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How can we manage financially as Universal Credit support reduces?

1000 replies

elliejjtiny · 26/05/2026 12:19

We have 5 dc aged between 19 and 11 all with disabilities. Dh was a manager up until youngest was born, then he became unwell and had to take a massive pay cut. I'm a Sahm and get carers allowance. We get UC. Dc1 in his first year at uni, dc2 about to start in September.

We are just about managing at the moment but barely. In September we are going to lose the child element of universal credit for dc2 and I'm worried how we are going to manage. When the dc were younger I thought I would be working by now but I'm only getting 4 hours sleep a night and my 11 year old needs constant supervision when not at school so I don't know how I could fit work in. Dh has to work away about 15 weekends a year (from friday morning until late Sunday night) which leaves me completely exhausted each time. We spend 9 weekends a year picking up/dropping off/visiting dc1 and I imagine spending the same amount of time with dc2. There is no childcare for children my dc age with SN and they have to be picked up and dropped off at school. The dc have appointments about once a week on average and dc4 stays in hospital about 1 night a year when I don't get any sleep at all.

Realistically I can't think of any employer who would employ me with the amount of time off I would need and on so little sleep. At the moment I spend the time dc are at school doing the housework, cooking the dinner and trying to catch up on a bit of sleep.

I'm trying to think of anywhere we could save money but I can't think of anything. Dc1 doesn't cost any less money while he is at uni.

OP posts:
Northermcharn · 26/05/2026 16:44

ImInTheCooler · 26/05/2026 16:37

Okay, one more time in case people misunderstood.

I, me, myself would not want to live in this world as a disabled person. That is just MY opinion. I am not talking for disabled people, for families with disabled children, or anyone else.

Just me. I also would not choose to have more children if one already had a disabled child.

Where have you got the impression I'm on about killing any disabled children? I merely stated that suicide in disabled people is higher. That should be spoken about. If people want to ignore those stats and ignore the fact that a lot of disabled people struggle throughout life that's up to them.
It's just not for me. And it also shouldn't be up to the likes of me and others to fund those decisions.

I really cannot be any clearer.

You were clear, don't worry about it. Others obviously have a sore spot and think irrationally / or it's known ignorance / cognitive dissonance .. which is necessary to maintain the irrational thinking.

Northermcharn · 26/05/2026 16:45

AguNwaanyi · 26/05/2026 16:37

Society is not lacking in judgemental people criticising people's choices everyday, or governments who put in punitive measures, directly and indirectly as deterrents, so no, if you cannot bully people into having less children. Moreover, these things aren't always a result of "poor choices".

You lot just feel entitled to have a go at people in these situations because you see them as free game.

Oh no - there's nothing free about it. Well not for us.

Northermcharn · 26/05/2026 16:47

nearlylovemyusername · 26/05/2026 16:42

What a strange post

I suppose I could ask you, as you seem so bitter about paying tax, why haven't you done better for yourself? Why aren't you earning a high enough amount/maximising your income with a second job?
You seem to resent paying tax, you must not feel you earn enough to be able to live comfortably, so why don't you try to improve your career prospects by training?

It doesn't occur to you that people who object the most to paying ever increasing taxes to fund ever rising welfare are exactly those who did better for themselves, made right choices, earn better than average (or a lot), worked on their careers, but the state takes more and more to fund people like OP? if you earn very little you pay very little and take from state more than you contribute, you'll hardly complaint about high taxes.

a poster who obviously needs help

OP's need for help is far from obvious. She had plenty in benefits for many years, she has housing funded by her DH's job. Her benefits will reduce, but so will her expenses. Life will be tighter, but it's the same for millions of other people.

Agreed, well said.

feistyoneyouare · 26/05/2026 16:47

RubyPowderPuff · 26/05/2026 16:44

Exept that some of these attitudes already existed in society. They were accepted in many European societies... and are still prevalent today.

Not sure I understand your point, I wasn’t claiming it started with the Holocaust?

Jstarr7 · 26/05/2026 16:47

TheLurpackYears · 26/05/2026 12:37

Are you getting the right level of DLA / PIP for all children? You don’t mention getting the care or disabled child element of UC- hopefully that is all in order?

Why are benefits given for the oldest two? They are both functioning enough to go away to Uni. I am genuinely wondering/ trying to understand how this works?

MangoMilkWhip · 26/05/2026 16:48

MxCactus · 26/05/2026 16:39

Out of hours call handler for NHS direct or 111? You'll do hours outside of 9-5 which might suit.

Or ad hoc cleaning shifts?

So you want an overwhelmed exhausted person to do a job where a mistake could be catastrophic for another persons health ?!!

feistyoneyouare · 26/05/2026 16:49

Northermcharn · 26/05/2026 16:45

Oh no - there's nothing free about it. Well not for us.

If you don’t like helping people less fortunate than yourself, there are plenty of other countries to live in, where the governments couldn’t give a shit about the needy… just saying.

BusySpinningPlates · 26/05/2026 16:49

tinyspiny · 26/05/2026 16:35

Surely though costs at uni are the sort of thing you look into before and if your adult child needs that much input then you tell them that they have to go to a local uni or they have to be able to work to support themselves and get themselves to and from unassisted . At the end of the day there is not a bottomless pit of money.

Absolutely - I completely agree. If parental finances are tight then it has to be local uni, with part-time work, or gap year (or two) beforehand to put towards it. Or online / part-time uni course. Or degree apprenticeship (although I think these are rarer than hen’s teeth if I am honest…)…

AguNwaanyi · 26/05/2026 16:49

Northermcharn · 26/05/2026 16:45

Oh no - there's nothing free about it. Well not for us.

My bad; you have paid your taxes fair and square to punch down on them, as though she pop her kids back into her womb or give up UC after reading your little tirades.

MrsCompayson · 26/05/2026 16:50

nearlylovemyusername · 26/05/2026 16:42

What a strange post

I suppose I could ask you, as you seem so bitter about paying tax, why haven't you done better for yourself? Why aren't you earning a high enough amount/maximising your income with a second job?
You seem to resent paying tax, you must not feel you earn enough to be able to live comfortably, so why don't you try to improve your career prospects by training?

It doesn't occur to you that people who object the most to paying ever increasing taxes to fund ever rising welfare are exactly those who did better for themselves, made right choices, earn better than average (or a lot), worked on their careers, but the state takes more and more to fund people like OP? if you earn very little you pay very little and take from state more than you contribute, you'll hardly complaint about high taxes.

a poster who obviously needs help

OP's need for help is far from obvious. She had plenty in benefits for many years, she has housing funded by her DH's job. Her benefits will reduce, but so will her expenses. Life will be tighter, but it's the same for millions of other people.

Well then thank your lucky stars and (your own hard work) you have enough to live comfortably and stop moaning about paying tax.

Stop being angry at the wrong people and cheer the fuck up, you have a enough money and a good life, stop being envious of people who have to claim benefits and live in difficult circumstances like the op.

Op hope you are ok x

Soontobe60 · 26/05/2026 16:50

AguNwaanyi · 26/05/2026 16:37

Society is not lacking in judgemental people criticising people's choices everyday, or governments who put in punitive measures, directly and indirectly as deterrents, so no, if you cannot bully people into having less children. Moreover, these things aren't always a result of "poor choices".

You lot just feel entitled to have a go at people in these situations because you see them as free game.

To be honest, most people I know have planned their families according to their financial situation. Yes of course sometimes things don’t go according to plan but if children are showing signs of a condition such as autism it may make parents a bit more wary of having more children if they would struggle financially.
5 children in 8 years is a pretty hefty amount of children to support - especially when one parent is not bringing home a salary and is unlikely to do so until the children reach adulthood.
The choices everyone makes in society impacts everyone else to a greater or lesser degree. When that impact is a financial one, don’t you think people should be able to have an opinion?

emuloc · 26/05/2026 16:52

MangoMilkWhip · 26/05/2026 16:48

So you want an overwhelmed exhausted person to do a job where a mistake could be catastrophic for another persons health ?!!

Exactly. Some of the suggestions of work for the OP, are preposterous. I think that the OP sounds exhausted personally.

Kirbert2 · 26/05/2026 16:52

Jstarr7 · 26/05/2026 16:47

Why are benefits given for the oldest two? They are both functioning enough to go away to Uni. I am genuinely wondering/ trying to understand how this works?

DLA is based on care needs, not if they are capable or incapable of going to university when they are older. PIP also doesn't require someone to be incapable of going to university or work.

Northermcharn · 26/05/2026 16:53

feistyoneyouare · 26/05/2026 16:49

If you don’t like helping people less fortunate than yourself, there are plenty of other countries to live in, where the governments couldn’t give a shit about the needy… just saying.

Oh god. Yet more hyperbole. Give it a rest. If you can't make a reasonable statement without it, don't bother. I've already said a civilised society works on paying taxes to help people in their time of need, and we all (i think) don't mind that. A safety net though, not an assumed way of life. Which they are in a lot of cases today. Millions of cases.

IncompleteSenten · 26/05/2026 16:54

ImInTheCooler · 26/05/2026 16:37

Okay, one more time in case people misunderstood.

I, me, myself would not want to live in this world as a disabled person. That is just MY opinion. I am not talking for disabled people, for families with disabled children, or anyone else.

Just me. I also would not choose to have more children if one already had a disabled child.

Where have you got the impression I'm on about killing any disabled children? I merely stated that suicide in disabled people is higher. That should be spoken about. If people want to ignore those stats and ignore the fact that a lot of disabled people struggle throughout life that's up to them.
It's just not for me. And it also shouldn't be up to the likes of me and others to fund those decisions.

I really cannot be any clearer.

You asked me would I choose to be disabled.

To start with, its not a choice we're given. You just play the cards you're dealt.

So I took your question to mean if you were disabled, would you want to live.

Do you want to be disabled?
No thanks.
Tough shit. You are now disabled. You don't get to choose.
Live or die?

So I answered the question i assumed was actually being asked underneath - if you were disabled (which is not a choice you get to make in reality), would you want to die because you are disabled?

I then gave background as to how I could know that i would choose life.

AnneShirleyBlythe · 26/05/2026 16:55

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

This was my first thought! My DS had a friend who had an inherited heart condition. Her dad had a heart transplant. She was the oldest of 10, at least half had inherited the condition. Why would you keep on gaving kids in this situation?

Northermcharn · 26/05/2026 16:55

emuloc · 26/05/2026 16:52

Exactly. Some of the suggestions of work for the OP, are preposterous. I think that the OP sounds exhausted personally.

It's been said before - she did choose to have 5 children. It is not unpredictable, disabled or not, that a mum is exhausted.

usernames98751 · 26/05/2026 16:55

IncompleteSenten · 26/05/2026 13:44

It's a bit late for the op to have abortions so maybe what she needs is to know how to manage the situation she's actually in.

Unless anyone's got a time machine of course. In which case after the op has gone back and undone her children could I borrow it to go back and invest in amazon?

Always one comment with Amazon and time machine… 😂

AguNwaanyi · 26/05/2026 16:56

feistyoneyouare · 26/05/2026 16:49

If you don’t like helping people less fortunate than yourself, there are plenty of other countries to live in, where the governments couldn’t give a shit about the needy… just saying.

Because Nordic countries have even more generous social welfare systems and their rich pay more tax but the quality of life over there for the average person is much higher. But this country is generally very short-sighted when it comes to social welfare and don't consider the wider implications for not providing it or the bigger picture on why people end up needing it.

IncompleteSenten · 26/05/2026 16:57

usernames98751 · 26/05/2026 16:55

Always one comment with Amazon and time machine… 😂

I kick myself every day.
I could have been worth billions.

HobGobblynne · 26/05/2026 16:59

Jstarr7 · 26/05/2026 16:47

Why are benefits given for the oldest two? They are both functioning enough to go away to Uni. I am genuinely wondering/ trying to understand how this works?

PIP and DLA aren’t means tested & being able to go to uni doesn’t mean you might not have costs associated with having a disability or illness - as per my Stephen Hawking example earlier. Very famously disabled and attended university

emuloc · 26/05/2026 16:59

Northermcharn · 26/05/2026 16:55

It's been said before - she did choose to have 5 children. It is not unpredictable, disabled or not, that a mum is exhausted.

The OP, like most people, I would have thought, make choices that may seem right, to them, at the time that they are making them. Nobody has a crystal ball, and can see the future. If we could, life would be very different for a good many people. I fail to see the value, in berating the OP for the choices that she, and her Husband made. The children are here. Either help with her enquiry, or do something else more useful, I say.

nearlylovemyusername · 26/05/2026 17:01

MrsCompayson · 26/05/2026 16:50

Well then thank your lucky stars and (your own hard work) you have enough to live comfortably and stop moaning about paying tax.

Stop being angry at the wrong people and cheer the fuck up, you have a enough money and a good life, stop being envious of people who have to claim benefits and live in difficult circumstances like the op.

Op hope you are ok x

Maybe you stop being so ideological?

I'm angry at exactly right people, thank you very much. What I have is not thanks to lucky stars and I do have DC which are disabled, I just made different choices. I'm not envious of benefits claimants at all, but like many of us I'm thoroughly fed up paying for someone else's stupidity. And I think it's only fair for people to live with consequences of their decisions.

BridgetJonesV2 · 26/05/2026 17:02

It sounds incredibly tough OP but having 5 children was always going to leave you exhausted let alone adding in disabilities. The easiest option for me would be getting DP to change jobs as him being away that much is intolerable. Then if he was at home more, you wouldn't be solely carrying the load and hopefully able to work part time. The other reality is that benefits face massive cuts across the board when Labour go - and go they will. Under Conservatives it may not be too bad but if Reform get in there could be huge sweeping cuts and I would want to prepare for that.

RubyPowderPuff · 26/05/2026 17:03

feistyoneyouare · 26/05/2026 16:47

Not sure I understand your point, I wasn’t claiming it started with the Holocaust?

You were replying to this:
Yes it is extremely well documented how attitudes were manipulated over time. Its crazy to me that people cant see its happening right now
But I would argue that these attitudes already existed. Same as they do now.
Look at Reform - didn't take long to increase their followers, its simply because people already think that way in private. Reform gives their thinking legitimacy with a little help from all the benefits bashing threds. We'll see where it ends.

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