prayers, candles, chants, hand holding for Aillidh...much hand holding for continued positive news

[psychomum5]

so many wonderful threads, but they appear to hate phone apps so hoping we are all okay with a shiny new one.

wonderful positive news to wake to....the girl has spirit and fight!! Long may she continue to astound us.

cute Myeloid Leukaemia - Aillidh's Search For A Donor · 2,779 like this.
about an hour ago ·
It is 5.08AM. Aillidh is with us still, with sats that have remained in the 70s for the night, even when moved, and a stable pulse, and pupils reacting normally to light stimulus.

Sorry phone seems to need everything posting twice.

sats this low are not great, especially being for so long, but it is not without hope and she seems to be responding as she should (well, pupils reacting and reflexes etc from what I can garner from the updates).

she is sedated, and she is being kept painfree.

but, the updates are positive and she seems to be stable, and her sats are higher than yesterday, so we must take from that that Aillidh is fighting hard.

Thankyou Psychomum

Brings tears to me eyes. I am holding your hand expat. My ds's sats were terribly low when he was a baby and very very poorly. But he did turn a corner. He did pick up. She has so much to live for. We have to keep willing her to fight on, to listen to mummy's voice and to keep looking at the light. Thinking and praying for you all very hard still here in Devon. xx

My heart is with Aillidh, expat and their family.
Stay strong, little lady x

My heart is with Aillidh, expat and their family.
Stay strong, little lady x

She is the most amazing child I have ever known about.

70-75% sats is very low. Less than 95% is seen as non-optimal in most patients. What it actually means, well it would be foolish to speculate, except to say that it means Aillidh is very, very poorly.

If her blood pressure and cvp are good, then it isn't so much a problem getting her blood around her body, as being able to get the oxygen into her blood from her lungs, by the sounds of it.

It's warmed my heart to read the updates - keep going Aillidh xx

in my thoughts what a fighter xxx

I am in Sicily on holiday and I've been thinking of ailidh. This afternoon we are going to visit some villages and if I can I will pop into a church and light a candle for her and say a prayer to their local saint. Expat I cannot imagine how you feel but the love of the whole world is with you. Chin up xx

keep fighting Aillidh, we're behind you all the way. you are one amazing little girl xx

Please God, we need Aillidh better. We need her lungs to strengthen. We are thankful for the fight that she is putting up, but please we pray for more improvements. We pray for her sats to rise, step by step, so that she can have healing oxygen circulating around her body. We pray for her to run, jump and play.

Love & prayers from a fellow Glasgow mum. We r all thinking & hoping for u. X

Am on holiday but sending love and strength. Keep going Aillidh. X

Aillidh's fighing hard so I'm going to pray hard. Miracles can happen.

Drat, fighting.

You would aim for Sats of 95% and above in someone who is well and has no lung problems. You aim for 88-92% in someone who has breathing difficulties. The fact that she is maintaining them in the 70s is not ideal but not deteriorating is a good sign (and I think she's on slightly less oxygen than she was yesterday). It would be good to see that start to improve today though so keep praying/sending positive vibes!

Just came back home and had to check for updates.happy to see that Aillidh is still fighting .wha a spirit that child has.

Standing determined, willing her to keep fighting. I have my candle lit.

We are all willing Aillidh to get well. Dd1 keeps asking if there are any updates.

Praying for an improvement in Aillidh's lungs. Take strength from us all. Thinking of all other families with poorly children x

Candle lit and sending prayers to strengthen her lungs. What an amazing girl x x

Strong, brave, little Aillidh. Keep fighting. Offering prayers and a hand to hold.
Expat a hand for you too.
My love and hope is still with you. Xx

Such a miracle aillidh is stil here and stil fighting. Keep fighting little one you are an amazing little girl x

Offering prayers for Aillidh, specially for her lungs to get better.