Huntington's test

[diamondmoon]

I saw genetic doctor on Friday and she very concerned I could be showing signs for Huntington's. I having blood test tomorrow. I am only 40 year old and feel very scared. I am a single mum with 8 year old and 12 year old and no support near me.

I searched Huntington's disease support group on Facebook and one was private that I have joined but it's worldwide. Found it more scary reading struggles people going through. And one American on there telling people about a wonder cure he is taking and now he ok. http://www.hopkinsmedicine.org/news/media/releases/newevidenceehowaminooacidcysteineecombatshuntingtonssdisease

Oh dear there are always those people who think they have the next miracle cure but are deluded. Hdbuzz on twitter is good and legitimate scientists x

The one I'm in is Huntington's disease UK and Huntington's disease the good the bad and the ugly but I don't think they are private but the UK one is changing I think xx

How is everyone getting on?

Are you starting to get your head round things diamondmoon.

I am currently nursing a broken rib after a spectacular fall in town - a&e were worried about giving me codeine as can make drowsy. Fingers crossed I have been ok so far x

Hi bent
Yes I am a bit but then little things will set me off and upset me. My kids know now so that easier.
I fell forward down my stairs yesterday so I have a sore shoulder so I feel your pain
Where about do u live? I in Northamptonshire

I live in Scotland - very lucky with our HD specialist. She goes and beyond.

Sorry to hear about your fall x