Huntington's test

[diamondmoon]

I saw genetic doctor on Friday and she very concerned I could be showing signs for Huntington's. I having blood test tomorrow. I am only 40 year old and feel very scared. I am a single mum with 8 year old and 12 year old and no support near me.

I think you might be able to get it paid for but I might be wrong
I think you can claim carers allowance which isn't much xx

Ok thanks. Are you doing anything nice today x

I think our friends are coming round later
6 weeks ago I fell over my own feet and sat on my ankle and I badly sprained my ankle and tore some ligaments so I was only starting walking again and then on Thursday I went in the kitchen and lost my balance and fell backwards and banged my head and everything else and after an hour dh and dd came home and called an ambulance but I didn't have to go to hospital just spectacular bruises
So feeling sorry for myself I sat down with a bar of chocolate I'd found in the fridge and being too greedy and impatient to wait for it too warm up started eating it felt and and herd a crunch and half my 2 front teeth were stuck in it ,!!
Are you doing anything nice ? Xx

Wow what an unlucky few months u having I hope u have a better week. Were u able to get up after u fell??
My brother and niece are here with me this weekend so got nice company xx

No I think I would of been able to if I hadn't had my bad leg though
I'm glad you've got company xx

Is there no medication to help with your balance? X

I'm not sure I'm waiting for an apt for Cardiff to come and then I'll ask them xx

Good luck to your d h today x

www.telegraph.co.uk/news/science/science-news/3347192/Huntingtons-disease

www.telegraph.co.uk/news/science/science-news/3347192/Huntingtons-disease-linked-to-immune-system.html

www.telegraph.co.uk/news/science/science-news/3347192/Huntingtons-disease-linked-to-immune-system.html

I am trying to copy a new article in telegraph today saying how human trials have started today but the link going to an older article!

www.telegraph.co.uk/news/health/news/12174818/First-drug-to-reverse-Huntingdons-disease-begins-human-trials.html

How u getting on this week sixpence

Hiya Ive had a good week and managed to stay upright thanks ..what about you how are you doing ? X

Glad u ok. Spoke to the advisor from h d association and she putting me into contact with youth worker who can support my kids. She also said can contact social services for when my dd ends up being my carer so they can come and assess situation. That has scared me.

Oh bless you I'm not surprised it all feels so overwhelming and scary , but it does settle down a bit when I was I first became symptomatic I felt like it was the end of the world for about a month and cried and was so depressed but it does get a little better just focus on one day at a time , are you on Facebook I've found some good support groups xx

How did your d h get on ?
Yes on Facebook a support group sounds great thanks x

Well he's safe at the moment and in the top 10 but someone can appeal and if they were successful they could knock him out and take his place it's babaric xx

Glad he ok for now x

How are you diamondmoon? Thinking of you.

Telling the kids on Friday so once they done I will hopefully feel better. X

I hope that goes as well as it can. Children can be so resilient in their own way, more day to day, here and now, and that in its own right can be such a blessing (and a curse sometimes ). Good luck, they will be strong for you.

Yes have hated keeping from my dd and I sure they both be ok eventually x

Glad you are doing ok that's great diamondmoon. Sixpence which are the fb groups I would like to joint them but need to be secret from the rest of my fb etc.

My dad has six brothers and sister and as far as we know none of them know about this being in the family yet and I am friends with many of my beautiful cousins on fb but reaching out for support wherever I can fine it x