TTC/Pregnancy on Prednisolone or similar part 8

[Arianrhod]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

brilliant news sue!

sue fantastic new, you must be so pleased!
i did my first test today and it was neg, used 1st response, 6 days before period. Mixed feeling , i was convinced (sort off) i was preg - dont ask me why, then i was scared as im on nothing for nkc and wanted to wait to see doc before i fell preg again and maybe on the chinese herbs etc.
what i need is a holiday!! lets work on hubby and see what he has to say

Thrilled for you Sue

Fantastic news sue
So very pleased for you!!!

Brilliant news sue, so so pleased for you!!!

Sue that is lovely news. I hope this starts a string of good luck for everyone xx

Fabulous news sue, that's brilliant!

I have a little bit of tentative good news too, BFP this morning at 12dpo! I am obviously really pleased but my overwhelming emotion is sheer terror! I started the Pred and aspirin this morning and will do the Cyclogest tonight. I just really hope this is the one - it seems the combination of lap & dye followed by a relaxing booze filled holiday were the magic combination needed to achieve stage 1 anyway!

Big waves to all!

See!!! The good luck streak has started!! Brilliant news olives

olives whispered congrats first hurdle overcome. :)

Sue can I ask what you did differently this cycle? I know you were off the pred and you were taking a high strength fish oil which was something like naturase?? Did you double up on vitamin d?
It seems the hydroxy works quite well for people, apart from failing on his treatment does Mr S give this to people with just high hnk's as well as vhnk's?

Oh fabullous olives, this is what we like, more good news! :)

Ooh, congratulations olives.

pebbles, he's never suggested it to me and mine are quite high.

Congrats olives!!! Box one ticked

Great, Olives. Praying this is the one for you.

olives thats fantastic news..

olives glad you can join me on the first trimester list! I am also terrified and on frantic knicker watch so you are in good company. Are you having intrallipids?

pebbles I had a two cycle break so had no build up of steroids and then a hysteroscopy a week before ov. I then doubled up on hydroxy for 3 days over the weekend before I could speak to Louise and have the intrallipids but she then told me to keep to the single dose. I also take selenium, the high grade fish oils you mentioned, double vitd, double aspirin due to my TEG result, double cyclogest, plus the usual pregnacare, 40mg steroids and omezaprole. I am also drinking green tea as its supposed to surpress killer cells. Plus i have been going for weekly acupuncture and will keep going to 12 weeks if I get that far!

Since getting my bfp I have been resting as much as poss with no exercise whereas I was going 3 times a week to the gym and no housework! This was my acupuncturists advice not mr s.

Forgot to say, I also got very drunk during this cycle and had a booze filled holiday the previous cycle with loads of sunshine!

Congrats on the scan sue - great news.

And Olives - well done on BFP.

Lovely to hear some good news.

sue - green tea interferes with folic acid uptake I think, you might want to check?

Congrats to sue and olives let's hope the good news keeps Up and both are sticky beans
Keeping everything crossed for u both x

cheerful thanks for the info on green tea. I didn't know about it effecting folic acid absorption so will make sure I limit it. I only drink 1 cup a day anyway and it's a decaf one so I don't think it will have much effect - everything in moderation!

Thanks for the congrats ladies
Sue No I'm not having intralipids, my NK cells are only slightly elevated so its just 25mg of Pred, baby aspirin and the Cyclogest for me. I just hope that taking them from BFP is enough! I am pretty sure I wouldn't have got pregnant whilst taking the Pred though as it had changed my cycles immediately and made my periods so light. I won't be seeing Dr S either, my NHS consultant is happy to support the treatment plan so I don't need to travel to London (or spend my cash!) I have a scan booked next Friday to check that this one is in the right place, my ectopic last time had already ruptured my tube at 5+5 so he wants to scan super early. By my calculations I will only be 4+6 then, I guess it is just a sac in the womb he will be looking for? Has anyone here had such an early scan? I'm going to hold off joining you on the first trimester list until I've had a scan which shows a baby with a heartbeat, not sure how I'm going to get through the next few days/weeks without going mad!

olives fantastic news. FC this little been will be the one! Hope all goes well and try not to worry to much. Easy said than done, but sounds like you're consultant is being very vigilant and will keep a close eye on you which I think helps enormously. I know the 2 week scans were a life saver for me.

Am on train up north for a few days so only on the phone but just wanted to add to the huge congratulations to Olives for the first step!! Brilliant news. Yes I think the scan will definitely be too early for anything but a sac (although haven't had one that early myself so no personal experience) but it will definitely be able to reassure you it is in the right place. Keep us updated! And yes those first steps are so terrifying!

seems like plenty of good news , which is great!! and sets a good atmasophere.
saw the chinese herbalist and had my first acupuncture, spent ages with her giving her my history etc nearly there 2 hrs ! im seeing her again next sat and getting the mushroom herbs etc, arian do you mind telling me how much you paid for yours per mth (mushrooms and herbs) so i can compare, todays fee was only 60.00 altogether and 50.00 next week, then not sure now often , really liked her , neg was she didnt want me to try for 3 mths as is takes that long for herbs etc to start working , but maybe a long break from being preg may help the nkc settle down and get my fitness level back to normal, dont want to waste time but may have to.

Dear all, a big hello from the Sth of France. Just sitting in my safari tent pondering whether to have another ice cold beer. Extremely hot over here. Overitte (whatever it is called) out of my system yesterday and the last 2 SO times my AF has started the very next day so I am exepecting it today. Been to the loo several times praying no blood. I am sure we all stick the tissue right up just for good measure. TMI I know. I will wait until tomorrow to test as I don't expect to see anything on the test stick today. If it is a BFP then I will be on the Gonal F super duper drug next time. Dr S says 1 egg not enough!

Big congratulations to Sue and green olives. I know you must both be terrified but reaching the first hurdle is great news. Keeping everything crossed for you.

I mean if it is a BFN then I will be on the Gonal F next time oops!