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dla part 11

972 replies

megan345 · 26/04/2023 16:30

new thread

OP posts:
Are your children’s vaccines up to date?
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Mumof4amaxingboys · 24/06/2023 20:42

ItsBritneyBitchhhh · 24/06/2023 19:39

On Monday we’ll finally be on week 14🥳 I’m not calling at all until week 15 to see what’s happening. Thank God we’re finally near the end!

DD has just had an initial assessment on Thursday and they said many factors point to Autism. I find her more challenging to care for than my DS who has a genetic disorder but have absolutely no energy to do a claim for her. Maybe in the new year!!

Fingers crossed to all those waiting🤞 our scan date is 20th of March so I hope we hear soon

Oh that's great news. 2 of mine have diagnosis of autism and was a very long process for assessment. On the waiting list for my youngest now too. It is a huge struggle but will be worth it in the end to get them all the help they need 🙂
I hope you get the right support from school etc for her 🙂.

Autism is a struggle for us and the lil ones but I find as long as they stick to their very strict routine's life is a lot easier for them to understand and frustration and anxiety is usually kept to a minimum 🙂
If you need any advice drop me a pm Any time 🙂

Good luck with your claim too that will be a massive help 🙂🙂

Pk12 · 24/06/2023 20:58

Mumof4amaxingboys · 24/06/2023 17:12

Wow congratulations 🎊. Life changing 😁
We're still waiting, it was with case manager on Thursday when I rang up still haven't heard anything. But she did say not all case managers are able to text so I'm going to ring up on Monday to see if there's any progress. 🤞🤞

Fingers crossed for you. I hope you get good news

Mumof4amaxingboys · 24/06/2023 21:01

Pk12 · 24/06/2023 20:58

Fingers crossed for you. I hope you get good news

Thank you so much 🙂 x 🤞🤞🤞

ItsBritneyBitchhhh · 25/06/2023 03:28

Mumof4amaxingboys · 24/06/2023 20:42

Oh that's great news. 2 of mine have diagnosis of autism and was a very long process for assessment. On the waiting list for my youngest now too. It is a huge struggle but will be worth it in the end to get them all the help they need 🙂
I hope you get the right support from school etc for her 🙂.

Autism is a struggle for us and the lil ones but I find as long as they stick to their very strict routine's life is a lot easier for them to understand and frustration and anxiety is usually kept to a minimum 🙂
If you need any advice drop me a pm Any time 🙂

Good luck with your claim too that will be a massive help 🙂🙂

I’m quite lucky that I contacted the GP about my concerns in April and by June DD had her initial assessment despite being told it was approximately a 9 month wait! She’ll have a referral to have a more in-depth assessment with a team who can legally diagnose her (if that makes sense!)

She only just turned 2 in May but I can already see that sticking to a firm routine causes her less stress and she finds it easy to carry on with her day. Thank you so much for your support, it’s really great that we can reach out to those on the thread who are going through similar situations as I sometimes find it quite difficult to deal with my daughter.

I’m really happy that one of your children have been awarded already. I hope your other child is awarded what they deserve too. Good luck with the assessment for your youngest when the time comes🤞 Xxx

Mumof4amaxingboys · 25/06/2023 07:13

Wow I'm so glad they're seeing her nice and early a diagnosis helps so much 🙂. And starting school with a diagnosis will help her education ten fold. As they can get any provisions I'm place for her. (I know you probably don't want to think about her starting school yet but always best to plan ahead 🤣)

ItsBritneyBitchhhh · 25/06/2023 07:18

No you’re absolutely right!!

My DS is 14 months old (the one I’ve done the claim for) and he has a rare genetic disorder. He has such a massive care team and will certainly have a EHCP in place. He may need to go to a specialist school but we’ll only really know as he gets older.

It’s reassuring to know that DD will also start school with the help and support that she’ll need! I wouldn’t want either of them to struggle at all.

Sorry to derail the threads peeps but thank you so much for your kindness @Mumof4amaxingboys Have a great day and pls do keep us updated with the status of your claim. Hope it’ll be great news for both of us🤞 xx

Mumof4amaxingboys · 25/06/2023 07:26

Oh yes it's always best to have a plan in place or you will be sick with worry as you get closer and closer 🙂. Good luck.

And thank you I think I need all the luck I can get right now the further and further past the 15 week mark the more I'm thinking I'm going to be turned down. I'm getting the phone 9 am Monday morning 🤣.

ItsBritneyBitchhhh · 25/06/2023 07:27

Mumof4amaxingboys · 25/06/2023 07:26

Oh yes it's always best to have a plan in place or you will be sick with worry as you get closer and closer 🙂. Good luck.

And thank you I think I need all the luck I can get right now the further and further past the 15 week mark the more I'm thinking I'm going to be turned down. I'm getting the phone 9 am Monday morning 🤣.

Exactly that. I have bad enough anxiety as it is!!

What week are you on now? Certainly give them a call on Monday morning, try not to worry!

Mumof4amaxingboys · 25/06/2023 08:22

ItsBritneyBitchhhh · 25/06/2023 07:27

Exactly that. I have bad enough anxiety as it is!!

What week are you on now? Certainly give them a call on Monday morning, try not to worry!

My scan date is 10th March so my 15 week mark was Friday. I rang up on Thursday morning amd was told it was with the case manager and I should hear something very soon. 🤞
I thank the Lord for mumsnet amd these threads its keeping my anxiety down slightly. The closer you get the date the more negative thoughts start running through your head like what if I didn't send enough evidence or I put the wrong amounts and time taken to do every day activities.

Zoemelia · 25/06/2023 16:47

Is anyone wanting for change in circumstance decisions scan date 4th April

Mumof4amazingboys · 26/06/2023 08:59

Is anyone with 10th March scan date still waiting to hear anything? X 🙂

ClaireKie73 · 26/06/2023 09:18

Hi, my DS scan date was 9/03, I phoned Friday 22/06 told it was with the case manager. The lady I spoke to said we should hear something this week. It will be 16 weeks this Thursday for us.

Mumof4amazingboys · 26/06/2023 09:19

Great News Just phoned up and was told my DS was awarded on 22nd back dated to 8th February. Scan date 10th March.
LRM MRC. I am so so happy 😊.
Thank you so much for all the support throughout this long process. And good luck with your claims all 😊

ItsBritneyBitchhhh · 26/06/2023 09:29

Just got off the phone to check whether the additional evidence I sent off has been received yet (didn’t do tracking😣).

Also asked about the status of the claim and it’s still in holding. Scan date is 20/03 and he said it should be with a decision maker sometime next week. If you’re a week before us then hopefully you have a decision made this week!!🤞

ItsBritneyBitchhhh · 26/06/2023 09:30

Mumof4amazingboys · 26/06/2023 09:19

Great News Just phoned up and was told my DS was awarded on 22nd back dated to 8th February. Scan date 10th March.
LRM MRC. I am so so happy 😊.
Thank you so much for all the support throughout this long process. And good luck with your claims all 😊

Absolutely amazing!!! So have both of your kids now been awarded? So happy for you and your babies🙌

Mumof4amaxingboys · 26/06/2023 09:35

ItsBritneyBitchhhh · 26/06/2023 09:30

Absolutely amazing!!! So have both of your kids now been awarded? So happy for you and your babies🙌

Thank you so much 😁 yes 2 of them been awarded now 😁
Good luck with yours now I'll keep all my fingers and toes crossed for you 🤞🤞

ItsBritneyBitchhhh · 26/06/2023 09:39

Mumof4amaxingboys · 26/06/2023 09:35

Thank you so much 😁 yes 2 of them been awarded now 😁
Good luck with yours now I'll keep all my fingers and toes crossed for you 🤞🤞

Great stuff! Thank you so much xx

Mammalamma · 26/06/2023 10:12

ItsBritneyBitchhhh · 26/06/2023 09:29

Just got off the phone to check whether the additional evidence I sent off has been received yet (didn’t do tracking😣).

Also asked about the status of the claim and it’s still in holding. Scan date is 20/03 and he said it should be with a decision maker sometime next week. If you’re a week before us then hopefully you have a decision made this week!!🤞

Today is 15 weeks for us. I called on Friday only to be told I would be looking at the second week of July. So frustrating and just makes me feel like we don’t have a chance 😔

Lovemyones · 26/06/2023 11:13

Well The 12th was a Sunday so there'll be no scan dates then so if 10th have decisions you'll be one of the next as I'm 15 weeks tomorrow they said that should have something hopefully by end of the week so 🤞

Pk12 · 26/06/2023 11:44

Mumof4amazingboys · 26/06/2023 09:19

Great News Just phoned up and was told my DS was awarded on 22nd back dated to 8th February. Scan date 10th March.
LRM MRC. I am so so happy 😊.
Thank you so much for all the support throughout this long process. And good luck with your claims all 😊

Great news I bet your relieved

126t · 26/06/2023 12:11

Hello my child's dla award is due for renewal can someone help me please do I have to send all of the evidence I sent before or just the new evidence

Lovemyones · 26/06/2023 16:34

@pk12 how long after the decision was the backpay paid please if you don't mind the ask?! Congratulations :)

Mumof4amaxingboys · 26/06/2023 20:31

Pk12 · 26/06/2023 11:44

Great news I bet your relieved

Oh god yes so relieved 😊 thank you 😊

Mumof4amaxingboys · 26/06/2023 20:32

Lovemyones · 26/06/2023 16:34

@pk12 how long after the decision was the backpay paid please if you don't mind the ask?! Congratulations :)

I phoned this morning and she told me I was awarded on 22nd June and I should have the money in my account tomorrow as it takes 3-5 days 😊 I hope that helps.

ItsBritneyBitchhhh · 26/06/2023 22:38

Mammalamma · 26/06/2023 10:12

Today is 15 weeks for us. I called on Friday only to be told I would be looking at the second week of July. So frustrating and just makes me feel like we don’t have a chance 😔

Aw try not to lose hope. Tbh a lot of people seem to be saying different things so you may get a decision before that and I may get a decision later than what I was told!

Try not too worry and you can always give them a call for an update sometime next week maybe for a bit of reassurance. Keep us updated🤞