on the rest of them...We need to get this stuff out there! It won't take long. Will email you.

Keep meaning to contact PQ too to see how J is! PQ I also have that mobile for you. Hope he is continuing to thrive.

Time just runs away with me. It doesn't help that I am back working and have three articles and two reports to write this week!

Havingkittens · 25/09/2012 10:05

Hi free, I don't know if you saw my post last week but I have been in touch with PQ. J is doing well, breathing on his own but still at the hospital until he is strong enough to breast feed rather than being fed through his tube. PQ can't post from the unit as she's not able to use her phone.

My scan is tomorrow. I'm in a bit of a state. I'm so anxious and in the meantime I have so much family stuff going on too that my head is fit to explode what with all that's going on. My grandmother on my dad's side died yesterday and there's a lot of family politics and people not speaking to one another so it's all a massive headf* and the last thing I need this week, as I seem to have ended up the go between. I have a constant cracking headache coming off the pred too which isn't helping matters. Totally overwhelmed, hormonal, scared and missing my mum like mad Sad.

sarahs999 · 25/09/2012 10:23

Sent you an email free

OP posts:
sarahs999 · 25/09/2012 10:27

Bless you kittens. It all sounds incredibly overwhelming. Hopefully your scan will be plain sailing and that will be one box you can tick and set aside. Sorry to hear about your grandmother. How sad, and what bad timing for you too.

I've been missing my mum too (it's two years exactly since she died). I had the strangest, most upsetting dream the other night, where she was suddenly back, and acting like nothing had ever happened, and it turned out we had buried the wrong person and she hadn't died but had been waiting at hospital for two years for us to pick her up! And it was so odd because everyone was acting like this was the most normal state of affairs and I was pulling my hair out trying to get someone to share my horror and astonishment.

What dosage of pred are you on now? Did you start at 40 or 25, I can't remember? I was fine until I went from 5 to 0, and then I had a massive energy crash. No headaches though, so lucky there.

OP posts:
Arianrhod · 25/09/2012 10:48

kittens So sorry for all the grief and upset you're going through right now, it's the very last thing you needed! Hope to goodness everything is just fantastic on Thursday, which will then hopefully give you the strength to deal with everything else that's going on. Why not talk to your mum as if she was still here? Might sound a bit crackers, but who's to say on some level she isn't still aware? No-one knows for sure, and either way, it might help you? Huge hugs, and sending lots of positive vibes for you on Thursday. And to sue, still thinking very much about you.

Havingkittens · 25/09/2012 17:58

Thank you. Yes, the timing sucks. Especially as I've not told my dad or stepsister that I'm pregnant yet so they have no clue that getting embroiled in family politics and being piggy in the middle is just about the last thing I could do with this week. I am sad about her death but mostly based on childhood memories. We haven't been close since I was a teenager as she lived in California so I hardly saw her, and there's the family politics etc too. It's my maternal grandmother who is like a mum to me and is slipping further and further into dementia that is harder to get my head around at the moment. Too much going on this year really, so I'd better get good news tomorrow otherwise I might just come completely unravelled!

I do speak to my mum ari, sometimes out loud, sometimes in my head. Sometimes it's comforting and sometimes it just highlights the fact that she's really not there anymore but I told her when she was alive that I would continue to speak to her and I hope she can hear me. I have, until now, felt reasonably calm about the pregnancy. I've not had massive anxiety about miscarrying, knicker checking etc. Maybe part of that if because it's been so long since my miscarriages that I don't have that same raw feeling of fear or maybe it's because somewhere my mum is protecting me.

sarah, sorry you are having upsetting dreams about your mum. Anniversaries always bring so many thoughts and memories to the front of your mind, don't they? I am absolutely dreading Christmas. I just want to hide and pretend it's not happening, but still be around my family for comfort. It was this time last year that I was in France looking after my mum after her operation when we found out the cancer had spread so aggressively and that time would be short so I am finding myself thinking about that last time that we were together when she was still strong enough to sit and chat and walk around the garden with me. I guess you have the same bittersweet feelings of being happy to be pregnant but heartbroken not to be able to share this with your mum too. God, life really is a bitch sometimes innit?

Clabbage · 25/09/2012 21:57

havingkittens loads and loads of luck for tomorrow. I shall be thinking of you. Really sorry to hear that you have so much difficulty surrounding you. Life is so not fair.

mollieboo i so hope that you have a successful pregnancy very soon. I really understand the desire to pour all that love that's been somehow stemmed by loss, into another child. I was incredibly lucky to have two successful pregnancies after losing my ds and can only imagine how tough miscarrying in the wake of losing your son, must be.

sue you are never too far from my thoughts xx

PQ77 · 26/09/2012 09:38

Just a quick one from the hospital cafe.

Sue - my heart goes out to you.
Everyone has expressed so beautifully what I have been thinking, I feel I can't add anything more save to say I had been thinking of you constantly. I hope you have been getting good care from bereavement midwives or whatever your hospital can provide.

Kittens - nervous for you with everything crossed. Please keep us posted

Arianrhod · 26/09/2012 09:51

kittens Said it on the other thread, but I'm really rooting for you and jaffa today, if you feel you can please do let us know how you get on?

sue thinking about you xx

suemays · 26/09/2012 13:09

My little angel Scarlet was born last night at 7.44 after four hours of horrendous labour. My mum came to the hospital and we looked at her together. She was bigger than I imagined and looked just like my dd1. Can't stop crying as I don't want to leave her in hospital on her own. This is so hard.

kittens good luck with your nuchal xx

Arianrhod · 26/09/2012 13:51

Oh sue, my heart breaks for you and your beautiful angel Scarlet. Nothing I can say will take your pain away, but I'm so desperately sad for you and for the loss of your little one. Have courage, and take care of yourself. hugs xxx

mollieboo · 26/09/2012 14:16

sue wishing you lots of strength to get through this. Scarlet will always be your beautiful little angel baby.

I had to leave my little angel at the hospital a few months ago, I know the agony you are going through. I know my boy is with me all of the time though in spirit.

Life is so dreadfully unfair. I hope your future is bright after so much heartbreak.

Lots of love xx

GreenOlives · 26/09/2012 16:16

So sorry Sue. May beautiful Scarlet rest in peace. Xx

Abney · 26/09/2012 17:38

Sue thinking of you and your family at this sad time. Sending you lots of hugs x

LJ71 · 26/09/2012 17:41

Loads of hugs Sue. Well done for getting through this thus far. Loads of love and hugs for baby Scarlet. xxxx

Havingkittens · 26/09/2012 17:42

Oh Sue, I'm so sorry you had such a traumatic time of it, on top of such a devastating loss. My heart goes out to you, it really does. I wish you only good things for the future and send you lots of love.

My scan went well, I'm happy to say. My odds were 1:600, but because of my history and the fact that I wanted a definitive answer I had the CVS anyway. I had forgotten how painful and traumatic it was to have that down! It was pretty hideous. Anyway, it's done now. They said the risk of miscarriage was 1:500 so hopefully all will be fine. I've had two before with no miscarriages and the risk they gave me then was 1:100. I get the results back on Friday afternoon but I think we can pretty much assume all is good.