TTC/Pregnancy on Prednisolone or similar part 8

[Arianrhod]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

[ChoccyPud]

Hey PQ. Humira is because I have high TNF alpha - 31+ is high; mine was 45! Another possible explanation for why two mc's on Pred and hydroxy at least. The treatment is two humira injections two weeks apart. Scary potential side effects :( but if it does the trick then you take the risk don't you?!

Means I'm on ice still for ~10 weeks incl the six week hydroxy lead in period. Drumming my fingers a bit now tbh... Even tho I'm doing something by letting it do it's thing I'm still circling the shallow end.

Oh, DH has a new job, better by the sound of it, starts Monday :)

You keep your legs crossed hun!

Its nice to see lots of positive news on here lately. Keep it up girls!

Btw having been in several locations during my two lots of intralipids, I am able to tell you kittens that the wifi can be a bit slow if you're in a room a long way from the router. But if it's quiet you could just drag the drip into reception. When are you going?

[sarahs999]

For what it's worth, I have always conceived easily (usually first or second time, longest was 4 months). This pregnancy took four months on the pred. I'm 41 (42 next month).

[PQ77]

Yip, there's wifi at nlc

[Havingkittens]

Before I forget to ask, does anyone know if there is accessible Wifi or BT Open zone at NLC? Just wondering if it's worth taking my iPad to keep me busy during my intralipids next Tuesday (assuming I need them) or just a book.

[iggi777]

Hello, just jumping in as am a thyroid-sufferer so might be able to help - your T4 went up to 23? That's not all that high, mine is normally around 22, I don't feel good if it's below 20. My own understanding is that not having enough is more of a problem in pregnancy than too much. Try not to stress (ha).

[cornflakes30]

Megmum thank you so much for the positive wOrds I had such a wobble yesterday my fault I went and did a clear blue test and it only said 2-3 weeks im sure it should be 3 + as im supposed to be 5+3 to and to top it off i went to see my endocrinologist as my thyroid always goes mad. He put me up to 175 mg when pregnant so only 10days ago but my thyroid had jumped to 23.4! The last time it did that I had s mc. So now I'm meditating for England 4 times a day haaaa my dh thinks I have lost it.
Does anyone else have a similar experience with thyroid it drives me mad I'm back down to 150 now so hope its not too late. Only 6 more data till my scan.

Kittens I can't believe your flat mate not sure if I would be more paged up about the chicken or shower nerve of her!!!

Have a good day everyone

[duggs1976]

Oh lemon I knew there would be more in our camp yes. Sorry that you are in our camp. If u need any info details prices then shout and I'll pm u honey x

[lemonsherbet]

duggs I think I belong in the refugee camp. Trying to persuade my other half to see Dr G.

[Abney]

Hi all. Just thought I would add that I also conceived easily on pred the last 5 times (last one being age 43) but now I have hit a 6 month drought even on SO. Could be my age or the SO was just not working for me.

PQ keeping my fingers crossed for you that the little nipper will stay put.

Have a nice day everyone.

[Havingkittens]

I used to be an easy conceiver. I was pregnant 6 times in 2.5 years. It's only this time that it's taken me 18 months to conceive, even with "help". Whether that is to do with being on pred from ovulation every month or whether it's being over 40 that's been the problem, who knows!

[PQ77]

What duggs said I am an easy conceiver, even on pred, but I seem not to be able to carry babies for 40 weeks (why do things the easy way)

choccy I'm lost - what's the humira for? Sorry if I am being slow. How are you and your Dh? Is he job hunting or taking some time out? been thinking of you.

kittens I am a slatternly carnivore but raw chicken on a wooden chopping board would send me over the edge...

willitbe v interesting to hear about your friend - I was becoming quite institutionalised after a week so I can only imagine what she must feel after weeks and weeks. I met some really nice women though - always someone who's had a worse time than you to put things in perspective!

Had my daily check up today - I'm feeling really tired and a bit down but the baby seems to be fine (how he can be with no amniotic fluid is still beyond me but anyway...). The plan seems to be a CS at 34 weeks if I can make it that long, but in the meantime the consultant really wants me to get to 32 weeks which is this sunday. The stats for various complications improve markedly at that point. Fingers and legs crossed.

I'm too superstitious (and tired) to do anything useful like wash baby clothes, buy nappies, or construct the crib so I feel like I am in limbo a bit. I have, however, resisted the urge to deal with work emails so things can't be that bad!

[duggs1976]

I've got a theory that unless you are "lucky" enough (no one on this board is lucky in fertility stakes bukwim) to fall pregnant within first 3 cycles of any given attempt then you are onto a long old ride of god knows what. There were def 2 distinct camps and the sue and kittens were in latter camp with the free and pq in first quick camp. Me and pebbles and euro and ari have no camp and are wandering refugees and poor choccy and scooter seem quick but dr s hasn't proven he has discovered their issues. With my DH sperm fragmentation quality as it was literature says I have a 1% chance of giving birth to a live baby. Luckily they identified an infection and he's had strong antibiotics which should improve the rate we will re test in October but just can't believe how little they consider the male contribution. ( this is with 200 million, motile forward
Moving sperm) so v v glad sue put me onto dr g.

So if u r on pred and not getting pregnant easily I would suggest u look at wider picture. I would have hate to have given up as we nearly did in April.

[holldoll]

I have been away for a while again, great to see so much good news. I am totally mentalling and hoping one of you wise ladies will settle me down! Im on cyclogest following ovulation and pred 25mg - I am 9dpo. feeling really hot and dizzy and boobs hurt. Been stupidly testing since 7dpo and guess what all negatives. I know i should step away fromthe tests but i cant help my self and i know that the cyclogest makes you feel pregnant - any other girls had similar symptoms?

Another theory - how many of you have fallen pregnant on prednisolone? With Sue and Kittens falling preggers off of it I wondeer if it does hinder conception?

Good luck to all those at the top of the third trimester and waves to everyone else

apologies for being mental!

[MegMum25]

Hi Cornflakes. Poor you. 5 september not long (but feels like an eternity). Embrace the symptoms and publicly boob squish if you need to. I do not give a hoot that it looks like I am gratifying myself in public, I need the reassurance (and last time, which I am regarding as a blip so as not to mental) aside, it's massively reassuring to ensure the boobs are still tender and you feel sick etc. I think two lucky number 7s will be the case. Positive visualisation of the elation you will feel when the little white flash appears on the screen at your scan xxx It's such a rollercoaster and I don;t know about you all, but I just constantly need to verbalise every single feeling I get, so a conversation goes something like this:
me: I feel really pregnant right now and sick;
DH: good;
me (2 seconds later): my boobs aren't so sore, I'm panicking now;
DH: don;t panic, until there is a sign otherwise, everything is fine:
me (3 seconds later): I need a wee, that's good isn't it but I only weed twice last night but three times the night before?; and so on and on and on until 12 weeks. It's mental torture.

The odd glass of wine won't hurt you know, just to calm you down a bit, if you feel like it.

Poor you kittens. I am sure lodger was oblivious to everything, she won't have noticed the cyclogest if she hasn't noticed you're veggie and chopped chicken on your board. grrrr indeed.

I am down to 7.5 mg of pred now and headaches subsiding and finally the pregnancy hormone gone which made me crashingly low but now weridly a bit better. I am making an executive decision that we are not waiting and are cracking on with it. DH so desperate for any sort of physical contact he will probably cave in!!!

On acupuncture, I see a lovely lady called Archna Patel in Balance the Clinic in Chelsea (a bit pricey but she's lovely). She saw me yesterday and I feel better, physically and emotionally. I am not sure whether she really has any effect on the outcome of my pregnancies, but I believe she does and it's whatever gets you through.

[Havingkittens]

Hi cornflakes, I am 7+4. I've only really started feeling pregnant in the last week. Now the symptoms are creeping in. I've not really felt sick either.

[ChoccyPud]

Another word to the wise...

If anyone gets given Humira I recommend getting your dr or a nurse to administer it for you unless you're proficient at injecting yourself. It's so inhumanly expensive it's just not worth "giving it a go" yourself. (No I haven't had an accident with it myself, luckily. But I'm now waiting to have the first injection done with my second of two pen syringe things...)

kittens I'd feel the same as you frankly. She pays for an en suite shower. End of story.

Waves to all

[cornflakes30]

Hi Abney I wanted to say that I have two friends doing acupuncture and they swear by it, one is in Croydon and one is crystal palace. I do a meditation by a lady called mariseer peer who is great I bought it in line and do it everyday for positivity . Hope that helps

[cornflakes30]

Hi thanks for all the welcomes it's all such s scary time, some days I feel good other days petrified. I don't know if it's 40mg but I have days I just do not feel Pregnant I prefer it if I feel sick. Never thought I would say that. It's do good that there are lots of success on this board now.
Got my first scan on the 5th sept so hoping for good measurents and a hb then it's into thd next two week wait.
Having kittens lets hope we are lucky no7's how many weeks are you?
Hi to everyone else x

[Havingkittens]

A word to the wise....

If you want to avoid giving yourself a small heart attack, either steer clear of eating excessive amounts of beetroot or remind yourself of the fact every time you go to the loo! I had a delicious roasted beetroot salad last night but the red wee is not what I need to be seeing right now.

I need a bit of a rant. I'm slightly stressed as I've been back from my weekend all of about 36 hours and so far our new lodger has moved a pile of magazines from the side of the sofa which had one of my forms from NLC and the leaflet for The Miscarriage Clinic tucked under it. She also left evidence the she used our bath (she has her own shower room), which I wouldn't give much thought to, except my boxes of Cyclogest were out on the side. Maybe I should be more careful with my private stuff but a she rents the room with an en suite bathroom I didn't really think I needed to be quite so careful. OH thought I was getting worked up unnecessarily but it kind of annoyed me. Then, just to really cheer me up, she used my wooden chopping board to cut up raw chicken , even if I wasn't a vegetarian this would bother me as it's a salmonella risk. Another thing I don't really need to add to my mentalling! Grrrrr! I think I'm going to have to go and buy a plastic one for her to use.

It's very quiet in here. Where is everybody?

PQ, all ok with you?

[mercator]

Any news on coley or frozen. All seems rather quiet on here?

PQ hope alls well.

Sarah congrats on the milestone and kittens glad all went well. I know I had my brothers 50th and me not drinking champers, well,pigs might fly but no one commented thankfully! Mbut they all knew what we'd been through so I am sure they all knew

[Havingkittens]

I hope I've done this right....

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 ? 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs
Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle), Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 - Baby boy Sebastian (ELCS) at 39 weeks 17/07/12 8.11 lbs.
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 40+1 wks EDD 24/07/12 Baby boy born 26th July, 7lbs 5. EMCS
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 38+4

BFP 3rd Trimester

coleyoz - V High NKC. DC#2, BFP cycle2, 40+5
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 36+4
Mercator - V High NKC, DC#2 35+6 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks) ELCS 14/09/12
Hopefulfor2nd - High NKC - TTC#2. ? 35+2
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 35+2
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 31+2

2nd Trimester

HelterSkelter (IVF and immune therapy) -21
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 18+4
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 14+4
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. 14+3 Next scan 5th October
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 14+3

1st Trimester

sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin, cyclogest, intralipids. 12
Jemimapuddleduk (33). 3 prev mc's over last 2.5 years between 7-11. Not tested for NK but prescribed 20mg pred, fragmin, asprin and cyclogest on NHS. 11
HavingKittens, 4mcs, 2 TOP TS21, 7th pg, 5th SO Cycle, VHNKC, 40mg Pred, Hydroxy, Intralipids, etc. 7+3, next scan 4 Oct.

BFPs awaiting first scans

Hannah77 - DD born 2003, 3 losses 21 wks, 17wks, 7wks. BFP 25th July.

TTC ? ASSISTANCE - TTC 2ND or more

Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),- super ov
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine) ? super ov
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, -super ov
LJ71 - two older DCs, mc on treatment. SO, pred, hydroxy

TTC ? UNASSISTED - TTC 2ND or more

Iloveblue - under Prof Quenby for HNKC. 2 healthy boys, followed by 20 week loss, 2 early mcs, 15 week loss.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)

TTC ? ASSISTANCE - TTC 1st

Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -12 pred replaced with Hydroxy 10/7/12 ? 5th cycle SO
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF - SO
duggs1976 - TTC#1 -4 mcs all 7-12 weeks. - TTC #1 ? last chemical on treatment/IVF in April. SO
BellyD - V High NKC, MTHFR homo, TTC#1, 5mcs, SO, hydroxychloroquine
Carebear1 - V high NKC

TTC ? UNASSISTED - TTC 1st

ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w)eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
London - High NKC, April - mc on treatment.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
Gransol - Seven mcs - all losses between 6 & 7 weeks
Mollieboo - 5 early mcs between 4 & 10 weeks, 1 premature birth (lost my little angel), high NKC - pred, intralipids, aspirin, clexane, cyclogest

[Havingkittens]

Sounds like a good measurement Sarah. Fingers crossed for good blood results too.

Duggs, yes, I still can't help but wonder whether the not taking pred until BFP was part of the reason I got pregnant. Although that wasn't the reason Mr S took me off it. I think he would still dismiss the theory. I asked if I could come off it because I'd been on it for over a year and didn't want to just keep on taking it indefinitely as I didn't even know if I was going to get pregnant and it was making me feel pretty crappy. Something I always said I would deal with if there was a means to an end but not ideal when it's 3 weeks (inc ill effects of coming off it) out of every month for over a year.

Cornflakes, welcome back and congratulations. Scary times, I know, but just try to take things one step at a time. This is my 7th too so I'm also hoping it's a lucky number!

jemima, I can't say much about symptoms at 10.5 weeks as it's been a very long time since I've been that far along but I do know that symptoms fluctuate sometimes at any stage.

PQ, glad the little one is staying put. Bet you're pleased to be in your own bed. Hang in there, all 3 of you!

My non drinking went unmentioned, I'm happy to say. Most of the drinking, unsurprisingly, was amongst the men folk who were all so busy bellowing at each other that they probably wouldn't have noticed anyway. Maybe others did but decided to let us tell them in our own time. Who knows. We told OH's mum, who in her usual manner reacted in her OTT way of bursting into tears and then being completely away with the fairies for the next hour or so. I always find it really off putting and don't want to tell her for that reason as I want to be as low key as possible about it but there you go. She's rather an emotional woman! I must admit it was a bit of a stressful weekend. My tiredness really kicked in, as did my constipation. Two things which really don't mix well with sharing a house with 11 others! Some parts of the weekend were nice but I must say, I'm very pleased to be home! Good timing too as this morning was my first "waking up ravenous at 5am and having to sneak down to the kitchen" day, which also would've been a bit suspicious over there.

Ari, as you ask, my new skincare consists of Shu Uemura cleansing Oil and Purifying Water (which is a foam cleanser you use after the oil) and Kiehl's Midnight Recovery Oil. All rather expensive, I'm afraid, but luckily I get a good discount as a perk of my job. My skin has been behaving a lot better since I've been using it, but I don't know if that coincides with being pregnant. My skin is usually really shocking when I get pregnant. I get really bad inflamed cyctic acne. Touch wood, just a few small spots so far.

[sarahs999]

Hi all. I'm starting my tapering off today as I'm offically 12 weeks. Yay! Just waiting for my nuchal blood results and assuming that they're fine I'll tell work. Still feels unreal as I'm not showing and I'm still in my normal clothes. can't wait til I have a proper bump as proof that I really am pg...

How is everyone? PQ, still hanging on? you've made it to 31 weeks now haven't you? Yay for a new number!

jemima it only really works on a laptop; just select the text and copy and paste. Easy! If yuo can be bothered put asterisks around the titles so they come up in bold.

[willitbe]

PQ - I am pleased to read that your baby is staying put at the moment. In real life here, I have a friend who is currently 30+2 and she had been in hosptial with leaking amniotic fluid since 22 weeks. They will not let her out and she will be in there til the baby arrives now. The hospital have decided that they will deliver the baby at 35 weeks if the baby does not arrive before then. I hope your baby stays put for a bit longer too.

[mercator]

cornflakes welcome back and fc all goes well. Same goes to kittens

PQ you must be relieved to be home but an am sure nervous as well. Do hope all goes well and lo stays put a while longer without any infections!!!

I'm now on countdown to section and getting v nervous about the recovery, flashbacks now coming back fm previous section and the long recovery, not to mention worrying about lo and hoping she's going to be ok, we never get over the panic until they're born well do we.

Hope everyone has had a lovely we.