Huntington's test

[diamondmoon]

I saw genetic doctor on Friday and she very concerned I could be showing signs for Huntington's. I having blood test tomorrow. I am only 40 year old and feel very scared. I am a single mum with 8 year old and 12 year old and no support near me.

Thank you x

Hi I don't have anything helpful to contribute just to say I hope you get the all clear. I've come across this thread as my dad was diagnosed on Tuesday and we are in utter shock right now xxx

Oh no bless your heart anything I can help you with ask away xx

Thank you I am torn between burying my head in the sand and finding out everything I can.

We have been waiting since November for the results when the neurologist suspected it so have been in utter terror since and now feel like I am in a total dream world. We had no idea this was in the family.

My heart goes out to everyone on this thread.

Totally get the torn feeling xx

I am sorry your dad has the awful news. How old is he? Xxx

My dad is 69 he has probably had symptoms for at least five years if not longer but v noticeable in the last 12 months. He was diagnosed with epilepsy 20 years ago and this has perhaps masked some of the symptoms which we attributed to the seizures x

It's going to be very hard for all the family getting to grip with it all. Even though I have a scary two more weeks waiting I have known about the family history so not such a big shock. X

Yeah I was the same , it must of been a bolt out of the blue xx

Hi diamond moon

How are you feeling? When do you find out?

Did you have any counselling before the test?

Best wishes x

Find out next Tuesday so trying to go on as normal until then. But yes I am worried but need to know. If I positive have to have brain scan to confirm I have it now. Dr worried I could be showing symptoms of it now that's why only had one genetic apt. If showing no symptoms u have to see genetic doc 3 times for counselling. If my test is negative I will have to have other things tested for.xx

for you xxx

Thank u xxx

Best wishes for Tuesday x

Bless you all. My brother (half) died from this at the age of 21 which I now know is very young to have contracted it and his decline was fast because of his age. I'm crying reading your posts. I have nothing to add but just wanted to write and wish you well. Thank god for forums like these where you can find support and kind words

Thanks. Just wish I could fast forward to Wednesday! It's nice knowing I not the only one worrying about it. X

Good luck lots of love and praying for you xx

Good luck, so hoping you get the all clear OP

Just come across this and just wanted to wish you luck.

Thank you wait is finally over x

Good luck today

Best of luck OP.

Thinking of you op