Huntington's test

[diamondmoon]

I saw genetic doctor on Friday and she very concerned I could be showing signs for Huntington's. I having blood test tomorrow. I am only 40 year old and feel very scared. I am a single mum with 8 year old and 12 year old and no support near me.

Please keep chatting here, rant or rave whatever you need x

Oh lovely I'm so sorry this has happened but anything I can help with just ask away xx

Please do make a gp appointment op. You need some support from them at this very vulnerable time.

This disease is in part of my extended family too. Big hugs for you here

Oh I'm do sorry to hear this, I've been following your thread. Please look after yourself best you can.

It was really hard saying good bye to my dad this morning they all live so far. I have told my work and they are being very supportive. My manager admitted she had seen signs on me,
I at work so keeping busy x

I'm so very sorry x

Thanks. Sixpence how u doing day to day? What can't u do now? X

How are you holding up ? X

Hi OP, just wanted to say I'm thinking of you. I can't imagine how hard it must be for you. Please see your GP for support. 6 wks is a long time to wait for assessment. You must have so many emotions and questions running through your mind. Wishing you all the best.

My dd home so ok for now.
When I asked my dad if he thought I was showing signs he said no but yesterday with doc he admitted it and my manager today. That makes it so much real and it's not been in my head. X

How did your dad take the news ? This may sound completely backwards but I guess you are a little relieved that it wasn't just in your head but also angry that others didn't say anything x

I did ask my dad many times but he must have been in hard place to tell me.

He got upset at the apt and then we both cried good bye today.

Is there any chance you could live closer ? X

Oh I am so sorry to hear this xxxx

My dd is very settled here with her friends and my son is living with his dad at the moment even further away so moving means be impossible to see my ds every weekend

Could your dad move to be nearer to you ? X

I can't walk very far now but that's only in the last year really
I can't drive now that was straight away because I was worried , I can only cook basic things now
But this is such a slowly progressing disease that any. Symptoms are quite gradual xx

Thanks for answering. Do u take medication? Do u get a lot of support from docs etc x

I take co enzyme q 10 which is vitamin no idea if it helps but it won't hurt
I take 40 mg citralipam anti depressant and I've got Valium from my gp for if I'm really anxious or upset and zopiclone sleeping tablets if I need them which isn't every night probably once a month xx

My gp are really good and so are Cardiff I go there every six months or so xx

so sorry it wasn't the news you'd been hoping for. Have been thinking of you.

It's breaking my heart thinking of his young my kids are

It's so horrible isn't it xx