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Dla part 10

1000 replies

Patientlywaitingx2 · 13/03/2023 14:59

Called up today and the wait gets pushed back further and further has anyone been awarded recently

OP posts:
Are your children’s vaccines up to date?
Waitingmummy · 28/03/2023 12:35

@Mariekel just a general text

WouldJudasLeaveIt · 28/03/2023 12:40

Great news Boymom10

Waitingmummy · 28/03/2023 12:49

Just an update guys 😳
Scan date 23/12
Ive been awarded HRC!! I'm soooooooo happy it just proves writing from your heart how everyday is a struggle does correlate to an award, due to age its an 2yr award but anything is better than nothing! Thank you all for your help past few weeks! X

WouldJudasLeaveIt · 28/03/2023 13:00

Aww congratulations Waitingmummy

Waitingmummy · 28/03/2023 13:05

@WouldJudasLeaveIt thank you xx wishing you get a positive outcome x

Mariekel · 28/03/2023 13:14

@Waitingmummy thankyou I thought it was as my scan dates 17.2 .23 I rang last week and they said it's taking 14 weeks

Lodol · 28/03/2023 13:34

I got the same text this morning my scan date is 19/01 is yours similar?
I also got a letter about 3 weeks ago confirming the same. I phone last week to check some additional info had been received and they advised me it’s another 4-6 week wait

ToughMum · 28/03/2023 13:38

Well pleased for you! @Waitingmummy

Mariekel · 28/03/2023 13:54

@Lodol hi yes mines the 17.2 when I called Fri they said 14 weeks I'm on week 10 today so hopefully just another 4 to go. I got the letter aswell around 3 weeks ago. @Waitingmummy congratulations finally your wait is over

Mariekel · 28/03/2023 14:15

17.1 not the 17.2 lol got fat fingers going on today catching all wrong letters 🤣

Boymom10 · 28/03/2023 14:17

thank you everyone ❤️

Snickerdoodles19 · 28/03/2023 15:08

@Boymom10 fantastic news! So relieved for you xxx

AnxietyMumma · 28/03/2023 16:55

Massive congrats guys... seems like everyone here is getting their awards which so good to see!!

Boymom10 · 28/03/2023 18:35

@Snickerdoodles19 awww thank you 😊 xxx

Myworld1957 · 28/03/2023 21:55

It’s such a worry when your waiting isn’t it. My son has ASD, SPD, OCD and epilepsy, and waiting to be seen as they think he has Tourette’s and/or tick. I sent hospital letters and wrote 26 pages of additional information. I always worry as a few years ago they turned me down. I appealed and I won and they backdated the 10 months. I try to give so much so we’re not in that position again but it’s such a nervous time isn’t it.

megan345 · 29/03/2023 00:19

Hey everyone! been following this thread for a couple days as have been trying to estimate how long we have left😂 i rang for forms 04/01 and sent them off 13/01, i got a letter to say they received my claim and a letter to send off my childs birth certificate which came back to us about 3 and 1/2 weeks ago, i misplaced the letter though that said when our scan date was so just wondering how long it roughly is if you sent your letter with the freepost envelope?

my sons is a new claim as well, and he’s 11 months old! he’s got a genetic deletion that causes severe low muscle tone, epilepsy etc! i didn’t get to send off much evidence as we are still being referred for services since moving cities. but did send the geneticists letter, prescription letter and some other documents about his epilepsy.

Hope we hear back sometime soon! and would love to chat with you all😊

Daisymum18 · 29/03/2023 08:38

I'm currently on week 8 they got my daughter claim on 6/2 last time I spoke with them I was told 14-15weeks from when they got it so probably won't be looked at till mid may my daughters is a new claim also but I sent recorded ... So they got your son's say end of Jan-ish I'd say may time end of April probably you'll hear something fingers crossed .... I keep toying with calling but I already know the answer it's in the que to be see by a DM probably may 🤷

Sas1410 · 29/03/2023 09:19

Hi all, my claim was scanned 30/12 I've just called now and been told my little one was awarded yesterday. I'm in Liverpool if this helps anyone. Good luck all x

Sas1410 · 29/03/2023 09:20

Hi all, my claim was scanned 30/12 I've just called now and been told my little one was awarded yesterday. I'm in Liverpool if this helps anyone. Good luck all x

Lodol · 29/03/2023 09:50

I just wondered does the wait to receive a decision go from the scan date or the date you phoned?
many thanks

Sas1410 · 29/03/2023 10:04

@Lodol they told from the scan date, but they backdated my award to the day I sent the form which was the 12.12.22 it was scanned on 30.12.22 x

Myworld1957 · 29/03/2023 11:14

That’s amazing

Myworld1957 · 29/03/2023 11:14

@Boymom10 that’s amazing

AnxietyMumma · 29/03/2023 11:56

They only backdated my sons claim to the scan date, not the letter dare as it was received after the cut off due to royal mail strikes. Which they are obviously aware of. Its annoying but at least he has a claim in place now. Its also only til December 2024. Is that normal? He's 7 and is on HRC and LRM. I can't see his needs getting better. He's on the waiting list for ASD, ADHD, has sensory overload and presents as PDA

Sas1410 · 29/03/2023 15:50

@AnxietyMumma that's what my little girl got for the same reasons, the man on the phone said to me we were awarded for 2 years that's the standard award time so maybe its the norm x

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