TTC/Pregnancy on Prednisolone or similar part 4

[digitalgirl]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

free, I'd been meaning to pass on those tips to you for ages but with all the other stuff going on, I kept forgetting.

I only wish I'd noticed the spotting before I swallowed that blasted pred. Now I have gut ache for no reason . I've been very spoilt as we've had a great lodger that was mostly scarce but she's moved out and. In the gap between lodgers we have a friend staying with us for a month and he uses the lounge a lot so I can't sit and fart at my leisure which is most frustrating. Tonight I'm orf to the ballet so probably best leave out the farting there too .

Oh, by the way, is there still a meet up on the 28th? I know Duggs, our Social Secretary is away. I had originally thought I wouldn't make it as that was when my next scheduled trip to my mum's was planned but sadly that's not happening now, of course.

Woohoo snoopy, understand the terrified bit but fab news nonetheless!! :) Louise is very good about coming back to you pretty rapidly, but I think most people have just started the pred and cyclogest straight away. Get those intralipids organised!

Thanks for the messages ladies x

Just been out but have now probably left 2 messages for Louise (2pm) and phoned her what 5 times. Also phoned office about 4 times and it's continuoulsy going to answer phone!! and left message at about 2pm with them too.
I actually had to say to Louise when I was down NLC last week that the last time I left her a message and email she didn't get back to me at all. She was embarrrassed and even the receptionist said it would be unlike Louise and she apologised.
Well here I am having booked nothing and spoke to no one ...great.
does anyone know of any other numbers??

I got Louise mob and office on 0208 401 9928

snoopy - can I do anything for you when I am at Epsom in person tomorrow? PM me if I can pass on a msg/make an appt for intralipids etc. i will go for the drip in the mornign regardless - unless I get AF and am actually bleeding heavily (oh the things we talk about, thinking about kittens at the ballet )

Even though it might be a huge chunk of cash to throw at what could be a chem or even non pregnancy I am kind of taking on board Dr Beer's protocol which involves treatment before conception to calm down the immune system and my theory is that this might help get things in good shape for next cycle if this one is not to be

But perhaps i am talking COMPLETE rubbish

Re meet up on 28 Jan - I for one am in.

Got to dash, will respond more later if I get a chance (baking birthday cake tonight for DS)

thanks PQ your a sweetie. I'll see if they call me in the morning. If not I'll PM you. Just sent them a curt email (office and louise). I'm sure they will but if not I coming down to camp in the reception until I get them !!

Oh btw....I have been naughty and not taking asprin regular. Read into that what you like but stopped it about end of Dec. Ov'd begin Jan roughly. Interesting.....

free they have low dose aspirin on the shelf in Waitrose at the Wharf (down the back on the left as you walk in from the shopping centre). And there is more than one Boots branch,so you could just sneak into another!

snoopy I have found emails to the office@miscarriageclinic address get answered pretty quickly. I have not ever once managed to get through on the phone!

I am also up for a 28 Jan meet!

snoopy do you have Louise's mobile num? I've sent her texts before now and she always responds to those. Like euro I've also never managed to get through on the office phone num and never had voicemails left on there answered. However I've always got replies to emails to the office email address.

Euro you are right, should have nipped into Waitrose. Forgot about that. I can get some in my local Boots tomorrow. They give you anything in this part of South East London :)

Wow, it's amazing that you could be on your way to Epsom for intralipids tomorrow PQ - do let us know! You and Snoopy too maybe. Snoopy if it is any consolation intralipids are really easy to organise and you can do them very quickly via NLC.

Am still not sure about the 28th meet up. It's a friend's birthday and waiting to hear about her gathering. I will definitely come if I can though! Otherwise I am back on the 14th Feb and around after that. Must get some work organised!!

What a busy afternoon!!

Great news for the BFP-ers, off on the journey (again). Yes it might be chem but get those intralipids in to you asafp I would. It's only money(!) and at least you're throwing everything at it, that's my theory.

Welcome HelterSkelter. Sorry to read about your losses, but hopefully you'll find this thread a great source of support and random info. It's so confusing that different hospitals give different advice. I'm on aspirin all the time, as that's what Dr S says to do. I've never been refused when asking for a pack of the 75's though free, sounds like you got a feisty one. I did get asked last time I stocked up if it was for me, got raised eyebrows, explained I was taking it on medical advice, and he was happy with that.

digi what a lovely post, hopefully I'll get to your stage too soon... Though I'm not sure I want to know why you need breast/maternity pads before baby arrives. How naiive I am, you must think, but until I need to know all the gory details I think I'd rather stay in blissful ignorance.

Would someone mind updating me to ttc from March at some point please?

I'm still up for 28th. We need duggs back to organise us!

Oh my gosh girls, how exciting! Great first steps! X x

Also tried to get hold of Louise via email today and no response.......

thanks girls yes ari left four or so messages on mob. Haven't texted her though might try that if don't hear in morning.
free yes it's amazing how can go from resigning yourself to not ever gettin pregnant again to excitement/fear . Hope I;m not on here tomorrow talking about af or something.
hopeful thought it was just me for a moment! Other way round for me as in normally get straight though to the office.
See what tomorrow brings ..

Husband thinks it's very amusing about the Cyclogest I now have to pop up as it were. If he's not careful I'll be firing the Nerf Gun DS got for birthday where sun doesn't shine!

Am pissd on my month off at paddington having had a nutritious dinner of 3 large malbecs a twirl and a cadburys creme egg ( seasonal excitement leading me to contemplate the positioning of who eats these things) dr raj rai told me to stop the asprin. Considering my last mc the only damn thing I was on was asprin I quite confidently stopped it. ( for me I might add not blanket advice). There r some underground/ black Market contraceptive qualities about it so I've heard. But some ladies may need it so don't just stop just question next app if unsure ! Over and out drunken iPhone irresponsible post from train home

choccy and free I have had my aspirin purchase queried once - when I brought it alongside Pregnancare (not the Conception one, Mr S suggested the normal Pregnacare with Omega 3 so I was getting that). I just got "have you been told to take that". And I just said that yes, my consultant had told me to take it.

Out of my 14 past cycles of trying I was probably on aspirin for 3 or 4 of them (I tried it for a couple of months back in the summer, before I saw Mr S, after reading that it might help implantation). So I can't get pg with or without it!

Love it when duggs does drunk mn-ing!

Have one for me

Morning how rude of me PQ or FQ as I have renamed her congrats! *snoopy^ amazing news for you too . . Off the starting block as it were.

Sorry I won't be about for lunchtime 1pm meet up at southbank sat 28 jan but seems lots of you up for it - you just need to chose restaurant and report back to rest of us

Agh... Have lost my nerve and going to change intralipids to Monday if I can. Used up all my early preg tests and used an ordinary boots one today - not even a glimmer of a line. AF due today or Sunday (cycle alternates 28-32 days). Not FQ this month I think duggs! But you have set off an intense craving for a creme egg, one of my favourite things in the world!

Hi pq

I know what you mean.... line on cheap sticks wasnt' as strong and on FR wasn't incredibly faint. Saying that I think just got to go with it. Taken 40mg of pred and cyclogest wasnt' too bad last night!

It's not like I've got an appointment anyway!! Hopefully hear this morning after shitty email.
theres been lots of stories of fainter lines going on to sucessful preg so try not to worry.
x

Ooooh creme eggs, just love them! So much so that my ex-dh's son (was my stepson, not sure what they become when you get divorced!) always buys me at least two for my birthday every year! :)

Well I've got an oddity today ... I got a peak on my CBFM (that indicates OV within the next 24-48 hours) on CD11. CD11? WTF? I have never, but never, OVd anything earlier than CD14, and with the MCs it's been between CD14 and CD17. So what's with the peak on CD11? Confused! Of course me being me I don't trust it at all, and will back it up with a trusty CB digi OPK tonight. I did do a normal CB opk last night (even then thinking "what's the point, it's only CD10, I'm too early) and was rather surprised to see the line stronger than I expected. But certainly not strong enough to indicate OV just yet, I thought. Don't know what's going on!

Thinking about the non-replying from Louise, and came to the conclusion that she must either be off or on a course or something. She just doesn't not reply, not in my experience anyway. snoopy hoping you get something useful out of the office today, if not like you say go camp on their doorstep!

PQ hoping for good news over the next few days then. Those Boots pg tests, I think they're only sensitive to 25mIU, so I wouldn't worry about that being a neg. I've never personally had a useful result with a Boots pg test, so I don't bother with those now.

/waves to everyone

Waving from docs where am waiting for thyroid blood tests. Had to set my alarm for 7.45am! Ouch :)

Sorry about the bfn PQ, see what happens tomorrow. Snoopy I texted PQ my bfp from this time around, I only tested once then went straight for intralipids etc. Pm me your mobile number or email address if you can, itwoll set your mind at rest once you see how not-visible it was :) duggs am so jealous of your liquid dinner. Malbec... I remember it well... Mmmm.

Gosh I feel totally unpregnant now. Apart from my swollen tummy. It just seems so improbable. I guess today I should move up the list, and Charlie really. I think it is also just that 12 weeks felt like the milestone and u haven't really been ableto think about anthing after that. Now am passed that and my stmptoms are fading (naturally, in the second trimester so they say) it's almost like - well I've achieved that goal, what happens now? In my experience pregnancy doesn't last longer than 12 weeks!

Has no one else found that due date /pregnancy tracker link I posted fascinating yet?

Crossed posts with Ari - very confusing re the early ovulation! Oh abd another creme egg fan too. Am off to see if I can score some aspirin xx

Eeek. Just off for my scan. Don't feel pregnant at all :( just wanted to say about the faint lines - pay no attention to them. I nearly was round the bend with worry over the faintness but it all has been ok so far x I just hope I don't have to look into the sonographers face when she tells me there is no hb. I hate early pregnancy worries x will post later x

free good luck with getting the heavy stuff ;) I did have a quick look at the link you posted and it is all v interesting stuff, but not relevant to me right now so I just bookmarked it for future use (hopefully!!). And you're feeling exactly what you should in 2nd trimester (now is that by Development, Gestation or Conception? jeez .. ! :) ), yukky symptoms go away and you haven't got into the third trimester killer-tiredness yet :) I can highly recommend the Dream Genii for when that bump (and so your back) gets just too uncomfortable to sleep, I found it a godsend!

ooooh good luck battery, be sure to post us the good news when you can! (see that sneaky PMA?)

Snoopy ? Good news and good luck with the intralipids today. PQ ? I hope things are a bit clearer in the next few days. I was going to say the same as Ari ? I don?t think those Boots tests are very sensitive.

Happy belated birthday to Euro and Battery!

How are you feeling now Ari? I?m generally fairly OK with other people?s pregnancies, but then I have occasionally really felt it and there doesn?t seem to be any rhyme or reason to it. Grief?s weird isn?t it.

Charlie ? Any acupuncture to make the baby a good sleeper sounds wonderful. I wonder where I can get that. Ds didn?t sleep through until well after 18 months, and being back at work with a baby who woke up 4 or 5 times a night was really hard.

Kittens ? I can sympathise about the appointment cock-ups. When I was lying on the trolley being wheeled in for an ERPC they told me they?d refer me to the Recurrent Miscarriage Clinic. I chased it several times afterwards and it just hadn?t been done. Each time I chased someone apologised and said they would do it and then nothing. It was several months before the referral was done. In the end I made an official complaint. Not in a ?heads should roll? kind of way but to let them know they need to tighten up their systems. To their credit they did sort it out and slotted me in when someone else cancelled, and I?ve been told they?ve changed the way they do referrals now, so hopefully the same thing won?t happen to someone else. I?m sure it?s the last thing you feel like doing at the moment, but might be something to think about when you?ve got a bit less on your plate.

Freelance ? I?m a bit worried about you being hospital-less. Are you happy with that at the moment (Sorry if you?ve already talked about this and I?m behind. This thread moves so fast)? Would it be worth you booking in to your local and then self-referring elsewhere later? They?ll pass all your notes on. I changed hospitals when pg with ds and am planning on doing the same this time. It was very straightforward. Have you had additional appointments with your endocrinologist to check your thyroid situation? That?s crucial as well during pregnancy.

Euro ? It must be good to know that everything?s in place for the IVF if and when you do get to that stage, although hopefully you won?t need to.