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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

What is going on in this house?

429 replies

Neighbourmystery · Yesterday 18:14

Right, this is going to sound nosy but here goes...
A house in a street I know was owned by an old lady with no family. When she died, her house stood empty for nearly a year then it started having work done. It's been bought by a health service far away from he town we live in (think I live in Liverpool and NHS Devon and Cornwall bought it) BTW these are not the real locations. So, they do lots of renovations, including putting a much higher fence up which has a key code entry they also put frosted film on every window. There's a new build extension on the side with coded keypads too. This is where 2 carers are. There are 4 carers altogether, 2 at a time and then a swap. There is one man who lives there . He is in his 30s , able bodied can move well etc I've seen him once or twice in the garden in a whole year. Another twice I saw a darkened van come to get him. He was only gone for an hour or so then back.
I cannot imagine the scenario this might be. I'm not curtain twitching and permanently watching but I am fascinated.

OP posts:
likelysuspect · Today 18:24

Gwenhwyfar · Today 10:29

I think 90 minutes is very far and a VERY long commute. When you say, many people do it, what kinds of people? I would think it's only worth it for extremely good jobs on very high salaries and possibly people working around London. Why would someone in a normal job spend 3 hours commuting daily?

The carers are staying over when they're on shift I suppose, but we don't know where they are the rest of the time, whether they live locally and work for the far away trust or they commute from that one every few days.

My OH does it, 80 miles into london, train is too expensive and would take too long anyway, hes not on a high income, he works for public services. He has never been able to get a job local to us. So he drives in, takes ages.

likelysuspect · Today 18:39

LivelyGreyShark · Today 18:28

It can actually be a lot more expensive to have people who need supported living in a hospital than in a private house in the community as a lot of these hospitals are run by private companies https://www.mencap.org.uk/press-release/over-half-billion-pounds-year-spent-locking-people-learning-disability-and-or

The trouble with that article is that it doesnt give enough detail about exactly why these patients were detained. It also mentions hospitals, are these private hospitals that the NHS are outsourcing to?

Pileoftrash · Today 18:59

BoredZelda · Today 17:52

I expect this is the kind of rage OP is after. Either that or “how dare this guy live in my community”

All under the guise of “I’m so curious”

No rage here, simply surprised that this is a thing that happens, never heard of it before. Still can't quite believe the state pays for this (given the dire situation most public services find themselves in), there must be a very good reason for it.

I am aware of sheltered housing (& have two of these schemes v near me) and I have a friend whose disabled brother requires 24 hr 2-on-1 care and lives in a home so just assumed these were the only options.

Of course these are expensive too. And of course I am very happy to pay for this via tax.

Having an individual on their own with multiple carers seems very risky in terms of quality of care, there is something reassuring about a more communal setting with constant management presence etc. But I guess the risk of having them near others must outweigh this risk.

Still wild that this is a thing imo!

EineReiseDurchDieZeit · Today 19:14

Sorry I’ve read about 75% but not all of the thread

@Neighbourmystery have you researched the NHS Trust they are from ? It’s clear that a mental health trust is a mental health trust, it may yield answers.

Stressedandgrey · Today 19:17

LaurieFairyCake · Yesterday 18:30

It’s a half way house for ex offenders

sounds exactly like one on the street round the corner from where I used to live

Being an ex offender doesn't require carers.

It will almost certainly be a social care placement for someone with complex learning/mental health difficulties who requires 2:1 care.

This is not uncommon if you have someone who is large/strong and can lash out if dysregulated.

OwlBeThere · Today 19:18

ForeverNowWithin · Today 14:30

well that won't be the case for every person but lots of people who clearly seem to have in depth knowledge of this sort of assisted living facility have said that it's often used for service users who cannot safely be around others in a shared residential setting. So apart from family who may visit periodically, then yes it would be EXACTLY like being in solitary confinement with no other residents to socialise with, and only staff.

living in a shared residential home and being able to spend time with other people are two entirely different things. No one is saying that people can’t have visitors and social interaction, it’s just safer that they don’t share a home with many other people who are also vulnerable. Also in their own home they will have a kitchen and a bathroom and living area where they can autonomously feed themselves and entertain themselves, someone in solitary confinement has no such ability. residential homes often have communal dining areas, for some people this is a huge trigger point and it’s not safe for them to do that. At home they can eat with a family member or a friend and carers. In a residential care if they can’t eat in the dining room it means being alone in their room to eat.

CrayonCritic · Today 19:22

Blimms · Yesterday 18:15

This is taking nosiness to a whole new level.

Seriously? This is a mystery movie level style set up and if you wouldn’t be curious then that makes you very much not the norm!

OwlBeThere · Today 19:23

User867536 · Today 15:37

Exactly this. Can people stop tiptoeing around the fact that extremely schizophrenic or autistic men prone to violent outbursts aren't dangerous and it's offensive or politically incorrect to imply they are.

OP, I would also bet on it being a halfway house or assisted living. I know some male adult schizophrenics and you won't guess there's anything wrong with them at first glance, but they essentially require 24 hour care to live normally.

The expense would be justified if it prevents them from committing a horrifying, nonsensical crime like the ones mentioned above.

why are you specifying men as if women with the same diagnosis aren’t capable of the same things?

OwlBeThere · Today 19:26

ThreadGuardDog · Today 17:03

Not quite that simple. At £23,250 or more you are responsible for funding yourself until you fall below the limit. If your assets are between £14,250 and £23,250, the council will expect you to contribute £1 per week for every £250 you have between these two figures. It’s not until your savings fall below £14,250 that they are no longer counted in the financial assessment, and any income you have will still be counted using the minimum income guarantee. It’s only if your income falls below this that you won’t be asked to pay the full cost of your care, minus any disability related costs.

Excellent post.

I would also add the rules are the same for anyone who needs care at home. It’s just less likely that a person who is young and has complex high support needs will own a house in the first place, because they are disabled. So the insinuation that old people are being shafted whilst this young man rakes in tax payer money is ridiculous.

PyongyangKipperbang · Today 19:28

OwlBeThere · Today 19:23

why are you specifying men as if women with the same diagnosis aren’t capable of the same things?

But they're generally not.

Women are usually smaller, lighter and not as strong, thats a biological fact.

And then there is the statistic that the vast VAST majority of violent acts are carried out by men. Put the two together and yes, it is far more likely to be men.

ThreadGuardDog · Today 19:31

Aluna · Today 17:31

Dementia on its own is not complex care.

As noted you only qualify for state care with savings under ~£23k.

State care for dementia would be at most 2-4 visits a day. Supposedly up to an hour, generally 10-20 mins. When that is no longer sufficient, they are moved into care homes.

We looked after mum at home - dementia, but not classed as complex care. She was assessed as needing four visits a day. Most were around half an hour to 45 minutes long and the carers would offer help around the house if personal care didn’t take up the whole visit. Mum was never moved into a care home because she never needed to be, and didn’t want to be. You can’t just move someone into full time care if they object - regardless of capacity. We had support in place from GP, district nurses and other services, along with a hospital bed in a downstairs room. We were luckier than most in that we were retired and able to move her in with us.

ThreadGuardDog · Today 19:35

OwlBeThere · Today 19:26

Excellent post.

I would also add the rules are the same for anyone who needs care at home. It’s just less likely that a person who is young and has complex high support needs will own a house in the first place, because they are disabled. So the insinuation that old people are being shafted whilst this young man rakes in tax payer money is ridiculous.

That’s an important point - certain posters seem to be making exactly that assumption. And there’s an underlying sense of NIMBY throughout the whole thread.

Blimms · Today 19:35

CrayonCritic · Today 19:22

Seriously? This is a mystery movie level style set up and if you wouldn’t be curious then that makes you very much not the norm!

I probably just have more going on in my life.

ThreadGuardDog · Today 19:41

PyongyangKipperbang · Today 19:28

But they're generally not.

Women are usually smaller, lighter and not as strong, thats a biological fact.

And then there is the statistic that the vast VAST majority of violent acts are carried out by men. Put the two together and yes, it is far more likely to be men.

My experience was via disability outreach and support, and that included supporting those living with family members with a range of severe MH issues, Autism and cognitive/learning disabilities. Mostly they were adult children, often times much bigger and stronger than the parents. It’s my experience that the behavioural difficulties and violence these families endured at the hands of their relatives was determined by their condition, not their sex. The levels of violence were similar from both sexes.

IAmKerplunk · Today 19:41

@Neighbourmystery I’m glad you started this thread - I would be curious too if this happened near me. I haven’t read your thread as anything other than you being curious.

It’s also sparked interesting posts from people who have experience and knowledge of social care which hopefully will help educate some people who are ignorant about this kind of thing.

ThreadGuardDog · Today 19:52

Stressedandgrey · Today 19:17

Being an ex offender doesn't require carers.

It will almost certainly be a social care placement for someone with complex learning/mental health difficulties who requires 2:1 care.

This is not uncommon if you have someone who is large/strong and can lash out if dysregulated.

Agree. I’ve seen it in my professional capacity. I’ve supported families living with adult children suffering from these conditions who are violent and family members have been repeatedly assaulted. Many have safe rooms where they barricade themselves to avoid harm during meltdowns. Support and provision is patchy across the country and these people are difficult to place into care settings, for obvious reasons. Often these secure assisted living places are far away from their original home towns - provision is non existent in some areas, and funding is complex.

likelysuspect · Today 19:53

ThreadGuardDog · Today 19:41

My experience was via disability outreach and support, and that included supporting those living with family members with a range of severe MH issues, Autism and cognitive/learning disabilities. Mostly they were adult children, often times much bigger and stronger than the parents. It’s my experience that the behavioural difficulties and violence these families endured at the hands of their relatives was determined by their condition, not their sex. The levels of violence were similar from both sexes.

Edited

Same here, the vast majority of children Ive had under DOLs are female teens. Huge amounts of criminal damage and frequent assaults on staff.

Blueberrybonanza · Today 19:55

Aluna · Today 17:56

The poster you were responding to referenced specifically dementia or infirmity.

Your response only related to complex care which is not the same thing.

When I had already told them that I was talking about complex care, hence the dementia infirmity angle I took as their continuing argumentative posting.
have you read the whole thread? You would then see posts in a logical order

ThreadGuardDog · Today 19:56

Devonshiregal · Yesterday 22:29

Wouldn’t be nhs carers though would it? And the government/council/etc aren’t usually so helpful so as to do up a house and provide live in support in an entirely different county for one seemingly able-bodied person. Usually people are begging for basic care even when in dire need.

It would be LA carers and the funding would depend on the circumstances. If someone has their own funding pot they would be expected to contribute until they are below thresholds for funded care.

Aluna · Today 20:09

ThreadGuardDog · Today 19:31

We looked after mum at home - dementia, but not classed as complex care. She was assessed as needing four visits a day. Most were around half an hour to 45 minutes long and the carers would offer help around the house if personal care didn’t take up the whole visit. Mum was never moved into a care home because she never needed to be, and didn’t want to be. You can’t just move someone into full time care if they object - regardless of capacity. We had support in place from GP, district nurses and other services, along with a hospital bed in a downstairs room. We were luckier than most in that we were retired and able to move her in with us.

So essentially your mother was living with family - who are primary carers and the social care was simply in addition.

That’s a very different scenario from someone who lives alone. With later stage dementia 4 visits is nowhere near sufficient, they need someone with them 24/7.

For social care assessment the value of a person’s home is included as total capital if moving into a care home, but generally ignored they stay in their own home.

Your mother did neither - so I guess you didn’t sell her home when she moved in with you otherwise its value would have counted towards her total assets and presumably she wouldn’t have qualified for state care.

You certainly can move a person into a care home against their will if they lack capacity (assuming they actually understand the question). It may be the only way to safeguard them.

Aluna · Today 20:16

Blueberrybonanza · Today 19:55

When I had already told them that I was talking about complex care, hence the dementia infirmity angle I took as their continuing argumentative posting.
have you read the whole thread? You would then see posts in a logical order

I did read the thread, it’s a moot point who was more argumentative tbh.

Aluna · Today 20:29

OwlBeThere · Today 19:26

Excellent post.

I would also add the rules are the same for anyone who needs care at home. It’s just less likely that a person who is young and has complex high support needs will own a house in the first place, because they are disabled. So the insinuation that old people are being shafted whilst this young man rakes in tax payer money is ridiculous.

I’ve never said anything of the sort.

But discussion of the increasing numbers of dementia patients is an important consideration within social care. State 121 care is not available at home for elderly people for more than 4 short visits a day unless they require complex care. Once their money runs out they are generally put into care homes which can be very patchy in terms of care provision.

OwlBeThere · Today 20:38

PyongyangKipperbang · Today 19:28

But they're generally not.

Women are usually smaller, lighter and not as strong, thats a biological fact.

And then there is the statistic that the vast VAST majority of violent acts are carried out by men. Put the two together and yes, it is far more likely to be men.

More likely doesn’t mean its never women though, so my question still stands.

OwlBeThere · Today 20:43

Aluna · Today 20:29

I’ve never said anything of the sort.

But discussion of the increasing numbers of dementia patients is an important consideration within social care. State 121 care is not available at home for elderly people for more than 4 short visits a day unless they require complex care. Once their money runs out they are generally put into care homes which can be very patchy in terms of care provision.

Sorry, i didn’t mean to suggest that you said that, i meant the thread in general has people suggesting that. But i didn’t make that clear.

re your second point; the same is true for anyone who needs care. Most people who have LD or MH issues that require lots of care live in group residential accommodation. If that isn’t the case it’s for a very specific reason.
@Neighbourmystery I might have missed you replying, but how do you know that the NHS bought the house?
People are also assuming that this house was bought and renovated for this person specifically, when it could be that the house was purchased and renovated and this person just happened to be the next on the list for this kind of accommodation.
It could also be true that the person bought the house themselves from inheritance or a personal injury payout, and the NHS just provides the care.