DLA Wait Times - Part 27

[FlutterByASD]

New thread following on from part 26

@Liddyj Amazing!!! Well done! X

i have left sooo many messages on my journal 🙄 I’ll call tomorrow I think x

@JB233026 im the same as you scan date 12/10 first time so anxious and I've had 2 letters and 1 txt. I called Monday he said should hear middle of Feb x

I rang yesterday scan 23/9 and she told me it was with the DM . Does anyone know if anything happens after it’s with the DM or is the DM last stage before getting a text?

@Jessyjay11 we have the same scan date as me I phoned Monday and mine wasn't with anyone. They told me once it reaches a dm they can have it for upto 2 weeks but hopefully you will hear soon good luck x

@buddyboy14 @JB233026
I have the same scan date also. 12/10 - 2 letters and 1 text. Hope we all hear soon and it’s good news!

Scan sate 14th November 3 letters no text said it will be more like April time for decision the waiting times are terrible daughter turns 16 in February so not sure what I have to do if still not had a decision by her birthday

Asked for some advice on FB page & apparently autism & Down Syndrome don’t class as SMI. Wow! Some people really are that stupid?!🤦‍♀️
Think I’ll be sticking to this group from now on!

Anyone else on hold this mornin ?

Hey I just spoke to someone on the phone was on hold about 15 mins ☺️

I got all cuffufled and dialled the wrong number at 9 so didn’t get on hold till 9:05 hoping I’m not on hold for hours x

Oh no I hate that!
It's the first time I've called in the morning. So was shocked how quick they answered compared to the hour and 35 on hold last week 🤦
I was just phoning to update that my daughter has more consultants etc my scan date is 03/10 and said I should have a decision in next couple weeks x

28/09 should have a decision first week of feb

19/09 rang today an was declined put in an appeal an will gather more evidence 😞

I'm so sorry 😞 hopefully your MR will be successful. Fingers crossed for you.

What's awful is it makes you even question yourself an child 😭 does she qualify am I doing enough

So sorry to hear that, and how utterly horrid of them to make you feel like that. You are doing everything you can (as we all are, here) and it's not your fault they turned it down. It's a constant fight, I know that. I'll be doing an MR if we are turned down, but I don't think they realise how exhausting and gaslighting it all feels on top of wait times and everything else we go through as parents of kids with additional needs and disabilities.

Sending hugs and solidarity.

I have seen people who have had mountains of evidence with children who clearly require help above and beyond that of a child the same age that have been declined, to then be awarded a high rate at MR. I hate to be cynical and I hope I'm wrong but it seem like sometimes they just have to make a certain amount of declines to reach targets.

Scan date 19/09
called for an update just now, been awarded mrc and lrm on 24th. So happy for my little one.
good luck everyone x

Glad I don’t have Facebook! Of course they qualify as does Global Development Delay x

That sounds horribly dismissive and not helpful at all. I suppose it's because SMI specifically relates to the level of learning disability or impaired intelligence, and not to the actual diagnosis (I've been having a look to see if it's applicable to us). My daughter with Autism isn't going to fit into that category, although her needs are still great. My sister with Downs and Autism definitely would, though.

Best of luck. It's like constantly jumping through hoops.

Oh, I was reading the other day that if someone in the household is SMI you can get a reduction in council tax. I didn't know that.

On hold again.... 45m so far. Hoping for an update

With DM still.... not sure if this is a good or bad thing! 😂

did you have any evidence or diagnose ?

I had physio letters but didn't put in school personal plan which I will send I thought they would contact them etc just devastated x

hotpinkangel19 can I ask what your scan date is please?? X