Morning
Got an official letter yesterday saying ds has been put on the waiting list for ASD assessment by the specialist team, but that the service is oversubscribed and they will contact us nearer the time. I read on their website that you can ring to get a rough idea of timescales, so rang straight away, but the woman is away until next Tuesday. According to the school, they have children who have waited 18 months to be seen. and
Then this morning we got a letter pushing back his coeliac test appointment to August when we away are on hoiday. So that's sort of decided things for us.
We are going to call the gp for a telephone consultation next week, as apparently they can order the blood test and if they are willing to get him tested at the end of May we might struggle on for for a few more weeks. There would still the possibility of a false negative though, unless he eats mammoth amounts of gluten from now until the test day.
Dog, in one sense diagnosis isn't that important, as the only treatment is a gluten free diet. On the other hand, true coeliacs are at risk of developing conditions such as osteoporosis and bowel cancer in later life if they don't stop eating gluten and in some cases the immune response is so severe that they can't have even any cross contamination of food, so need separate cooking utensils, chopping boards or pans etc and food has to be stored completely separately from the rest of the family's food. Unfortunately, our house is so tiny we wouldn't really be able to have two sets of everything and separate storage, I struggle to store enough pans etc for the family as it is.
So, ideally we need to know if he has true coeliacs or just a sensitivity compounded by leaky gut as it has implications on how we manage his diet and the home environment.
Chef, sounds amazing having deer coming right up to your house. Dd sounds like such a sweetie.
Have to go and ice the cakes now - am feeling very nervous about how this one is going to work out. Ds2 has BIG ideas!