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Brain tumour has recurred :(

200 replies

cfulton89 · 08/11/2020 16:02

Just need a place to vent really. For background, in 2017 I had a grand mal epileptic fit, got rushed into hospital and found out I had a fist sized primary brain tumour. I had to have surgery while awake, followed by 6 weeks of radiotherapy and almost a year of chemo. I miraculously got pregnant ten months into what was meant to be a year of chemo, but obviously not intentionally. However the pregnancy went perfectly, the tumour has been unseen since and I have a wonderful baby girl.

I think now it's started to come back I'm a lot more scared. Partly because I know what's coming and more so because I don't want to die and leave my LO. My husband is really good and supportive and I'm lucky to have him through this but the odds aren't great for a second tumour. It was a grade 3 before, they usually grow back worse. I've managed once but I can't leave. As ridiculous as it sounds, I'm not ready. Within the last few years we've got married, had a kid, we literally just had a mortgage approved and are getting keys on Monday, I'm studying part time to get a better job and we were going to try for another baby. I'm just so gutted that this has fucked it up. I was happy :(

OP posts:
2018SoFarSoGreat · 04/12/2020 15:52

Damn. That's horrid. Plan B it is then. Shit. So sorry

mollscroll · 04/12/2020 16:00

I'm so sorry - what a horrendous piece of news. Wishing you strength through this.

Sunflowergirl1 · 04/12/2020 16:11

Good luck

ducklingg · 04/12/2020 16:17

Good luck OP 🤞🙏

Bumble84 · 04/12/2020 16:52

Brain tumours are fucking arseholes, worse than arseholes! Sorry you’re going through all this

frustrationcentral · 04/12/2020 18:30

Bollocks to bloody brain tumours

My DS was diagnosed with one when little, had chemo and has been stable since (3 years). They really are the pits and have changed him so much 

Wishing you the world @cfulton89

Apileofballyhoo · 04/12/2020 18:47

I'm so sorry to read this, OP. And the other posters with similar journeys woah and prism. Flowers

Thinking of the three of you.

RIPWalter · 04/12/2020 18:57

My dad died of a grade 4 glioblastoma 3.5 years ago after being diagnosed 11 months before.

I think a lot of well meaning people struggle to get their heads around the concept of good and bad prognosis in these situations, and then end up saying unhelpful things. Good is a few years bad is a few months, there are no winners. My dad was just lucky that he was 68 when he got his tumour not 28 or 38.

My heart breaks for you OP and your little girl.

Thewithesarehere · 04/12/2020 20:55

I am so very sorry to hear this. Cancer is a bastard. I hope you have been able to rest a little. Have some CakeWine and lots of Flowers

RandomMess · 05/12/2020 11:13

😢

It's utterly shit, thinking of you Thanks

PuggyMum · 05/12/2020 16:41

I'm hoping no update means they were able to operate yesterday.

You're in my my thoughts and prayers that they can keep it at bay x

missyB1 · 05/12/2020 16:52

Thinking of you OP, hoping you are ok Flowers

CoffeeRunner · 06/12/2020 11:24

How are you today OP?

Thanking of you & hoping that the latest MRI scan was positive in terms of options Flowers.

CoffeeRunner · 06/12/2020 11:24

Thinking.

cakeandchampagne · 06/12/2020 11:49

Thinking of you.

minmooch · 06/12/2020 14:35

I'm so sorry to Hear your news. I hope Drs can find a way through. X

cfulton89 · 15/12/2020 10:05

I'm at home, tumour is a bit larger and affected speech and movement so I'm going it's a hell road am to do me best

OP posts:
user1497873278 · 15/12/2020 10:36

🙏❤️ Bless you so pleased your home, lots of MN hugs

Alarae · 15/12/2020 10:38

I have no words OP however I'm glad you are in the comfort of your own home and indulge yourself Flowers

CoffeeRunner · 15/12/2020 14:35

Sending you love & hugs. So glad you’ve been able to come back home Flowers.

Peridot1 · 15/12/2020 14:56

Sending you lots of love and hope.

Wisteria1979 · 15/12/2020 18:25

Glad you are home with your family. So sorry to hear how it’s affected you. Sending you loads of positive thoughts and Wishing you a restful Christmas at home Flowers

2018SoFarSoGreat · 16/12/2020 03:12

@cfulton89 good to hear from you. You've been on my mind.

I am glad you are home. I so hope that you find ways to be happy, despite this bloody invader. Sending you a big cuddle.

Lifeispassingby · 16/12/2020 03:22

Just read about your journey to this point. Thinking of you and hope you are comfortable at home with your family xx

Monday55 · 16/12/2020 04:01

Your story really touched me OP, I'm very sorry you're going through this. Did a little prayer for you to have strength during this extremely difficult time 🙏