Active discussions

Are your children’s vaccines up to date?

Set a reminder

Please or to access all these features

Talk
Children's health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Original poster

Called back to consultant after DS brain MRI

990 replies

nearlymumof5 · 22/06/2022 18:08

hello, my DS aged 7 has been having nausea, sickness and headaches since November and through lots of pushing managed to get an MRI which was on Monday eve - we were told to expect results in 2 weeks. Today I received a phone call from the paediatric consultants secretary asking myself and hubby to go in tomorrow at noon. I’m terrified. Has anyone else got experience of this? What’s scared me most is that they have asked me to bring hubby. They have requested that we don’t bring DS. I don’t even know what I’m asking for on this thread, maybe someone that has been in a similar situation? Thanks x

OP posts:
Are your children’s vaccines up to date?
Set a reminder
lizzielizard · 29/06/2022 17:38

I'm not a big user of Mumsnet but I've become massively emotionally invested in this little lad and his mother and so if @nearlymumof5 does set up a part two, how will I find it?

paradyning · 29/06/2022 19:21

nearlymumof5 · 29/06/2022 14:50

@BookwormButNoTime thank you for the heads up. He’s been very poorly with pain today but I’d prepared myself due to your comment. He’s still in HDU but mainly because of lack of beds up on robin ward (I think). Still taking each day as it comes and so grateful to be here and for him to be treated xx

Robin's is the neuro ward so that would make sense. Lovely team there x

GalaxyAddict · 30/06/2022 00:19

Who was the surgeon, was it Jay Jayamohan? I use to work at the JR and always felt a bit star struck if he got into a lift with me. The peads neurology team there had a tv series a few years ago & Jay has a book he wrote about his job as a surgeon there

kateandme · 30/06/2022 05:44

Frazzled2207 · 29/06/2022 16:19

wow op I don't know how you're managing with 6 children but manage you will!

Sorry to hear he's been poorly today but I'm sure that will be expected after such a major op. Be aware that this thread will fill up, I'm sure we'd all really like to continue to send supportive messages if you set up a part two x

Was just about to say this will stop receiving replys soon

kateandme · 30/06/2022 05:48

I'm glad you've got the family to all bolster round you. Those kids will come in handy right now hehe.
It's all happened so quick for you.remember to take some breathes.time to sit and take it in if you can.hug the other 5 hard.how are they all doing?it must be alot.

Original poster
nearlymumof5 · 30/06/2022 07:41

Thanks everyone, do I link this thread to the new thread? I’ve no idea what I’m doing 😳

OP posts:
Tonkerbea · 30/06/2022 07:45

Thinking of your DS this morning xx

saraclara · 30/06/2022 07:52

nearlymumof5 · 30/06/2022 07:41

Thanks everyone, do I link this thread to the new thread? I’ve no idea what I’m doing 😳

Start a new thread by making a new OP. Copy the url and paste it into your next post on this one

Katyaadlerscoat · 30/06/2022 08:31

Are threads only 20 pages now?

queenrollo · 30/06/2022 08:58

Katyaadlerscoat · 30/06/2022 08:31

Are threads only 20 pages now?

mine says 40 but either way, threads are full at 1000 posts and this one is getting close to that.

saraclara · 30/06/2022 09:30

Katyaadlerscoat · 30/06/2022 08:31

Are threads only 20 pages now?

It depends on your settings and how many posts you have to a page. I chose 100 posts to a page, so I'm coming to the end of page 10 on this thread. The maximum posts per thread is always 1,000

Dibbydoos · 02/07/2022 21:21

nearlymumof5 · 24/06/2022 00:13

I just knew, I knew deep down and felt so silly for pushing but I’m so glad I did. The consultant today was almost praising himself for getting a diagnosis relatively quickly (4 weeks since we had our first appointment with him) forgetting the fact that I had to loose my shit for him to change his referral from routine to urgent for the mri, otherwise we would have had another 6-8 weeks to wait for the scan … sorry I’m venting and probably not making any sense

I can't believe how long we wait to diagnose cancer and then faff around before treating it.

Cells replicate every 2-4 hours. If you have 10,000 cancer cells, you'll have over 41% more every 2-4 hours. Waiting even a day with this % increase is complete madness.

My cousins hubby is dying because whilst they knew he had secondary pancreatic cancer in his liver, they took 4 weeks to scan him for his op (and only after I told them to play merry hell) and then found the tumours were too big to operate. Chemo hasn't worked so he's on palliative care at the age of 50. Either we fund the nhs properly or it moves out of the way for private.

I'm so glad your DS is recovering, OP. I do hope they got all the cells and he can live his life without worry xxx

Firstshoes · 02/07/2022 22:31

Dibbydoos, totally agree with everything you just said. Thinking of you OPxx

Charl881 · 06/07/2022 21:28

Hope your son is doing ok OP, been thinking about you.

New posts on this thread. Refresh page
Swipe left for the next trending thread