DLA wait times part 17.. (2023)

[Mummyrach13]

Following on from part 16…..

@ARH36 so sorry to hear that 😭

The wait is finally over. Just had a phone call asking a few questions about my sons claim. He's been awarded HRC and LRM !!!

@Muva25 you would hope they do see that they clearly need more care then, even more so because you live it everyday! I have everything crossed for you! My son is 10 and has asd his school have said emotionally and socially he is at the level of a 7 year old, academically he works at the level of a 13 year old, at home we struggle so much with him and meltdowns and sleeping etc

omg @ARH36 I was really rooting for you…could I ask if you don’t mind why you applied also if you sent lots evidence? You know take this to MR!! Don’t give up! Truely feel disheartened for you! Xxx apeal soon as you get your forms xx

@Hannahlou94xx could I ask your scan date?

I looked into this. The Difference between MRC and HRC is night time needs, so the answers to the questions on the form and the evidence need to 'fit' that iyswim. I think it's something like needing a niminum of 20 mins care at least two or three times per night (that's considered to be after the rest of the household has gone to bed)

OMG got through after 1 hour 40 mins.

Scan date 26/6 awarded yesterday HRC & LRM. I am shaking beyond belief and relived for my boy that someone has acknowledged his needs.

So sorry to the ladies with declines today absolutely fight it all the way and Good luck to you ladies still waiting this journey has been awful. I will be watching and routing for you all ❤️ x

You can only get HRM under two rules.

VUW = Virtually Unable to Walk
SMI = Severe Mental Impairment. You can only get SMI if your child receives HRC so you would have got it under VUW.

It’s great that DD received HRM as that will be such a huge help if you ever wanted a mobility car (even if you didn’t it’d still be a massive help!) definitely keep any documents from now up until renewal that you think will strengthen an award for HRC🤞Especially anything that’s related to your DD’s overnight care

MRC also includes overnight needs, just not as much as HRC includes. On renewal, if you send in a sleep diary of maybe a week or two then that would be some evidence of overnight care (along with anything from professionals ofc) @jlgsy94

Rang dla regarding a renewel
And a new claim i sent in and waiting times are massive said i wont here back until febuary as waiting times are 19 plus weeks for new claim and wont make a desicion on a renewel until the week its due to stop #long wait ahead 🙄✌️

Well done all being awarded ❤️

@Rebeccanew thank you for your support it means a lot! My son is on the ASD pathway, we have no diagnosis as of yet everything is just so lengthy. I don’t have much evidence I don’t really know what to send. I sent a copy of his referral and his EHA and EYFS record. I don’t really have anything else to send in.

I honestly think it depends who the pile goes to me @ARH36 because if I’m honest iv seen people send less than you and been awarded it…I definitely think that should be more than enough! Ring up ask for a full detail why it was declined and then do a mr with bulletpoints how they was wrong etc! Xxxxxxxx

I will do, the bloke on the phone was really nice and said he was sending me a copy out first class, hopefully it will come by the end of the week. Would it be worth sending in a sleep diary as well? Can we send extra evidence during an MR? Xxxxxx

My friend called they said taking 18.5 weeks to go to decision maker then maybe week or 2 for decision. So stressful not knowing

@ARH36 defo send a sleep diary if u can get any one from nursery/school to write a letter on what ur childs like in the setting ehcp/icp any other specialists hes under letters appointment letters, my daughter is on the asd pathway to and not much evidence
If your child has no understanding of danger/inside outside get that in there food adversions, saftey equipment in the home i have child gates, my little she has reins, if they need ear defenders for sensory overload
What they are like with meltdowns in pubic
Im just telling u what i wrote hope that helps
I havent been awarded yet but they said what i sent was enough !!!!
So sorry u had a decline fingers x they reverse it as soon as u send extra xxx

@Kyarcy1316 ahhh bless hopefully soon we will get some answers rooting for you and your little one xx

@Lollypops88 thank you so much for your advice. I can’t remember what I did and didn’t include it was so long ago but I will try again and keep you all updated 🩷xxxxx

@Mummyrach13 congrats sweet! So happy your times come to an end with waiting !!! So relieved for you! ❤️❤️❤️

@ARH36 oh and the speech and language report, any special provision involved get something off them, family members any one that knows ur little and your struggles
Have faith it will be overturned i just seen some one on page 13 whos very simular to us and shes just had hers overturned 💪🤞🌈

Hi ladies I’ve been lurking for a while scan date was 23/6 for back pay today of 1225 I keep getting cut off in the phone does anyone know what rate this may be? Son is 4 thank you xx

@Lealea2020 sounds like MRC sweet , congrats❤️

Thank you so much xx

Went to DM Monday,

called every day since Monday and I’m on hold again today 😎 I don’t care what they say or when they suggest me to call I need to know daily updates for myself ! Don’t feel like a pester 😂😂

@Lealea2020 sounds like middle rate care congrats 🌈🌈🌈

I really am shocked I was expecting a no xx