DLA Wait Times - Part 27

[FlutterByASD]

New thread following on from part 26

My daughter with Down syndrome and sever hyper mobility was declined our MR for HRM today. She is also currently being assessed for autism. I'm so disappointed for her and feel very deflated when things are already hard enough. I'm going to take it to tribunal

21/9

DWP are horrendous. My husband is an above knee amputee and struggled to get low rate mobility.

@ohhollyfred that’s unbelievable!
I am currently gathering more evidence as I know he’ll be refused HRM. He has serious heart conditions too & has absolutely no understanding of any of them. I will fight on! We have to for our kids x

Scan date 21/9, currently on hold. Really feel it will be declined, I sent to forms in September when LO was 21 months. ASD pathway but not diagnosed yet. Sent his Section 23 and his Schedule Of Growing Skills, his ASQ at the time and his SALT referral sheet. Just really worried and would love to know I could use the money for extra hours at nursery when he starts his 15 hrs in April, and that nursery would be able to get funding for his needs whilst there. This is literally a whole new world for us. Best of luck to everyone xx

@ohhollyfred I'm sorry to hear your MR was declined. What date did you put in the MR please? I'm worried we are going to have to do tribunal also 😔

Just found this thread, scan date 29/09, hoping to hear soon

Really? That's terrible. I guess people do not understand things unless they was faced with them. Don't let it bother you 😊

I’m sorry to hear this. Keep going, you’ve got this! So sad we have to fight for what our children deserve x

Just seen on Facebook someone woke up to money and forms scanned 26-10 it’s ridiculous

And another with DM from 23rd

Is it true that they are only allowed to approve a certain % of appeals each month to fit with their targets??

My MR was sent in on 28 November. I called last week and the lady said it accidentally not been put in the queue so she said she would fast track it. I then got a letter from them on 19 Jan saying we are looking again at your request and will be back in touch within 11 weeks then a second letter dated 21 Jan saying exactly the same apart from 15 weeks instead of 11 and then today I called to question the letters and get told it's been declined. All the while lots of people with MR scan dates similar to me are being approved. I'm not questioning whether or not they should have been approved but I'm feeling like they 'forgot' about my MR then rushed it through without proper consideration and potentially with no more room in their % target to accept anyway whereas If it had been looked at in its correct order and timescale the outcome might have not been rushed and might have been at a stage where they were permitted to accept

Finally answered. Confirmed that it's now with the CM. Scan date 21/9

Can I ask, did you already have an award and were doing an MR to get HRM? x

I can imagine hoping they change there mind for you

Yes she already receives HRC but I put the application in for HRM on 8 June when she turned 3

Hey! I've received two letters so far, no texts. Scan date 17th October. Is no texts a bad thing? Got to rush of my daughters early help plan and we've now got a family support worker after months of asking for some help! Fingers crossed.

@ohhollyfred my son got HRM between ages 3-6 years but he was very late to walk due to his many health issues. He’s now 13 & will get enhanced rate for both when he goes over to PIP in less than 3 years time, so why is he not entitled to it now?! Can your daughter walk at all? I’d definitely recommend seeking help from Citizen's Advice, they helped with my son’s application at that age x

Scan date 28/9 feeling really anxious now my son is 15 next month had two knee ops which has affected his mobility recently been told he has dyspraxia which is why physio isn’t working on his knee recovery but too old to formally diagnose he just got a letter from OT saying he was on the bottom centille will he age make a difference as pip starts from 16

I hope ots not a bad thing. I've had 2 letters, no texts, scan date 25/10

Im 13/10 one letter 1 text and the text was this week week 15

Don’t worry I think 2 letters and no texts seems to be the norm for your scan date, you should receive your first text at 15 weeks I believe x

Lovely thank you 😊

I’ve only had 2 letters, no texts. Will be 15 weeks next Thursday, so will see if I get one then?!🤷‍♀️ x

4/10 new claim just rang no decision said not even close to 1 yet maybe hear bk in March!! I hope not taking mick now

Also

Renewel due to end 22nd Feb decision been made he has been awarded same rates till 2026 which is HRC & LRM I do feel he should get HRM to but not sure if it's worth appealing or not has anyone else appealed for HRM and been successful if so any useful info to help please thanks x