TTC/Pregnancy on Prednisolone or similar part 8

[Arianrhod]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Just popping in to wish the best of luck today sue.

Ewww - the scans in the evening make the day drag on! I hope you are not clock watching all day and are nice and busy to keep your mind off it. Most of my early scans were at 8.30am at Epsom. Painful to leave home at 6 but good to get them over with!

Just popping in to say good luck to sue. Evening scans are a bind- having to wait all day!!
ari I checked back on my notes and asked DP. It was my nhs consultant who said I needn't be on clexane, but if I wanted to I could give it a try, and then not until the first scan so I wasn't injecting for no reason. When I told Mr S this he visibly winced and said I should be on aspirin and clexane from BFP. Sorry for the mix up! It was such a long time ago now. I didn't want Mr S to appear in a bad light when actually it was the opposite!
free how on earth are you coping moving house when so far pg?! Are you stressed or very calm about it?
pebbles it's always the sodding way that everyone is pg or talking about scans when you are TTC. It's so hard :( xx

Nothing happening here, am now 31 weeks and getting slightly nervous about the birth. Think I will continue to stick my head in the sand until absolutely necessary! Xx

battery Thanks - but what were you given clexane for? It wasn't MTHFR was it? Sticking head in the sand, I always like that approach Don't be too worried about the birth, rest assured it will happen one way or the other :)

La la la la, fingers in the ears, about birth is a good idea Battery :) Love the 'rest assured it will happen one way or the other' too Ari It's very true!

I've been reading up on techniques that can make birth easier - hypnobirthing, Ina May Gaskin etc - but since it is breech have also just ordered three books on CS and recovery just in case. Will find out next Friday at the scan, if it is still breech and still measuring on the large side they will probably book me in. I don't mind really, it takes the decision making out of my hands. PQ mentioned I might have talked the baby into being breech - and I think she might be right! Even at the 12 week scan it was sitting up and looking like it was driving a car. Still might turn of course.

How I am coping with moving house when 8 months pregnant is quite easily actually Battery. My DH does everything. I've always lived with (and maybe perpetuated) the belief that I am domestically inept and he is an organisational God, so I let him get on with it. Every day he packs another couple of boxes. All I am responsible for is my not insignificant roomful of clothes. And I have half-packed them - need to get on with some more packing of these though to make him happy. Of course I had moved about 10 times or more BEFORE meeting DH so I am not as inept as he might think, but my strategy would be to do it in the days running up to actually moving and his strategy, rightly I suppose, is to get it done gradually beforehand. If I started joining in I would no doubt not be up to his standards! That said, yesterday I needed the juicer - packed. And today we have run out of shampoo despite having three bottles of the stuff bought, again by DH in advance, and guess what - packed.

Checking to see when Sue's scan is - that's a late one! Thinking of you.
Free I so admire your level of research! (3 books on sections ). I think seeing a video of one in advance helped me most, for instance knowing that you walk into the theatre which I wouldn't have expected.
Going to do the 'going into work with baby' thing next week (they phoned asking me, in my defence) I can never shake off the feeling that I might be upsetting someone - though statistically maybe the only one with fertility problems in the office might have been me.

Oh F*! I've just realised that I've not been taking Pregnacare for weeks! It's so odd. I've been taking my various tablets and thinking "I'm sure there's supposed to be something else" but I just couldn't put my finger on it. I thought it was because I'd stopped taking the asprin on Mr S's suggestion but for some reason the Pregnacare went completely out of my head! I hope it doesn't negate all the bloody expensive SO treatment I've been taking. I've also just turned down a rather well paid job because I'd have to be away whilst I was ovulating which seemed pointless after everything (well, also turned it down because it was 2 12 hour days on a ferry and I get badly seasick!)

I am sure it doesn't matter in the scheme of things Kittens. The Pregnacare is just to add vits and folic acid. Lots of people don't even take it. Start taking it now and you will be fine. Shame about having to turn the job down but it's understandable.

Good luck with the taking the baby into work next week Iggi! I am sure it will be nice for you to see everyone and for everyone to see the baby. There's nothing you can do in terms of potentially upsetting other people. People have babies every day. Try not to worry about it.

I haven't yet managed to pluck up the courage to watch any videos but I have read a lot so know about the walking into theatre and the fact there might be ten or more people there! I will wait until the scan next Friday and then start asking you ladies who have been there before for more info/advice too!

iggg, amazing isn't it that it is only people who have been in our situation that would even think of being concerned that someone might be upset at you brining the baby in.

free thanks for your words of reassurance. I'm laughing at the irony that they come from you, the most reluctant out of all of us to stop taking any of the 'safety blanket' vits etc! Sorry, that's twice i've laughed at you today

I feel I have to share this - Kittens and I have a mutual friend in common (someone I knew from a baby until the age of 6), which we found out by making friends on facebook ages ago. She met up with her this week and apparently the biggest memory said friend has of me when I was little (she is about 3-4 years older) was of me always wandering round with my skirt over my head and my mum being really embarrassed and having to tell me to put my knickers away! Great...

But yes, I know exactly what you mean about the mentalling about things and I am not one to give advice! It's easier to be rational when referring to someone else rather than yourself. Yesterday I was worried about too much movement, today - having read some sad stories of people having later losses - I've been worried about too little movement.

Sigh. Am off to the shop to get some orange juice and lie on my left side again. I just want to get this baby out of here as soon as safely possible and as quick as possible.

Hmmmm. Have also forgotten about the pregnacare for about 2 weeks. Have just been to boots and forgotten it again!
ari I have factor v and also positive TEG hence the reason for the clexane and aspirin. The one I am most worried about stopping is the aspirin at 34 weeks. Have seen the haematologist who says to stop aspirin then, and clexane 6 weeks post natally.
free I had to get the Doppler out last night as I was certain I had reduced movements. All was ok, especially after a bit of chocolate which baby seems to love . At my mw appt last week the baby was still transverse, but I have felt movements and a few kicks under my ribs so I wonder if we have head down yet? Eeeeek. Don't want to think about it ......

I had to get the doppler out too this morning battery. What are we like! Actually Ms S says you can come off pregnacare after 12 weeks anyway. I've carried on taking it regardless as it says you can on the pack. but in terms of the treatments it's fine. I too was worried about coming off aspirin, despite no known clotting issues. but they wouldn't tell you to stop it if they didn't think it was safe. plus, as Digi mentioned to me at te time, if you were still taking it at Birth Time it might mean you bleed more.

You braved any birth related books yet?

you can get pregnacare directly for vitabiotics on line , the alwsy have 3 for 2 and its quick free delivery and i think a bit cheaper as well!

good luck sue!! we are all clock watching with you!

free should you really be reading stuff about late losses? why do that to yourself. its so unfair we cant just relax and enjoy

the girl who sits next to me is pregnant, what really bothers me is a friend ( not close) on face book, ive nearly blocked her, shes is constantly on and on about her preg , how many weeks she is, what her baby looks like ,her great helpful husband, her great mom and dad helping her with getting ready for baby, her great aunt and uncle who helped paint the nursery, yada yada yada - give it a rest, going to log off mums net and block her

free Ha! Books? not a chance. I haven't talked about birth plans or anything yet. My friend lent me a pregnancy book - it mentioned tearing and episiotomy etc. I put it down - to be read for another day I think..... However, it does mention perianal massage. Is that someting I should be doing?? Sounds bloody awful?
pico I have a friend of a friend who is a few weeks behind me, and her fb updates are nothing else but whining about how dreadful she feels, how awful the tiredness is, etc etc. Nothing positive at all. So I de-friended her. Simples :)

Obviously meant perineal massage....have just looked it up on how to do . Frankly and now need a lie down.

sue hope all went well.

Quick question for Igggi and those having given birth. Was told by consultant that I need to have a steroid jab pre and post birth due to the steroids I'd been on to conceive. Also having to have a diabetes blood test at 28 wks. Has anyone else had to have this?

Anyway now have a date 14 September but now concerned baby may make an appearance before the section as its exactly 39 weeks so in a bit of panic over that as they are trying to encourage au naturally if that happened unless I was adamant and never been in labour or been to any anti natal classes as first was an elcs.

free wow moving house too! I know there are a couple of you either late pg or with new burns moving so I think it's very brave! Having said that we lost the house we were going for so could have been in the same position.

Now delights of seeing my role being carved up, just to make me feel insecure before going off on mat leave and we need the money so will have to get my butt back to work next year.

Igggi was your c-section ok 2nd time round, she scared the living day lights out of me with all the risks.

battery i blocked her as well, wont have to read about her happy happy pregnancy..hiss.( this may be the reason dh thinks im nuts ..love it !)

Mercator no, no steroid jabs here - doesn't mean you shouldn't have it, but obviously not standard. I didn't have a diabetes test either (well I think there was a first trimester one?). 2nd cs has for me been easier than the first in terms of recovery. Nothing like the pains I had last time - maybe I know what to avoid better! And I've been coping at home on my own much earlier this time, dh had a month off last time. I made it clear I wouldn't be having any more dcs, obstetrician seemed quite happy to go with ecs.

On our way home from Epsom and baby measuring exactly on date at 7 weeks and 1 day! Strong heartbeat so mr s was very pleased. I burst into tears as was convinced I would see an empty sac. So relieved although a long way to go.

battery I did the perineal massage with dd and I swear by it. No tears or stitches as I recognised the stretching sensation. It was weird getting dh to lube up and do it but I got used to it in the end!

Great news Sue, so pleased for you. That's the second hurdle over (after getting pg in the 1st place!). You must be really relieved after the long wait for the scan date to arrive.

Sue!!! That?s brilliant news! Thank goodness for that. BellyD is right ? it feels like the second hurdle ? getting pregnant then having that first positive scan. Sue - cue drum roll - I am adding you to the pregnant list!

Merc, from what I?ve heard about pre-CS chats they like to scare the living shit out of you. If you makes you feel better though there was no living-shit-scaring nuances from Mr S. He seemed fully behind whatever decision is made. Not sure if he?s going to give me a living-shit-scare talk next time but he said any decision might be taken out of my hands anyway if the baby stays breech. Obviousy this would be a first CS not a second but I think seconds are ok too by the sounds of it. How come no-one sits you down and tells you all the things that can go wrong with all births?!

I would feel the same about maternity leave. Half of me wishes I had an actual job to go back to as at least then I would know what I was doing. I worry that because my work is ad hoc and sometimes at home I will have difficulty with childcare. Of course right now I love my work and want to get back to it as soon as possible, but I guess you never know I might find myself coming over all extra maternal and jacking it all in to be at home :)

No steroid injections mentioned yet here either ? haven?t heard of that one. Be interesting to hear more.

I have heard of perineal massage Battery but haven?t quite got round to doing it yet! Sounds like it worked for Sue ? great you had no tears! Hearing stories like that makes me feel like a bit of a wuss for thinking about bypassing VB and going for a CS. I guess I have read too much about potential issues - especially relating to people with a history of thyroid problems. But as Mr S says, the baby might take the decision out of my hands anyway. Good to hear positive CS stories like Iggi's too.

Am doing nightly Bio Oil on the tummy though but not sure if that will help. Some days I can't quite believe I have this huge basket ball bump sitting in front of me. Baby started moving a bit more this afternoon so that was a relief. I was a whisker away from going to A&E.

Thurs 14th June

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 ? 39 weeks (ELCS) 14/5/12 7 lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (ELCS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (ELCS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 34.2 wks Next appt/scan, 22nd June EDD 24/07/12 by LMP, 22/07 by Nuchal
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 34.2 wks EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 31+1
coleyoz - V High NKC. DC#2, BFP cycle2, 30+3

2nd Trimester

FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 26+1
Mercator - V High NKC, DC#2 25+6 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks)
Hopefulfor2nd - High NKC - TTC#2. - 25+1
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 25+1
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 20+4 Next scan @ 20 weeks

1st Trimester

HelterSkelter (IVF and immune therapy) 10+2
Suemays - TTC#2 DD, followed by 5mcs all 6-8 weeks. V High NKC, TTC #2. Superov. (Pred & Hydroxychloroquine) 7+1

TTC ? ASSISTANCE - SO/IUI/IVF

EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 ?pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -10 pred ? 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)

TTC
London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, gen 6-8 weeks. NKC not tested, TTC #4 cycle 2 (after m/c 12) Fertility consultant
prescribed pred.
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, decided to only take Pred from BFP
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC
Gransol - Seven mcs - all losses between 6 & 7 weeks

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

Oh thank god for that sue ! I am not sure I could use coped with another chemical or sac only for u let alone you coping! Horrah for the hydroxy! Xx

igggi and free thanks for coming back to me re the elcs related talk feel a lot easier just hope lo decides not to make an appearance before wk 39!
I also had dh home for a mth first time and probably not this time. More concerned if he's away and baby makes an appearance before wk 39 as have no family close by. Never mind we 'll cross that one closer to the time.

Sue so pleased all went well, that's excellent news!

freeI'm with you with my Buddha oil!

battery I've given up on the vits now although with all this b...dy rain I might have to start the vit d again.

I'm off on hols this Sunday for 10 days so unlikely to be able to follow whilst away. I do hope we get some more lovely stories on here by the time I get back! So good luck to those testing in the next 2 weeks!

Thanks for sending the drugs Free, will text you anyway about week after next.

sue what fantastic news, have been lurking to see how you got on. You must have been sooo relieved, am so pleased for you.