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Brain tumour has recurred :(

200 replies

cfulton89 · 08/11/2020 16:02

Just need a place to vent really. For background, in 2017 I had a grand mal epileptic fit, got rushed into hospital and found out I had a fist sized primary brain tumour. I had to have surgery while awake, followed by 6 weeks of radiotherapy and almost a year of chemo. I miraculously got pregnant ten months into what was meant to be a year of chemo, but obviously not intentionally. However the pregnancy went perfectly, the tumour has been unseen since and I have a wonderful baby girl.

I think now it's started to come back I'm a lot more scared. Partly because I know what's coming and more so because I don't want to die and leave my LO. My husband is really good and supportive and I'm lucky to have him through this but the odds aren't great for a second tumour. It was a grade 3 before, they usually grow back worse. I've managed once but I can't leave. As ridiculous as it sounds, I'm not ready. Within the last few years we've got married, had a kid, we literally just had a mortgage approved and are getting keys on Monday, I'm studying part time to get a better job and we were going to try for another baby. I'm just so gutted that this has fucked it up. I was happy :(

OP posts:
Thewithesarehere · 02/12/2020 23:12

It is so hard and you are so brave! I saw your post just now. I wish I could say something to make you feel better. All I can say is this: I work in science and we are working very hard to bring a new drug to the market for patients not unlike you. Today I have been awake since 7 and worked till I could barely read anymore words, giving it my very best just so when it comes to the patients, it can help them get more time with their family and loved ones.
I hope you get loads more time with your DC. Please keep us posted. I will be thinking of you constantly. FlowersStar

yaboo · 03/12/2020 01:54

fingers crossed everything goes good x

hellsbells99 · 03/12/2020 02:08

Good luck Op Flowers

Hollywhiskey · 03/12/2020 02:49

Good luck for your operation x

relievedlady · 03/12/2020 03:21

Very best of luck op Thanks

Sending strength your way

CakeCake

thaegumathteth · 03/12/2020 03:25

Good luck ShockThanks

thaegumathteth · 03/12/2020 03:26

Ignore that first emoji sorry

2018SoFarSoGreat · 03/12/2020 06:23

Very best for surgery @cfulton89. We're all here sending you positive healing thoughts and 💐

Peridot1 · 03/12/2020 06:34

Have just seen this thread.

Wishing you the very very best of luck. And lots of healing thoughts.

StealthPolarBear · 03/12/2020 06:46

Best wishes for the morning Flowers

minmooch · 03/12/2020 07:23

So bloody frightening for you all. My son had a medullablastoma so understand the fear, anger and disbelief. Wishing you all the best for a smooth and successful op.

RandomMess · 03/12/2020 10:00

Thinking of you today Thanks

FlatandFabulous · 03/12/2020 10:11

Good luck x

cfulton89 · 04/12/2020 09:15

Tumour has basically quadrupled since the scan I had before. They can't operate this morning, I'm having an MRI with contrast dye in the next hour and then figure out a plan B.

OP posts:
HoollyWugger · 04/12/2020 09:21

That's utterly shite, OP. My heart goes out to you x

newnameswhothis · 04/12/2020 09:33

Fuck, my heart goes out to you OP.

We're here if you need somewhere to vent

cakeandchampagne · 04/12/2020 10:10

Sorry to hear things are even worse than expected. Hang in there. Flowers

notapizzaeater · 04/12/2020 10:12

That's shit 😭.

zippityzip · 04/12/2020 10:19

Fuck OP - that's shit news. I'm so sorry you can't have the surgery.

I hope you're real life support is epic.
I know my words mean nothing but I honest to god (not even religious) am sending strength, good vibes, luck and all sorts of shit possible to hope for the best outcome.

cfulton89 · 04/12/2020 10:25

Thanks everyone. It all depends on the scan now. They might still be able to operate but it'll be awake if it's possible and then chemo, radio etc. If they can't operate it'll just be the latter and keeping it under control as much as possible

OP posts:
YellowHighlighterPen · 04/12/2020 11:01

That's so awful. I'm so sorry.

SnoozyBoozy · 04/12/2020 11:35

I'm so so sorry. I don't have any words of wisdom, but sending you hugs and best wishes and hope they manage to come up with a good plan B Flowers

MeanMrMustardSeed · 04/12/2020 11:42

I am so sorry to see this update op. Sending you every best wish and praying for you and your family.

Peridot1 · 04/12/2020 13:01

Oh shit. I am so sorry. I’m sure you feel like you’ve been punched in the stomach.

Wish there was something we could do or say to help. Words are inadequate at times.

Really hoping they can operate.

Borntobeamum · 04/12/2020 15:14

Shit fuck and bugger 😓