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Original poster

Huntington's test

182 replies

diamondmoon · 15/01/2017 09:53

I saw genetic doctor on Friday and she very concerned I could be showing signs for Huntington's. I having blood test tomorrow. I am only 40 year old and feel very scared. I am a single mum with 8 year old and 12 year old and no support near me.

OP posts:
Original poster
diamondmoon · 21/02/2017 15:53

Oh my worst news

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TheVeryThing · 21/02/2017 15:55

I'm so sorry diamond. I don't know what to say. I hope you have plenty of support around you Flowers

lonesomeandfragile · 21/02/2017 15:57

So sorry diamond have you got someone with you? Flowers

Original poster
diamondmoon · 21/02/2017 16:04

Thanks yes my dad here with me

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SleepFreeZone · 21/02/2017 16:07

Oh my god I'm so sorry diamond 😰

Penfold007 · 21/02/2017 16:15

I'm so sorry about your news. Good your dad is with you.

Northernlurker · 21/02/2017 16:26

I'm really sorry to read this. What can the medics offer?

JillJ72 · 21/02/2017 16:33

I'm sorry diamond - thinking of you.

Original poster
diamondmoon · 21/02/2017 16:46

Will see a specialist in 6 weeks and he will do full assessment and then take it from there

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OpalIridescence · 21/02/2017 16:53

Really sorry diamond, was lucking and hoping for the best for you. I am sorry that is has gone differently.

Glad your dad is there with you Flowers

Theonlywayis · 21/02/2017 17:11

This reply has been withdrawn

Message from MNHQ: This post has been withdrawn

Original poster
diamondmoon · 21/02/2017 17:18

She pretty sure I showing early signs but the specialist doc will run lots of tests to confirm and see how bad I am now

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Northernlurker · 21/02/2017 17:23

Are you on any anti-depressants op? It might be helpful if not and your gp can do that now rather than waiting six weeks.

GwenCooper81 · 21/02/2017 17:24

Oh love I'm sorry to read this. I read your thread the other day and I've been thinking of you.
Much love.

TheSnorkMaidenReturns · 21/02/2017 17:34

so sorry diamondmoon Flowers

Footle · 21/02/2017 20:43

Oh diamond, I'm sorry. I've been thinking about you. What a thing to face.

teaandakitkat · 21/02/2017 23:53

So sorry diamond. I hate Huntingdons. Hope you have many easy years still ahead.

Original poster
diamondmoon · 22/02/2017 07:09

I have had no sleep and feel really sick. How can I carry on?

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Charlieismydarlin · 22/02/2017 07:14

Can you get back to your GP for some support? Some ADs?

Is there a charity that provides an advice line?

Lots of us thinking of you xxx

lonesomeandfragile · 22/02/2017 07:17

http://hda.org.uk/hda/message-board
have a look here there is support out there. I'm so sorry your going through this.Flowers

Charlieismydarlin · 22/02/2017 07:19

Thanks - was about to include same link xxxx

Original poster
diamondmoon · 22/02/2017 07:20

Thanks hopefully will feel better once at work. My dd doesn't know yet so hard not getting upset and have to act normal

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Original poster
diamondmoon · 22/02/2017 07:21

Thanks for link I will be calling them soon as well

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Andthen · 22/02/2017 07:32

Just wanted to send you all my love diamond. My DF and DSis both have HD so I have some small understanding of how awful this must be for you. The support my family have received from the healthcare professionals has been amazing. I hope you are able to access similar and have many good years ahead of you Flowers

Original poster
diamondmoon · 22/02/2017 07:46

Thank you x

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