TTC/Pregnancy on Prednisolone or similar part 4

[digitalgirl]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

Good luck today Battery. Let us know how you get on.

Free - Just seen your message. You're obviously on the case with the thyroid thing. I didn't want to seem bossy, it's just that I know the denial feeling is very strong and I didn't want to think of you missing out on anything you should be getting, healthcare-wise. Witness us not having getting our arses into gear sooner re moving house because I didn't want to admit that I was actually having another baby. Now it's panic stations!

good Luck Battery for scan, let us know how it goes.

free thanks I'll text mob to you x

clinic called first thing and sent note to NLC to get appointment booked for Intralipids. Louise left message on mob while i was at school and said I see you have sorted it and congratulated me!! (hands over ears). She was off ill apparently and both have not read emails yet so feel bit bad now, although wasn't rude on email just said I was bit disappointed and surely they both were not available. Oh well. Hopefully get appointment in next couple of days. Such a shame we can't get excited about all this.

Have to go out so catch up with other posts later. x OOh Creme eggs yes yes yes!

Back at home now, gosh it is rainy and horrible out there. I stood outside waiting for Boots to open after the docs (was 15 mins too early) but then thought the better of it ? having thrown on black combats, black polo neck and army style coat to get to the docs in the rain, and with these huge dark circles and no make up ? I thought I was more likely than ever to get refused! I would have been tempted to go in and say just give me the f?in drugs!!!

Battery good luck today. Aghhh! I am silently screaming with trepidation and excitement for you. I always say to myself there?s nothing I can do but live through it. But we all know how it feels to be setting off on that journey (literally I mean) to the scan with a whole jumble of thoughts to contend with.

You are right about faint lines though Battery. I just texted my very faint line to Snoopy so she could see. It is barely there and I was very trusting and never tested again. PQ will testify how faint it is too.

I have thought about the Dream Genii Ari, it does sound good. I am already teaching myself to sleep on my side as the front is too uncomfortable. I do feel quite a bit of bubbling and things down there but I guess at this stage it is only wind.

Thanks for the concern Coconut. Yes it feels a bit weird to be hospital-less. Hopefully I will hear from Epsom any day. But the good news is I have had my first blood tests done and also the nuchal. And the thyroid thing I have dealt with since I was 21 so I don?t even see any endo any more. I almost self medicate depending on my results - luckily my prescription is for around 500 x 25mcg so I can go up or down by 25mcg depending on my levels. My intention is to get tested every four weeks throughout pregnancy and in terms of TSH to hover around the 1 mark if I can. Are you getting yours tested regularly? I did say to Louise was it a problem that I was hospital-less at the moment and she said not to worry that they had a good eye on me.

Let me know what you think of the photo Snoopy! It really is so very faint isn?t it! Not quite what you would call a 'BF' P. Let us know when you sort out the intralipids and then take a good magazine or two with you.

free bad news is mine was fainter than that yesterday!
this morning did one at 7am after no drink for a couple of hrs and fainter!!

Good news is did one at 9.30am today and much darker than yesterday best one yet, which is great. why could I barely see the first wee one today? that should be the darkest no? funny thing is the one i did yesterday at same time (9.30ish) was also the darkest.

When I went to Florida I took most of drugs with me and left them there! Just got enough pred to take before Mum gets back on 1st Feb but Omeprazole is all left over there. Just thought of it as had slight tummy ache but I can put up with it (and hope that's just the big shot of pred reacting with body) and it's not the important one at end of day.

Oh wanted to say kittens are you a make up artist or something. I'm going to get some Dior (touch eclat) stick you were talking about sounds good. I don't actually think much of the YSL one either. Over priced if you ask me.

good luck to battery today!

PQ The boots basic ones are for when you are late - they're not very sensitive at all so you really can't compare them to an FR or even the sensitive cheapie itnernet ones. I bet if you went out today and bought a FR the line would come up straightaway.

In keeping with the PMA have the faint liners up to BFP and free and cheerful up to 2nd tri .

Thurs 19th Jan

BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 32+5 Due 10/03/12 next scan 10/02/2012
Digitalgirl - High NKC - BFP cycle#2 27+3 Due 16/04/12 MW appt 25/01

2nd Trimester
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 24+3
Comedy - V High NKC - BFP cycle#2 ? 21+5 due 26/5/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 21+2 Next scan March
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 20+5 next scan?
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 13+2 Next scan 27/01/12
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 13+0 Next Scan (15 weeks)

1st Trimester
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 9+5 Scan 19/01/12
coleyoz - V High NKC. TTC #2, BFP cycle2, 9+3, Next scan 23/01/12
picolina123 - V High nkc, pred cycle 1
Hopefulfor2nd - High NKC - TTC#2
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)
Snoopygirl - V High NKC TTC, #3

TTC
Waiting to test
Cherrycheeks - V high NKC, TTC#2

Waiting to ovulate
buster76 - V High NKC, Factor V Leiden
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
eurochick - High NKC, superovulation cycle 2, pred cycle 2
Havingkittens - Upgraded from High to V High NKC TTC #1

WTTC
duggs1976 - High/V High NKC - TTC #1 - awaiting hysteroscopy, then superovulation cycle3
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - TTC#1, review w/Dr S 14 Jan.
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC
Suemays - High NKC, TTC #2
Cornflakes30 - V High NKC, underactive thyroid

oops forgot to update choccy

Thurs 19th Jan
BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 32+5 Due 10/03/12 next scan 10/02/2012
Digitalgirl - High NKC - BFP cycle#2 27+3 Due 16/04/12 MW appt 25/01

2nd Trimester
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 24+3
Comedy - V High NKC - BFP cycle#2 ? 21+5 due 26/5/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 21+2 Next scan March
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 20+5 next scan?
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 13+2 Next scan 27/01/12
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 13+0 Next Scan (15 weeks)

1st Trimester
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 9+5 Scan 19/01/12
coleyoz - V High NKC. TTC #2, BFP cycle2, 9+3, Next scan 23/01/12
picolina123 - V High nkc, pred cycle 1
Hopefulfor2nd - High NKC - TTC#2
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)
Snoopygirl - V High NKC TTC, #3

TTC
Waiting to test
Cherrycheeks - V high NKC, TTC#2

Waiting to ovulate
buster76 - V High NKC, Factor V Leiden
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
eurochick - High NKC, superovulation cycle 2, pred cycle 2
Havingkittens - Upgraded from High to V High NKC TTC #1

WTTC
duggs1976 - High/V High NKC - TTC #1 - awaiting hysteroscopy, then superovulation cycle3
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - TTC#1 from March
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC
Suemays - High NKC, TTC #2
Cornflakes30 - V High NKC, underactive thyroid

Snoopy how many tests are you actually doing there?! How do you have time for, I dunno, eating and breathing in between peeing on a stick...? :) It sounds like it is definitely a P, if not a 'BF' P and a P is a P. Mine was spectacularly faint wasn't it? But I just wanted to get the intralipids done.

OOh Digi you have upped us all on the list! Well done. Agh - Charlie and I have made 2nd trimester.

I have a confession. I just pressed the One Click Buy Now on a Doppler on Amazon. I know, I know... It's probably a waste of money, probably going to make me worry more rather than less and probably going to get thrown straight into the bin. I just couldn't help it

I too found Touche Eclat a bit rubbish. I bought it about a year ago, thinking I SHOULD really have it as everyone else raved about it, but it didn't really do much, I didn't use it and it dried out. But that was the pre-Pred days before I had such terrible dark circles.

DH and I both working from home today and he has put a huge veggie stew on, using the slow cooker. Can't wait for it to be ready! Oh and I've just filed my tax return and also dispatched a friend in Brighton to go get me some aspirin so I can pick it up on Friday when I get down there. Might as well get other people to score my drugs for me.

Good luck to Battery.

Yes, Snoopy I am a Make up Artist. The Dior equivalent to Touche Eclat is probably just as pricey (I got mine free -perks of the job ). I do think it's better than TE though and it doesn't seem to go smelly like TE can do, which is a bit rank!

Coconut, I had a similar problem with my RMC referral too. Bloody nightmare!

Talking of bloody nightmares, literally, I am completely in limbo today. I started spotting yesterday and obviously Day 1 of your cycle is counted from your first day of proper bleeding. Now, I don't think I am "proper bleeding" yet even though the spotting started yesterday. So, does this mean I'm still not on Day 1? My periods are quite light anyway so it's hard to tell. Problem is, I'm supposed to have my first blood test between Day 1-Day 3. The blood clinic is closed on Saturday so that leaves today or tomorrow. I have a tentative plan to go to a work thing/exhibition opening in Brighton this evening which means setting off before the rush hour and then staying over night to spend the day with my granny tomorrow but this can only happen if I can get my blood test done around lunchtime today. If today is too early then I will have to stay in London and get my test done tomorrow, miss the work thing and go and see my granny in a few days instead. FFS! Why can't anything be straightforward?

Oh, and by the way, you'll all be pleased to know I managed not to fart throughout the ballet .

Hello ladies, I hope you don't mind me butting in but I'm new to the Pred tablets and just wondered if you had any advice about side effects? I'm on them as this is standard for the post-transfer IVF at my clinic, so it's precautionary rather than knowing there's an issue (as is progesterone and clexane). Low dose, just 2 x 5mg per day. Mostly I just want to know if the chronic insomnia (awake since 1.30 this morning) is normal, as I'm not sure the demented witch this is turning me into is going to be v popular when I go back to work next week . Thanks and good luck to everyone!

Good luck Battery - hope the scan went well today.

Congrats to snoopy - all you can do is up the drugs and have the intralipids and hope for the best:) The first few weeks are the worst but we are all thinking of you.

Belated congrats to hopeful too - how are you going?

Lotions - hi and welcome to the thread. I haven't had any troubles sleeping on 40mg so can't really help. Its been suggested that light exercise in the afternoon/early evening may help? Also you could try homeopathic remedies to help you sleep? All the best.

Welcome Lotions! I'm afraid in my own case, insomnia is definitely par for the course while on the pred. For me, I go to sleep ok, then wake up during the night - either wake up, awake for a while then snooze before waking again (and again) or else I just wake up around 3:30am and then can't sleep. I should say when not on the pred I sleep like a log, so this is definitely the pred doing it. I had this while on both the lower-dose pred (25mg) and higher dose (40mg). Next time I'm on the higher dose (ie, hopefully longer term) I'm going to ask my acupuncturist if there's anything she can do to help counterract this!

I think some people have found that as their bodies get used to the pred, the insomnia side of it lessens (possibly goes?). Fingers crossed that's what you find! :)

Thanks Ari and Coley, I'm not always the greatest sleeper but this is def beyond the norm. I am completely off caffeine, have sleepy time tea, doing the visualisation/relaxation CD etc etc but having been specifically told not to exercise, this might be a large part of the issue. Being off work means I'm not mentally tired either - first time I've tried the 2ww at home and it's not as relaxing as I thought it would be! Will try a late afternoon walk anyway, as it can't hurt :)
Really appreciate the advice, this was my first go posting so lovely to get the support!

Hello lotions and good luck with the 2ww. As you said a bracing walk and some fresh air might do the trick. When I was on the pred I slept ok but went to bed quite late and made use of the time doing stuff round the house...(laundry at 1am?)

Lurking for news from battery

Hi digi - so many things I could be doing instead of anxiously lying awake and kicking DH when he snores. I know I should be 'productive' but feel cheated the minute I get out of bed and then worry about actually becoming nocturnal. I should find a boring chore...

Yes, I wouldn't want to get out of bed after getting into it either...hence me putting off my bedtime till I had to force myself to go to bed. And don't, whatever you do, think you'll just take a quick look at MN's AIBU or Relationship section at midnight...2 hours later you'll be kicking yourself.

bloody hell I'm really tired today (not from late night MN-ing - DS has been sleeping badly the last week and coming into our bed earlier and earlier)

Hi Lotions. That sounds like a nightmare (no terrible excuse for a pun intended). How many days have you been on them? I know that when I first start taking 25mg I can wake up in the early hours (similar pattern as Ari) and find it hard to get back to sleep but then after a few days I think I seem to adjust to it.

After being on 25mg for two weeks I was then on 40mg for around 7 weeks before I started to come off them slowly. Am now just on 5mg. It sounds like they have really affected you even on 10mg. Although I don't want to be disparaging about the dose as it is a nasty drug and hours of Dr Googling has shown me that even low doses cause difficulties. I am with Digi I think, try to go to bed a bit later? At the moment I am having a similar thing with waking up needing the loo but I find if I go to bed after 12 I don't need to.

Oh and good luck with the treatment! If you are post-transfer does that mean you are almost ready to test...?

Coley, thanks for asking. 3 days in which feels like 3 months. Lots of mentalling and constant pant checking. Even Acupuncture failed to work its magic yesterday!
I'm just so scared. Scared of believing it can happen. Every day that passes, even in this short amount of time, hope is slowly growing. I found myself googling due date and trimester dates. Argh!
I'm meant to be going up to nlc on Feb 8th for scan. I don't need intraplids so no need to go up til then.
Sorry for the me me me post. I needed to vent. Guessing snoopy and pq feeling similar?
Welcome lotions x
Looking for news from battery x
Waves to all x x x x

Hopeful it won't cheer you to know that whilst Snoopy and PQ feel similar, several weeks down the line I still feel similar too! It's been a long, long few weeks. I know that doesn't exactly inspire you with cheer but I guess in the defence of Time it is just that, a mere 9 weeks since I got a BFP. Goes bloody slowly though :)

Just quickly - am now at work.

Scan was good - did dildocam??? Measured slightly behind but said he couldnt get a good measurement due to the way the baby was lying. I am at St Mary's on wednesday and they are better at measuring!I had to wait 2 hours to be seen :(

Hii lotions. I've just finished my first Pred 2ww. I suffered with insomnia, although it wasn't every night (I think after a night or two of it I was so exhausted that i managed to sleep ok and then the cycle started again). I banished my husband to the spare room and made sure I had books and laptop (for watching iplayer and MNing) by the bed so rather than tossing and turning for hours I could occupy myself until I felt ready to doze again. Mr S did suggest evening exercise to help (and it did seem to a bit) so if that is out for you I don't know what to suggest!

I find it strange that a lot of fertility clinics recommend taking time off, no exercise, etc. during the 2ww after IVF when that is not advised for people trying naturally (or at some other clinics). My fertility clinic just says to carry on as normal after IVF and not to take time off work, etc, but I know someone who did that with her first cycle (unsuccessful) and then barely moved after her FET and it was successful.

battery what an annoying wait! But I am glad the scan seemed to go well.

This whole thing is about Bloomin waiting isnt?! And yet, your 9 weeks has gone quickly to me!
Have decided distraction is key! Instantly felt better once I wrote that last post, it really helps to get things out of my mind. X x

Fab to hear that battery! Will they also scan u at St.m then? Hope so! X x

Just got reply from louise, she used the c word!?!
Right, I'm off to distract myself! X x x

first thing I think of when I read the C word is not congratulations

battery Very glad to hear scan was good! St Mary's told me that an external scan after 8 weeks is much more accurate - so wouldn't worry about measuring behind slightly. As long as there was a good strong HB all should be well.

hopeful first scan date booked already! eeeeeek!