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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Struggling with husband's cancer diagnosis after years of unequal parenting

354 replies

aponyatblackbirdcottage · 04/08/2026 15:29

I met DH in 2018; we became parents at the very end of 2020 and got married in 2022; our DD was born a year later. So we’re now over five and a half years into having children: DS is six in December and DD was 3 last month.

In that time DH has not really been very hands on. He’s married to his job really. He doesn’t do their baths and stories or tidy up while I do, he just sits there while I sort the children then the house. He doesn’t get up with them at night if they wake or in the morning if they wake early. Even if he does do something it’s been instigated and sorted by me and he just doesn’t seem to think he has to do anything. So for instance he used to take ds to his swimming lesson on a Saturday morning. I’d get DS’s swimming stuff ready, he just had to take him. Then he’d say something like ‘oh, you didn’t pack DS’s goggles’ - it just didn’t occur to him that he could have packed his goggles.

I am sure I wasn’t blameless. I was working three days a week after maternity leave with dd and became increasingly resentful. It was very hard having both children home on my days off and I felt very alone. DH never took them to the park for a couple of hours. Sometimes he’d take one (usually the older one) and make out that was a favour.

Anyway, I did seriously consider ending the marriage but money was a big issue and I didn’t want to disrupt the children or be a part time mum. I also kept thinking if I could get through until both children were at school I could have a couple of days a week for me and they’d be a bit older and more independent and things would be better generally.

DH then started complaining of pain this year and I didn’t pay much attention at first but he does have cancer. We’re waiting on biopsy results.

He is genuinely in huge amounts of pain and I feel awful for him. Despite all I’ve said above I do care about him as the father to my children and someone I said sacred vows too and meant, but if I’m being really honest I am finding it hard to feel any sense of impending personal loss or grief. Which does make me feel the marriage was maybe not in a good place.

So now … DH can’t walk far. He is only able to sit on a specially adapted chair, which is in the main living area of the house. (Please don’t suggest we move it; we can’t.) He is insisting on working throughout, and holds teams meetings on the chair with the children gambolling about because it’s school holidays. Obviously this isn’t practical at all so I’m having to have them out all the time. I am exhausted as a result, and so so fed up.

I know this is a terrible thing to say but I’m so worried about life looking like this for the foreseeable. DH cured would be one thing but in all honesty this does not look likely. DH dying is awful and I don’t want to wish this on us. But this half life, where our home is no longer a sanctuary but a place or stress and anxiety and an office as well is just a nightmare. It really affects the children having DH there but ignoring them and just frowning at his laptop, which affects behaviour.

It will probably drag on for years like this and as it does I’m losing my children’s childhoods and my mind! I can’t just leave of course. I don’t know what to do.

OP posts:
PrizedPickledPopcorn · 04/08/2026 21:21

Honestly OP, I feel your pain. You are also dealing with the news of his illness, only you are getting no space to process it, just moments of blind panic where you realised you are trapped.

In other situations, people would be falling over themselves to help you, not blaming you for being unsympathetic to your husband.

Do you have mum friends, are your DC a bit young for that yet? Work friends? Honestly, you are going to need some support. It may be worth seeing your GP about you. And your health visitor. Make them aware. There may be clubs/activities for families under pressure that will fill a few slots in the programme.

Volpini · 04/08/2026 21:28

dontmalbeconme · 04/08/2026 20:39

Surely in this lovely weather, you and the kids can just play in the garden. You have a garden room that could be converted into a playroom, and for some shade, you could picnic out there (get a plug in coolbox or mini fridge). You don't need to go out out every day.

I know you're not interested in hearing it, or interested in compromise, and just want to vent about how your husbands pain and (terminal?) cancer is so much harder on you than him.

The second part of this statement is very unfair.

Have you been in this position? I have been somewhere close to it. It’s mindbendingly difficult for everyone not just the patient. I think OP reads as someone doing her absolute best to support her very wearing husband.
If OP cannot vent, rant, complain on mumsnet, then where can she?

dontmalbeconme · 04/08/2026 21:29

aponyatblackbirdcottage · 04/08/2026 21:07

Well, you are being a bit provocative and I also think you’ve forgotten that children this age don’t have the concentration to stay with one thing for long, so they aren’t “in the garden” as much as they are in and out and out and in. I would actually agree I could do with utilising the garden more in some ways but they aren’t massively fussed by it because it is always there. (There’s also little to no shade and it does get intense on some of the very hot days we’ve had.)

I also completely agree it’s worse for him. While I can’t pretend I haven’t been upset and let down by him in some ways I also have tried to make it clear I care about him and even if I didn’t, I’m not a horrible person and so wouldn’t wish this on anyone, not least anybody young. Do bear in mind this is the father of my children. I wish I could take it away and I can’t; cancer doesn’t work like that of course.

The ship for DD going to nursery has sailed, it’s done, maybe I should have pushed harder but I didn’t and she’s with me now. I am trying to make the best of it but I am frazzled and tired and struggling to enjoy my children.

@Castolaya fhats very kind. It may come later; I’m numb at the moment. I know I can cope alone but this in between is a type of purgatory.

@NoArmaniNoPunani it adds a great deal and I am genuinely very grateful for that contribution. Thank you.

@Metalmotha i just genuinely have no time at all, none. Every minute of the day is monopolised by children and general Stuff!

Seriously, with a garden and a garden room you could do:
Mud kitchen
Papier Maché
Mock olympics
Chalking
Gardening and growing
Hopscotch/naughts and crosses (chalk grids)
"Cinema" in the garden room
Junk modelling
Pebble painting
Sandpit
"Hide the ..."
Paddling pool
Music making/song singing
Make a bug hotel
Track birds and wildlife
Musical Statues
Clay modelling
The possibilities are endless

Morethanadecade · 04/08/2026 21:29

Evenstar · 04/08/2026 20:23

If his cancer is stage 4 you should be fast tracked for PIP and you should claim Carers Allowance too, please ask MacMillan, their benefits advisors are really helpful.

That’s not true, I’m afraid. Stage 4 does not automatically fast-track you for pip. If you are deemed “terminal” with a life expectancy of fewer than 12 months, that is the fast track.

Malinia · 04/08/2026 21:31

Trying to think very practically here, can you get screens and literally screen off the chair and DH so he has an office area? Then maybe the kids would ignore him a bit?

I think he's being monumentally selfish, regardless of his pain and diagnosis. It's not fair on you. You said he isn't awful but he sounds awful to me.

But to deal with it, maybe you can create an office nook in some way?

aponyatblackbirdcottage · 04/08/2026 21:32

Thanks, all. I’m not too bothered by critical comments. I am compassionate, I have supported and shown kindness and respect. The very fact I have taken on keeping the children out of the house for most of the summer should indicate this. But if has got me thinking about some things. I suppose, to put things very simply, DH is not massively supportive when it comes to parenting. He doesn’t ‘help’, he will do some things when asked directly (‘can you take DS swimming’) but he will not find DS’s costume and towel, he wouldn’t do so without being asked / told, this needs to come from me.

That’s been hard, but I had a choice. Stay - and wait for things to get less intense, or leave. So I opted for the former. But things aren’t getting less intense because of this curveball. That’s no one’s fault, but it is how things are right now.

OP posts:
Evenstar · 04/08/2026 21:33

@Morethanadecade thank you for that, it seems very unfair my DH was fast tracked and I assumed the uncertain outlook for someone with Stage 4 would mean they got the same. That seems unfair and an added stress for people in that situation.

Contrarymary30 · 04/08/2026 21:33

aponyatblackbirdcottage · 04/08/2026 16:40

I guess the point is that for whatever reason this news has made me realise how unequal things have been for years and it’s as if I am really ‘seeing’ the last five years or so clearly for the first time: all the bath and bedtime stories I’ve done solo as DH has sat downstairs and all the nursery runs and pickups, all the soft play afternoons and park mornings while DH sits at home, all the freezing cold 5am starts watching teletubbies with a toddler while DH snored upstairs. I took it as normal for ages, and now I can see it. I don’t know why I’m seeing it amidst a cancer diagnosis but I am. The insistence on working feels like another act of selfishness.

I really get it op . Most suggestions are made on the basis that your Dh is a reasonable unselfish man which he obviously isn't. I was married to someone exactly like this , I did everything in the house and for the kids . You are obviously exhausted and at the end of your rope . Sometimes it's good to get it off your chest even when that doesn't solve anything . I have stage 4 cancer and the thing which jumps out of your post is that you say he's in awful pain. This I don't get . No one should be in awful pain , is his DR aware ? There are solutions to deal with pain mostly getting the right level of medication. He may be more cooperative if his pain is less but maybe it's just him and the way he is . I didn't find Macmillan particularly helpful but m y GP is superb . Sending a hug x

Minasama · 04/08/2026 21:35

This sounds very hard OP. Have the medical team given any prognosis? I must admit that in my experience, a lack of mobility tends to lead to the person ending up in bed and sadly then having only weeks or months to live. Can his care team or MacMillan give you any perspective?

aponyatblackbirdcottage · 04/08/2026 21:38

dontmalbeconme · 04/08/2026 21:29

Seriously, with a garden and a garden room you could do:
Mud kitchen
Papier Maché
Mock olympics
Chalking
Gardening and growing
Hopscotch/naughts and crosses (chalk grids)
"Cinema" in the garden room
Junk modelling
Pebble painting
Sandpit
"Hide the ..."
Paddling pool
Music making/song singing
Make a bug hotel
Track birds and wildlife
Musical Statues
Clay modelling
The possibilities are endless

Edited

Thank you - I am really not looking for activities I can set up in the garden; Pinterest is my friend there! Being at home with DH on the laptop is very oppressive and doesn’t bring out the best in anyone. The children become demanding and argumentative and we don’t have a ‘garden room’ as such.

OP posts:
aponyatblackbirdcottage · 04/08/2026 21:43

@Contrarymary30 I’m sorry to hear of your cancer. I can’t pretend to be an expert but DHs has metastasised to his bones. He’s on very high levels of pain relief but it is never alleviated and he is very troubled by it. This is also why I need to keep the children out as they become boisterous and forget, try to climb on him and so on. (He also falls asleep randomly and a lot because he doesn’t sleep much at night and he is on such strong pain medication.)

From what I understand bone cancer is a nasty one.

He isn’t so much meaning to be uncooperative as patterns were entrenched a long time ago - that I get up at night; I get up with the children in the morning; I do their baths and stories; I do all the parenting stuff. And have to accept that I should have been firmer about making him step up, but I don’t like bad feeling and with little children it feels like survival, getting through each and every day until you turn around and six months have gone by.

But those days are behind us now. It’s a new normal, I’m just struggling with my own thoughts about it all and supporting DH and the children and myself.

OP posts:
Ineffable23 · 04/08/2026 21:46

Could you apply for child benefit and allow your husband to pay it back in his tax return if he won't give you any cash to take the kids out?

Is your whole household broke, or are you broke because of an uneven financial distribution?

Would his work pay for a second chair, e.g. in your bedroom, given that he's working when he doesn't need to be? Or maybe there's somewhere one could get a one off grant?
Or invest in a big shade sail for the garden and extra garden furniture so you can spend more time outside?

Is it worth thinking about whether "I feel" messages would help. E.g. if he has terminal cancer is there anything you could talk about your feelings around the time he has available to spend with his children , even if that was only an extra few hours a day?

I'd also consider if there's anything you could do so the kids being mental when he's in the living room annoys you less - loop earplugs or nose cancelling headphones. At the minute they annoy you before they annoy him but there may be a threshold at which the annoyance hits him.

Sounds like an incredibly upsetting and frustrating situation for you OP. You must be utterly wrung out.

Minasama · 04/08/2026 21:46

Adding to my post above and having read more of your posts - I really am so sorry.
Grief comes in lots of ways, but could it help to start planning the future, rather than resenting the present?
This isn’t a nice thing to say, but on a practical level it may make sense to make sure he stays in work if at all possible so that you qualify for his death in service payout (if there is one, every company I’ve worked at has offered this.) It may be that this is what is behind his resistance to letting work take a back seat.
Take care OP. Maybe start planning your own future from a practical pov as well - upping hours at work etc if likely to be needed.

Morethanadecade · 04/08/2026 21:47

You mentioned earlier about him going into a hospice as a possible solution. I’m not sure if you know that hospice inpatient care is usually only for two weeks maximum, though there are sometimes exceptions. There is a huge shortage of spaces, and it might not be possible to get one at all.

parachutegirl · 04/08/2026 21:49

Did you post this a couple of weeks ago?

Morethanadecade · 04/08/2026 21:50

Minasama · 04/08/2026 21:46

Adding to my post above and having read more of your posts - I really am so sorry.
Grief comes in lots of ways, but could it help to start planning the future, rather than resenting the present?
This isn’t a nice thing to say, but on a practical level it may make sense to make sure he stays in work if at all possible so that you qualify for his death in service payout (if there is one, every company I’ve worked at has offered this.) It may be that this is what is behind his resistance to letting work take a back seat.
Take care OP. Maybe start planning your own future from a practical pov as well - upping hours at work etc if likely to be needed.

Edited

Companies tend to manage you out long before this might be payable, though.

Ineffable23 · 04/08/2026 21:50

Morethanadecade · 04/08/2026 21:47

You mentioned earlier about him going into a hospice as a possible solution. I’m not sure if you know that hospice inpatient care is usually only for two weeks maximum, though there are sometimes exceptions. There is a huge shortage of spaces, and it might not be possible to get one at all.

But it is worth looking into Fast Track CHC if he meets the criteria as they might be able to find a nursing home that would be able to look after him. Or this might become relevant later on even if it isn't now.

It's so hard, I realised I suggested a load of ideas earlier and you're probably just exhausted by ideas and logistics and the emotions of the situation.

OneZanyCat · 04/08/2026 21:50

It is worth asking about a hospice. If he's unable to climb stairs it maybe he's only got weeks to go though see what his team say. The hospice may be able to help with pain relief. At the moment I would just wait to see what his cancer team have to say this week.

Minasama · 04/08/2026 21:54

Malinia · 04/08/2026 21:31

Trying to think very practically here, can you get screens and literally screen off the chair and DH so he has an office area? Then maybe the kids would ignore him a bit?

I think he's being monumentally selfish, regardless of his pain and diagnosis. It's not fair on you. You said he isn't awful but he sounds awful to me.

But to deal with it, maybe you can create an office nook in some way?

He’s not awful, not now. He has a tremendously painful and debilitating illness and he will soon be dead.
Noone could look after two young children with such an illness. He’s taking refuge in work. His wife’s reaction is self-preservation because he soon won’t be there. It’s a tragic situation that deserves kindness, not judgement.

aponyatblackbirdcottage · 04/08/2026 21:55

I had very high hopes for loop earplugs but they did nothing other than annoy me! I lost one of them - useless! Still annoys me I spent £40 on them 😂

No, no getting anywhere talking to DH about anything, I’m long since resigned to that! I’m partly being a bit facetious when I say I’m broke but it is expensive having them all day every day in the summer. But I do work myself so we’re good and DH isn’t exactly stingy, he’s generous but it’s on his terms IYSWIM.

@Morethanadecade i doubt he’d go anyway. But thank you .

DH won’t be managed out, he works for a company and has done for a while and he is quite valuable. I don’t mind him working. It’s more the way work always always comes first that is frustrating.

@parachutegirl i wonder if i did go for counselling would i get this ‘did you not mention this last week’. Sorry but the situation is still bothering me a bit. And that was at worst mildly waspish for anyone convinced my anger levels are uncontrollable

OP posts:
Evenstar · 04/08/2026 21:55

The hospice can certainly help with pain relief and can admit patients with uncontrollable pain temporarily to get pain under control. Are you in contact with them, the hospital can refer you.

LouiseMadetheBestBroccoliPasta · 04/08/2026 21:55

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aponyatblackbirdcottage · 04/08/2026 21:57

Minasama · 04/08/2026 21:54

He’s not awful, not now. He has a tremendously painful and debilitating illness and he will soon be dead.
Noone could look after two young children with such an illness. He’s taking refuge in work. His wife’s reaction is self-preservation because he soon won’t be there. It’s a tragic situation that deserves kindness, not judgement.

Edited

We don’t know that. We don’t even know what the primary cancer is. For all we know, this could be managed for many years as per Voldemort in the last HP - ‘we can’t keep him out indefinitely, but we can hold him up.’

I hope so, I hope DH lives as long as possible and with the best quality life as possible. But what I DON’T want is this half existence for us all to drag on indefinitely as it is awful, but it may well do.

DH himself is not awful bur some of his behaviour has been selfish, thoughtless and sometimes slid into toxicity, which is why I am unsure what the future of the marriage would have been had this not happened.

OP posts:
Clearinguptheclutter · 04/08/2026 21:58

surely there is some kind of treatment plan for your dh

but don’t be guilty for a moment about putting the kids in holiday club. They will enjoy it, you will get some space

aponyatblackbirdcottage · 04/08/2026 21:59

@Clearinguptheclutter it is still being worked on, we don’t know what type of cancer it is yet,

Only one child is able to go to holiday club, the other is too young. I’ve booked a couple of days but it is very expensive again.

OP posts: