TTC/Pregnancy on Prednisolone or similar part 4

[digitalgirl]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

[suemays]

Sorry didnt mean egg donation - meant surrogacy. Think I need to go to bed!

[batteryhen]

Kittens - am just in bed, will look it all up for you in the morning. Between us all we should be able to come up with a plan x

[Havingkittens]

I did have a little look at mummyabroad's thread and it looks like she paid twice as much as I've been quoted . When I asked the first GP about it he did also mention the risk of surgery making matters worse rather than better as well. Maybe that's why he didn't refer me in the end.

I've not thought about surrogacy sue. I'm guessing that's going to be extremely expensive. Egg donation was suggested to me by a few consultants as my best hope following my RMC tests but I don' t know how I feel about that. Also, if I have high NK Cells which are rejecting embryos who are 50% foreign DNA I don't fancy the chances of 100% foreign DNA.

[digitalgirl]

Quick one before I fall asleep: Good luck to battery and picolina tomorrow.

[suemays]

I know with surrogacy that you pay for any expenses that the surrogate might need in the pregnancy such as maternity clothes, travel expenses etc. You dont actually pay them a wage to do it so it might not be as expensive as you think.

They perform IVF with your embryo but not sure if the cost is increased due to it being put in the 'host' mother.

You cant advertise for a surrogate but there are companies that can put you in touch with one. Have a look at www.surrogacyuk.org/home.
One of my friends has offered to surrogate for us but I dont know if I would feel weird a friend doing it, would be better if its a stranger. Surrogacy is good for women with recurrent miscarriage so thats why I looked into it as it would be my last resort. I dont think egg donation would work for any of us as you say our bodies will reject any embryo. You could do surrogacy where they use the hosts egg and your Dhs sperm so it would be like egg donation but she would carry it for you. I personally wouldnt want to do this as I wouldnt feel like the baby was mine but everyone is different. I also wouldnt want to adopt as I know I would treat the 2nd child differently to my 3 year old. There are still avenues for you to explore so dont give up hope yet!!! We are all with you on this journey honey xxx

[Havingkittens]

Oh god, as usual, I've been completely self absorbed. Best of luck to you two ladies tomorrow. x

[picolina123]

not self absorbed kittens , i was thinking about you all last night and when i got up wanted to see how you were, this is a big deal and if it was me id be screaming non stop, how much more do they expect u to deal with! and when it seems like they dont care and they are screwing with you and your partners life.
free- i remember trying to put a tampon on as a kid, must have been 14, everyone was going swimming , i couldnt do it, didnt really know how, my older sister came in to the loo and tried to help me before we gave up, was very embrassing ! never tried again. i dont think me not relaxing is physical , not like that with hubby obviously, just everything else. dont laugh but i went on to ann summers and bought a dildo ( never had one of them either) your laughing !!!! i can hear it !!! practise makes perfect and i need to sort this phobia out.

my user name is a pet name my dad used to call me... he used to sing me this song .. picolina picolina eating all the kahna beena (i.e food) ha ha i still do that

[duggs1976]

Ok so today is Wednesday kittens, so yes you must do what you must to alert the shortcomings of the go and other nhs staff. However, with a more "positive

[duggs1976]

Oops. . More positive outlook for moving forward it is better to now have a plausible problem for your lack of conception. So, get the surgery booked in - hysteroscopy i guess ? ( what I just had but mine turned out only investigative) as soon as possible. Apparently the conception rates after this surgery are quite high. Then there will be 4 weeks recovery and you could we well on your way to successfully ttc by start of march. I would agree 3 rounds of ov for you, get as many of your eggs out at a time ( so to speak). Takes you to may. Then if not PG by may then re look at options. Is hideous what has happened but the anger won't help right now as you know! We r waiting on super ov thread for you kittens. Best of luck. Reckon you'll be fixed by end of next week!

[batteryhen]

Kittens Yes he is at princess grace. I think mummyabroad was quoted more as she was classed as being non - resident. If you like I can dig out his email address and you can go from there - it is entirely up to you xx

Just off to ST Marys now - will check in later - good luck to picolina too xx

[Havingkittens]

Having read lots of the Asherman's threads and had a think about stuff I remembered that at the first appointment, with the GP that wasn't my regular, he did acknowledge that scarring could be a problem but also said that surgery for scarring could actually end up making things worse. I have a feeling that was why he didn't refer me in the end and frightened me into leaving well alone. When I went back to my own GP, he didn't exactly dismiss me out of hand in a nasty way. He "reassured me", in his usual kindly way, that he didn't think my symptoms were indicative of scarring. In the past he has said he would do whatever I needed him to do to help me achieve a successful pregnancy, including referring me to Mr S at St Helier, which is why I didn't challenge his opinion about my possible scarring.

Having also read all the comments on the Asherman's threads about it being so important to have the surgery done by an expert in this field, I am now wondering if it's a blessing in a way that I didn't get the NHS referral. I had bunion surgery on the NHS about 3 years ago and my foot is still causing me quite bad problems, I really regret now not having had it done privately. Imagine having the same regret with something that could have a devastating effect on fertility. Also, considering the comments I have read I am actually wondering how much of a good idea it is to have this done at NLC when they do it by laser (which a lot of the threads say to avoid) over having it done by someone like Mr Lower. I think the price I saw on "Mummyabroad's" thread was not the price she paid, but what someone else had told her as a non overseas patient, and it was at least double what I've been quoted - which has already sent me reeling! Yikes! Anyway, I'm going to email him now and ask him more about it as well as posting on here and fertilityfriends to ask if anyone's had it done at NLC.

[Havingkittens]

I just watched a video of Mr Lower talking about Asherman's. He describes it as adhesions so perhaps I'm jumping the gun by assuming that scarring comes under that heading. I'm going to try and find out if scarring alone is ok to treat by laser as I can't imagine how you'd treat it with scissors. I suppose that must be just for the adhesions.

Note to self - Find out all facts before becoming hysterical!

[PQ77]

kittens - i had endometriosis adhesions lasered off, but then had to have another surgery two years later to laser off the scarring from the first lot of surgery! I scar very easily so the second time they gave me steriods to reduce the scarring and subsequent ops I took anti inflammatory meds to try and reduce the scar tissue. My doctors have used the words adhesions and scarring interchangebly but there is a bit of a difference. Adhesions are where bits are stuck where they shouldn't be - eg my ovaries are stuck to my bowel and scarring is thick tissue. But since you've seen the video you are prob an expert on this now!

[Havingkittens]

GULP!

I've just been on the phone to Mr Lower's secretary. I was baulking at paying £1300 for a hysteroscopy at NLC..... he charges £4,500! And that doesn't include the price of the initial appointment and 3D scan. She suggested I get the images from the scan I just had and bring them in to get a second opinion on whether I need the procedure or not and that I wouldn't be obliged to have the surgery, but I suspect once I was there I'd get told all sorts of horror stories about how important it is to have an expert such as himself perform the surgery.

Imagine, after forking out for that, that I find I need to have IVF, or the other more expensive form of IVF that duggs mentions which screens the embryos before implantation - which I suspect I would choose over and above normal IVF if it came to it, due to my history. It's pretty prohibitive.

[eurochick]

kittens that is awful treatment. You must be furious.

What was the day 21 test result that Mr S interpreted differently from the NHS? My day 21 test result was 30 which is high enough to confirm ov but is on the low side, but no one has every wanted to restest to see how things are now.

snoopy I'm not sure if you will find this helpful but I sometimes have to remind myself that all healthcare professionals are just advisors. You ultimately have responsibility over your own body. If you want to disregard the advice because you don't think it is right for you, that is your decision to make.

Welcome back, mercator and congr... on your BFP.

[hopefulfor2nd]

Hey kittens, glad to hear you're working out a plan of action and getting some answers at last. Let us know how u get on when Mr lower replies.

Also lurking for scan news x x

[Havingkittens]

My result was 10.4, so if 30 was on the low side I can't possibly see how 10.4 can be assumed as normal!

[hopefulfor2nd]

Opps, should've refreshed page before posting!
Blimey kittens that's a lot of money! What do u think you'll do next? I can't imagine what you must be thinking. Remember, we are all hear for a vent of anger, tears and all other emotion x x

[snoopygirl]

euro your right it's up to me at end of day. I'll only have self to blame if it goes wrong. Got time to think about it anyway.
Good luck battery and pico

[Havingkittens]

I don't really have a plan of action yet hopeful, I've just spoken to Mr Lower's office and I'm currently lying on the floor in shock at the price! I can't afford to see him really.

I just looked on the Asherman's support page on Facebook and there is a lady on there commenting that she'd had a hysteroscopy with Mr Lower and was already starting to scar from it so I don't see how spending £4,500 to get him over £1300 to have it done at NLC is going to make any difference in the risks of outcome.

[Arianrhod]

Heck kittens, what a positively cr@ppy situation! Rubbish NHS, this is my exact fear of ERPCs, why didn't they listen to you! Seems the doctors still think they know best, and don't listen to what their patients are actually telling them.

That's a heck of a lot of money for even a private consultant to charge - and you say there's one lady who's done this, and is starting to scar? That seems counter-productive to me - I thought the point of this procedure is to get rid of the scarring!

Have you discussed this with Louise? (sorry if you already said) I know you've been quoted for having it done at NLC so I guess you probably have?

It's a nightmare situation, I'm so sorry you're having to go through this on top of everything else! Virtual hugs, and feel free to rant at will!

[batteryhen]

Kittens , that is sooooo too much money! You must do what you think is best. Do your research and make the best decision x

Scan news from me; all ok, very wiggly and measuring 10&5. I swear my nerves are shot.

[duggs1976]

Am sure a hysteroscopy was cheaper at NLC ?

[Havingkittens]

NLC put their prices up at New Year . I managed, at least, to get my scan done at last years prices because I booked it before Christmas but everything's more expensive now.

[Stogan]

YEY battery fab news woo hoo