@lucysmam It's just ridiculous, isn't it? I've got to travel about 2.5h each way for each appointment, and I still manage to be on time, but the pointless phone call I had yesterday was several hours late. And similarly pointless to yours, by the sound of it.
I'm worried about this Cerebro-spinal Fluid leak situation. I've already had a lumbar drain AND a repair surgery, and it's still leaking. I keep reading that these leaks can close on their own with bed rest, usually within 7-10 days, but it's been 7 days since the repair surgery now, and it's definitely still leaking... The nurse was really unclear on next steps. "If it gets worse come to A&E" - but what does worse mean? I'm guessing if I contract meningitis, because that's the big risk here?
Saw the GP today. No guidance there. But he prescribed some stronger pain killers, which made me very happy, at least until we talked to 3 pharmacies and none can get them until tomorrow PM. So I feel like I'm being teased with better pain relief... but it's not quite within reach.
Anxious post today, sorry. This recovery business is very hard going.
@Tilllly It might be worth asking your chemo team what their cutoff for neutrophils is. Remind me, do you get to inject yourself with the delightful bone marrow stimulating stuff? Filgastrim or Lipegfilgastrim? That really helped my neuts, but the bone pain was not fun.