I posted earlier on in the thread.
I’ve decided to do the change of circumstance, I was initially worried they’d take ds long award of hrc / lrm award if they tried their luck and this is what’s made me not want to attempt it, but don’t know why I’m sweating, my child would literally terrify the the devil himself, in fact I always say ds should have his own rate of dla 🤣🤣 I’m aware it’s a possibility they can downgrade but it’s nothing a MR / tribunal wouldn’t reverse if I’m realistic, so I’m now filling out his coc forms, for HRM.
Couple of quick questions, if anyone can help please.
Its the mobility I want looking at again, for HRM, but I haven’t filled the care side out for 5 years now (he got a 7 year award) so should I just do it all again? his needs are still ridiculously high but comparing him to 5 when awarded and 10 like he is now, are like night and day, his needs have obviously changed over 5 years, so am I best just doing the full booklet again? He couldn’t talk at 5 for example which I documented to dla on the forms back then, but now 5 years on, he verbally abuses anyone who passes his side, he’s completely verbal, so I can’t really say no change, he’s changed massively, but not so that his needs are less, they are more if that makes sense now he’s older. They could look at his whole award again anyway so I would rather they had up to date information to go by. What good is it if they read he’s non verbal from his last forms I filled out but then I’ve sent a piece of evidence for the coc saying he swears at members of the public and threatens to kill them etc.
As for evidence, i have collated a few bits and pieces, including a letter off camhs to show he’s a risk to other people and then I had a chat with his specialist headteacher this morning, she’s writing me a supporting letter, detailing a bad day at school and how he can’t be taken out in the community etc, and what immense support he requires in school to help him function etc, she said she will write she supports us in applying for high rate mobility,
another thing it asks me on the coc when did the worsening mobility start, and if longer than 4 months ago why didn’t I inform them sooner…. I don’t have a date, obviously, it’s just been a gradual thing over the years (and if I’m honest when he was awarded at 5 he should of got hrm and not lrm, but didn’t have the energy to appeal it all) so what do I put? Something a long the lines of, no specific date, ds needs have gradually worsened over the years and since he was already in receipt of dla and his needs haven’t improved they’ve only worsened (ie I don’t owe you any money so jog the fuck on 🤣) I didn’t think I needed to inform you. Would something like that suffice?
@KeepGoingThomas tagged you for advice please x
If we got the mobility car it would at least help me drive the 1300 miles a month I have to drive him to and from school since he’s been banned from transport. 🤔😩 why do they make everything so difficult.