Called back to consultant after DS brain MRI

[nearlymumof5]

hello, my DS aged 7 has been having nausea, sickness and headaches since November and through lots of pushing managed to get an MRI which was on Monday eve - we were told to expect results in 2 weeks. Today I received a phone call from the paediatric consultants secretary asking myself and hubby to go in tomorrow at noon. I’m terrified. Has anyone else got experience of this? What’s scared me most is that they have asked me to bring hubby. They have requested that we don’t bring DS. I don’t even know what I’m asking for on this thread, maybe someone that has been in a similar situation? Thanks x

Oh bless him, over the moon they've removed the tumour, how incredible. Proper tears reading your update about him face timing, he sounds so brave 💐

Have they given him a morphine controlled drip? My DC got a bit trigger happy with it in the end 😬😁we ended up going onto diazepam after the first day which was better for being able to move around and less grumpy! The hate all the wires so our goal was to get rid of them asap.

Glad your son is doing well, and you are too. Best wishes for a full recovery xx

That is such good news to read! So relieved for you.

What an amazing update. Well done all at JR, well done you and well done your son. I don't know you but this has made my really teary.

Fingers crossed for recovery plan.

Just sending lots of love. x

So happy to read your update, sending lots of positive thoughts to you and your lovely boy x

I’m so so so glad your son is getting prompt and excellent care OP. I’ve been following your thread ❤️

So glad things moved so quickly and he was taken care of.
Well done to you for pushing for the MRI.

Great news OP. I hope it's benign and he will now recover and get on with his life without any more treatment being needed.

Such a shame it took so long for anyone to take it seriously but at least they've acted now.

Amazing update op.
Lots of both to your family and your lovely boy, massive well done to you for pushing, a massive well done to your son.
He's a trooper!

Sounds like it was the best time for you to get some rest.

I hope he continues to make a good recovery and they keep his pain under control 💐

Oh that's wonderful news OP! I'm sure he has a recovery ahead of him but it must be better than having that in his head. Here's to a happy future for him

Oh that's wonderful news OP! I'm sure he has a recovery ahead of him but it must be better than having that in his head. Here's to a happy future for him

Keeping you in my thoughts. You're very strong people, all of you xx

You sound like such a lovely loving family. I hope and pray that the tumour was benign and that will be the end of it for you all.

Well done on being such a great advocate for your son and he sounds like a real character! I hope your other children are coping with this all too x

Oh god I just shed a tear reading this thread. I'm so happy for you Op! Such a brave boy you have x

I've stayed in that RM house myself. The PICU and HDU nurses in JR are brilliant. I'll never forget "the two Lauras" who looked after my DC there!!

Thinking of you & your DC OP.

So glad he is doing well x

Oh what truly fabulous news! Onwards and upwards, slowly and gently. Everything remains crossed and you all remain in my thoughts as your sweet boy recovers. What a week you've had @nearlymumof5. Thank goodness, we can't see into the future!

Oh, that is excellent news!

Brilliant news op, wishing him a quick recovery and hoping for good news in 7 days.

Regards the breaking, in my experience and from talking to others in groups, the break tends to come when you least expect it. Mine came when I couldn't get a trolley out of the trolley park (it was wedged into another trolley) I suddenly became completely overwhelmed and completely broke down. Be kind to yourself .

I’m so pleased to read how well the operation has gone- sending love and best wishes to you all.x

Have been following your thread OP. What fantastic positive news!!
I know from experience, many years ago with my Dad, what a wonderful Hospital the JR is.
Thinking of you all xx

Brilliant news! I hope it’s all more good news and speedy recovery from here xx

Been following this. So happy they got it all. You’re such an amazing mummy to advocate for your boy xx