TTC or pregnancy on prednisolone or similar part 9

[sarahs999]

Oh dear - we reached 1000 posts on thread 8 without noticing! I hope you can all find this. THis is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 //www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 //www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 //www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 //www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here //www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here //www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

[holldoll]

De-lurking, Sue, I'm an do sorry to hear your news. I'm keeping fingers crossed that there is some hope left

[PQ77]

Oh sue what terrible news. I am so sad for you but also holding on to whatever hope there might be for a miracle. I have been, and will continue to, hold you and your precious one in my thoughts.

My little miracle man, Jonty (Jonathan) Edward arrived by c section at 4.34pm today. He was 4lb 15 / 2.23 kg a good size for 33 weeks but he looks pretty tiny to me! I haven't been able to hold him and have just visited him in nicu for 20 mins so far. They havent been able
to take him offthe ventilator just yet. Hoping to get to know him better tomorrow.

Am feeling fine after the c- section - merc you will breeze though! Inwas just so terrified that Jonty wouldn't breathe when they fished him out and it was such a relief to hear him cry.

[sarahs999]

Sue, I'm so so sorry. There are no words. Life is just unbearably cruel sometimes.

PQ, huge congratulations on the birth of baby Jonty. That's a good weight - hopefully he'll be breathing unaided soon and you can bring him home. Glad the c section went well. X

[batteryhen]

PQ fab news xx is it me or is there a lot of boys being born on this thread?!

Sue I hope you get a little bit of rest tonight xx

[LJ71]

Sue - no idea where to even begin saying how sorry I feel. Huge hugs from us all xxxxxxx

Mercator I think I am too old, added to the fact that I have two (much older) children, and that counts me out of getting referred to Mr S on the NHS - but thank you for the thought.

[mercator]

PQ Congratulations, such fabulous news and so pleased 'Jonty' made it safely into this world! You must be dying to hold him. Hope he makes rapid progress!

Sue thinking of you.

[mercator]

Hi Everyone, I?ve updated the list from Sunday adding 2 days and correcting my own dates, whilst adding our latest arrivals Baby James and Jonty to the list of pred babies and moving Jemima up to the 2nd Trimester ? Congrats Jemima. Please repost the list if your dates are incorrect adding to the days where applicable for those pg ladies on the list.

Tuesday, 11 September 2012

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 ? 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs
Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle), Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 - Baby boy Sebastian (ELCS) at 39 weeks 17/07/12 8.11 lbs.
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 40+1 wks EDD 24/07/12 Baby boy born 26th July, 7lbs 5. EMCS
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 38+4
coleyoz - V High NKC. DC#2, BFP cycle2, 41+1 - Baby born??!
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin. Baby boy James born 29/08/12, 6lb and 6oz at 36+5
PQ77 - DC#2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) Jonty (Jonathan) Edward arrived by c section 10/09/12 4lb 15 / 2.23 kg 33+1 wks

3rd Trimester

Mercator - V High NKC, DC#2 38+4 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks) ELCS (39 wks) 14/09/12
Hopefulfor2nd - High NKC - TTC#2. ? 37+2 dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 37+2

2nd Trimester

HelterSkelter (IVF and immune therapy) 23 wks
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 20+4
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 16+4
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. 16+3 Next scan 5th October
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 16+3
sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin, cyclogest, intralipids. 14 wks
Jemimapuddleduk (33). 3 prev mc's over last 2.5 years between 7-11. Not tested for NK but prescribed 20mg pred, fragmin, asprin and cyclogest on NHS. 13 wks

1st Trimester

HavingKittens, 4mcs, 2 TOP TS21, 7th pg, 5th SO Cycle, VHNKC, 40mg Pred, Hydroxy, Intralipids, etc. 9+3, next scan 4 Oct.
Buster - 4 mc. VHKC (pred 40mg, lipids, clexane, cyclogest,aspirin) 7+4

BFPs awaiting first scans
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),- super ov 5+4

STATUS UNKNOWN
Hannah77 - DD born 2003, 3 losses 21 wks, 17wks, 7wks. BFP 25th July

TTC ? ASSISTANCE - TTC 2ND or more

Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine) ? super ov
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, -super ov
LJ71 - two older DCs, mc on treatment. SO, pred, hydroxy

TTC ? UNASSISTED - TTC 2ND or more

Iloveblue - under Prof Quenby for HNKC. 2 healthy boys, followed by 20 week loss, 2 early mcs, 15 week loss.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Mollieboo - 5 mcs, 1 DS (lost my little angel), high NKC - pred, intralipids, aspirin, clexane, cyclogest

TTC ? ASSISTANCE - TTC 1st

Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF - SO
duggs1976 - TTC#1 -4 mcs all 7-12 weeks. - TTC #1 ? last chemical on treatment/IVF in April. SO
BellyD - V High NKC, MTHFR homo, TTC#1, 5mcs, SO, hydroxychloroquine
Carebear1 - V high NKC

TTC ? UNASSISTED - TTC 1st

ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w)eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
London - High NKC, April - mc on treatment.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
Gransol - Seven mcs - all losses between 6 & 7 weeks

[mercator]

PQ thanks for your thoughts re my own section, currently feeling pretty terrified and just hoping all is well with lo - I'm sadly not one of those earth mothers who find I can get excited until I know they have arrived safely into this world. It is comforting to know your section went well and amazed you were able to post so quickly! I hope you also make a speedy recovery and love the name 'Jonty'.

[mollieboo]

pq huge congrats on having your baby boy jonty, wonderful news.

Yes there are lots of boys being born on here!

sue still thinking of you lots xx

[iggi777]

Pq congratulations, hope the days pass quickly till you get to take him home.
And just seen FrozenNorthPole, how lovely :)

[Arianrhod]

pq and frozen, many congrats on your safe arrivals! pq hope your little Jonty can come off the ventilator very soon, and well done for hanging on in there!

[sarahs999]

Someone was saying to me the other day that among women who are more aware of their ov dates the rate of boys born is always much higher because we tend to have sex right around the ov time, which favors boy fetuses ( apparently the sperm that will make girls are slower, so you need to have sex several days before ov). Not sure how much truth there is in it but it did get me thinking about how many boys are being born on these threads and among my ov-watching friends.

[digitalgirl]

pq massive congratulations on the arrival of Jonty. Fab weight for his 'age'. So pleased all went well in the end, hope you get to snuggle him soon. I've heard skin to skin can be an amazing thing to help premature babies get stronger.

frozen congratulations to you too! After all your worries you finally got there! Hope you're enjoying your babymoon too.

Glad all is ticking along for kittens too.

Franco is 5 months now and over 20lbs, sleep has gone out the window but ds1 has started school now so that should help. I still read this thread but must admit I find it hard to keep up. I'm so pleased free started it though and that you're all keeping it going. I still toy with the idea of one day having dc3, but this thread reminds me of what a struggle it has been and how much heartache I'll be exposing myself to again. I know for now that my priorities are the two I've got.

[Havingkittens]

sue, you must be going through hell this week. I'm so sorry. I'm keeping my fingers crossed too that these last tests show some chance of hope. Thinking of you. x

PQ, Congratulations! You must be so relieved and over the moon. Like digi says, that's a pretty good weight for his age.

Big congratulations to frozen too. I'm glad you found us!

Actually, I was wondering, who else is missing who may not have found the new thread? Usually a PM goes around when a new thread starts but I don't think one did this time.

[ChoccyPud]

Comgratulations PQ on the arrival of Jonty, fab name!! Hope you get to take him home soon. X

Also congratulations to Frozen. Great news.

Sue thinking of you.

[BellyD]

On hols, so intermittent lurking.

Sue just wanted to add my thoughts and prayers to those of the others. Can't begin to express how sorry i am for you all, it is just so unfair. Massive hug to you.

Frozen and Pq many congrats on the arrival of your boys. Really hope Jonty can have a cuddle from his mummy soon.

Merc best of luck for Friday, totally understand why you are apprehensive but I am sure everything will be fine.

We've had a barrage of more tests and getting results of erpc from Mr S on the 20th so will bore you all with that when back from hols.

Waves to everyone else. Anyone heard from snoopy?

[GreenOlives]

Massive congratulations PQ Lovely news. I hope Jonty goes from strength to strength so that he is ready for home in a few weeks x

[Havingkittens]

Just updating the list with revised scan dates for me.

Tuesday, 11 September 2012

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 ? 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs
Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle), Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 - Baby boy Sebastian (ELCS) at 39 weeks 17/07/12 8.11 lbs.
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 40+1 wks EDD 24/07/12 Baby boy born 26th July, 7lbs 5. EMCS
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 38+4
coleyoz - V High NKC. DC#2, BFP cycle2, 41+1 - Baby born??!
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin. Baby boy James born 29/08/12, 6lb and 6oz at 36+5
PQ77 - DC#2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) Jonty (Jonathan) Edward arrived by c section 10/09/12 4lb 15 / 2.23 kg 33+1 wks

3rd Trimester

Mercator - V High NKC, DC#2 38+4 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks) ELCS (39 wks) 14/09/12
Hopefulfor2nd - High NKC - TTC#2. ? 37+2 dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 37+2

2nd Trimester

HelterSkelter (IVF and immune therapy) 23 wks
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 20+4
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 16+4
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. 16+3 Next scan 5th October
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 16+3
sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin, cyclogest, intralipids. 14 wks
Jemimapuddleduk (33). 3 prev mc's over last 2.5 years between 7-11. Not tested for NK but prescribed 20mg pred, fragmin, asprin and cyclogest on NHS. 13 wks

1st Trimester

HavingKittens, 4mcs, 2 TOP TS21, 7th pg, 5th SO Cycle, VHNKC, 40mg Pred, Hydroxy, Intralipids, etc. 9+3, next scan 18 Sept, Nuchal 26 Sept.
Buster - 4 mc. VHKC (pred 40mg, lipids, clexane, cyclogest,aspirin) 7+4

BFPs awaiting first scans
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),- super ov 5+4

STATUS UNKNOWN
Hannah77 - DD born 2003, 3 losses 21 wks, 17wks, 7wks. BFP 25th July

TTC ? ASSISTANCE - TTC 2ND or more

Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine) ? super ov
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, -super ov
LJ71 - two older DCs, mc on treatment. SO, pred, hydroxy

TTC ? UNASSISTED - TTC 2ND or more

Iloveblue - under Prof Quenby for HNKC. 2 healthy boys, followed by 20 week loss, 2 early mcs, 15 week loss.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Mollieboo - 5 mcs, 1 DS (lost my little angel), high NKC - pred, intralipids, aspirin, clexane, cyclogest

TTC ? ASSISTANCE - TTC 1st

Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF - SO
duggs1976 - TTC#1 -4 mcs all 7-12 weeks. - TTC #1 ? last chemical on treatment/IVF in April. SO
BellyD - V High NKC, MTHFR homo, TTC#1, 5mcs, SO, hydroxychloroquine
Carebear1 - V high NKC

TTC ? UNASSISTED - TTC 1st

ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w)eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
London - High NKC, April - mc on treatment.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
Gransol - Seven mcs - all losses between 6 & 7 weeks

[freelancegirl]

First of all so so sorry to hear your news Sue. That truly is heartbreaking. I don't really know what to say. After everything you have been through it just seems so bloody unfair to get this far too. Words fail me, I am sorry.

It feels so good to see good news here and I do feel that there is more good news than bad news with the treatment over all - does everyone else? Frozen and PQ a huge congratulations from me too. Wow PQ, like Digi and myself I feel I have known you on these threads for quite a long time and finally here you are with that much longed for second child. Great news.

Merc woo hoo to Friday!! LIke PQ says the CS can go well. Mine would have been a lot easier to recover from if I hadn't ended up in hospital having an enema a few days later. My advice is start taking latulose before you have the section to keep everything moving!

That's an interesting theory about boys Sarah. Strange too that out of the 8 couples in my NCT group there has only been one girl. Also well said with your rant about NKC treatment! You have given me renewed energy in starting work again on the doc and am going to contact you soon about being my first Pred Thread interviewee. I need to get on with it! WHo asked about the documentary? Bascially am a journo and producer and so it felt natural for me to film my own experience through recurrent miscarriage and the treatment. Have interviewed Mr S a few times and now I need to get on and film some other case studies. I know a few other people on here were up for taking part too so will post again as soon as I start filming. Right now I am still in baby brain mode but have started doing a bit of work and really want to get on with it.

Great to hear from DIgi and wow to F being 5 months now. What do you mean the sleep thing doesn't miraculously get better at 12 weeks ?! Mind you, little S is 8 weeks today and for some reason is having a really sleepy day and not feeding much. Maybe he is just now out of the growth spurt and back to normal-baby levels? Am trying not to mental about it but of course it's not easy.

Lovely to see so many of you still popping in and keeping the thread going and woo hoo to the updating of the list! My work here is done... But I will be back of course.

[mollieboo]

Hi free it was me asking about your documentary, sounds great I'll wait to hear more. Would be cool seeing success stories from the thread on film!

[cartoonface]

Hi all I sort of introduced my self on the last thread but havent really posted. I got my diagnosis on sat. Very high nk cells. I'm waiting a couple of cycles then I shall begin TTC. I have a probably very stupid question! It says to start taking the pred at ovulation so is that when I first get a postitive ov stick or a day or two later. Really shouldve checked. I feel a bit daunted by it all but im sure its all fine. Im happy that for some reason he thinks I don't need the daily injections whoo!

[MegMum25]

cornflakes I am so very sorry that you are having to endue this again. Please go and see Anita a Zita west, without her I would not ave my kids. I would lay my life on that. She is a wonderful Irish lady like a little bird and full of hope and sense and positivity.
kittens woo hoo that's brilliant news on your scan, onwards upwards now.....
clabbage so sorry for your losses, that las thig o need to do is beat yourself l for feeling so sad just because you have already known the joy of a child - a life lost is tragic each and every time.
Not. Een here much ads geari up to try again and steeling myself for the stats ahead

Good luck to all. X

[MegMum25]

Cannot type on my iPad sorry

[freelancegirl]

Hey Cartoon, welcome properly to the thread. Sorry to hear about your diagnosis but I hope you see it as a step in the direction of treatment. I remember being confused as to exactly when to start too but the general consensus is it is not an exact science and one or two days either side won't really make much difference. I think daily injections would only be if you have a clotting issue. are you having intralipids upon bfp too? good luck with the ttc!

[Havingkittens]

Can anyone tell me how much the 5mg pred are on a private prescription please? I got my last prescription from St Helier on the NHS but, annoyingly they have given me more 25mg than I need and not enough 5mg pills considering I am meant to be weaning off. I'm trying to work out whether it's more economical to pay for them on a private prescription than to spend the money on petrol getting down to Carshalton to get them on a free prescription (my GP won't get involved anymore with my pred prescriptions)!