TTC/Pregnancy on Prednisolone or similar part 8

[Arianrhod]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

That's great news Sue! Such a relief!! Not long to go until you're over 9 weeks. I know it seems like a huge gorge to cross until then, and then 12 weeks and so on but you will get there.

Enjoy your weird few hours sat tied up to a drip. I always found it very surreal! But a relief to be sitting there having them, after a successful scan.

And welcome back Brownstag good to hear from you. Sorry the side effects of the Pred were so awful but hopefully the hydroxy will do the trick. I will edit your details on the list.

That's really frustrating about the scan *PQ but hope it all went well today!! Do let us know. OOh are you going to find out the sex then...? Let us know! I think it might make it all the more real for you.

Funnily enough - has anyone else had RSI? I had it after the second mc of last year when i came off the Pred. It was awful - couldn't type properly for weeks. But for some reason it just went away after a few weeks.

sue - that's wonderful news & was doing the one hand typing on Monday!! Do you live locally to the clinic?
Pq - good luck with your repeat scan, sounds like you have a chilled out bean in there. Hope yr DS is ok after his fall.
Hi to everyone else & hope you are enjoying the sunshine before the rain & wind returns....

sue thats just fantastic new , you can relax for a while and enjoy it.

euro im really sorry for more worry being sent your way, hope its a quick fix like the others say.

i found this on the internet if anyones interested

www.naturalgynae.com/downloads/nav6_fact25.pdf

oh splendid sue.. another positive for hydroxy x

Evening ladies.

Sorry to hear about your smear results Euro but I'm sure they can sort things without it interrupting your IVF. Thanks for the info re steroids and needing more regular smears - that's important for all of us to know.

Great scan news Sue! That's fabulous news

PQ Hope bean was more compliant on today's scan!

Thanks for asking Free, I have a scan booked on Friday when I am only 4+6 to make sure this one's not ectopic. All hand holding gratefully received! I am currently just trying to stick my head in the sand and pretend nothing is happening!

sue that is lovely news - I am really pleased for you :)
olives Thinking of you tomorrow for your scan. On my first pregnancy, I had so much pain, they scanned me early to make sure it wasn't ectopic. I think I was around the same weeks as you - and they were able to see a yolk sac in the right place so fingers crossed you should get some reassurance xx
euro - Sorry you are having this worry about your smears. I am a smear taker so if I can answer any questions for you - ask away :)

Nothing going on here. I am a bit worried today - not as much movement from babe as usual. I got the doppler out earlier, and hb seemed to be a bit slower then sped up as I was listening. I wonder if babies can tell they are being listened to? At all my MW appointments they are able to listen for a few seconds than babe wiggles away. The MW has said that babe is obviously sensitive?

Hello to everyone :) Hope your weather is better where you are xx

Yay sue fantastic news!!!

euro am sorry to hear you've more to worry about .

PQ hope rescan went well.

free and cheerful not long to go now! Can't wait for you to have your babies!!!

All good here. F occasionally going 9pm-5am which is amazing. And have had three days worth of writing work which I've spread out over nap times. F currently going through a phase of wanting to nap in the moby wrap but I like it - I get to cuddle him all day and sleep most of the night.

Right, about to have dinner then it's bath and bedtime so may try catch up a bit more while feeding F.

Hi everyone,
I am new- I ran into arianrhod on a different board who pointed me in this direction.
I am trying for my first and am hoping 4th time lucky! Between getting my blood work done at st.heliers and now I have managed to get myself knocked up! So, I literally just started the pred. this morning. I started the progesterone 2 nights ago, and have been taking vitamin D, aspirin, omega 3 and multi-vitamin for over 4 weeks. Some since last September in fact!

Dr. S diagnosed me with NK cells; but everything else came back okay. I was hoping to rule out the NK cells, but sods law!

Anyway, I am very early on, about 4+4; so fingers crossed.

I will try to catch up on where everyone is.

Oh, and can anyone tell me if they noticed a very slight pink coloration with their progesterone discharge? I am talking very very slight. I know I shouldn't look, but after my previous experience(s) it's a hard habit to break!

Hey there bertha and a big welcome!, good to see you over here but sorry for your losses. You decided to start on the Pred then, was your OH ok with it in the end?

On the progesterone, are you using the "visitor's entrance" then? I understand the pessaries can cause irritation if used there (although some people have no problems) and many of us choose to use the "tradesman's entrance" instead. Not the most glamorous thing to do, but nowhere near as bad as I for one had feared! Anyway I'm sure others will be along before long with their own progesterone experiences and excellent advice. And we all understand compulsive checking of any and all discharges!

Welcome and congratulations on your bfp bertha!
I used the back entrance for progesterone so didn't notice the discharge - but I know a few on here used the front so might be able to help!

olives good luck tomorrow. I had a scan when pg with ds1 at about 4 weeks. They saw the sac and that was it. Good to know it was in the right place - but of course too early to provide any further reassurance (as I was to discover when I started spotting the next week...thankfully that 4week old bean is now fast asleep upstairs).

battery am sure baby is just having a little sleep but maybe drink something cold or eat some chocolate and see if that speeds things up? Otherwise don't be shy to call the labour wars if you're worried.

I know some of you feel like you've had such a long journey so far - but I promise you the journey is worth it. F is just perfect, I'm amazed at how quickly the time is going and how I'm enjoying every second of it. I don't know if that's because he is our long-awaited miracle baby or if it's just easier to appreciate it all second time round. In any case I feel incredibly lucky and can't wait for more of you to get yours too.

Thanks for your thoughts, ladies. I have an appointment tomorrow with a consultant recommended by Mr S so hopefully I will get some answers then.

battery I hope bubs has woken up and wriggled a bit now! I do have a question that I couldn't find a clear answer to online. Does "mild dyskarosis" definitely mean there are precancerous cells present? Or could that result be caused by inflammation of the cervix (I had IUI about 3 weeks before the test so had a catheter shoved through it and quite a vigorous swi session 36 hrs before the test and I am wondering if either of these could have skewed the result by causing "trauma" to the cervix).

Welcome Bertha. I hope this is fourth time lucky for you.

Fantastic news sue, so pleased for you. All you pregnant/given birth ladies give me some hope that it could happen. Wish it would hurry up though......

Welcome to Bertha and well done.

Olives wishing you the best of luck tomorrow. Fc that all is ok.

Euro hope you get some answers tomorrow and can carry on with your ivf, good luck.

Had my second lot of pred insomnia ths week (only mildly but enough) last night and been to Zumba so shattered! Bit worried tat Zumba might be a bit energetic while ttc, will have to sound out Mr S I think!

Waves to everyone else.

Evening :)

Since I last posted I have been booted to death so i feel a bit better. I feel all the movements really low down in my pelvis so I wonder if baby hasn't turned yet? I have a scan on Wednesday next week so I will find out then :)

euro I have Pm'd you xx

euro I had precancerous cells and had to have them zapped around 5 years ago. It is really common so don't get too worried about it. From what I remember I had to wait one cycle before having sex again but I wasn't TTC at the time. It's very scary as you suspect the worst but it's normally more of a precaution. Typical that this happens as soon as you get your head around ivf. The procedure doesn't hurt by the way but is a bit sore like period cramps afterwards. I still wonder if my precancerous cells caused my killer cells to go into overdrive.
Welcome to bertha and congrats on your bfp. I take progesterone up the front entrance as was told by mr s that it is slightly better than the back entrance. I know it can cause spotting due to irritation so maybe try the other entrance?

pebbles glad you are feeling positive with the bfps on here. I hope your time will come soon just don't give up!

Thanks to everyone for your nice posts on my scan. I still don't quite believe I have made it to seeing the heartbeat and will be devastated if it fails now.

olives good luck for tomorrow.

kittens glad the baby is moving now

pebbles I calmed down exercise on the 2ww and did low impact zumba. I asked mr s and he said it was up to me but not do anything too vigorous.

digi glad that F is getting big blocks of sleep. It makes such a difference when they start to sleep through. It's the success stories such as yours that inspiresv the rest of us to keep going!

sue thanks. Were it not for the timing, I think I would be a bit worried but not overly worried. The timing is just awful though.

pebbles I've carried on running whilst ttc. A few cycles I have stopped during the 2ww, but it didn't help so I run if I want to. I feel awful and sluggish if I stop exercising.

Oops, pressed post too soon.

I meant to say, sue, I have also wondered if my NK cells were high for a reason, i.e. they were fighting off these pre-cancerous cells, and I stopped them doing their job with the steroids.

euro I think there are quite a few of us on here who have had abnormal cells so I wonder if there is a reason behind the high killer cells. I did question this earlier in the year.

sue, your baby brain has evidently kicked in

"kittens glad the baby is moving now" lol. That would be a surprise, but I think if anything, it's just wind.

Glad to hear your scan went well by the way.

euro, that really does stink timing-wise. I am another one who had abnormal cells followed by laser treatment in my very early 20s and have been fine ever since. Hopefully you will get a clearer picture of how to progress when you see the consultant. It doesn't help at all not knowing, your brain is probably doing overtime wondering whether you're going to be able to go ahead with the ivf or not. I don't know much about ivf but is it possible to do all the initial stages and then get your embryos frozen and put back once you've got the all clear?

It does make me a bit nervous, I have to say, all this suppressing of the immune system. I mean, it's all in a good cause baby-wise but the NK Cells are to be encouraged in the grand scheme of things aren't they? I think it's ok for those who get pregnant quickly but I'm not sure being on immune suppressants for a year or two, or more, is ideal. euro and snoopy's situations have made me think about this more, I must admit.

free, and any others who are on hydroxy, did you completely replace pred with hydroxy? What about after BFP? Mr S said that if I wasn't pregnant with this cycle he would start me on it next cycle as I've been on the pred now for 15 months, albeit with a couple of 1 or 2 month breaks, but it makes me feel dreadful and I don't like the idea of being on it for so long.

Good luck with your scan today olives. Hope all is where it should be!

I'm just starting my 2ww today. Keep your fingers crossed for me that the combination of post hysteroscopy fertility, 2 eggs this month, diligent SWI and my friend's dad's "wooooo" numerology prediction that I will get pregnant in June and the lucky 7th pregnancy speculation all work in my favour! (The second two come with a mountain of salt!)

Kittens, I have completely replaced the steroids with hydroxy. I'm not sure what the plan is if I get a BFP, but I assume the intralipids on top. Mr S said he has no stats to give me about hydroxy alone. To be honest, I might be tempted to take the steroids again if I got a BFP, knowing it's for a finite period, and that my DS was a pred baby.
Looks like you have everything aligned for a BFP this cycle, so fingers crossed for you! It's funny how superstition can creep in when it comes to babies; I'm not in the slightest bit superstitious at all normally, but when I was TTC my DS, I once went for a summer's walk with my dad through the cemetery behind our house. We came across my dad's uncle's grave, who had died when I was a teenager. I asked my dad if his uncle and auntie had ever had children and he said no, and I spent a long time just standing there thinking about them, whether they'd been sad about that, wondering whether I was ever going to be a mother, and so on. Two weeks later I got my BFP, and we worked out that my DS had been conceived on that day. Somehow it seemed to me that my great uncle's spirit had taken pity on me and 'granted' me my baby from beyond the grave. Bonkers, obviously!
On a different note, I had no idea I wasn't meant to be doing vigorous exercise during the 2ww. Is that because of the SO treatment, steroids, or just plain old conceiving? I've been swimming 4 times a week, walking fora an hour or an hour and a half every day. And isn't sex vigorous exercise?

brownstag some websites I have looked at advise against exercise, but as far as I can tell, this isn't backed up by any research. I feel happier and fitter when I exercise and I just don't believe that can be bad for ttc.

Sorry kittens the post was meant for battery. Maybe its another thing to add to your good luck this month?

Exercise is fine in the 2ww apart from high impact aerobics and anything that involves jumping up and down. Swimming and walking are both fine. I did find research a while back that moderate exercise increases killer cells. I have completely stopped all exercise since getting my bfp and will start again if I get to 14 weeks. I agree that exercise makes you feel better so you have to do what you think is best for you.

brownstag I don't know about you but vigorous sex doesnt last long with us!!! My acupuncturist said in Chinese medicine they believe the body needs to be rested when TTC and that you should limit exercise to 2-3 hours a week in total. This time is the first pregnancy I have taken that advice on the 2ww and I have got the furthest so who knows. They used to prescribe bed rest for recurrent miscarriages so maybe resting does play a part in it? Trouble is none of us know what to do for the best!

Thanks for the good wishes ladies. I have a small black blob in my womb which is apparently the sac! I am relieved but still terrified about the next few weeks. I have got some free fluid in my pelvis but doc ishopeful that this is just residual fluid from ovulation. I am having another scan next Fri to see how things are developing.I think until then I just need to bury my head in the sand again and pretend nothing is happening!
Welcome Bertha, nice to meet you. I am at the same stage as you so we can mental together
euro Glad you have a specialist lined up for their opinion.
Right, off for a nap as Im on nights this weekend. Hope everyone has a nice weekend despite the rubbish weather.

Well done olives first hurdle out of the way that it's all in the right place. I tend to find I am positive after a good scan and then a bunch of nerves and convinced its all over a few days later! The next week will drag for you!