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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

What is going on in this house?

423 replies

Neighbourmystery · Yesterday 18:14

Right, this is going to sound nosy but here goes...
A house in a street I know was owned by an old lady with no family. When she died, her house stood empty for nearly a year then it started having work done. It's been bought by a health service far away from he town we live in (think I live in Liverpool and NHS Devon and Cornwall bought it) BTW these are not the real locations. So, they do lots of renovations, including putting a much higher fence up which has a key code entry they also put frosted film on every window. There's a new build extension on the side with coded keypads too. This is where 2 carers are. There are 4 carers altogether, 2 at a time and then a swap. There is one man who lives there . He is in his 30s , able bodied can move well etc I've seen him once or twice in the garden in a whole year. Another twice I saw a darkened van come to get him. He was only gone for an hour or so then back.
I cannot imagine the scenario this might be. I'm not curtain twitching and permanently watching but I am fascinated.

OP posts:
ForeverNowWithin · Today 14:32

Blueberrybonanza · Today 14:28

They absolutely do get 2-1 care if they need it, ICBs commission extra staff to provide it in the care home.

But does the local authority or the NHS pay for 2 full time care staff to look after a dementia patient in the familiar comfort and safety of their own home? Or do they need to sell that home in order to access full time care in the first place?

I think we all know what that poster was driving at and they are absolutely correct.

IAmKerplunk · Today 14:35

ForeverNowWithin · Today 14:30

well that won't be the case for every person but lots of people who clearly seem to have in depth knowledge of this sort of assisted living facility have said that it's often used for service users who cannot safely be around others in a shared residential setting. So apart from family who may visit periodically, then yes it would be EXACTLY like being in solitary confinement with no other residents to socialise with, and only staff.

‘May visit periodically’? You do realise people with very high needs can have loving and caring families who are still very much part of their lives?

You literally have no clue what you are talking about and are just embarrassing yourself with your ignorance.

Blueberrybonanza · Today 14:36

ForeverNowWithin · Today 14:32

But does the local authority or the NHS pay for 2 full time care staff to look after a dementia patient in the familiar comfort and safety of their own home? Or do they need to sell that home in order to access full time care in the first place?

I think we all know what that poster was driving at and they are absolutely correct.

Edited

Yes you can have it in your own home, live in carers if you require complex care.
what you are doing is clearly trying to argue with no actual knowledge of what goes on in the NHS/LA nor how complex care packages differ from run of the mill care nor how and why any of it is funded.

wherethewildrosesgrow · Today 14:44

Iamthemoom · Yesterday 19:05

Hearing about these houses mentioned on the thread with one person and 4-5 nhs carers I’m wondering how it’s decided that a person needs and gets this super expensive package while so many others struggle to get minimal help or care and others are living in bigger group residential care settings. What would make someone able to get such an extraordinarily attentive and expensive set up? Genuinely curious! (Also curious about OPs neighbours on her behalf! I’d definitely be wanting to know if it were me and I don’t consider myself particularly nosey!)

The Only way a person could get 4-1 careers would be if they were likely to become a threat to others.

popcornlova · Today 14:50

My guess is there is a second resident you just don’t see as they aren’t able to come outside. Hence the carers. The man is a family member. That or it’s a lab and they’re experimenting on him

ForeverNowWithin · Today 14:50

Goldengamer · Yesterday 20:06

I’ve got one opposite me, they put that film on the windows , they’ve prob done renovations inside to make self contained living . Ex offenders . We have a nightmare with the one opposite us , drugs mostly

I have an elderly relative who lives in a street of mostly privately owned houses but right opposite are a few 1 bed maisonettes that are owned by some sort of housing association for rehabilitating ex-prisoners.

She didn't know that when she bought her house. The last tenant was no problem but the current one is a PITA. Smoking weed all day, big strong dog loose in the front garden the whole time. Always has loads of people round and they insist on all sitting out in the front garden until all hours with loud music playing. She can't wait for winter to come, to get some peace and quiet and not feel nervous that the big dog is going to bound across the street and get her little dog by the throat every time she leaves the house. It makes her nervous to go out. I believe they get moved on after 18-24 months so hopefully it won't last forever.

ForeverNowWithin · Today 14:52

Blueberrybonanza · Today 14:36

Yes you can have it in your own home, live in carers if you require complex care.
what you are doing is clearly trying to argue with no actual knowledge of what goes on in the NHS/LA nor how complex care packages differ from run of the mill care nor how and why any of it is funded.

So someone with dementia or simply infirmity due to old age could get full time care while remaining in their home, without having to sell their home to access it?

ForeverNowWithin · Today 14:54

IAmKerplunk · Today 14:35

‘May visit periodically’? You do realise people with very high needs can have loving and caring families who are still very much part of their lives?

You literally have no clue what you are talking about and are just embarrassing yourself with your ignorance.

By visit periodically, I was making the point that they do not live there. I am very well aware that many, indeed probably most will have loving families thank you. But I am not going to assume that all do. Hence why I said 'may have.'

Blueberrybonanza · Today 15:03

ForeverNowWithin · Today 14:52

So someone with dementia or simply infirmity due to old age could get full time care while remaining in their home, without having to sell their home to access it?

If you read my post, complexity of care.
but you are not really reading or taking in anyones post just arguing for the sake of it against anyone that doesn't agree with your sweeping outdated pretty nasty narrative.

cutthegraa · Today 15:04

How do you know that are actually carers?

Leavesandthings · Today 15:06

ForeverNowWithin · Today 14:30

well that won't be the case for every person but lots of people who clearly seem to have in depth knowledge of this sort of assisted living facility have said that it's often used for service users who cannot safely be around others in a shared residential setting. So apart from family who may visit periodically, then yes it would be EXACTLY like being in solitary confinement with no other residents to socialise with, and only staff.

You don't know what you are talking about.

TennisLady · Today 15:09

Wanderlust510 · Today 10:53

I literally work in a setting like this as a support worker. The individual lives in a detatched bungalow and has 3 to 1 carers 24 hours a day. We do 12 hour shifts and rotate. Autistic and LD- nothing to do with criminal convictions or anything like that. Secure doors and gates, tinted windows ect for individuals own safety and dignity.

Yeah I have a family member who does this too. They have a carer 24 hours day, a car, house etc. also LD.

Ifeellikechickentonightchickentonight · Today 15:12

@ForeverNowWithin

You are clearly lacking a lot of information about this individual situation, as well as the typical treatment of vulnerable individuals, such as those with LD, more generally.

When we respond to ambiguous information in a confident way it reveals our biases. It's like a Rorschach test for our moral character.

You have reacted to uncertainty by kicking the vulnerable, and so now we all know who you are. Congratulations.

Leavesandthings · Today 15:14

Ifeellikechickentonightchickentonight · Today 15:12

@ForeverNowWithin

You are clearly lacking a lot of information about this individual situation, as well as the typical treatment of vulnerable individuals, such as those with LD, more generally.

When we respond to ambiguous information in a confident way it reveals our biases. It's like a Rorschach test for our moral character.

You have reacted to uncertainty by kicking the vulnerable, and so now we all know who you are. Congratulations.

Absolutely.

Leavesandthings · Today 15:15

Imagine being so confident in your own ignorance.

Aluna · Today 15:23

Blueberrybonanza · Today 14:36

Yes you can have it in your own home, live in carers if you require complex care.
what you are doing is clearly trying to argue with no actual knowledge of what goes on in the NHS/LA nor how complex care packages differ from run of the mill care nor how and why any of it is funded.

For dementia or old age infirmity, if you have under £23,500 in savings you’re eligible for state care. If not you pay for all care yourself.

JosephineCornwall · Today 15:25

Blimms · Yesterday 18:15

This is taking nosiness to a whole new level.

I don’t know, I am with the OP, I’d want to know. My first thought would be maybe the victim of the incident a few years ago in a Wiltshire city, or similar. Don’t want to type anything else as if you know, you would know immediately what I mean.

User867536 · Today 15:37

Weeellokthen · Yesterday 18:48

"He won't be a danger" ! May I bring to your attention the young French boy who was thrown from the Tate modern (2 carers), the 3yr old thrown in crocodile pit (2 carers) .
Not saying this is why he has 2 carers but I don't know why you would assume they are not a danger!

Exactly this. Can people stop tiptoeing around the fact that extremely schizophrenic or autistic men prone to violent outbursts aren't dangerous and it's offensive or politically incorrect to imply they are.

OP, I would also bet on it being a halfway house or assisted living. I know some male adult schizophrenics and you won't guess there's anything wrong with them at first glance, but they essentially require 24 hour care to live normally.

The expense would be justified if it prevents them from committing a horrifying, nonsensical crime like the ones mentioned above.

Beenwhereyouareagain · Today 15:40

Neighbourmystery · Yesterday 18:23

I am not trying to find out in real life. To be clear, I'm just interested. He's very healthy and able so I was just interested about the always 2 carers seperate living quarters and all the security etc

"He's very healthy and able"

How could you possibly know this? Disabilities are not just physical; perhaps he has a MH disorder that prevents him living alone. What if he has CTE or a TBI? Low IQ? An uncontrolled seizure disorder?

I realize you're just curious about why he's there, or what the house is used for, but I can't imagine why anyone would think that the ability to walk and move around means someone is fully capable of living on their own.

CrazyCricketLady · Today 15:48

There is a house by me. High fences, key codes, carers etc. There are 3 people living there but started off as 1 person.

One of those is very unwell presents as "normal" but is a paranoid schizophrenia, psychosis, and dissociative identity disorder, (I talk to my neighbours and their family, we are quite rural and this is the norm, in case you were wondering how I know). Has done nothing to be in a "hospital" situation, just very unwell and can not live alone. They have to live somewhere. The company that runs this care facility is about 100 miles away. They try to keep people where they have grown up.

This could be a similar situation. Never had an issue. I speak to the residents when I see them. All lovely.

IAmKerplunk · Today 15:49

Ifeellikechickentonightchickentonight · Today 15:12

@ForeverNowWithin

You are clearly lacking a lot of information about this individual situation, as well as the typical treatment of vulnerable individuals, such as those with LD, more generally.

When we respond to ambiguous information in a confident way it reveals our biases. It's like a Rorschach test for our moral character.

You have reacted to uncertainty by kicking the vulnerable, and so now we all know who you are. Congratulations.

Well said

Bloozie · Today 15:58

Wow you're getting a hard time. Yes it's none of your business. And true, you don't have a right to know. No, you definitely can't ask - and why would you?

All of this is why you're posting here.

But is it interesting....? Very much yes.

ClovisWrites · Today 16:07

I only know one type of service that places people far away from their original location... (Okay two, another after witness protection.)

NoctuaAthene · Today 16:08

I do think there's a huge, huge difference between living in an institution and living in a residential setting under very serious /heavy restrictions. Both are not 'normal life' as you or I would know it, but I think it's unarguable that one can provide a far higher quality of life than the other, and be much preferable all round not just for the 'patient'/service user but the carers, relatives and other patients/service users. You have to understand that even people who have incredibly high support needs like 2-1 care at all times are still capable of appreciating very small pleasures such as enjoying some fresh air in your own garden, making a cup of tea in your own kitchen, watching TV on your own sofa - arguably these things become even more important when your life is by necessity so very restricted in other ways. And I don't know if you've ever visited a high security psychiatric facility, I have, and trust me even for the most mentally, emotionally and cognitively robust individuals they're not very nice places, they're noisy, busy, no privacy at all, bright lights, uncomfortable environment with little chance to personalise or have home comforts around you, other unwell and distressed individuals around all the time making noise, melting down and sometimes verbally or physically or even sexually lashing out. Yes there are lots of staff but usually they come and go rather than being able to build a relationship with set individuals as usually it will be a group rota to care for all the patients. And for someone who maybe has sensory difficulties, who struggles anyway with interacting with the world, who perhaps has past trauma to deal with, it's really awful and can severely impact how well they function.

Don't get me wrong, sometimes residential or hospital care is necessary and the only available option but if they are someone who is capable of being stable in a residential setting with support (probably less support than in the institution as you can much better avoid triggers and build trust and a relationship with the carers which is so important for many), it seems awfully like punishment to say they don't deserve that money to be spent on them to achieve than tiny bit more dignity and normality, and their only option is long term institutional care. And like I say yes of course packages of care with 24/7 2-1 care are expensive but I reckon it works out the same or even cheaper than the same care in an institution, it's not as though inpatient mental healthcare is cheap after all...

Neighbourmystery · Today 16:10

Bloozie · Today 15:58

Wow you're getting a hard time. Yes it's none of your business. And true, you don't have a right to know. No, you definitely can't ask - and why would you?

All of this is why you're posting here.

But is it interesting....? Very much yes.

Thank you! It's literally a chat forum

OP posts:
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