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Original poster

Brain tumour has recurred :(

200 replies

cfulton89 · 08/11/2020 16:02

Just need a place to vent really. For background, in 2017 I had a grand mal epileptic fit, got rushed into hospital and found out I had a fist sized primary brain tumour. I had to have surgery while awake, followed by 6 weeks of radiotherapy and almost a year of chemo. I miraculously got pregnant ten months into what was meant to be a year of chemo, but obviously not intentionally. However the pregnancy went perfectly, the tumour has been unseen since and I have a wonderful baby girl.

I think now it's started to come back I'm a lot more scared. Partly because I know what's coming and more so because I don't want to die and leave my LO. My husband is really good and supportive and I'm lucky to have him through this but the odds aren't great for a second tumour. It was a grade 3 before, they usually grow back worse. I've managed once but I can't leave. As ridiculous as it sounds, I'm not ready. Within the last few years we've got married, had a kid, we literally just had a mortgage approved and are getting keys on Monday, I'm studying part time to get a better job and we were going to try for another baby. I'm just so gutted that this has fucked it up. I was happy :(

OP posts:
Strawberrypancakes · 02/12/2020 13:31

This reply has been deleted

Message withdrawn at poster's request.

Wisteria1979 · 02/12/2020 15:58

Thinking of you and hope it goes well.Flowers

CoffeeRunner · 02/12/2020 16:05

Hope everything goes as well as it possibly can on Friday OP Flowers.

Takingontheundead · 02/12/2020 16:10

Gosh your posts have really moved me.

I'll be thinking of you on Friday

Mincepiesallyearround · 02/12/2020 16:11

Good luck OP, will be thinking of you tomorrow.

MeanMrMustardSeed · 02/12/2020 16:14

Wishing you the very best, OP.

potter5 · 02/12/2020 16:38

Wishing you well for Friday. Flowers

Happyheartlovelife · 02/12/2020 16:59

My friends niece is dying of a DIPG. It’s so so sad. I feel you OP. A brain tumour is just that. A brain tumour. I’ve often thought of you. The symptoms of a brain tumour are horrible. I also work with people who have pituitary tumours. So I’m here if you ever want a friendly ear xx

AngelDelightUK · 02/12/2020 17:15

Thinking of you and sending vibes for tomorrow

PolarnOPirate · 02/12/2020 17:20

Bloody good luck for tomorrow Flowers

Goldensnitchy · 02/12/2020 20:35

Thinking of you for tomorrow Flowers

shiningstar2 · 02/12/2020 21:18

Hope it goes well for you tomorrow Flowers

AnneShirleysNewDress · 02/12/2020 21:37

Good luck tomorrow Thanks

Original poster
cfulton89 · 02/12/2020 22:08

Thanks everyone. In just going in to stay tomorrow because the op is early on Friday, as soon as I'm able I'll let you all know how I'm doing. I really do appreciate the support, I feel much less alone

OP posts:
YellowHighlighterPen · 02/12/2020 22:17

Good luck. I hope you get the very best possible outcome. ❤

kate288 · 02/12/2020 22:18

Good luck for Friday 💐 it sounds so tough, so sorry you're having to go through this.

newnameswhothis · 02/12/2020 22:20

Wishing you the very best OP Thanks

aibusux2u · 02/12/2020 22:28

Good luck. X

docemmett · 02/12/2020 22:33

Thought are with you x

Gifgif · 02/12/2020 22:33

Good luck OP. Flowers

longcoffeebreak · 02/12/2020 22:43

Good luck

Biglumpycustard · 02/12/2020 22:44

Could I ask you what your symptoms are.

Somewhereelsewhere · 02/12/2020 22:54

I can’t imagine what you are going through.
I will be thinking of you very much.

iMatter · 02/12/2020 22:55

Good luck. We are all behind you. Thanks

aeiouaeiouaeiou · 02/12/2020 22:56

Sending masses of good luck for a successful op xx