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Original poster

*TAMOXIGANG* All the fours...44!

960 replies

GoodbyeRubyTuesday · 21/10/2013 19:43

Apologies for the bingo reference, couldn't think of a witty title but the other thread is very nearly full.

In honour of our new thread I have piled extra apple pudding on the trolley so tuck in :)

OP posts:
amberlight · 21/10/2013 19:46

Aha! New thread! Excellent. And apple pud, too. Thanks!

malteserzz · 21/10/2013 20:04

Evening all
Apple pudding sounds lovely especially if there's custard too

Knittingnovice · 21/10/2013 20:15

Ruby, I had capceitabine and oxaliplatin first time round, the oxaliplatin floored me. I could only tolerate 4 cycles of the 8 I was supposed to have.

This time I am having irinotecan, 5FU pump and depending on the histology of the tumour a monoclonal antibody called avasitin.

The side effects do not look as bad as the oxaliplatin. I found the sensitivity to cold and peripheral neuropathy horrendous.

I also can't wait to be able to get some stronger pain relief once I stop BF. due to an accident on the A3 my 45 minute journey took over 2.5 hours and I was doubled over in pain and almost in tears when I got to the hospital. I really wish I could have chemo closer as it looks like I might have to go and see my consultant one day and go back for chemo the next which I managed to avoid last time. It just gets so expensive.

Next adventure for me, is PICC line being inserted on Wednesday. This is a big one as I am going to leave DD2 at home with my mum, and am also relying on her to drop DD1 at preschool & pick up, and maybe pick up DS from school, although I have arranged for a school mum to pick him up in the morning. I think it is a bit unfair to expect my mum to get all three of them out the door by 8.25, although she did used to do it with the 4 of us.

weebarra · 21/10/2013 20:15

Hello! A
pple pud sounds good (I'm doing an apple & calvado one for a dinner party on saturday, yum!)
Seeing onc on Thursday, it is all very sudden but it needs done!

Marshy · 21/10/2013 20:27

Hi all,

Nice new thread!

Just a flying visit from me as in just back from a vile drive after dropping DD at uni, and completely whacked.

Will read up last thread and chip into the reconstruction discussion tomorrow. Seeing Miss Surgeon in the afternoon. Armpit still sore. She had to rummage about a bit to get hold of that pesky thickened node, so I'm hoping that's the reason and nothing more troublesome.

Have a good evening all

kitkat1967 · 21/10/2013 20:33

Good to see you Malt - how are you doing?

smee · 21/10/2013 20:35

thanks Ruby.

Wow what a day weebarra. Though at least now you have a plan. Tough road ahead, but at least you know you can start and see the other side.

Nowt to say. Bit doom and gloom here, as DS's best friend is leaving to go to another school and he's devastated. Not too sure what I think, but v.sad about it for DS though. Sad

Hope everyone's okay out there. All Tax trucks parked up and in line? Grin

BetsyBoop · 21/10/2013 20:36

apple pud, yum yum, thanks Ruby

malteserzz · 21/10/2013 20:42

I'm a bit better thanks Kitkat achy legs feel a bit better not cried since this morning ! Dh doing a good job of looking after me, cooking, doing all the jobs that need doing in the house etc and it's good to have some company

Original poster
GoodbyeRubyTuesday · 21/10/2013 20:59

Hmph just lost my post.

knitting I had same combo and only managed five of eight with the oxaliplatin, cycles two to four were just capecitabine. The cold thing was horrible but I didn't really have much peripheral neuropathy thankfully. Only a tiny bit of tingling in fingers. I think you're eligible for DLA so might be worth applying to help a little with money. Good that your mum is able to help, does she live close by or is she staying with you at the moment?

marshy hope you're having a relaxing evening after the drive. Sounds like armpit pain is likely to be from surgeon prodding, they are often quite rough!

smee :( for DS. Will they still be able to see each other out of school or is he moving away?

malt good you're feeling better and that DH is taking good care of you :)

I'm just watching yesterday's Downton :)

OP posts:
kitkat1967 · 21/10/2013 21:04

that's good Malt. Do you expect to hear from the DCs whilst they are in sunny Spain?
How are you getting on with Downton? I watched all the previous series on DVD (like you) and was completely hooked but for some reason am not getting into this series at all. Not sure if it's becasue I have to wait a week each time or because my concentration is shot.

Gigs - I am really enjoying Private Practice now - particularly enjoying Addisons clothes (even though I am not that body shape at all so they would look pants on me!!).

My aches are much better now. Also as I am seeing onc tomorrow morning I'm hoping that my stomach behaves much better then it did this morning (otherwise I'll be scared to leave the houseBlush).

malteserzz · 21/10/2013 21:37

Yes dd texts me a lot she says it's hot and they're enjoying themselves Smile
I'm enjoying downton still, though some of it is a bit silly and there does seem to be a lot of different storylines going on !

MomOfTwoGirls2 · 21/10/2013 21:49

Love the new title Ruby.

WeeBarra I hope you are doing OK after your diagnosis. Sending good wishes your way.

Had a nice 2 glasses of white wine tonight. I'm drinking the left overs from MILs overnight visit last night, normally I'm a red wine gal. Feel less hyper than I did all day. Maybe I'll sleep.

topsyturner · 21/10/2013 22:34

Knitting please speak to Macmillan .
There is help out there for travel costs .

Nice thread title Ruby
I'm 44 you know ?
I'm now declaring this to be My Thread !
Grin

thenightisyoung · 21/10/2013 22:42

You youngster Topsy - A few more threads to go before you hit my age Grin

MaryAnnSingleton · 21/10/2013 22:47

thanks ruby ! Grin Long way to go until we reach my age...
Poor ds smee -that's a blow Sad
ruby capecitabine has made my feet and hands v prickly- the week off it makes no difference -still feel bit sick and prickly.
Downton is very silly but enjoyably so !

jchocchip · 22/10/2013 00:13

Mmmmm apple pudding! Marks place. Nighty night.

foofooyeah · 22/10/2013 05:48

Ah, insomnia my old friend, here we are again. I'm sure its anxiety as chemo due Wed. Then will get date for MRI to see if its working.

I think I'm starting to lose my composure about all this. Have been very calm and positive up til now.

reallyreallyworried · 22/10/2013 07:00

foofoo sending you a ((((( big hug )))))) xxx

kitkat1967 · 22/10/2013 07:20

Hi Foo - don't worry about your MRI. I had an MRI after 3 chemos and it showed that nothing had happened to the lump but it was still OK - it's nice if it shrinks but not essential Smile. Have a hug.

In addition to my bloods and onc appt I also have to get Halloween costumes for DCs today - we have a big ASDA near here so that will be my first point of call. DD will need an adult outfit this time - she said anything will do but DS specifically wants a Vampire.
Then I'm going into work for lunch Grin.

Oh and I'm 45 so can I have the next thread please? (Mind you my birthday is 7th Dec so it depends how quickly we get there.)

MaryAnnSingleton · 22/10/2013 08:20

love to all having treatment this week or just anxious...
Had anxiety dream last night-too much to do - must stay calm !
Secondary bc support group tomorrow,which I always have mixed feelings about. Now must crack on...apologies for not being up to speed with everyone.

malteserzz · 22/10/2013 09:06

I slept much better last night thanks to my trusty sleeping tablet I don't use them all of the time now but love them
New sofa being delivered this afternoon, the cat had scratched the old one to pieces so I've got some spray for this one which hopefully will keep her away
Good luck with any appointments today Smile

HerNextDoorAt21 · 22/10/2013 10:41

Marking place and grabbing some apple pud (if there's any left).

I am whispering but ... I think my leaky boob has healed up ...... shhhhhhhhhhhhhhhhhh. I took a look last night under the 1000 steri strips and it looks gorgeously knitted together. I could dance with delight but wikll wait until I have seen Surgeon Sam on Friday to make sure.

smee my weekend was fabulous thanks - saw some lovely friends, got a free haircut and drank too much ... managed to get myself stuck trying to get out of a kids cabin bed and have a really impressive bruise on my thigh (ouch). I cooked breakfast in Southport for 5 and Dunkinfield for 12 but did act my age (nearly 48 eeeek) and went to bed at a reasonable hour ... didn't stop me smiling when i heard the youngsters laughing their legs off coming to bed at 4am ... there were 12 of us from all over the UK who met on a forum similar to this that I moderated, they all had their babies in July 2006.

hope everyone is doing Ok today, I hear topsy has gone on a school trip so I cant take her out for lunch today .... she is getting all educated at the museum I think !

MaryAnnSingleton · 22/10/2013 10:43

long may it stay knitted together hnd !!

handbagsatdawn · 22/10/2013 10:47

Morning. I missed a trick, the last thread was numbered for me Grin.
Just been to GP for cortisone jab in hip - not related to cancer, just pesky hip - hopefully this will enable me to carry on enjoying long walks when I can during chemo.
Stoopid drain still here and has filled right up so doesn't look like I'll be getting rid of it today. Will have to have extra wine this evening to compensate.
DH off today and itching to get out of house so hopefully we'll go somewhere good for lunch - I have definitely got my appetite back, will have to watch that or my new skinny jeans won't fit any more.
Have also been trying to avoid all TV coverage of GBBO this morning - lots of spoilers and controversy apparently.......will Ruby be victorious?!