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Tamoxifen - advice please !

562 replies

MargaretMountford · 27/05/2009 11:20

Am going to be starting Tamoxifen shortly, was just wondering whether anyone else is on it and can tell me what it's like ! thanks !

OP posts:
MaryAmericanSmooth · 27/09/2009 16:41

Cakes -am forgetting myself - hope all goes well this week, and you too RWU

reallywoundup · 27/09/2009 18:13

hope everyone is in good spirits today! I have dt's 6th birthday's tomorrow so the party was today- 50 hyper children (in two sittings ) running around the local soft play centre- i am buggered now!

Right cakes- good luck for chemo! MAS calm down and relax, Morph- chat when you are ready!

MaryAmericanSmooth · 27/09/2009 19:47

blimey RWU - am in total awe

reallywoundup · 27/09/2009 22:23

I'm fine- really i am

Cakesandale · 28/09/2009 09:28

50 kids. Aaargh! Hats off to you, RWU, wouldn't take that one on if I was in peak form!

Weekend away sounds fab MAS - I have been getting a bit hot in the night as well, I fear it may well be the dreaded you-know-what in my case, the chemo can start you off. Bugger!

Am off to various work-related stuff now - good luck to you all this week.

PS My hair has started to grow back betwen cycles - head looks and feels like suede

Cakesandale · 29/09/2009 12:49

Hi all

Just got back from my pre-chemo blood test: hopefully the last one. Having waited an hour and a half, have just found out that chemo patients can demand to be seen after half an hour.

Ah well, I doubt I'd have done it anyway, we were all in the same boat so it hardly seems fair.

Hope you are all doing well today, ladies: I am gearing myself up for tomorrow and the struggle over which arm to use......

MaryAmericanSmooth · 29/09/2009 13:04

oh Cakes -will be thinking of you xxxx

Cakesandale · 29/09/2009 13:19

Thanks! If you hear faraway screaming at about 10.30 tomorrow it will be me exercising my democratic right not to have my left arm used

MaryAmericanSmooth · 30/09/2009 11:52

hope it was ok

Cakesandale · 01/10/2009 09:56

It was fine, thanks - but exercising my democratic right did me no good at all. They strapped me to a table, gagged me, and did it anyway. (OK, they said it would be OK, checked with the consultant, and I rolled over - as always )

How are things with you, dh and the delightfuly named Theo? Are you still getting a bit hot under the collar at night - yeah, me too.

Your weekend away sounds fab, by the way, MAS - hope it did you the world of good. We are hoping for another one soon - SIL is pushing us towards taking their apartment in Bath again soon (the good times cease to roll soon when the contract ends and the glamorous flat gets taken back) so we are hoping to slot one in soon. And to arrange a holiday pre-Xmas - the school is coming down pretty hard on holidays in term time, but if we can fit one in, we are going anyway, hell, it's been a tough year!!

My big client board meeting went very well - all had been pre-warned (to save their embarrassment) and one of them was very keen to talk to me as her Mum has leukaemia and has to start chemo in the next few months. So it was all fine, and I think I will finally boot the wig out of the door. That was the only reason I was keeping it - for potential big meetings. I didn't wear it to this one, it was fine, so I don't think I need that backstop any more. let me know if you know anyone who might want to go to a party as a drag queen and I'll send it right on over !

RWU is uncharacteristically quiet - has her treatment started, do we know? Sending lots of good thoughts and positive stuff, and crossing everything that is not too painful..

MaryAmericanSmooth · 01/10/2009 13:44

glad the chemo was tolerable and that the client board meeting went well too - did you wear your wig or scarf or go au naturel ?
Am hoping too that RWU is ok and not feeling rotten - not sure if treatment has started yet.
Have been ok at night and seem to be sleeping ok, so imagine it might've been the change of bed etc !! I have felt like just curling up and going to bed anyway,as it's chilly and I do feel tired - I haven't even read my book before sleep (mind you,it is deathly dull Picture of Dorian Gray - for bookgroup- I fear I shall give up)
The head bcn from hospital rang me back yesterday (I'd left a message for my nurse about cbt - apparently she isn't well) and she was really nice and they will speak to my gp for me -I'm sure I'd dither about if left to me,plus I feel awkward explaining my whole history of ocd - bit scared now of cbt !! Apart from that all ok..saw an old friend from London on Tuesday and she was very concerned and sweet - she told me how well I looked which makes me smile as I don't see that I should look 'ill' or different !! Of course,that's a euphemism for fat too but think I'm same size as before !! An even older friend saw me the week before last and said I looked tired !
Theo is very well and jolly,though it depends on what kind of day he's had- I may leave him for half an hour while I nip to post office to collect a package - nothing exciting-I suspect it's just finished artwork being returned by publisher. Must make him do singing practice too- he is usually compliant,sometimes huffs about it, but I think he really wants to do well with it ! I will be so proud if he passes the exam well
Take care and let's hope we see RWU v soon

Cakesandale · 02/10/2009 09:25

Hi there

Wore the scarf for the meeting, def. NOT going au naturel anywhere for a while yet!

Theo sounds lovely, did not know he was a singer, you must be very proud. What exam is he doing?

I know what you mean about people's comments - dh's family are all Irish and when they say "You look well" they mean "fatter".

An even worse one - we were at the hospital on Wed for my chemo and someone was moaning about the car parking prices - I said we got free parking owing to my constantly having to be there. The woman said "Yes my sister is in the same boat, shame you have be terminally ill to get it though" Aaargh!! She probably kicked herself afterwards (at least I hope she did!!)

have a good weekend!

xx

MaryAmericanSmooth · 02/10/2009 11:26

I suspect she may not have !!
T is doing his grade 1 singing exam in December - he has lessons once a week and sings in school choir too - not many boys do this so I do have to keep saying how cool it is - he is very keen to go into music and has a nice voice so have encouraged singing - he is a shy boy but curiously unselfconscious about singing !!
Have a lovely weekend too xx

reallywoundup · 03/10/2009 15:43

urrgghhhh! i'm here no energy to type but marking my place for now!

MaryAmericanSmooth · 03/10/2009 18:09

lovely to see you RWU - rest up now and see you again soon !

Cakesandale · 04/10/2009 10:38

Hi RWU

Don't worry, your place is always marked here!

Good to hear from you, rest up and I hope to catch up soon. Thinking of you!

xx

MaryAmericanSmooth · 05/10/2009 14:24

hi both of you - hope you're doing ok and not too depressed by this dismal weather. Am feeling a bit and foolish as I have managed to scuff the wheel trim on a brand new (as in I'm the first person to drive it) car by going too close to the kerb when parking - it's a courtesy car from the garage while mine is being serviced - am sooo cross with myself -I'm always doing that to mine but I really should have been more careful in this one -of course I shall tell them when I go to pick up my car larer...grrrr

Cakesandale · 05/10/2009 14:53

Oh tish,

it is annoying, isn't it - i am a bit prone to kerbing cars myself - never mind I am sure they have seen worse.

I am OK thanks, the weather isn't too dismal here but work is proving a bit of a trial. And I have broken a tooth, which is making my tongue really sore. Ooch! Have to got o london tomorrow, but am hoping to get the bloddy tooth sorted on Wednesday. Even hurts to talk. Gah!

I have a meeting next week to discuss radio and tamoxifen.

MaryAmericanSmooth · 05/10/2009 15:07

ow about tooth - what a pain..hope London trip goes well !
Am feeling quite upset about car,silly I know in the scheme of things -I was so excited about having something brand new too ! I am being very self critical and hard on myself at the mo. Have just printed some comps. slips for an old neighbour (where I lived before) -and am fretting about whether they are done properly or well enough - she wants to pay for my time/design/paper/ink etc but I feel I can't charge because it's not good enough (in my mind anyway) Argghhh..I know I will mull the car thing around for ages -I just feel bad about it.
Back to your radio. and tamox meeting next week - I guess they might have an idea of how many rads and when your planning session might be coming up.

Cakesandale · 05/10/2009 15:09

God that was a miserable, self-indulgent post, wasn't it?

Sorry, am fine really, just under a bit of work pressure. So is DH so we are a miserable pair of tossers at the moment.

Hope all is well with you all, including MorphFan, who seems to have disappeared for now.

Will be back in a hopefully more cheery frame of mind following trip to London. (Not in itself likely to cheer me up, as I am not a big fan of the place...)

MaryAmericanSmooth · 05/10/2009 16:51

did you mean my post too !! I do get myself in a pickle- garage man was ok about the scuffing and said he'd sort it - I just feel cross with myself for carelessness !
I was wondering about MorphFan too - hope she's ok & hello if you are about
Have just made hot choc and malted milk biscuits for me and ds who has a bad cold.
I have a soft spot for London,being from W London,but now escaped..wouldn't want to live there anymore but I get pangs now and again - it was brilliant growing up there and being so close to everything - I went to a London art school too and my years there were the best ever.

MorphFan · 05/10/2009 16:54

Hello Ladies - my ears must have been burning!

I've sat down several times to post - but have found it quite difficult (it feels a bit like butting into a group of mums at the school gates - iykwim). I did read through the whole thread after my weekend away - but really need to do that again as I don't seem to have retained much info

Lets see - Mary I think has completed radiotherapy fairly recently and Cakes has just completed chemo and is now waiting for radiotherapy. RWU - I think you have probably had more than one course of chemo already and are in the middle of another lot now. I'm sure you won't thank me for saying this, but - I have nothing but admiration for your strength of character up til now and look forward to another wave from you soon.

So - me. I'm booked for surgery - almost certainly mastectomy - on the 16th. Then chemo and radiotherapy. I'm (mostly) positive that all will be well in the end - but not looking forward to the bit inbetween! I think I said before we have two children DD not quite 3 and DS 1 - who are certainly helping to keep my days occupied while I wait for the 16th...

Morph

MaryAmericanSmooth · 05/10/2009 17:16

oh there you are !! please join in any time - we aren't being a clique I hope !!!! You are right about me -finished rads in July...am sure that Cakes will be back shortly and RWU too.

MorphFan · 05/10/2009 19:08

Oh no - I didn't mean cliquey. I just meant breaking into a conversation between a group of friends. Clearly something I find difficult in RL and on t'internet . Also, RWU - hope you don't think I was too cheesy. I am as much in awe about you hosting a party for 50 children!!

Did any of you have a mastectomy prior to chemo and/or radiotherapy??

MaryAmericanSmooth · 05/10/2009 19:45

no mastectomy,just WLE and sentinel node biopsy for me..

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