Called back to consultant after DS brain MRI

[nearlymumof5]

hello, my DS aged 7 has been having nausea, sickness and headaches since November and through lots of pushing managed to get an MRI which was on Monday eve - we were told to expect results in 2 weeks. Today I received a phone call from the paediatric consultants secretary asking myself and hubby to go in tomorrow at noon. I’m terrified. Has anyone else got experience of this? What’s scared me most is that they have asked me to bring hubby. They have requested that we don’t bring DS. I don’t even know what I’m asking for on this thread, maybe someone that has been in a similar situation? Thanks x

Obviously, I can't say for sure. But when my very young relative was diagnosed with a brain tumour, she had gone in for an MRI and they told her parents there and then (as in that day) and she didn't leave the hospital or anything. She had been quite poorly though and had been admitted to try and find out what was wrong with her, so slightly different , but I would have thought if they had seen something really worrying they would have told you straight away (she survived and is now doing well years later).

You must be so worried though, waiting for any result like this is horrible, but hopefully it is nothing too scary.

Best wishes for tomorrow
🤞🏼they've found what's making DS so unwell & that it's something relatively minor they can fix for him!

Best of luck for tomorrow OP

Best wishes for tomorrow.

Same happened to us for our dd who was having severe migraines. Had the mri on the Tuesday and a call the next day to go in. Our dd had fluid on her brain and they'd asked us to not bring her as they felt talking about the procedure with her there would be worrying for her. She was 12.

She's at uni now

The waiting is the worst bit... sending a big unmumsnet hug

Thank you, this is really helpful

Thank you, I’ve not mentioned the appointment to him as I don’t want him to worry about it, health wise he’s having a ‘well day’ today, this mornings nausea didn’t last too long xx

Crossing everything for you that it's all ok.

Best of luck for tmr. Bring a notepad & pen in case you can’t record the meeting. It may help xx

Wishing you luck for tomorrow.

I really do appreciate everyone’s encouragement, I’m sorry I’m not replying to everyone - first time I’ve ever posted on a forum so not sure of the etiquette 😳 I’m also grateful to those that have praised me for pushing for him, I felt very silly a lot of the time and that I was blowing things out of proportion but I think it shows that mums know best x

We have sort of been where you are. My daughter was much younger but we were called in for an appt and told that MRI brain findings were not what they expected.
What I would say is that the consultant will be able to tell you exactly what they've found and what they think of it, even if they're not sure and need more tests. They will likely have already discussed it with colleagues and they will already know what the next steps should be. They'll be prepared for you and will be kind and compassionate but also honest. That's always been our experience anyway. Thinking of you.

Good luck with your meeting tomorrow. I hope it’s not too serious.

Good luck tomorrow, I hope the news is as positive as it can be

Keep us all informed op and hoping it nothing to worry about

I will keep everything crossed for him OP. Let us know how it goes. 🍀 🤞🏻

Good luck x

Thinking of you 🤗

Sending huge best wishes OP.

Of course you must be feeling so worried you poor thing.
Can I suggest some things.

Sit quietly for a few minutes, eyes closed.
Deep breaths.
Acknowledge 'I am feeling really worried about tomorrow. I'm afraid of so many possible things. A big part of me is extremely anxious about what might happen'.
Allow yourself a cry if you need to.

Remind yourself 'I don't know anything yet. Nothing I do now will change the information coming tomorrow. I'm going to put this on the shelf and take it back down tomorrow'

Be prepared for a sleepless night. Have a light book and a good movie picked (Bridesmaids or something silly). Don't just lie there awake if you can't sleep.

I hope very much for you that news is all manageable and not serious. And most importantly that your boy improves abd feels better.
Hugs ❤

I had similar back in the autumn for my DD. She had an MRI due to nausea, headaches and papilledema. They rang me a couple of days after (in the evening, that scared the shit out of me) and asked for me to take her in the next day for treatment. She's got an obscure neurological condition which we're still dealing with. I've had lots of waiting around for test results so I know how you must be feeling, it's bloody awful; all while acting normal for your child.

I kept a notepad for info and asked them for spellings of stuff (they don't half talk some twaddle sometimes with acronyms and medical language). I'll keep my fingers crossed for you.

I was first going to say I'm sorry, yes very concerning, will be thinking of you. Secondly someone beat me to it but I would record the meeting on your phone if possible (just audio) based on these circumstances I suspect they will have information to tell you apart from the findings, and if the news isn't great you may find it hard to process that information, that's the other reason why they asked you to bring your husband. It may not be exactly what you are thinking but my heart goes out to you. I've been through repeated mris with dd for seizures, results normally take ages.

Good luck for tomorrow OP. Wishing you all the best.

Sending love to you OH and strength for tomorrow’s appt, there’s some sound advice on this thread and @DancyNancy talks a lot of sense about managing anxiety tonight and tomorrow morning ❤️❤️

@DancyNancy this is so incredibly helpful, thank you