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Conception

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TTC or pregnancy on prednisolone or similar part 9

998 replies

sarahs999 · 31/08/2012 06:24

Oh dear - we reached 1000 posts on thread 8 without noticing! I hope you can all find this. THis is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
digitalgirl · 12/09/2012 19:01

So sorry Sue - completely and utterly unfair that this has happened. Wishing you much strength to get through the next few days, weeks, months.

batteryhen · 12/09/2012 19:49

Sue I am so sad to hear your news. I can't imagine how you must feel. Take care, I hope you have plenty of support around you xx

igsisgreenngold · 12/09/2012 20:04

Yes Arianrhod, sorry forgot I'd changed.
Abney could you get blood tests instead of a scan? They are more definitive at early stages.

Abney · 12/09/2012 21:01

Hi Mollie thank you for the advice. If I hadn't of read your post I would have wasted and perhaps upset myself by doing the test tonight.

Igsis do you know where I would be able to get a blood test. I have had a bath tonight and can't feel anymore 'potential' bleeding and am too terrified to look at the moment. I will look in the morning after the test.

Sending lots of hugs to everyone who is going through a bad time at the moment.

Clabbage · 12/09/2012 21:59

sue I am deeply sorry. Shocking, sad, horrendous news.

duggs1976 · 12/09/2012 22:03

sue sending you all the strength that we can. Nothing else to say really.

As for early bleeding if we lived in the US we'd have a bEta test to measure the HCG to check its level and then a re test 2 days later to check it is rising adequately. So angry it isn't protocol here as it would save a hell of a lot of worry. Think has been said but u can have an HCG test for £50 at any private medical centre or clinic. Hope that helps a little x

Clabbage · 12/09/2012 22:03

Abney I really hope that this is a blip and all will return to normal tomorrow. Loads of positive vibes heading your way.
Not sure who could do your bloods but I guess your EPU or Gp? X

GreenOlives · 12/09/2012 22:23

Sue No words really but know that we are all thinking of you at this awful time Sad

Abney I really hope that the bleeding stops and all is fine. I would definitely start using the Cyclogest in the other entrance in case that is the problem. I had a little bit of bleeding from the back entrance due to the cyclogest but thats far less scarier than from the front!

Clabbage All my miscarriages have been natural so I can't really advise on the ERPC option, it's a difficult one. Still hoping for a miracle for you. x

mollieboo · 12/09/2012 22:25

Abney if I've been worried or bleeding my gp or my local epu have done beta hcg tests. My epu have been brilliant. I hope yours will be the same if you try them tomorrow, they're there to help people like us. Good luck for tomorrow x

Abney · 13/09/2012 08:54

Hi Mollie I did the test this morning. Was dreading it saying 'not pregnant' but it hasa moved up to where it should be 3 plus. I have not gone into work today and I have only looked first thing and it was clear. I will just have to see how it goes today.

mollieboo · 13/09/2012 10:58

Morning abney, you must be massively relieved that the test has gone up to 3+ and you're not having any more bleeding, that's great news. Yes chill out and look after yourself today x

mercator · 13/09/2012 11:02

sue so dreadfully sorry. Sending you all my love, quite understand you don't want to be around for a while. I do hope you manage to get through this awful time. My thoughts are with you and your husband.

igsisgreenngold · 13/09/2012 11:16

Abney, looking good! (I've had 2 mc where it didn't rise) I've had hcg test done both by my GP and my local epu. Bleeding is the thing that's made them check (I think because there's a small chance of ectopic).

Clabbage I found my one ERPC quite "easy" compared to the others: you can start to recover quicker as the physical part is over in a one-er.

Delta10 · 13/09/2012 13:12

Hello to all, I haven't posted for ages but have tried to catch up on all the news.
Sue - I am reeling with shock, just too awful to imagine and words honestly do fail me. Sending love to you, your hubby and your daughter - may you somehow find the collective strength to recover in time xx
Abney - Many congratulations. I too was an early 'bleeder' - feared it was all over but amazingly kept seeing a heartbeat. I bled a number of times from 6+5 to about 10 weeks and all previous episodes meant bad news so am relieved to report it can be ok. The toilet trip dread was just dire. I am now officially 16+5 by my dates but all scans are dating me 5 days ahead at 17+3. I have everything crossed for you.
Kittens - Wow - fabulous news. I had my Nuchal at FMC and they were just fabulous - so thorough and I am going back there for my 20 week scan rather than NHS. Good luck with everything.
Free - can't believe your little one is 8 weeks already - that has flown (maybe not for you with the limited sleep!) Good luck with all the baby jabs etc.
Sarah, Olives, Bertha, Jemima - delighted to read that all progressing well so far (sorry if I've missed anyone - have only quickly caught up on the news so now trying to remember where everyone is at).
Congratulations for Jonty & James - we must be due a girl on here soon....???
Sending best wishes to everyone else - those going through good and bad times - hoping everyone is doing as well as can be expected

Pebbles73 · 13/09/2012 14:04

I am still lurking very occasionaly and just wanted to say that Sue I am heartbroken for you and your family and can't beleive such a s*y thing has happened. Other than that I don't know what to say but hope you are being well looked after.

Sorry not to name check everyone but waves to all.

Abney · 13/09/2012 16:43

Thank you Delta, Igsis, Mollie for your kind comments. If I make it to next Tuesday (6 weeks) I will do another pg test to see if it goes up again. I have checked 3 times today with the last one being 300 pm. So far it is clear thank heavens.

Mercator all the very best for tomorrow. I will be eagerly watching for any news.

duggs1976 · 13/09/2012 19:13

Hello ladies just updating with a bit of what may be useful info for some struggling to get a bfp. After testing DNA fragmentation with dr gorgy back in may and my DH having 33% which put us with a 1% chance of a live birth poor fertility potential he was tested and treated for a minor infection ( asymptomatic) and cleared. Re test is supposed to be 3 mths after hardcore anti b finished as sperm reproduced every 90 days. Decided to do a mid way 1 and half month test just to see if any change and he got a 22% result which puts him in the good category. Anything under 15% fragmentation is excellent but generally not seen in top many 41 yr olds. Smile so we r happy to have this news and gives us some hope that we might get a bfp one of these days. Test costs £250 wish we'd done it a year ago!

duggs1976 · 13/09/2012 19:15

Oh forgot to add his 3 standard sperm
Analysis tests were good motility, count and volume so he was getting me pg it is the fragmentation that can cause miscarriages. Sneaky sperms
Looking good on the surface misleading us.

mollieboo · 14/09/2012 09:18

Hi duggs, thanks for the info. Hope you don't mind me asking, did you conceive easily when you miscarried? I've always conceived easily before and am hoping its just a high nk cells problem. My hubby's sperm has never been tested but we did have our little boy so not sure if this would be a reason for my mcs. Good to know as much info as possible though in case pred doesn't work...

duggs1976 · 14/09/2012 12:05

Not really easily -6 mths, 6 mths, 3 mths then introduce pred and no natural bfp for over a year?! One icsi bfp which went onto miscarry on pred, intrallipids, clexane which made me think to look at other factors. Just a thought for those long timers like me?!

Clabbage · 14/09/2012 16:21

Hi to all.
No miracle from me, started to bleed last night and no HB at scan today. Am guessing I will have little choice but to mc naturally as I am unlikely to get through to Monday. Sad. utterly gutted even though I expected it.
Sorry for no personals, but hoping that Mercator is keeping the flag flying with a new pred baby in her arms x

sarahs999 · 14/09/2012 16:26

So sorry Clabbage. I hope for your sake that it is over quicky and painlessly.

OP posts:
mollieboo · 14/09/2012 16:57

Hi clabbage, sorry to hear your news, thinking of you x

Havingkittens · 14/09/2012 17:35

So sorry clabbage x

BellyD · 14/09/2012 19:40

Sad news Clabbage, thinking of you.x

Hoping all went smoothly for Merc.