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Tamoxifen - advice please !

562 replies

MargaretMountford · 27/05/2009 11:20

Am going to be starting Tamoxifen shortly, was just wondering whether anyone else is on it and can tell me what it's like ! thanks !

OP posts:
MaryAnnSingleton · 05/11/2009 13:00

make that hot choc for me...
good luck tomorrow RWU -thinking of you xxx and KurriKurri- hope treatment is ok this afternoon...will be watching Strictly with ds probably !!
I imagine I may get an invitation for swine flu,not because of bc obviously, but because of having no spleen (have had regular flu jab) - my immunity is meant to be compromised because of the spleenlessness - but am not bothered particularly..

Cakesandale · 05/11/2009 14:21

ooh yes, hot choc - perhaps with a wee whisky in it? A girl can dream..

Actually has anyone else found tamoxifen mixes a bit badly with wine? I went to a wedding on Saturday and had a few glasses of wine over the day - not loads, but it builds up with the toast, the meal, the party etc - and i felt decidedly odd. Think it must have been the tamox. Never felt that way before - anyone else? Or are you all to clean living to know?

MaryAnnSingleton · 05/11/2009 15:00

I do think it increases the 'influence' - after just 1 glass I feel aware of it ! also I do really think that my anxiety levels are getting higher than usual, so must keep an eye on that.

MaryAnnSingleton · 05/11/2009 15:01

do you know,it took me three goes to get this message to come out...this new format thing is crap

Cakesandale · 05/11/2009 18:40

Yeah I have had a few messages get lost as well!

Know what you mean about the anxiety as well - I am usually the least anxious person I know (too lazy to worry, I think) but i have felt a bit of anxiety over the last week, which is MOST unlike me.

maybe it settles down.

Have you got anything sorted ref your CBT?

MaryAnnSingleton · 06/11/2009 09:42

have started a new thread as I can't get anything to come up on this thread here

MaryAnnSingleton · 06/11/2009 09:43

well that worked, so maybe this thread is mended ?

Cakesandale · 06/11/2009 09:44

I know RWU doesn't set much store by what we (in our house) call "weirdy beardy" therapies and stuff, but I have lit a candle because i am thinking about her today as she goes for her scan.

It has a nice smell too, so we are all winners! (Kenneth Turner 'Blue Tangerine' MAS, as I know you are a connoisseur of smells)

MaryAnnSingleton · 06/11/2009 09:44

I think it's something to do with favourited threads - I have accessed this on 'threads I am on'...
is it worth continuing on this or trying the new one - don't want anyone to think we've gone AWOL

MaryAnnSingleton · 06/11/2009 09:48

no,still not working for me on favourites...
a candle is a lovely idea Cakes, especially nicely scented one. Am sending loving kindness and golden light,not too weirdy but a Buddhist thing...my mum who is one,surrounds loved ones with a golden light to protect them- always very comforting.

MaryAnnSingleton · 06/11/2009 09:50

Perhaps we should stick on this thread and I'll look for it on Threads I'm On instead -avoids confusion I hope !
Anyway, this is what I was trying to post...

Am sick of my messages never getting through - I have had 7 attempts to reply to Cakes' last post- am starting a new thread ....
this is what I wrote anyway.....

righto, this i my 7th attempt to reply on this thread - everything keeps disappearing !
My assessment is on 25th,and am told to allow two hours for it,crikey !!
Saw a lady in town yesterday who was having rads and finished at about the same time as me and she's just seen the onc. for her follow up - they are running very behind I know- so I emailed to ask about mine - I tie myself in knots in trying to be assertive yet not too needy or a nuisance - I suppose I just like to feel that everything is done in order. Am not worrying about my health -am sure breast is fine and dandy, it's more my emotional state which troubles me.
Anyway, they have made me an appointment but it's at the same time as my assessment so have emailed back and left a phone message...arghh !
Special thoughts for RWU today and of course KurriKurri - hope all ok..and of course you Cakes and Morph.

Cakesandale · 06/11/2009 10:23

Right MAS

I am going over to the other thread you have started. All your messages have popped up here at once, maybe it is becuase this thread is so large now, it often takes ages for me to load. Let's start with a shiny new one.

Am off to reply to you over there.

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