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Cancer support thread 91 - don’t borrow tomorrow’s worries

991 replies

LemonDrizzle10 · 27/10/2023 07:39

New thread

OP posts:
Thread gallery
22
LemonDrizzle10 · 23/12/2023 09:36

@KentishMama hope you’re ok this morning.

I’ve developed a pain in my ribs on my injured side - thinking it’s neuropathy.
I got diagnosed as pre-diabetic a few weeks ago too. Just as I was starting to feel more positive.

OP posts:
Tilllly · 23/12/2023 09:47

And half the food has dislodged...
well not half but it's not looking good!

I've been and bought dulcolax and gaviscon. The gaviscon was £9.75!!!

nappybrained · 23/12/2023 10:05

@lucysmam enjoy (!) Ikea- I always do a trip in usually for spiced biscuits and a ginger bread house! And Tupperware.. can never have enough! Love it. Have to watched a few podcasts of peeps on chemo all exercising madly and finding on EC I'm lucky to sleep!!

nappybrained · 23/12/2023 10:08

https://www.bbc.co.uk/programmes/m001tjkn

Thought this may be useful as podcast on non hormonal treatment for hot flushes which appears promising. Seems to reduce by 50% and might sweats for moderate to severe. Private only for time being , will cost up to 100 per month. Of course likely to have side effects like all meds! We know about
that!

BBC Radio 4 - Woman's Hour, A new drug for hot flushes and night sweats, Combatting loneliness at Christmas

‘Game-changing’: a new drug used to prevent hot flushes and night sweats approved in UK

https://www.bbc.co.uk/programmes/m001tjkn

Tilllly · 23/12/2023 15:28

ROOF
not food!

But very luckily found a roofer to come out before it got worse

£1300.... wow!

Tilllly · 23/12/2023 15:29

nappybrained · 23/12/2023 10:05

@lucysmam enjoy (!) Ikea- I always do a trip in usually for spiced biscuits and a ginger bread house! And Tupperware.. can never have enough! Love it. Have to watched a few podcasts of peeps on chemo all exercising madly and finding on EC I'm lucky to sleep!!

Lurve IKEA

Though I find six months after buy their Tupperware, none of the lids fit the boxes anymore 😂

rainbowhairchalk · 23/12/2023 20:28

Hi ya! Newly diagnosed, how shit is that 😭😭

Tilllly · 23/12/2023 21:25

Hello @rainbowhairchalk

Crap timing too

You're welcome here tho no one wants to be here

Share as much / little as you want

TwigTheWonderKid · 23/12/2023 21:46

Welcome @rainbowhairchalk

Sorry you need to join us but you will find all the support you need here.

What's your diagnosis?

Tilllly · 23/12/2023 21:48

I'm itchy...

Chemo or immuno?

I think I'm going to go to bed and hope tomorrow is better

Haven't been sick tho so bonus 😀

lucysmam · 23/12/2023 21:54

Hi & welcome to the thread none of us wants to be on @rainbowhairchalk . Fabulous bunch of people who will talk through any worries, listen to any moans, and baffle tf out of you unless you are science minded!

@Tilllly that's fine about the lids...means I get to go round & play in the room set ups all over again 🤣

Sorry about the itchy...mine was chicken pox ffs...at 41 years old 🙄🙄

TopOfTheCliff · 23/12/2023 22:17

@Tilllly I was baffled by you buying dulcolax to dislodge the roof. Sorry you had such a high bill - can you claim on house insurance?
I’m glad it’s not just me that has shrinking IKEA lids. DH thinks I am deluded. I think it’s the microwave that causes it.

@rainbowhairchalk welcome to the best and worst thread to be on in Mumsnet. If you need to express some anger we have a Virtual Rage room with a seasonal selection of Christmas baubles to smash. Ask anything and somebody is bound to know the answer. I guess nothing will happen for a few days now. The rule is Don’t Google just use Macmillan or the NHS site for information. It helps to keep busy too.

@LemonDrizzle10 sorry you are having a bad time but you are just in time to set up our new shiny thread. Will we get past Christmas on this one? Happy Christmas to everybody and let’s hope 2024 is going to be a better year.

Tilllly · 23/12/2023 22:18

Oh blimey!! I'll give the pox a miss 😂

Tilllly · 23/12/2023 22:18

No @TopOfTheCliff
Wear and tear apparently

Tho we think we've probably been ripped off

Tilllly · 24/12/2023 06:50

Morning
I need help

I'm having a meltdown and I can't stop crying

DS1 is working nights so won't see him over Cmas which I knew

DS2 texted me at 5am "Probs home mid afternoon, will stay up all/most of day so i wont be tired for Christmas if i dont sleep tonight" which has unaccountably upset me

I dont know why, but I would have liked some help / time together today. Not him tired and hung over

DH forgot some gifts for DS1 and DIL from his family, so they're in with ours still and they won't have them for Cmas (they won't care, it's me that's bothered)

I've been ok the last few days from the chemo / immuno, not really taken much pain relief
Woken up this morning and my chest really hurts, taken morphine and paracetamol, and it's taking a while to kick in
I'm on 2.5ml and I can't find online if I can take a bit more

There's stuff to do today and it feels overwhelming and my family feel useless

Sorry, it's nothing but I can't pull myself together

LemonDrizzle10 · 24/12/2023 07:04

Morning @Tilllly - sending hugs. Christmas can get a bit much sometimes. Just do the essentials then sit down for a rest.
Our Christmas is a bit minimalist this year - not many decorations up etc: not got the energy. There’s too much pressure for Christmas to be perfect - be kind to yourself.
Hope the meds kick in soon.

OP posts:
Tilllly · 24/12/2023 07:24

Thanks @LemonDrizzle10

You're right, I know
I just feel rubbish

Tilllly · 24/12/2023 07:27

I’m going to have a bath

Bubble free cos of the itchy rashes but better than nothing

LemonDrizzle10 · 24/12/2023 07:59

Have you got any aqueous cream you could put in the bath water? Might relieve some itching?

OP posts:
rainbowhairchalk · 24/12/2023 08:05

TwigTheWonderKid · 23/12/2023 21:46

Welcome @rainbowhairchalk

Sorry you need to join us but you will find all the support you need here.

What's your diagnosis?

I've got a type of lymphoma, scan next week will tell us more. It's all been a bit of a shock 😔

Tilllly · 24/12/2023 08:17

LemonDrizzle10 · 24/12/2023 07:59

Have you got any aqueous cream you could put in the bath water? Might relieve some itching?

No but I've some aveeno body lotion ill use after
Thanks, don't know why I didn't think of it 🤦‍♀️

Tilllly · 24/12/2023 08:18

Hi @rainbowhairchalk

This is absolutely as bad as it gets.

The Waiting

Once you know what you're dealing with and have a treatment plan, it gets less hard

PLEASE don't google

LemonDrizzle10 · 24/12/2023 08:23

Enjoy the bath @Tilllly!
and @rainbowhairchalk definitely don’t Google. Google is terrifying - the internet is full of so much rubbish - trusted sources only.
I’ve just been reading some hilarious old threads that someone linked to on chat. Crying with laughter. I love mumsnet - it’s helped me through many tough years.

OP posts:
rainbowhairchalk · 24/12/2023 08:33

Tilllly · 24/12/2023 08:18

Hi @rainbowhairchalk

This is absolutely as bad as it gets.

The Waiting

Once you know what you're dealing with and have a treatment plan, it gets less hard

PLEASE don't google

Way too late for that 😂 I was waiting for blood test results and exhausted Google 😅 weirdly the lymphoma I've got didn't come up so now I have something new to Google and obsess over 😃 I like Googling to be honest, I'm very interested to know everything I can about it

Slitheringheights · 24/12/2023 08:44

hi I’m finding it hard to get in the Xmas spirit too. I’m so crabit and feel I’m spoiling everyone else’s time. I need to get a grip.
just recovering from my colon cancer, all removed. Not spread. On my last week of chemo tablets. Which is knocking me for six.
Doctor's thought I’d a problem with thyroid, unrelated to colon. Had a scan 8 weeks ago. first scan 20 weeks ago. Now a few days before Christmas I got a call saying nothing to do with thyroid but a mass on heart??
he said it’s nothing new and not related to colon cancer. But they don’t know what it is.
Now I know heart cancer is very very rare, but I can’t stop googling stuff. The doctor seems baffled to what it is. There is no urgency, so is that a good thing?
it was also mentioned some thing that’s affects periods, sweats, anxiety moods. Sorry I’m waffling now 😩